January 2016 Chemo!

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  • Valstim52
    Valstim52 Member Posts: 1,324
    edited March 2016

    I start Taxol every other week, starting 3/7.



  • jensgotthis
    jensgotthis Member Posts: 937
    edited March 2016

    anyone else getting an MRI med way through chemo to see how your BC is responding to it? I had one yesterday and am looking forward to hearing the results next wee

  • Paulinek
    Paulinek Member Posts: 117
    edited March 2016

    has anyone on TC or AC had any hair grow back yet??? I'm getting impatient! My leg hair is slowly growing back, but nothing on my head :(

  • Veronica31
    Veronica31 Member Posts: 97
    edited March 2016

    I'm really curious about the hair too! I had AC and about 95% (or more) of my hair fell out. I still shave my legs about twice a week. No armpit or other hair. But I heard that there's a possibility of hair regrowth during Taxol? Hoping it's true!

  • Paxton29
    Paxton29 Member Posts: 221
    edited March 2016

    Friday is my 3rd TC. Most of my hair is gone but my head isn't smooth. I can feel some hair on top of my head and it's gray, not brown like the rest of the hair that's left in the back. I am assuming that the very sparse grays are actually new growth that is about to get wiped out again. I haven't shaved it since my husband buzzed it February 14th. I assume though the rest will continue to fall out. For those of you with completely smooth heads, did you have to shave it or did it eventually all just fall out

    My leg hair grows now very very slowly but I still shave out of habit and when I'm wearing dresses. Saving money on those now unnecessary Brazilians. Arm hair, curiously, still there. I've always had very light (texture and color) arm hair but it's still there. Never had facial hair (I mean, except brows and lashes, which are still there).

    I do think I'm in chemopause. The one downside to this is that I don't know if my period could strike at any minute. I used to be quite regular that way.

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited March 2016

    Valstim, Buttaflydiva, Zinny,

    Congrats fellow AC ladies..glad to hear we are finishing or finished with AC this week...bravo and agree not fun but we got thru it. I am day 7 also after #4 AC and slowly starting to recover. Thanks for the tips all on Taxol phase.

    Valstim...I hope you do well on dose dense my doc didn't give me an option so hope icing feet, hands and mouth will help.

    LoveMyVizsla-you are almost done too with AC....woop woop!

    LadyHumps-thanks for the Taxol tips....glutamine and B6:))

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    I'm also moving on, from FEC to taxotore

    Full hair update:

    As far as I can tell I have all my eyelashes, my eyebrows are thinner but not bad, I fill them in. The hair under my eyebrows still grows so I still need to get them groomed!

    I still get random facial hair and chin hairs, but not nearly as much.

    My arms and legs still have hair, but much less. Leg hairs are few and far between and only visible if I look very closely, if it was summer I would not really need to shave however I probably would (I'm not now).

    No hair "down there", front or back (which is nice!! Better than a Brazilian) or underarms.

    I have shaved my head bald, however there is still stubble so I guess I would not be completely bald if I hadn't shaved it. But it would be very very thin and patchy.


  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited March 2016

    Jill.....awesome you are moving to the next phase also!!! I have had almost the same hair experience as you. Doc said I might lose my remaining eyebrows and lashes in Taxol...not guaranteed but wanted to prepare me. Wunderbrow in hand in case:)))

    Paulinek, Paxton and Veronica...prayers for the hair follicle God's for us all:))


  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited March 2016

    my onco nurse said sometimes hair on head grows during taxol but it's usually the weekly taxol people if it does. I'm not counting on it. I have teeny tiny hairs growing but I'm sure this last AC is going to zap those away. I asked my stylist for any suggestions to help it grow faster post chemo and she swears that hair,skin,nails vitamin formula Is a must.several of her clients who have through chemo said it helped their hair grow faster as well. I'm going to try it. If nothing else I'll have plenty of B vitamins in my system.

  • EstelaLorca
    EstelaLorca Member Posts: 98
    edited March 2016

    Hi Jengotthis, I'm doing a mid-treatment ct scan next week. My oncologist tells me that I'm responding to treatment so I guess she wants a peek.

    Hoping that you get some good news Jen!

