January 2016 Chemo!

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited February 2016

    I can'tpull a link from my phone but I'm looking at the Elasto-gel Hypothermia Mitts (search them on Amazon). In the description there is a description of the testing and a journal article. I think the recommendation was to wear them during taxotere infusion and 20 minutes longer. If your drip is longer than 45 minutes they suggest getting a second pair - but you'll see that gets pretty pricey! There should be a resale thread for these types of things

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited February 2016

    DizzParkMom, Jen and LoveMyVizsla,

    Thanks for the helpful information and how to on icing. Off to Amazon I go

  • Lolliipop
    Lolliipop Member Posts: 32
    edited February 2016

    It seems like most of you ladies are receiving your Taxol or Taxotere treatment following your other. I am getting all three every three weeks (Taxotere, Adriamycin & Cyclophosphamide) , followed the next day with Neulasta shot. I have had three treatments and so far so good, no tingling in feet or hands, also no nail issues. I am worried about getting the next three treatments, the last one kicked my butt 😩

  • Myraknits
    Myraknits Member Posts: 264
    edited February 2016

    Thanks! I wonder if insurance would cover these. I'll call on Monday and see. In the meantime I found these: http://www.amazon.com/gp/product/B003L4WOKG?psc=1&... a bit less expensive but they might not stay cold as long...

  • MissBee123
    MissBee123 Member Posts: 186
    edited February 2016

    Hi all! Sorry I've disappeared for a bit. We are in the throes of moving and tomorrow I am making a roundtrip flight from NYC to Denver to take our cat to our new home, and then hopping on the plane and flying right back! Tuesday morning hubby, dog, and I will begin our four day drive out to Colorado. So excited to finally go but it's been hectic trying to pack and say goodbye to everyone.

    I had my last AC on Wednesday and am doing pretty well. I don't love how the Neulasta makes me feel (like I've had my bones crunched in a car crash) but I take my Claritin and hope for the best. Overall I really have tolerated this chemo so much better than TCHP and I'm thrilled to be done with the hardest part. Really hoping Taxol will be easier. I'll meet with my new oncologist on March 7th and go from there.

    So far I haven't had any neuropathy and am crossing my fingers it stays that way. I know Taxol can be worse so I guess we will see. Thanks to everyone posting about gloves.

    Lolliipop, I've found for myself that every chemo is totally different. My first two AC were okay, the third was rough, and then my fourth was fine again (I didn't even miss work or the gym!). Make sure you're keeping up with hydration and getting plenty of sleep, plus I really recommend exercising if you are at all able. Don't worry that they will keep getting worse because it's definitely possible that they will go back to being a little easier.

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited February 2016

    congrats on your move MissBee and on finishing AC! I have my last AC Coming up Friday and am so excited to be finishing this phase. It's sad I treat chemo like an enemy sometimes and have to be reminded that it is killing cancer cells,but I swear every time I think about it I almost feel sick lol.a friend and I were out and about yesterday and drove past my cancer center and I swear I started feeling nauseous lol. But you are solo right about hydration. I didn't hydrate as well as usual this last treatment and I do believe that made this last one worse than the other two. So this round coming up I'm gonna be drinking up


  • Valstim52
    Valstim52 Member Posts: 1,324
    edited February 2016

    So happy to hear from you MissBee123. Im a little worried about taxol and the feet and hands but i'll see how it goes. Can't be worse than AC. Still off and on sick after last infusion on Monday. Drinking up and staying active.

    Best to all

  • Frill
    Frill Member Posts: 311
    edited February 2016

    I'm doing Taxol, too. Drinking 120 ounces of water a day, alpha lipoeic acid, acidophilus, magnesium, biotin - although the ALA I'm not taking every day since MO hasn't approved it. I'm not doing any icing, like the cap, the hospital doesn't endorse it, so I figured I'd just see what happens. So far, so good, and I'm almost at the halfway point - just did 5 of 12. No neuropathy at all.

    My nails are fine. My surgeon is going to smack me in a couple of weeks because I asked her about whether or not I had to take off my acrylic nails and she said yes and that I had to go to chemo with no nail polish on. Otherwise, I could wear nail polish on the off days. Well, no one else said that to me, so I'm just stubborn enough that I was like, "I'm waiting till someone ELSE tells me." No one has said boo. I saw my nails last week because I broke a nail and everything looked pink and fine.

    As for blood counts, I just checked my labs to see if any newer ones were up, but the last ones were right before the 4th dose. My WBCs had dropped a little 3.4, when 4.0 is the minimum "good" range. Everything else is still in range. I haven't had any Neulasta, or anything like that.

    I get no other meds besides steroids with the treatments. No nausea that I would attribute to chemo.

    My sister has been a nut about researching foods, so my diet is pretty good.

