Should I be scared of recurrence w nipple/skin sparing BMX?

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warriorwannabe
warriorwannabe Member Posts: 66
edited March 2016 in Breast Reconstruction

How the heck does this evil BC come back after a BMX? Ive read so much informative stuff on these boards and Ive noticed that this monster beast BC comes back, even after BMX. I dont want to go thru this nightmare again. I am a candidate for skin/nipple sparing BMX but Im not so sure thats what I should do. What have you see/heard/experienced ? What kind of monitoring is needed with this kind of BMX vs the other one where ALL is removed (sorry Im not sure that' s called -radical?)

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    Radical mastectomy is no longer routinely done - that involves scraping all the way down to the chest wall, and is an antiquated procedure. Modified radical is sometimes done but usually with skin involvement or numerous cancerous nodes at the outset. Simple mastectomy is what is now done most often, and skin and nipple sparing mastectomy falls under that category. If this procedure is properly done, your surgeon will core out the area under the nipple and send it for pathology separately from the breast tissue. While your nipple is preserved it is really just a decoration on your skin - not a functional nipple. You need to be a candidate for this surgery - breast size, amount of ptosis or droop, and most importantly the mass must be a distance away from the nipple - much as if you were a lumpectomy candidate and the nipple would remain. There is no additional post-surgical surveillance if you have this procedure, it is the same as a regular mastectomy.

    Here is a link that explains the different types of mastectomy:

    http://www.mayoclinic.org/diseases-conditions/brea...

    Also, here is some good info specifically regarding nipple sparing mastectomy:

    https://medicine.stonybrookmedicine.edu/surgery/bl...


  • warriorwannabe
    warriorwannabe Member Posts: 66
    edited March 2016

    Thanks SPecialK! I am a candidate for the skin and nipple sparing, and that is the plan for the 30th. I read the articles you suggested and Im good now. THANK YOU!!!!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    warrior - you're welcome! Best to you as you prepare for surgery, I had this same surgery and found it very comforting to wake up with partially filled expanders and seeing my nipples still there - I had a kind of normal-ish looking situation which reduced the nerves for me going forward

  • warriorwannabe
    warriorwannabe Member Posts: 66
    edited March 2016

    I see you had THIRTEEN additional surgeries!! See, that is slightly terrifying to me. Was it issues with reconstruction? Im torn between implants and DIEP.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    warrior - it's a long story, lol! I also don't want to scare you - I am someone who seems to have complications that are quite unusual. I ended up having a surprise positive sentinel that looked clear in the original surgery, so I had complete axillary dissection five weeks after BMX with additional positive nodes. I had some skin integrity and healing issues which required several re-excisions, and finally expander removal so that I could proceed to chemo. The expander was replaced after chemo was done. I had exchange to implants with no problem. A year later I had fat grafting to fill hollows and make things look softer. A year later I had issues with my allograft slings because I have abnormally thin pectoral muscles. During a repair surgery the previously compromised skin shredded. I had two repair surgeries, one with a smaller implant to try to stress the skin less. That did not work, and the left implant was removed. During the next 18 months I had two fat grafting surgeries to help strengthen the skin. I had a new expander placed this past December, just finished fills, and am scheduled to exchange to a new left implant, a new smaller implant on the right so they match, and additional fat grafting. As I said, this level of complication is highly unusual, so don't think this will happen to you - but it is important to note that complications can occur no matter which type of surgery you have

  • warriorwannabe
    warriorwannabe Member Posts: 66
    edited March 2016

    thanks SpecialK (cute name btw!) Do you like your implants? Did you get anatomical gummies (harder) or silicone rounds (softer)? Im not there yet, but am thinking......there is SO MUCH to this roller coaster.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    I had (have, lol!) smooth high profile silicone rounds. Also, when I first had surgery the anatomicals were still In trial and not available from every PS like they are now. I need more upper pole fullness because I have a shorter distance from my neck to breasts, but longer at the breast - the anatomical style would not give me enough fullness at the top, so for my situation rounds are a better choice.That was alsothe reason for the first fat graft surgery, I needed some softness above the implant.

  • Fe_Princess
    Fe_Princess Member Posts: 245
    edited March 2016

    Hi SpecialK, I have not been on in a while. I am firmly planted in Zürich now. I am having an SGAP/FLAP on April 14th to and removing the implant. It has really been a nightmare with it. I am really looking forward to it. I am also having it at a private clinic. How are your breasts now? Gosh, what a journey you have been on. All the fat grafting I had did not take either.

  • strike3cc
    strike3cc Member Posts: 4
    edited March 2016
  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    Fe - glad to see that you are settled - I am a bit jealous of your location! Sorry that you did not retain your fat from FG, that happens, unfortunately. I am hopeful that you do well with your flap surgery - I think particularly for a uni MX doing a flap will give you a better match to the natural breast - hope so anyway! I am doing OK - I had a new TE placed in December with no problems, and have completed fills to 480ccs - which is incredible when I consider where I was a year ago. I am currently scheduled to swap out the TE for implant, fat graft bi-lat, and remove the right nipple due to asymmetry after so much surgery, and swap the right 650cc implant for a smaller one to match the new left one using the removed nipple as the incision entry point. I will later do a 3D tattoo on the right side to match the location of the left one.

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