March 2016 Surgery

Asante314
Asante314 Member Posts: 54

A place for March 2016 surgery women and men, to help each other through.

Thank you to all the wonderful post in the past few surgery months, reading those Have certainly been of great help! If you are new to the boards and facing surgery, I do encourage you to read through one of the surgery months to see how the stories unfold from waiting, procedures and then recovery.

I will add anyone to the list when dates are posted. Hugs to all joining us.

Let me know your surgery type & date and I'll do my best to edit this original post regularly. Please let me know of any errors.

Discussion Board acronyms can be found here

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3/2/16 - Mecool BMX

3/2/16 - iammags Lump, SNB

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3/7/16 - okbecca BMX no recon

3/7/16 - chriss-miss BMX

3/7/16 - Mckaylaleigh BMX, SNB

3/8/16 - advwright Lump

3/9/16 - Cincymomof2 PBMX w/TE

3/9/16 - grandma3X Nipple/areola complex excision

3/9/16 - zfirebird Lump

3/9/16 - Iammags Bi-lat oncoplasty

3/10/16 - sheree66. BMX, SNB w/TE

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3/14/16 - Asante314 BMX, SNB w/TE

3/14/16 - seedsally L excision (R-umx or Lump)

3/15/16 - Chapagonzo BMX w/TE

3/16/16 - new_me Exchange

3/16/16 – samiamfab Lump

3/16/16 - gerrib UMX, snb

3/17/16 - zodiacs. BMX, nodes

3/18/16 - Kristy525 Lump, SNB

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3/22/16 - kaneli Lump

3/22/16 - nachout818. Lump-L, oncoplasty-R

3/23/16 - warriorwannabe SNB

3/24/16 - Stellamaris R-MX, DIEP

3/24/16 - furiosa Lump

3/24/16 - Eleanora "partial Mx"

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3/30/16 - warriorwannabe BMX w/TE

3/??/16 - cajunqueen15 Bi-lat salpingo/oophorectomy

!****************************************************************************************************

HELPFUL LINKS...

****Thank you SVGsurvive for these very helpful links posted in January 2016 Surgeries...

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Comments

  • Cincymomof2
    Cincymomof2 Member Posts: 4
    edited February 2016

    I have been reading through these updates for the past few months. I appreciate all the information people have written both good and bad. I feel I am more prepared because of each of your experiences. Thank you.

    3/9 - PBMX w/ TE

    BRCA 2 +

  • Asante314
    Asante314 Member Posts: 54
    edited February 2016

    Having my pre-op appointment last week seemed very reassuring and mater of fact. Surgeon and her NP are wonderful and answered all my questions without rushing. But I still feel like I just consented for a routine root canal.

    Seems surreal that the date is approaching so quickly. I often think "this too shall pass" and in a blink of an eye I will be back at work. I have a long weekend of work a head of me, and am traveling next weekend with DD to spend some time enjoying living. The final weekend of what's left of normal is likely to be filled with a last minute frenzy of what I feel is important to get done, but more likely just anxiety and crazy ideas of needing to clean some closet!

    Asante

  • okbecca
    okbecca Member Posts: 106
    edited February 2016

    I've had a bunch of pre-op tests and will do what I think is the final round Monday. I'm also meeting with the anesthesiologist to be examined by her.

    My surgery is March 7.

    I'm dreading it, but already planning my life, after. I hope it goes with no complications and that I can finally get on the come-back trail.

  • Asante314
    Asante314 Member Posts: 54
    edited February 2016

    okbecca life after BC sounds wonderful. Good luck w anesthesiologist, and pre-op testing. Mine was very helpful w my concerns for post op nausea. Knowing there is a plan in place helps.

  • okbecca
    okbecca Member Posts: 106
    edited February 2016

    Thanks Asante314!

  • advwright
    advwright Member Posts: 6
    edited February 2016

    I have been reading posts for the last month or so. They have really been informative and helped me to feel more prepared. Thank you all for sharing your experiences.

    My lumpectomy is scheduled for March 8th.

    Good luck to all!

  • grandma3X
    grandma3X Member Posts: 759
    edited February 2016
    Hi everyone! I had a MX in January but need to have my nipple/aureole complex removed due to close margins. In scheduled for Mar. 9.