    Trying to think of other factors... I gave up caffeine and diet sodas (I miss Coke Zero!). Cut out sugar for Lent, and want to keep that up. I work out M,T,W - Thursday is chemo at 715am, and then through the weekend I'm just too tired right now. Also 3 days a week for PT I wind up getting a 30 minute walk in across the hospital and to the train. Friday afternoons I clean the house, and it's up and down the stairs in my sister's house a million times, so I figure that's workout enough. I'm usually in bed by 530 lol that night.

    My huge pita has been lymphdema-ish (not technically lymphadema because too soon after surgery) issues. My arm has been wrapped up for a week now. The minimum they'd had to quit wrapping was 2 weeks and that's when I should get mine off. *whew* It's been such a drag. I'm wrapped from my fingers to my shoulder.

    Jill: I'm sorry about the job position. I know everything happens for a reason, but that doesn't make things suck less. *hugs*

    MissBee: Yay for being done with moving!!! And super yay for being done with a round!!!!! I totally agree, water and exercise make a huge difference. I think it helps get all the crap out faster or something.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited February 2016

    thanks everybody! I'm returning to my normal position at the end of the month, I've been doing a contract which is a desk job but normally I do not have a desk job. I'm working on my accommodations now and it is quite frustrating because my union president is not very supportive of me. That said my branch manager and human resources person are very supportive of me, so hopefully I will get what I want, which is basically 9 to 5 hours at the office and no caseload and time off when I need it for treatment and recovery


    Last night my husband and I had a date night, I decided to rock bald and I thought I looked pretty hot, until the waiter at the restaurant asked me if I am his mother!

    image

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited February 2016

    I have always wore nail polish to chemo, nobody has said anything about it. When I was talking to my oncologist about, she said it would cover any nail damage


    Today we all went for lunch to celebrate my husbands birthday, I'm sharing a picture so you can see him, I do not look like his mother! I tried wearing a scarf again and actually liked it

    image

  • jensgotthis
    jensgotthis Member Posts: 937
    edited February 2016

    people be crazy! You are so clearly not his mother!!!!!! Gorgeous Jill - in both pics

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited February 2016

    Jill you look gorgeous and you certainly don't look old enough to be your hubby's Mum. Gee.

    I wore the frozen mitts for the hour (approx) of the Taxotere infusion. Jen I have hot, sweaty hands and did find that I needed to get a "fresh, frozen" pair partway through. They just didn't stay cold enough for the whole time.

    I wore dark nail polish for each treatment. Was recommended by my breast nurse.

    Hope everyone had a great weekend. Babysat 2 of my Grandchildren yesterday. I got so many cuddles and smiles. They are such a joy.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited February 2016

    Jill...looking great AND NOT motherly at all

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited February 2016

    Jill


    Looking great, and so not his mother. People are crazy. Rock on Girl.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited February 2016
  • FLBuckeye93
    FLBuckeye93 Member Posts: 87
    edited February 2016

    Hi

    I love reading everyone's updates. I'm so sorry to hear your bad news, Jen. It sounds like you're in good hands with your doctors.

    I haven't really rebounded from round three of TC and round four is this Thursday. I had an allergic reaction to the Iron infusion, and ended up with hives and chest/throat pains from swelling. The chest pains didn't go away after a steroid infusion, so they sent me for a ct scan to rule out a pulmonary embolism. Thank God that was clear, but it did show I have early arthritis in my spine. Sigh. The allergic reaction came back the next day albeit less severe, so I was playing catch up trying to take steroids to get it settled down so I could finally eat. I went back to teaching a week ago and as a result I sleep a lot.

    What are the symptoms of thrush? My tongue is white, but I don't know if that's the only symptom I should look for.


  • Paulinek
    Paulinek Member Posts: 117
    edited February 2016

    FLBuckeye my tongue gets like that a few days after treatment then clears on its own. If it doesn't clear up my MO said to call bc of the possibility of thrush. I know other ladies on here have had thrush, so maybe there are other symptoms.


    Jill my husband keeps encouraging me to rock the bald look, but I'm just not ready. Plus it's too darn cold! You looked great on your date. You have been running into some really insensitive people!!

  • zinny
    zinny Member Posts: 281
    edited February 2016

    Jill - what a ridiculous person to ask that question!? You do not look like his mother at all, and you look fabulous, bald or scarfed:)

    Whew this 4th AC knocked me harder - but I also might have been doing more since I had it Thursday and Friday and Saturday were busy, so I didn't just hang around the house. Falling asleep all over the place today, though, going to head to bed. Lost stamina in the last 30 mintues of the Oscars:)

    Best to all this week -

    K

  • Planet
    Planet Member Posts: 42
    edited February 2016

    Catchy too: I'm on the taxotere and carboplatin (plus Herceptin) and about a week after each infusion I break out in painful "rosacea". My MO's nurse practitioner suggested I take 2my of dexamethasone and that helped calm the pain and a bit of the redness. I also use Clindimycin lotion that the PCP gave me for the folliculitis.

