March 2016 Surgery

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  • Seedsally
    Seedsally Member Posts: 260
    edited March 2016

    Please add me to the list. I am scheduled for a surgery on left breast 3/14/16 to remove atypical hyperplasia tissues and check for cancer cells there. If negative I am to have either UMX of right breast or lumpectomy followed by radiation in 3 weeks. If cancer is found in left breast the plan changes but not sure in what way. Right now I know I have IDC of right breast and am very anxious to get it out. Time seems to crawl sometimes. I really appreciate all the tips I read on BCO. One thing I wonder about is I am not going to a cancer center and my surgeon doesn't talk about chemo or hormone therapy much when asked. He says it depends on my lymph node dissection (Sentinel). Any tips for me

  • grandma3X
    grandma3X Member Posts: 759
    edited March 2016

    JJ - I had a nipple sparing mastectomy and they did not put anything on mine. My breast was pretty small, though, and the blood supply was enough to maintain a nice pink color - unfortunately I'll be going under the knife again to remove it on Wed. because they found a tiny bit of cancer under the nipple :(

  • warriorwannabe
    warriorwannabe Member Posts: 66
    edited March 2016

    grandma, that is my fear right here (Im a nipple sparing candidate as well with small "packages"). How did they find cancer under the nipple AFTER the Mx?

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2016

    And a warm welcome to All of you new here to Breastcancer.org. Thanks for being here, and sharing your stories to support others.

    Warm hugs,

    The Mods

  • grandma3X
    grandma3X Member Posts: 759
    edited March 2016

    warriorwannabe - when they did the MX, they removed a strip of tissue from right under the nipple-aureola and submitted it separately for pathology (in addition to the rest of the breast tissue). They examined it as a separate piece and found a tiny focus of cancer. I should point out that MRI indicated that the tumor was several cms away from the nipple, but I had a palpable mass that spanned pretty much the whole left side of the breast. I asked 2 surgeons before my MX if that was the cancer, but they were both confident that the cancer was only a small part of the mass. In hindsight, I should have insisted that they biopsy the mass close to the nipple to be sure.

    The nipple excision should be quick and painless so I'm not too concerned about it. I've heard that some surgeons even do it in their office. I'll be in an operating room, but no anesthesia. They will just give me a light sedative to help me relax and will use a local anesthetic to make sure I'm numb. To be honest, though, I've had 2 fills of my TE with a huge 50 cc syringe and did not feel a thing (they don't numb you for that!) so I probably do not even need the local.

    Seedsally - welcome! My surgeon also would not discuss treatment after the MX but referred me to a radiation oncologist because the tumor was larger than expected.
  • iammags
    iammags Member Posts: 216
    edited March 2016

    image

    Hi everyone and thanks for the good wishes. I had the lx last Wednesday and will go in again this Wednesday to finish up the Oncoplastic surgery. I'm still not sure if I'll need a lx or a mx. I'm still waiting for the results.

    The surgery itself was fine. I hated the shots in the Nuclear Med dept. They burned. Ouch. Then straight up to get another mammogram and to have needles pushed into my boob. Again, not comfortable. But I lived through it! After I was on my bed in the pre op room I was given some "feel good meds" and I was again a happy camper. I've been feeling pretty good during the recovery, I don't think that the recovery from this next surgery will be better. I'll have drains and, ick, a much longer recovery.

    Mecool= I hope that you're feeling great!

    Chrismiss+ How did it go? Was it all you expected? Worse/better? I'm hoping that it went smoothly.

    Asante+ I got to shower 4 days after the lumpectomy and was told that it would be about a week after the reductions on both breasts. Maybe more if I have a mx / Good luck!

    I hope that everyone is feeling well. If you haven't had your surgeries I'm in your pocket when you do!

  • Mckaylaleigh
    Mckaylaleigh Member Posts: 90
    edited March 2016

    Hi all. Not up to posting much but wanted to let you know I am doing well. I will update my experience when feeling up to it but wanted to let those of you worried about the LN tracers....They didn't offer any numbing cream and I did fine. Just four tiny needles, easy peasy. Thank you allfor the prayers and prayers for advwright today. Back to sleep for me 😊

  • Sheree66
    Sheree66 Member Posts: 25
    edited March 2016

    Warriorwannabe and Grandma3x - I'm having a BMX but my BS can't save my nipples due to the tumor too close to my breast. I aso have a small package and my PS told me that it's going to be a challenge for him to close up my TE because he has to make sure that my skin tissues will have enough oxygen when he closed it up. But he will do his best to do the TE. But worst scenario, I may not have reconstruction during the mastectomy. He gave me an option to get tissue from my thighs but I will have an 8 inch scar on both thighs which I would rather not have. We feel confident in my PS that he will do his best. Keeping my fingers crossed and praying a lot! What's funny is that I thought having small breasts will be a lot simpler .... :(


    Glad to hear from you Mckaylaleigh! Hoping for your quick and painless recovery.