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited March 2016

    How can you have an MRI with a port in? Isn't at least part of it metal?

    As of tonight, I'm only halfway through AC. Hopefully tomorrow will be #3. She mentioned possibly reducing the dose again (80% last time), and possibly skipping #4. Any guesses on what my neutrophils will be tomorrow? .55 last week. Tune in tomorrow and I'll let you know.

  • Geeper
    Geeper Member Posts: 164
    edited March 2016

    jensgotthis…   I took a break from the forum and wanted to say that "You've Got This", praying for good results. My MO will be ordering some test in three weeks to see if there is regression. I am hoping for good results. 

  • Paulinek
    Paulinek Member Posts: 117
    edited March 2016

    buttaflydiva if you get the name of that vitamin formula please share :)

    Congrats to everyone heading into their last infusion or moving on to the second part of treatment. There is light at the end of the tunnel!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    i've been told the docetaxel has a slightly lower hair loss rate, so there's a chance that I will stop losing hair or it will even start regrowing, but it's more likely I will continue to lose through it.

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited March 2016

    paulinek, there are a lot of different brands out there and they most work the same, but I got this one: image

  • JCS28
    JCS28 Member Posts: 153
    edited March 2016

    jensgotthis -- I had 2 MRIs during my neoadjuvant treatment. One was for a study so it was after the 1st round to see if the tumor was responding, but unfortunately it was just for research so I didn't get results. Then I had another after my 4 neoadjuvant rounds to see if the tumor had responded so they would know if I could go ahead with surgery. Also, I had my port for at least 2 of the MRIs. It was not a problem. I wouldn't have wanted to have one within a week or 2 of getting the port, but after that it didn't hurt at all. And my hospital did a really good job of giving me pads and pillows and such during the MRI to make sure I was comfortable.

    Paulinek and buttaflydiva -- Also, I've been taking a couple of hair/nail supplements throughout treatment to keep my hair healthy. I'm doing cold caps. The supplements are Biosil and Silica. My hair is doing great, my nails are good so far, and my face is pretty clear too. Don't know if it's the vitamins, but maybe! EDIT: Biosil is NOT cheap.

  • EmilyJane7505
    EmilyJane7505 Member Posts: 25
    edited March 2016

    KellyChameleon About the nausea associations - I have really bad ones too - I will try to get through them quickly LOL. For one, talking about or even thinking about the infusion room. My adult coloring book that I brought to the first two infusions, the smell of the hand soap at the oncologists office, that queasy drops hard candy that people give you when they find out you will be doing chemo... I literally got nauseous at my last treatment when they had only hooked me up to the saline drip - hoping this lessens with the Taxol. Good luck to you too!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited March 2016

    jengothis, I have not had an MRI or scan since the beginning. They can feel (so can I) and see the redness has almost all gone from my IBC symptoms, so maybe that is why no scans right now. I had everything due to my hospital stay right after my first AC infusion. CT, bone scans, lumbar puncture. I had already had a PET the week before. Oh and chest xray. Lawd.

    Nausea associations, I hear ya. Coffee (and I was an addict but drank it during my first infustion, just the thought makes me queasy) Same with those packaged cheese crackers. They pass them out during chemo. So when I see the packages it starts.

    I so hope Taxol is better.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited March 2016

    buttaflydiva Thanks for the tips, very helpful! I'm concerned with fatigue since I will be working, but luckily I work from home. For Herceptin / Perjeta - it's hard to separate the SEs I had since I've been getting them in conjunction withe the Taxol. But I would say that the rash after the very first loading dose was probably the worst on my face and scalp. The MO prescribed clindimycin and desonide (steroid) and it really helped. I think that some of the rash/acne is spurred on by taxol and the steroids too.

    For me, Day 3 in the evening I get sluggish, it happens like clockwork. By Monday (day 4) I feel fine. I definitely feel best on Days 4-6. EXERCISE HELPS TOO. I can't say enough. I walk, but I also do martial arts. I'm not fighting, I only do some drills and kata because I don't want to get hurt. I get winded more quickly than usual but I just take more breaks. I walk for about 1/2 hour every day at least and only have been going to karate 2x/week (mostly because of time.) It helps so much.


