April 2015 Chemo Crew... Starting in April? Please join us!

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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2016

    So glad surgery is done. Keep us posted on the biopsy. Hoping you heal quickly with little pain.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited March 2016

    Yay Dizz! Heal well, and we will be in your pocket until the path comes back clear!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2016

    yay Dizz! Rest up now. Let them take care of you.

  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016

    Glad you're on the other side!

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited March 2016

    sending you light and warmth - heal well, rest, and drink a lot of fluids!

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited March 2016

    hi all! Checking in. I'm back at home safe and sound. I ended up staying 2 nights which was good because I was very uncomfortable and glad to have the magic button for pain relief! So she did some chest rebalancing by fat grafting, lowered my DIEP flap scar and did a scar revision. Took out ovaries and fallopian tubs and did some chin lipo. Feel like it been hit by a truck and then wrapped up like a mummy. I have compression binders on chest and tummy and compression tights. Let's just say peeing is a challenge! Pathology for ovaries and tubes were negative, so that was a relief! Onward and upward.

  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016

    Good news, Scarlett!

  • Rpayton
    Rpayton Member Posts: 235
    edited March 2016

    Hello all! Busy first week on the new job. Very rewarding to be back caring for patients. So many different types of cancers and my head is filled with patient stories and new information.

    Little blue, sorry to read about layoff. I hope it is very temporary.

    Dizz HOORAY that your fears can be put to sleep. I bet the PTSD hit hard and it can come out of nowhere. Accckkkkk and sorry you came during the cold, wicked weather week. This week we will be in the 50s with spring rains.

    Scarlett great news!!! Heal fast!!!

    Andrea glad you are feeling better! I hope travels and the grandkids are all good. Ahhhh the stress of returning to work I hope they figure it out. Keep us posted.

    Nothing but learning my new job and continue studying at night this week. Only 3 weeks until my exam. So much for this old chemo brain to remember and recall.


  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016

    Reporting in from Jackbirdie's house, where someone thinks I should be awake.

    image

  • KBeee
    KBeee Member Posts: 5,109
    edited March 2016

    KSusan, Love the picture of Tutti! Glad you got to meet up with Katy!

    Scarlett, Ouch! Get some rest!

    Renee, Sounds like the job is going well!

    Dizz, Any results yet?

    I am thankful that right now, my only gripe is not having enough hours in my day to get done everything I need to get done! Glad life is back to some resemblance of normal...or a new normal...whatever that is! Other than rechecks on a work physical, March is apppointment free (but April is packed full). I plan to enjoy my doctor-free time.


  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2016

    Tutti is very very vain. She asked me to post a more attractive picture.

    image

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited March 2016

    Tutti is a beautiful girl. Every time you post a pic I just want to snuggle her!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited March 2016

    No news yet. Hope to get confirmation that the little trouble maker was just a cyst by Th or F.

    Flew home yesterday. Glad to be back in our own space...recovery in a hotel is just horrible. Bruising is supposed to peak by the end of the week and then it should start to ease up. Right now, I look like I've been beaten with a stick where they grafted the fat from...feel like it too.


  • KBeee
    KBeee Member Posts: 5,109
    edited March 2016

    The fat grafting donor sites do look horrible. Hopefully it'll all heal soon and you'll get soem good news in a few days!

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited March 2016

    Dizz- don't you love the yoga pants/spanx from hell for the fat grafting! My breasts are still under large ace bandage and no peeking yet! Hopefully Wednesday I will get all unwrapped! I find hard to eat and breathe deeply with all the compression although I am allowed to loosen the stomachcorset when I lie down. The corset may be my best diet tool yet!!

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited March 2016

    Dizz, keep us posted on the cyst. That is a long time to wait!!! My PS said I had a lot of scar tissue and large stitch knots under my DIEP. (Different PS did the original DIEP). I betting that they will find a benign cyst!! Our body likes to do strange things in response to trauma

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited March 2016

    Scarlett, yes, I do love the b-e-a-utiful compression pants. I had a good laugh with the nurses about a little rosettle stitched on the waistband. Do they really think I need that added? I'm wearing painfully constricting crotchless underpants, but boy does that rose make them pretty.??? I am actually cheating a bit now that I am home. I switched to a pair of high waisted spanx style leggings. They are so much more comfortable to sleep in, but more uncomfortable to get on and off over the bruises. I'm spending lots of time laying around with ice packs and that seems to be making a much bigger difference on the swelling. my biggest issue is dehydration. I'm drinking gallons of water, but keep getting low bp, nausea, dizzy....I've supplemented with pedialyte and gatorade, but it keeps coming back. My appetite is low too...you are right about the compression making it hard to eat.

