Pain from Neulasta injection or TC+Herceptin

CCLYYZ
CCLYYZ Member Posts: 12
edited April 2016 in Pain

Hi folks,

Posting on behalf of my mother who lets me do all the computer work while she kicks cancer's @$$.

She just started her chemo last week and Neulasta the next day. She is having very few side effects - fatigue is the common one but yesterday (day 6) started having bone pain in the femurs and arms, then today (day 7) she felt it in the crown of her head, hands, wrists, ankles, and the worst pain is in her hips and tailbone. The rest is tolerable and she doesn't even take a regular Tylenol for that, but the hips/tailbone is almost like nerve pain - shock-like pain.

Another odd thing is twice today she had tightness in her jaw, quivering chin almost like her jaw locked for a couple seconds and then was fine. (Fine = sore due to bone pain but not nearly as bad as above)

Does anyone else experience this type of pain after Neulasta? I suppose we shouldn't assume it's that because TC+Herceptin can also have side effects.

Thanks!

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Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2016

    CCLYYZ, I used to get horrible pain from my Neulasta injections. We used to call it the bone crusher. Many have gotten good relief from using Claritin. I didn't get total relief, but it did take the edge off. Best wishes to you and your mom!!

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  • CCLYYZ
    CCLYYZ Member Posts: 12
    edited February 2016

    Hmmmm interesting! She woke up with a rash on her chest and back today and we didn't put two and two together until you just responded. She took a Claritin going to bed and hopefully that will help. That in combination with Tylenol, frequent walks and stretching, some heat / some ice and I think we can get through it.

    Thank you so much!

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  • Meadow
    Meadow Member Posts: 2,007
    edited February 2016

    CC, I too had horrible bone pain with Neulasta shots, not so much when I was on AC chemo, but while on Taxol. I did get some relief with Claritin too, and I hope your mom does too. Hang in there.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2016

    Thinking of you and your mom tonight. Gentle hugs to you both.

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  • Runner70
    Runner70 Member Posts: 187
    edited April 2016

    I have severe bone pain from Neulasta even if I take Claritin. My oncologist said it tends to be more painful in young people because they have more active marrow sites. I thank God I picked a compassionate oncologist who believes me and doesn't ridicule me or view me as a complainer. The Claritin did nothing for me. The Percocet she gave me is a godsend. I also get severe myalgias/shooting pain in my muscles from the taxotere. Everything else is pretty manageable. I didn't know chemo hurt until it happened to me.

    It really bothers me that the CDC has recently become so adamant against the use of opioid pain relief for short term pain. I hope none of them ever has to experience Neulasta.

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  • kebab
    kebab Member Posts: 873
    edited April 2016

    I got pain from my Neupogen shots (same as Neulasta but a series of shots instead of 1 injection). I described it as little (but strong!) hammers just striking randomly along my femurs and in my hips. Definitely nerve pain -- it just jumped everywhere. I got some relief from taking Claritin 2 days before the first shot and then through the injection days, but I also got a Rx for oxycodone from my oncologist. Two Aleve twice a day were also helpful. On the worst days, I would just take an oxy and try to sleep through the worst of it. Yes, denial and escape are my coping methods of choice. :)

    I hope your mom finds something to give her relief. That pain really is awful.

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