  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited March 2016

    AC #3 is in the books.

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited March 2016

    LoveMyVizsla-congrats.....only one more!!

  • Jinx27
    Jinx27 Member Posts: 238
    edited March 2016

    Happy Friday Ladies

    Today is Taxol #1, I'm really not in the mood for chemo today. All the tips for Taxol on here are soo helpful. Im happy to have you all as a reference.

    I started a new job this week and have schefuled my Taxol days around work. Hopefully it's not too much with the side effects. I planned chemo on Fridays to have the weekend to rest.

    Certain smells also annoy me, I get lightly nauseous from the smell of the saline used to clean my port, the smell of the soap in the bathrooms at my infusion center and the smell of the cafe at my infusion center. I think I hate infusion center altogether! Ha!

    Keep pushing ladies!!!

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited March 2016

    Good luck Jinx

  • Veronica31
    Veronica31 Member Posts: 97
    edited March 2016

    Hi all! I have been getting hives on my face towards the end of each two week cycle of Adriamycin and Cytoxan. Anyone on the the same drugs getting hives? Right after the infusion, my skin clears up and dries out. Then towards the end of the two weeks, I start to get hives every day. (*Note: my skin is normally VERY oily, sensitive, and acne prone. I also have PCOS)

    I'm done with AC and start Taxol on Monday, I was just curious if this is a documented side effect. I looked it up and couldn't find much.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited March 2016

    I don't get hives, but last round I got a rash on my chest that my doc thinks is folliculitis. She gave me a topical antibiotic for it. Clindimycin. You might want to try taking a Claritan, benedryl, or a topical benedryl or clear calamine.

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited March 2016

    Good luck Jinx!! Let us know how it goes since many of us are right behind you.

    Veronica-Didn't have that SE....others but not that one. Hopefully you will not have that anymore and good luck Monday!

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited March 2016

    so bummed. I was supposed to have my last AC treatment today but my WBC is way too low so they couldn't give the infusion. its crazy because the 1st two treatments I did the neulasta shot and stayed within range, but when I went in for my 3rd treatment my WBC was double the normal so they didn't do the neulasta.  then I go in today and my counts had plummeted. Oh well my nurse said at least we know the chemo is working, so I'm gonna focus on that.  I'm going back in Thursday and hopefully my counts will be back up, so I'm gonna keep fingers crossed and say lots of prayers.

  • Paxton29
    Paxton29 Member Posts: 221
    edited March 2016

    Oh no, that's so frustrating! I'm sitting here in the infusion room wrapping up TC # 3 and I made sure to confirm I would be getting Neulasta again--it truly worked wonders. I would be so frustrated to have to put off treatment, but at least it's not for long

  • Geeper
    Geeper Member Posts: 164
    edited March 2016

    buttaflydiva, I am sorry to hear about your WBC's, but glad to hear the chemo is working.

    For any of you going on to Taxol, Taxol has been kind to me. I am on my 8th week of Taxol and I've had minimal side effects. I lost my hair on my 3rd week of Taxol and my lashes are sparse. I haven't had to shave. No nausea, constipation, or low WBC. I don't get the neulasta shots nor do I get neupogen. I joined the weekly Taxol forum and I don't recall seeing anyone taking neupogen shots. The only side effects that I've had are hair loss, acne, and minimal fatigue. Good luck to all of you going on to other treatments and to all of you having scans. Sending all of you virtual hugs.


  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited March 2016

    Wow, good for you, Geeper! I hope my results on taxol are the same...minus the acne. :-)

    For those asking about not getting a PCR-patholocally complete response from neo adjuvant chemo, there was an online stream from Living Beyond Breast Cancer yesterday. I watched it today. They had a panel of a MO from Sloan Kettering (I think), a therapist who deals with BC patients, three survivors and a survivor host. The survivors all had triple negative BC, but there were some things that apply to others.

    The MO said that for those who finish neo adjuvant chemo without a pcr and go on to have surgery, they are finding that adding chemo after the surgery helps with reduced recurrence. Just wanted to share that.

    Just took my Neulasta shot.

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