    I also posted about my good experience with my MX in the February surgery thread. I had an opiod-sparing regimen with propofol and a paravertebral block. No pain, no nausea. If you are interested in this approach, search for my name in the Pain thread or PM me and I can send you the link.
    I'll be repeating this regimen in May when I have a prophylactic MX of the right side, so we will see if my luck holds!

    Best wishes to all of you!
  • Mecool
    Mecool Member Posts: 70
    edited February 2016

    Hello! I'm new, this is my first post. I was diagnosed 2/12 and am having a double mass this Wednesday. I've been reading through the posts trying to prepare....feeling a bit freaked out now. I feel like my surgeon down played it all telling me I'd be feeling 90% within 5 days and able to shower the next. I'm only planning to take a week and a half off work. I'm sure I'll gain more knowledge keeping up with you all here so thank you for this resource and support.


  • Asante314
    Asante314 Member Posts: 54
    edited February 2016

    Mecool: I think feeling a bit freaked out is part of the new normal. I have been scheduled for a few months and have moments of panic, acceptance, grief and panic again. We are human. Reading through threads from prior month's surgical groups has been very helpful, glad you are doing so too. Showering - one of my top questions at my pre-op visit. Reading through the threads the response to showering varied greatly by each surgeon's preference, and also likely which if any reconstruction process was chosen. Many women seem to do great in terms of pain, but mobility of arms and the drains seems to be the most common lingering issues for a few weeks. Returning to work also will depend on what type of job you have, and if you are off all pain meds to drive!.

    grandma3X: sorry you find yourself in another month's thread. I have enjoyed (ok perhaps not the best word for this awful topic) reading your journey, and appreciated from afar the support given amongst the members in your prior months.

    advwright: good luck this week, your day is coming up fast. Hopefully you are doing something wonderful for yourself this weekend. We are here for you. I had a lumpectomy in May, and never thought to look/ see that this great group existed. Next weekend you will likely have an incredibly colorful breast... but in a few months as tissues settle back in place, hopefully only a fine little scar will remain

    asante

  • chris-miss
    chris-miss Member Posts: 11
    edited February 2016

    hello friends. I have my surgery coming up March 7th also. (Okbecca...we are twins 😏) I will be having a BMX. I've been pretty calm ever since we settled on a set plan. However, just today, I decided that some good Ol' fashion mood swings were in order. I've been grumpy and anxious all day. Not my usual...but maybe like Asante said...freaked out is the new normal. I hope not because even I got annoyed at my behavior today.

    Here's to better days during our countdowns! I hope all our surgeries go smoothly.

    Christy

    (Btw. I was diagnosed with grade 3 DCIS and the last few days my breast (with DCIS) has become really tender/sore. This morning I felt a pea sized lump under the side of my nipple with a little clear discharge. Since it is coming off next week, should I bother bringing it up to my dr? Not much more they can do, right?

  • Asante314
    Asante314 Member Posts: 54
    edited February 2016

    Hi Chris-miss. Settling on a plan certainly helped me. It is all very complicated as so many choices for many of us, and no one outside of these wonderful boards has walked in our shoes, more like even our shoe department!

    I only have little, mostly internal freak outs - will see how I do in two weekends.... but think we should allow ourselves these moments, just not let them take over. I have a teen daughter, stressed with college/ senior year items, so if I am less moody then her all is good.

    which coast are you moving to/ from?

    My journey started w a nipple dc, tea stain. That wound up being a simple papilloma (benign) which needed excision because it persisted. I would call the surgeon this week to review, might just make a difference intra-operative if they are having a pathologist on hand, nipple sparing MX. But I am not a breast surgeon, so just my thoughts. Also the more you palpate your nipple the more dc that will occur. When I first had the dc I was told not to express, let them see how often I was having leakage: answer just a drop noted on clothing each time I slept on my belly.

    Hmmm, going to miss sleeping on my belly for a long time. Oh well, hopefully my wonderful massage guy can rectify whatever my back protests about that!.

    asante

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited February 2016

    hi ladies. I'm heading in for another surgery next mos - prophylactic bilateral salpingo/oophorectomy. That is, assuming I finish rads on time. This is one long road to travel. On the upside, my bmx was not bad. I was exercising in 3 weeks, as soon as the drains were out. Big hugs to you all!