    Foot and hand icing during taxotere: my hospital supplies the elastogel mittens and slippers and I ask to switch them out after 30-45 min. You want to get your feet/hands cold before the taxotere goes in and keep them cold for the entire infusion. You don't want to give your hands or feet a break during the infusion because that is worse than not icing to begin with (allegedly). The slippers are great because you can walk in them to the toilet if you have to go. I think it's terrible that some hospitals don't have these for you. It makes me very appreciative of all the extras Prentice is supplying.

    Lovetofly: that waiter is an idiot! You do not look older than your hubby! You look fierce, both in the scarf and without.

  • Sheri64
    Sheri64 Member Posts: 113
    edited February 2016

    Anyone have issues with their eyes lids being swollen and red?

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited February 2016

    Sheri64

    Yes, it seems day 4 and 5 after AC I have swollen red eyes. Then it clears up. I noticed after my 4th one last monday, it took a little longer.

    Anyone on Taxol yet? Does it affect your taste?

  • LifeAloft
    LifeAloft Member Posts: 150
    edited February 2016

    I agree with the eyes, mine get red, puffy and watery a few days out. 

    LovesToFly, I agree with the others, you rock both looks and look nothing like his mother!

  • Frill
    Frill Member Posts: 311
    edited February 2016

    Jill, you can totally pull off whatever look you want - and you completely do not look like your hubby's mom. Geesh. The stuff that comes out of peoples' mouths...

    I have slept SO MUCH. I have a brief due tomorrow that my boss changed up Thursday, so I decided to stay home and write today, rather than getting dressed and driving. I should have worked on it over the weekend, I was just too tired. I figured if I slept more, I'd rebound faster. This happened a couple of weeks ago.

    The swelling in my hand went down enough to where I can see bones and veins again, so hopefully there will be a difference there. That area is the last holdout. I go to PT tomorrow, so I'll find out then.

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited February 2016

    Jill..you look fantastic......a beautiful pair you and your husband make and you absolutely can rock any look! I am day 5 out of last AC and feel crummy.........dizzy, nausea and overmedicated....ugh. This too shall pass.......ordered my mittens and footies for the next phase...onward and upward

    Happy

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    Saw my oncologist today, and we talked a lot about docetaxel, which I will be doing next. I'm really freaking out about is the steroids, it is double the dose I am taking now, and I will be taking thrm morning and evening instead of just morning for three days. Seems like a very high dose, I'm worried about insomnia and I'm also very worried about when I come off the steroids. Right now I come off of 4 mg, and the two days after are brutal-so weak and tired and depressed. I can't imagine what it will be like coming off after three days of 16 mg! I'm really freaking out.

  • Planet
    Planet Member Posts: 42
    edited March 2016

    Jill: That's the same dose of steroids I'm taking with Taxotere/docetaxel. My PT for my feet seems to think that it is responsible for my increasedflexibility and lack of swelling. As for the insomnia, I just ride the mania and get housework done. LOL.




  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    PLANET: Okay good to know...on FEC I was on 8mg for 2 days and 4mgs for one day, and only in the morning. The steroids didn't bother me at all...but the withdrawal did even with weaning. How is your withdrawal? Also do you think it has caused weight gain?

  • Char1110
    Char1110 Member Posts: 61
    edited March 2016

    Hey Jill! I am also on the same dose of steroids while taking TCH. I just started the steroids again today. I take the first dose with breakfast and the second dose no later than 3:00. Although I didn't take until 7:30 today I usually don't have insomnia and if i do my MO said to take lorazepam .5 mg instead of my Zofran at night. Lorazepam also works for nausea, vomiting, sleep or anxiety. I only had to do that one time and I think it was on day 3 and I took a later dose. Withdraw wasn't too bad for me! Treatments are on Tuesday and I am good on wednesday and Thursday. Friday and Saturday I am usually really tired though, Round 2 was worse than round 1.

    As far a weight gain, the jury is still out. I know it can and I think it has. I have gained three lbs. and I an starting #3 tomorrow. In all fairness my eating habits haven't been great, but i haven't backed off my exercising at all. Still with my trainer and everything. I ate whatever during round 1 and during a snow storm. I gained all the weight then. I did a little better for round 2...lol. I know 3 lbs. doesn't sound like a lot but I am still pissed!

  • Char1110
    Char1110 Member Posts: 61
    edited March 2016

    BTW the waiter was blind and rude as hell! You looked great!


  • jensgotthis
    jensgotthis Member Posts: 937
    edited March 2016

    that's the steroid dose I'm on too. I take an Ativan the night of chemo since I also get steroids in my drip that the day of. And I reserve the right to take anotherAtovan the next night since I've had full steroids that's day too. By the second night it's no problem to go to sleep for me.

    I think some of the weight is water weight. I notice my face gets puffy on the steroids and then there's a night ( 4th or 5 the one after chemo day) when I pee like every hour. I keep thinking it's my body releasing the end of the steroids and all the water I've retained. I had gained 3 pounds between my first and second infusions but it came off already

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