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited March 2016

    Scarlett and Dizz...heal well, rest easy, and see if others will pull in their weight to help you. Sending lots of light and healing your way.

    Ksusan..tutti looks pretty smug. Great that Katy and you got together. I was thinking of you daily list of gratefulness this morning and realised how much I am grateful for.



  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016

    I'd love to hear your list.

    Slothabouttown was the motivating force for our visit to Katy.

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited March 2016

    thanks Positive! Feeling like I may have overcommitted on the plastic surgery revision. I had the big reveal today, so much bruising and swelling brought back some bad memories. Pain is much less though than the first time and I gained a nipple, lost some hip and thigh fat and revised the DIEP flap scar. Still, it's a big toll on my body and my family. Hoping for the next 2-3 weeks to speed by

  • gkodad
    gkodad Member Posts: 188
    edited March 2016

    Hi, guys! It's been a while since I checked in, but just in from my one year anniversary, and assuming my metabolic panel comes back normal, everything else looks good.

    However, my oncologist asked me to consider participating in a one-year Aromasin/Affinitor clinical trial to see if the combo prevents or significantly delays a recurrence in lymph-node positive women better than Aromasin alone. Given that I'm finally feeling like a normal person, I'm pretty sure the answer is no, but I did say I would think about it.. I wondered if anyone else is participating or considering it.

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited March 2016

    It's great news. The trouble making lump was pathologically identified as a cyst. Evidently, there were some skin cells embeded in the diep flap that had formed into a cyst after transfer. It should be an isolated occurance and shouldn't grow back. Very relieved. Now, I just wish I could get past the pain from surgery and the overwhelming fear that the joint pain is a symptom of something more worrisome. Off to bother pcp about that rheumatology referral.

    Thanks so much to all of you who kept me company on the lump rollercoaster.

    Scarlett, I feel like I could have written your post. Although not as uncomfortable as the initial surgery, I feel like I completely misjudged the significance of this part of the process. My fat grafting areas encompass my upper and lower abdomen, flanks, and outer/back thigh. The bruising and soreness seems to have peaked, so I hope it turns a corner any minute now. My scar revisions aren't nearly as bothersome, however the edges of my dog ear revisions have started to ache a bit. I suppose the nerves in that area weren't as damaged during diep and can actually feel the wound. Psychologically, it feels like I'm going through another round of treatment versus recovering from a surgery. I can't wait for my mind to shake that feeling. I really hope the next 2-3 weeks will speed by for both of us.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited March 2016

    Im sorry you are in pain, but whew. So glad you are OK, Dizz!

  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016
  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2016

    yes, great news! Hoping you both recover quickly and the time flies

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited March 2016

    Great news Dizz! Keep on compressing!! :-)

  • Rpayton
    Rpayton Member Posts: 235
    edited March 2016

    Dizz great news!!!

    Scarlett and Dizz heal fast!!! Hope the sun is shining bright and you have something to look forward to.

    Susan and Katy I bet it was so good to meet!!!

    Love the pic of Tutti! She is a beauty.

    We have had our first days above 65 in Northern IL and feeling so hopeful about spring flower planting, being outdoors and am going to so appreciate not being on chemo!!!

    Small goals and baby steps...smiles and hugs

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited March 2016

    You guys, I just need to whine. This time last year I had just had my breasts cut off. I really want to forget this horrible time, but my parents sent me an orchid and my husband won't get out of bed today. I guess the best way to describe it is I'm having feelings but can't really describe them or how to fix them. I also got prosthesis yesterday, but so far refuse to wear them. Looking at them or thinking about them makes me feel sick. Next week I start visiting recon surgeons. Just talked to my insurance, and I can't even figure out their pricing structure. Well anyway. Sorry. Just having feelings, like I said. Thanks for listening.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2016

    I'm sorry Jen. I certainly get you. Except for the hubby in bed problem. It's good you noted your feelings. I think it is very hard to get rid of them altogether on these significant whateverversaries.

    Is there a pretty place you can go to just take a contemplative brisk walk? A garden? A waterfall? Not for exercise purposes but just to note some nice stuff around you? Then come home and take one of those bagels out of the freezer as a reward.

    I'm not talking about you running 15 miles with a 50 pound backpack. Just some eye candy for you snd a break from the house? Sending hugs and mojo.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited March 2016

    Thanks Katy! Yeesh. I should probably go outside rather than sitting in my office wishing my computer would hurry up. Clearly I'm not gonna be any good to anyone until this cloud passes....

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