    Sending positive energy and prayers for Advwright for you today.
  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    Thank you Diane!

    I am off to see a nurse practitioner today to discuss the pain I'm getting on my right side most likely from the drain. It seems that certain positions must apply pressure in such a way that the tube does something that causes a pain sharp enough to take my breath away. I can sit and relieve it almost instantly but it's keeping me off my feet more than I'd like.

    They may remove drains but the same one giving me pain is still deep red. I'm just not sure what they'll say about that.

    Best wishes for your upcoming surgery!

    Jea

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    JessieJake - I'm heading In this afternoon to have a drain checked out too. It's painful after I drain it right at the site and it's dripping down my skin :( Hoping it's not a painful appointment but perhaps I can have the one on the left pulled out while I'm there. Good luck to you! Keep us posted!

    So glad to hear from you iammags and mckaylaleigh!!!! Continued healing vibes to everyone!

  • chris-miss
    chris-miss Member Posts: 11
    edited March 2016

    hello friends. My bmx went as well as could be expected. The doctors were pleased. However, the scars and loss of my breasts hit me much harder than I imagined it would. I felt like I had chosen to mutilate my own body. I felt ugly and angry. After lots of tears my doctor came in and told me that I didn't really have a choice with my left breast at all and the only choice I did have was to go bilateral. Even then, she said, under the circumstances (extremely dense breast tissue plus palb2 mutation) to take my other breast was hardly a real choice either. Her matter of fact personality really helped to comfort me. I'm not usually emotional at all and never felt too attached to my boobs, so these emotions were very strange to me. I hope these feelings aren't the norm for the rest of you.

    And the nipple/radioactive shot...was seriously painful for me. My whole chest burned. It was awful, but it lasted one minute and then the pain dispersed. I had one long needle with 2 shots. Again, my woman doctor told me how it would be with no sugar coating...everyone else used the words "slight discomfort" which always seems to translate to "hurts like hell!"

    Now I'm just really exhausted and sore, but feeling much stronger today. Thank you for your well wishes and I'm sending them back to you all!!

  • Asante314
    Asante314 Member Posts: 54
    edited March 2016

    Hello ladies,

    I am traveling (pre--op vacation) and having difficulty updating the list from my phone. I will update the list ASAP tonight or tomorrow am.

    in the meantime, I am thinking of all of you who had surgery yesterday, today and tomorrow

    3/7/16 - okbecca BMX no recon

    3/7/16 - chriss-miss BMX

    3/7/16 - Mckaylaleigh BMX SNB

    3/8/16- advwright Lumpectomy

    3/9/16 - Cincymomof2 PBMX w TE

    3/9/16 - grandma3X Nipple/areola complex excision

    3/9/16 - zfirebird Lumpectomy

    and welcome to all the new ladies joining our march... we are all here for you

    Asante

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited March 2016

    You all are making me very glad that I was already under when they did the injection.

  • Eleanora23
    Eleanora23 Member Posts: 91
    edited March 2016

    Hi! Could you add me to the list, as I have had my Partial mastectomy scheduled for March 24th. (Ellie)

    Wire placement the day before - March 23rd.. Just trying to absorb all the information and be prepared.

    I am curious about post-op pathology stuff, as my HER 2 status is at this point conflicting, and I guess there is an area

    here to check for that info. So much new stuff to sift through!

    Best, Ellie


  • Mckaylaleigh
    Mckaylaleigh Member Posts: 90
    edited March 2016

    Chris-miss, I am glad to hear you are doing well. That is strange about the LN shots, I guess like everywhere, different places do things differently. I am sorry you are struggling with your loss, I haven't let myself look yet, of course I am still still in the ace bandages from surgery. I know I am going to have some emotions when I do. I didn't have a a choice either but my life is way more important to me than my breasts, but it is still a loss. ~hugs

  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    hi Chris-miss,

    I can tell you I had absolutely no special feelings towards my breasts and didn't think I would care one iota about them being gone. And I really don't think I do care that they are gone but I have been actively not thinking about the surgery and I have not looked at my surgery area. it has been a week today. I have gone through a handful of crying jags just at the enormity of all of this. I think I can understand what you are feeling.

