March 2016 Surgery

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Comments

  • new__me
    new__me Member Posts: 128
    edited March 2016

    grandma3x it is so nice to hear that you are doing well. I 'met' you when you first posted looking for information before your surgery. My PBMX with TEs was in November. I am now 12 days pre exchange. Nervous for this surgery. I have heard many horror stories about disappointing results. I just want to be finished and will hope for the best.

    I am a new grandma!! My first grandchild (girl) made her appearance 5 wks early on Jan 25. She is doing just fine as is my daughter. And our son and his wife just told us they are expecting their first baby in Sept! I will be a grandmax2

    Much joy after a very rough year.

  • Sheree66
    Sheree66 Member Posts: 25
    edited March 2016

    Asante314 - Please add me to the list, I'm having my BMX on 03/18/16 with TE reconstruction and SNB.

    I'm all done with my pre-op and I'm ready to go and get over with this. PS mentioned that I can't lift my arms higher than shoulder length for 2 weeks but I can take a shower after 48 hours. They showed me the surgical bra called Jackson Pratt that I will wear after surgery. It has velcro tape that will hold the drains. I was already worried how uncomfortable the drains would be but after seeing this bra, I feel better.

    Hope everyone will enjoy this weekend ... I'm doing everything I have to finish this weekend to prepare before the surgery.

  • new__me
    new__me Member Posts: 128
    edited March 2016

    Sheree66 you and i will both have surgeryv the same week. But my surgery is to exchange my TEs with gummi bear implants. I had a BMX SNB with TEs last November. I am sure you will do just fine. The drains are annoying but not painful. It helps to have someone around to empty them for you and record the volume. My PS wouldn't remove them until each one was down to 20 during 24 hrs. I will have 2 drains again with the exchange surgery. Hopefully only 5 days. So back to sleeping in the recliner again! And no lifting arms above shoulder height or lifting >5 lbs for 3 weeks. Oh well the time passes quickly.

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    Is anyone else having trouble with friends who want to see you before the surgery? I'm touched and gladdened that they care, but it's too much. My dance card has never been so full, and all I want is to just hide out and veg with husband.

    BTW, I'm set for surgery at 0730 Monday morning. I have to be at the hospital at 0600 for pre-ops. (I'm learning to dislike the term "pre-op".) My doc put me first, so I should be out by noon or so.

    I'm making a list of all of you, and will take you with me to mass Sunday for prayer. If any of you are the praying kind, please send up a prayer for me. If not, just send good thoughts and best wishes.

  • grandma3X
    grandma3X Member Posts: 759
    edited March 2016

    new-me - congratulations! Grandchildren are the best! November seems like such a long time ago. I can't tell you how much it meant to me to have the support of you and others on these threads! Best wishes for your exchange. I go in next Wednesday to have my nipple removed because of close margins, then in May for a prophylactic mastectomy of the right side. I plan to wait until this fall for the exchange and hopefully will be done with surgeries by the end of the year.

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    Okbecca - yeah, I had so many people wanting to see me the weekend before my surgery but I just had to be open with them and say I just wasn't feeling sociable. They totally understood. You need to get your head in the game and do what's best for you. Laying low at home was the perfect pre-surgery activity for me! And even since being home, I haven't let anyone but my mom come visit. My close girlfriends are bringing us meals starting tomorrow though so i'm preparing to be a bit more social ;) Still thinking about iammags and hoping she's doing ok. Sending everyone else calm, relaxing days leading up to your procedures! Thinking of you all daily

  • Mckaylaleigh
    Mckaylaleigh Member Posts: 90
    edited March 2016

    Okbecca, what time zone are you in? I don't go in until 8 because I asked them to schedule me later if the could (it was originally 5 am) because I needed to see my son off to school and didn't have any other options.  You will most likely be done before I even go in as my surgery isn't until 10, unless you are west coast.  I will be thinking about you (and Chris-MIss)!!

  • chris-miss
    chris-miss Member Posts: 11
    edited March 2016

    I'm feeling anxious and stressed out....because my hubby went camping with the big boys and my in laws should be here in a couple hours! See how normal my emotions are? I'm a regular, normal emotional mess. 😀

    Pretty soon I'll have time to stress out about everything else... Best of luck to us okbecca & mckaylaleigh! I've got a good feeling we are going to get through Monday, no problem

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    I'm in the central time zone. I'll include chris-miss and McKaylaleigh in my morning prayers before I go in.

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    Thanks Mecool. You give me courage to say nope to my friends, including my priest who wants to take the family out to dinner tomorrow. Me, I just want to lie low.