  • iammags
    iammags Member Posts: 216
    edited February 2016

    Hi fellow Marchers! I'm going in on the 2nd to have a lumpectomy/reduction on the cancer side and a reduction on the other. I'll also have a SNB. The BS is not sure that she won't have to do a mx we will have to wait and see. I'm nervous but I really want to know what's in store for treatment and then get on with it. After a MRI the radiologist thinks that there may be cancer in the lymph nodes.

    I've freaked out once or twice so my doc gave me a prescription of Ativan and that's helping. The longer this process takes and the more results that I have to wait for the crazier I get.

    Good luck to everyone going through surgeries and tests. Here's to everything working out! Hugs and good wishes for all!

  • chris-miss
    chris-miss Member Posts: 11
    edited February 2016

    mecool- I've been thinking about you and your upcoming surgery. The first of us Marchies. I'm hoping all will go smoothly and you can start your road to recovery and back to real life.

    Cajunqueen-I'm glad your bmx recovery was so quick. I'm hoping to follow in your footsteps. :) so sorry that wasn't the end of the road for you. I hope this next recovery goes just as well.

    Asante- we will be moving from Vegas to Charlotte. Last week I took a boob-cation to LA to visit my sister and hit the beach as many times as we could. I wanted to wear my swimsuits while they still fit!

    Thank you for the advice...I decided to call my nurse on Monday just to let my Drs know what to expect. Mine is not nipple sparing, so I imagine nothing will change with surgery.

    My daughter (11) gets the most stressed out and worried about me (here 4 brothers are more worried about dad cooking for 3 weeks!). I try to keep my spirits up for her. I hate to watch her worry

    I think I'm most nervous about that blue shot in the nipple before surgery. For heavens sake...why can't the knock us out for that!?!

  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    The dye was less upsetting/difficult that I anticipated. Xanax is your friend.

  • Mecool
    Mecool Member Posts: 70
    edited February 2016

    Thanks, chris-miss! I probably spent too much time this weekend reading through everything and freaking myself out. I have PET scan scheduled for tomorrow morning and my nerves are shot over the anticipation of that. I need it to be good. It has to show that the disease is no where else in my body. Once I get through that, I can more mentally prepare for surgery on Wednesday.

    And now y'all have me freaked out about some big needle?!?!?! What the heck? Is this why we get the lidocaine cream to apply before checking in?

  • Asante314
    Asante314 Member Posts: 54
    edited February 2016

    Mecool, thinking of you this morning for your PET scan. I am also have the SNB injection. My surgeon laughed and said mom's always ask about EMLA (lidocaine cream). Then said if she has time/ availability she prefers to do it herself for her patients and tries to distract them with stories of her kids, and a little freeze spray. Here's hoping she does mine that day!

    Chris-miss: boob vacation. I had visions of doing the same, but alas decided on vacation in NOLA next weekend as my send off. perhaps I can earn some beads? Maybe do a comparison and let my PS know if I get more beads before or after??

    cajunqueen15, welcome to March... hope you sail through this next step of your journey. exercising at 3 weeks sounds divine. Perhaps I will head back to work with better exercise habits. Where did I put that fitbit? I see you have toddlers (tag line). When were you able to lift them, tackle them for perhaps uncooperative diaper changes following your BMX?

    iammags: feel free to be a little, (or however much you need) crazy here. Only a few more days, and this step will be behind you. Will your BS possibly do a MX with this procedure, or if need be on a later date.

    Speaking of crazy - while this is NOT a recommended journey, I am hoping to have a nice recovery and then enjoy my longest break from work in nearly 20 years. ok perhaps is wrong word, I think I am trying to convince myself all will be ok and thus planning on enjoying some time away from the office. Active job with movement/ lifting and not really amenable to accommodations so planing on 6 weeks minimum per BS.

    asante

  • chris-miss
    chris-miss Member Posts: 11
    edited February 2016

    Mecool.

    I know that I'll be having a radioactive dye injections to locate the sentinel node. They have to do it before the surgery so they can follow the dye to find out which nodes would most likely be the first affected by cancer, should your cancer have spread. (someone correct me if I am wrong.) My doctor told me she does that shot while you are awake because they don't want radioactive material in the surgery...a practice she would love to change. If that is why you are prescribed lidocaine, then you might want to call your doctor just to find out a little more before the surgery. I haven't really thought about it before ksusan said it, but I just might ask for xanax for something like it to calm my nerves. I've read that different people have reacted differently to it. Some don't feel like it was a big deal, some people experienced more discomfort. My doctor did say that a lot of other doctors don't give the lidocaine, so that should make a difference. I didn't want to worry you;. Just think of it as your nipples last big hurrah! One last job to do before it goes. :)

    I really hope your PET scan goes well and comes out clean. It will be good for you to know just what you are looking at. I hate the not knowing the very most. Best of wishes.