    I think I still need to figure out exactly how the forums work. I am doing this on my phone as I still feel I am quite the invalid. So excuse my rough looking posts.

    Maybe later today I will get to my computer and figure out exactly how all this works. In the meantime positive thoughts to everyone

    One odd question: I am continually having the let down feeling of prolactin like back when I was breast-feeding. Has anyone else experienced this? I can't complain about it but sure was not expecting that to happen.

    Jean

  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    Mecool - good luck!

    I hope you do get the drain out because I bet that will be a big relief. Wow, dripping down that's just crazy! I'm trying not to think too hard about everything. Because all of the weird feelings I'm having I know I could twist into some horrible thing happening to me but it is probably just all normal.

    Very curious to see what they say about the side that is still the deep red in my case.

    Also I'm slightly freaked out about if they will offer me pain numbing medication before they pull the drain. I've read both sides – either that it was no big deal or the worst thing they ever experienced. So that doesn't leave me feeling very confident about what the procedure will actually be like.

    Well, off I go! I'm actually going to try and make myself look presentable to the public so that I can head down to my appointment. No make up though. That just really seems to be over-the-top!

    Jean

  • new__me
    new__me Member Posts: 128
    edited March 2016

    Jean , when the drains are pulled it is just that... a tug and they are out. No numbing necessary. At least that is how my PS does it. I had 4 drains and 2 came out at 7 days and 2 after 18 days. I imagine it is like removing a bandaide ... you can go agonizingly slow and focus on every little twingevor it can be pulled and done

    Diane

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    Anxious to hear how your check goes Jean!

    Mine was all good, no infections and he just put a little derma bond on the one that was leaking. He was ready to pull one based on output but it was still close to 30 ml/day so I decided to wait on it until my appt on Tuesday. Hopefully two or better yet, all 3 can come out then!

    Interesting update on pathology report he just got today though. Good news is - clear margins! I feel so great knowing he got this all out of me! Interesting news, it was in my left breast too even though biopsy, MRI and PET did not reveal that. It was DCIS on the left, no nodes so not invasive....yet. He enjoyed telling me that I made the right call with the prophylactic mx on the left! Right side was a huge mess, 7 masses, largest one 1.5 cm and it was everywhere, including some skin. 14 nodes taken on right, 5 positive. I feel so good heading into the next phase of this knowing we are being proactive in hopefully preventing this pain in the ass from ever coming back!

    Still wishing everyone healing and calming energy during recoveries and leading up to your procedures. I think of you all every day!

  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    Mecool, glad for you to have received further validation on your decision via pathology. Wow, what an example of how even the most thorough testing simply can't catch everything,

    I'll hope for the drains to be removed next time.

    I am drain free! Wow, still surprised. NP said the dark red blood was old blood. Because I had 3 days (almost 4) under 30 ml they were ready to take them. I was very apprehensive but there was simply no pain except stinging at the incision spot for the tube. Took maybe 3-5 seconds to pull out. Crazy, they went in directly through my arm pit and circled my whole breast area.

    I can finally attempt to have good posture and place my arms at my sides.

    I was told to continue nitro paste on my right nipple in hopes it will live. The np was hesitant to say if it would survive or not.

    I see GS and PS Friday. Will be curious to get their input and hopefully my final pathology.

    Good evening wishes everyone

  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    thanks Diane! That was indeed what it was like. So glad to be one step further along.

    Jean

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    Yay for being drainfree!!!!! I'm counting down the days now and feel more hopeful that mine should all come out on Tuesday! Enjoy your comfort this evening :)

  • iammags
    iammags Member Posts: 216
    edited March 2016

    I just heard from my BS that there is no node involvement, which is great. Yippee. She thinks that it'll be stage 2 but isn't quite sure. Good news all around! So tomorrow I'll get both breasts reduced and then I'll be on to radiation, and hopefully no chemo ! I'm not looking forward to the drains but it's all going to be ok.

    Hoping all the best for all of you!