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    Dumb question: Does anybody have a guess as to how long it will be before I can play the piano again? I'll settle for gently playing scales, at first. It just makes me feel good and I miss it when I can't.

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    okbecca - from my experience here now, i dont see any reason why you won't be able to play right away. Obviously, you will have to pay attention to your body and not push yourself too hard but I have been using my arms and hands basically as normal just a bit more gently. You'll know. And if it's something that helps you to relax then I think it will be good for you!

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    Thanks Mecool.


  • new__me
    new__me Member Posts: 128
    edited March 2016

    okbecca, i was able to play after a week or so. I had a BMX and SNB with TEs and while not painful it was uncomtable especially under my arms where the SNB incisions were. I played a little each day and i think it helped my ROM. I also do a fair amount of sewing and i found it was painful to maneuver the fabric through the machine. It was the pushing that hurt. My PS wanted me to be very careful so the TEs could settle in. Something worked because my TEs have stayed in place and have actually been comfortable. The tightness went away after 2 or 3 days. The whole surgery experience was much better than what i had braced myself for.

    I will be praying for you and the other March sisters. ♡

    Diane



  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    Thank you Diane. You answered a lot of questions at once both about piano and sewing. Thanks especially for the prayers. They are needed and appreciated.

  • Sheree66
    Sheree66 Member Posts: 25
    edited March 2016

    new_me - Thanks for the tip. My DD will be helping me with the drains. Today, I went shopping for larger size clothes with buttons as the nurse recommended. I usually wear small size but I bought XXL size this time. Did I overreact?

    okbecca, mckaylaleigh, Chris-miss, new_me : You will all be in my prayers when I go to church tomorrow. Good luck to us all!

  • Sheree66
    Sheree66 Member Posts: 25
    edited March 2016

    Asante314 - I just realized that I put my date of surgery wrong - it' should be 3/10/16

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited March 2016

    you guys are cracking me up!

    I volunteer to pray. :)

    I am going back to work Monday, yikes!




  • new__me
    new__me Member Posts: 128
    edited March 2016

    Sheree66, those xxl's might be a bit too much lol! But they will definitely be comfy! I made do with old cardigans worn over the cami provided by the hospital. You only need the button/zip fronts while you have drains (for access). Remember to have elastic waist pants/leggings to wear. It is difficult to pull up and zip jeans. For sleeping i used a large pregnancy pillow to wrap around me for support. Sitting up was the most comfortable way to sleep and the drains didn't get squished. I also kept a pillow across my chest to prevent the dog and cat from climbing on my chest. For the first day or so it is difficult to get up off the couch or toilet without help. I kept a broom handle nearby to help me get up. Because yoy shouldn't use your arms too much at first it is sometimes hard to get up from laying flat on your back and you need to roll off (think of a turtle tipped on its back lol)

    My husband and i set up a whole drain emptying station in the bathroom. We used a small plastic box and kept the measuring cup in there along with alcohol and cotton balls for cleaning the drain opening. It is also helpful to have hand sanitizer in there and some kleenix for dabbing up leaks. Also kept a notepad and pen to record the drain anounts for each side. Important to correctly record left & tight separately. The surgeon will need totals for each side separately to monitor progress.

    It all sounds more dramatic than it is. All in all it wasn't as horrible as i imagined it would be. I spent most of the first 2 days sleeping. Pain was manageable with Tylenol alone after third day.

    Good luck and i will be sending prayers and warm hugs to you and the others. See you on the other side ♡ Diane

  • Sheree66
    Sheree66 Member Posts: 25
    edited March 2016

    Hi Diane,


    When I woke up this morning, I rehearsed in getting up with my pillows and 2 squishy pillows on my right and left arms. It was hard without any help, and our bed is high. And I moved a lot when I sleep, I will surely be missing sleeping on my stomach. 😩 Hopefully, I will get used to sleeping on my back. We decided that I will sleep on the couch for the first few days. I think I'll use the bed when I'm stronger. Thank you for more tips. It's knowing the small things that will make coping easier. I've been strong during this journey but as time is getting closer, I think I'm getting more anxious too. But I'm ready for this!!! Good luck to the March sisters!

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    I think you'll be pleasantly surprised at what you're able to do after surgery! I had prepared for the worst, practiced washing my hair with elbows stuck to my side....all that! It's been much easier :) The hardest part is staying in one position all night to sleep, that's when the meds come in handy! I'm making the transition to just motrin during the day today!