  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    best wishes iammags

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    I had my bmx yesterday. Spent the night in the hospital. Just got home a couple of hours. First thing I experienced on waking was euphoria that the cancer is gone. I had wonderful nursing care, and three of my girlfriends came to the hospital to help my husband. They told the docs they were "team Becky," there to help me.

    My friends from church are bringing in meals each day and I will have a visiting nurse beginning tomorrow. The pain was almost entirely gone in the hospital, but now, with all this moving around, it seems to be cutting through the drug. So, I guess I'll go climb in bed.

    The whole thing went great. I imagine I will grieve the loss of my breasts, but right now all I feel is relieved and elated that the cancer is gone.

    I'm also somewhat dumbfounded by all the love and support that I'm getting. People from my old job found about it, and have been calling and texting all day. My Rosary group, my Altar Guild, and my fellows at the places where I work now have been incredible. It's been a humbling and wonderful thing.

    One of the nurses asked me how I felt, and I said, considering that I just had my breasts chopped off, I was doing pretty good.

    That just about sums it up.


  • iammags
    iammags Member Posts: 216
    edited March 2016

    That's great that it all went well Okbecca. Is it okay to ask if you had both breasts removed after finding DCIS in one? Have you ever had genetic testing? I"m not choosing mx yet but if I find out that I have BRCA 1 or 2 I will remove both. I always think of these things and what other women have decided.

  • new__me
    new__me Member Posts: 128
    edited March 2016

    okbecca, welcome to the other side! I am happy to hear everything went well. What a wonderful testamony to your character that so many people are reaching out to help you. You appear to be a woman of great faith and kindness and i am sure everyone you've touched now wants to take care of you. Blessings. I will keep you in my prayers as you continue to heal. After my BMX i found out that a dear friend and her husband had been praying a rosary for me each day i was in the hospital. i felt so blessed

  • new__me
    new__me Member Posts: 128
    edited March 2016

    iammags i am brca2+ and underwent a PBMX as soon as i could arrange it. That was Nov 20 last fall. I had sentinel nodes removed as well. During the surgery they found an atypical ductal hyperplasia lesion deep in my very dense left breast. It had not yet become malignant. I am so happy i had the BMX. My sister who is also brca2+ is in the middle of treatment for a very aggressive bc.

  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    okbecca, Glad to hear you are home and doing well with awesome support. I hope your recovery continues to go well!

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    Iammage, I wanted this thing gone, gone, gone. That's why I had both breasts removed. My cancer (I called her "Plum") was an aggressive little beast that I was blessed to have caught before she got out of the box. I hope I never hear from her again.

    Here are a few things I learned from this experience. I pass them along to those who are still waiting. They may (or may not) help you. We're each different.

    1. Don't ask you husband to shoulder all your care alone. It's too much for any one person, plus men have more trouble processing their emotions than we do, which can make it tough for them. Try to get people who can help with specific tasks. For instance, one of my girlfriends volunteered to help with my sponge baths and I'm having home health do the drains and wound care.

    2. Tell people what you need. If you want them at the hospital, say so. If you want them to give you a breather and leave you alone for a few, tell them that, too.

    3. Get at least a couple of those horseshoe-shaped airline pillows. I put them under my arms, and they help big time. They also help with the sleeping on the back awkwardness. I also bought a little pillow thingy that wraps around the seat belt. I got it off Amazon. It was created by a breast cancer survivor who knows.

    4. I bought a bed wedge from Amazon. It's a big help.

    5. Bendy straws for drinks will help you avoid pouring water on yourself.

    6. If you are the praying kind, pray, pray, pray, The help God has given me has sustained me. If you're not the praying kind, use whatever spiritual resources that work for you. Cancer is a whole life illness and we need each other (this web site has been wonderful for me) and whatever other resources we can martial to get through it.

    7. If your doc allows, use ice packs. They help with pain and swelling both.

    8. Take your pain meds for the first few days. Take everything you are allowed, and sleep. I know from my caesarians that staying on top pain speeds recovery.

    9. All that advice about button up blouses and slip on shoes after surgery is true. Also, satin pajamas that slide you right out of bed. I bought my first pair of satin pajamas of my life for this surgery on the advice I found here at this site. It's good advice.

    I've gone from a D to divots. I look like a buddha. My next task is figuring out how to dress, which for me will be a matter of coming up with the most attractive disguises. :-) Many of you are so slim and pretty that you won't have that problem. But I certainly do.

    Blessings to each of you. Thank you for being here.


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