  • Mckaylaleigh
    Mckaylaleigh Member Posts: 90
    edited March 2016

    I am in a bit of a panic today. Is this normal? I have no appetite which never happens, I feel like I could cry at the drop of a hat, and I am just down right scared.  I also have full raging cramps so I think that is affecting everything because I can't take anything so I am just sitting here in pain.  I am going to give it a little longer and then take a Xanax and a nice relaxing bath.  Why am I so afraid of anesthesia?  I HATE the feeling of waking up from it and I am afraid I am going to have a panic attack in the morning while they are prepping me. I am not afraid of the after, I can deal with any pain and emotions thrown at me, I just want to know I am going to get through the surgery ok and my kids will still have a Mom!!

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited March 2016

    Mc - as a mother, the feeling is so intense. My experience has been that the anxiety was a constant companion for a while, then began to wane. Now it comes and goes. I had 19 hours notice before surgery (there was a last minute cancellation), which I think was a blessing. And it's not easy, but let me say this... I would do it 50 times over again before chemo. No joke. You will get through it! You will be up on your feet in no time. Xo.


  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    mckaylaleigh - I think those feelings are totally normal. I thought I was doing ok before hand but was at a point where I could cry on demand as well....right up until they wheeled me away. I'm actually pretty sure I was crying as they started the anesthesia on Wednesday morning. But it all turned out just fine and it will for you too. Have them give you something when you get there as soon as they can. And do take that Xanax tonight, try to relax as much as you can. You're going to do amazing and it's going to be over before you know it....one step done!

  • Mckaylaleigh
    Mckaylaleigh Member Posts: 90
    edited March 2016

    I ended up taking a Xanax about an hour and half ago and it helped tremendously. I will definitely be asking for something as soon as I get to the hospital though. I didn't have anxiety this much when I was younger with medical stuff, I am not liking it!

  • Asante314
    Asante314 Member Posts: 54
    edited March 2016

    okbecca, chriss-miss, Mckaylaleigh

    what a busy Monday; wishing you all peaceful, restful anesthesia, good pathology and uneventful hospital stays.

    Thinking of all of you today.

    I had the pleasure of stepping in side a beautiful church today and thought of all of the March ladies.

    Hoping anxiety has faded for some sleep tonight.

    new_me thanks for the tips on mobility.

    cajunQueen15 - I missed your date.. my apologies.

    Mecool, sounds like you are doing fabulous. keep up the good recovery!

    asante

  • Sheree66
    Sheree66 Member Posts: 25
    edited March 2016

    Prayers are going your way this morning - okbecca, Chris-miss and Mckaylaleigh!! 🙏🙏

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    okbecca, chriss-miss and mckaylaleigh thinking of you all today!!!! Sending you all the love and quick healing vibes!!!!

  • JessieJake
    JessieJake Member Posts: 233
    edited March 2016

    Good Morning,

    I'm a little late to this, but would like to share. I had surgery on 3/1. Bilateral prophylactic mastectomy with tissue expanders for reconstruction.

    I thought I read lots but am learning more each time I read posts.

    Recovery in hospital was rough. Anesthesia seemed to stick with me for at least 2 days. I got a Scopolamine patch for nausea/motion sickness the day after surgery. I woke with such a headache I couldn't even raise my head or turn my eyes to look at people. I didn't walk further than the bathroom for over 24 hours. Finally I took a stroll down the hall and somehow got home the night after surgery.

    The next day after researching Meds I was taking and several phone calls we determined my headache and nausea was coming from the nitro bid paste that was being used on my right nipple to increase blood flow. We wiped it off, put ice packs on my head (seriously that bad) and in 1/2 hour I felt much better, in 1 hour my headache was gone.

    Nothing could have prepared me for that. I knew that there was a chance I'd lose a nipple or both if blood supply was poor, but I had no clue about nitroglycerin being used in an attempt to save them.

    I am supposed to apply 1 inch of paste 2xday. Ha! I use less than a pea size amount and I can feel its effect within 15 minutes because the blood vessels in my temples begin pounding but without the debilitating headache. I don't think my doctors agree with that, but my nipple is looking better now.

    On a positive note, I can cough comfortably and I think my arm movement is pretty good.

    Looking forward to having my drains removed. I am below the 30 ml a day they want but one side is still mostly blood, while the other is getting much lighter.

    They are smack in the middle of my arm pits. Goodness, they can itch!

    That's part of my story for now. Good luck to remaining March surgeries!!!

  • new__me
    new__me Member Posts: 128
    edited March 2016

    JessieJake welcome! It sounds like you are recovering nicely even with the nitro issue. I didn't save my nipples so i can't speak for that treatment. I just wanted to say hello. I will have exchange surgery next week.

    Warm hugs.

    Diane

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