  • grandma3X
    grandma3X Member Posts: 759
    edited February 2016

    I obsessed about the sentinel node injection before my surgery in Jan. I finally asked the nurse navigator and she said they will numb me up before hand. The doctor also prescribed Ativan, which helped to calm my nerves. In the end I hardly felt the injection - it was really no big deal. If you are not sure, ask your doctor. There is also something called Emla cream that they can prescribe for you to put on your nipple- aureole area to numb it before having the injection.
  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited February 2016

    I was out for my SNB dye injection.

  • Mecool
    Mecool Member Posts: 70
    edited February 2016

    Thank you all for the kind words and encouragement! I really can't even begin to express how much it means to me to have you all here as a resource. I mean, I hate that any of us are here, but I'm glad the knowledge is available to us all! I'm at work now after my scan....hurry up and wait for results. My nurse navigator said she'd call tomorrow but the tech who administered the scan said my RO would have the results immediately so I may call later. i also need to call my surgeon's office with a few questions, one of which is about the lidocaine cream, it's already in my list of prescriptions on my medical record portal but my pharmacy doesn't have it yet. Just trying to gather my thoughts still first and then make some progress with today. Here's to hoping everyone can have a relaxing moment or two to themselves today

  • Mckaylaleigh
    Mckaylaleigh Member Posts: 90
    edited March 2016

    Mar 7 BMX with SNB :)

  • Asante314
    Asante314 Member Posts: 54
    edited March 2016

    MeCool and iammags: thinking of you tonight, hoping you are having an enjoyable night and will get some restful sleep. Then have a calm day tomorrow pre-op. You ladies are up first. You will be our leaders showing us how to recover!

    Mckaylaleigh: welcome to the Marchers! (to quote iammags)

    Okbecca: final preop completed? hoping the meeting w anesthesiologist was beneficial.


    The month hasn't even started, thanks to Leap Year, but we will all be on the other side of this step soon.

    Thank you ladies (skittle grandma3X, ksusan) for letting us know about your SNB experience. Surgeons are a finicky group. It would be interesting to see at the end of a month or year an unofficial tally of:

    SNB: unconscious, no cream (and not allowed), EMLA

    Showers allowed when? (I wonder if this answer varies by reconstruction procedure)

    Arms allowed to be lifted when?

    ccs of drainage before the drains are pulled?


  • chris-miss
    chris-miss Member Posts: 11
    edited March 2016

    iammags - I didn't realize you were on the 2nd with mecool! Sending good vibes and hugs for you both!!.

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    Asante314 - I love that idea. I would love to see everyone report back on how they were able to manage certain post op steps and when. I do have my cream all ready now, picked it up yesterday. My written instructions from my surgeon say I should be able to shower on Thursday and instruct that I try to do it as normally as possible, using my arms but paying attention to my body so we'll see. I'll also have the PT and a Lymphadema specialist see me in the hospital tomorrow evening or Thursday morning before I go home to tell me what I should be doing to prevent as many problems as possible. I will definitely keep you all posted. And I will also be thinking of all of you in your preparations.

    iammags - lifting you up with positive vibes and praying our surgeries are as quick, painless and uneventful as they can be! We go this! All my love!

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    Odd, how docs give such diverse instructions for the same surgery. I'm not supposed to shower for two weeks and can't raise my hands above my shoulder -- not sure for how long on that one.

    I think it's a great idea for us to report back. It may help those coming up, and it will also help us to debrief !!

    I stood in front of a mirror this afternoon and looked, trying to imagine life without them. It all seems unbelievable, even now.

  • Mckaylaleigh
    Mckaylaleigh Member Posts: 90
    edited March 2016

    No shower for 2 weeks? I wasn't told anything, assuming I will be after surgery. I feel so much less informed than you all so I definitely would like to hear from everyone. I am really curious about driving too. My husband needs to go on a trip 2 weeks after my surgery and I am hoping to be good by then but not sure about the driving part.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited March 2016

    I got all of my instructions after surgery.

    As for driving, I kinda pushed it and drove at 6 days post-op. Surgeon told me that as long as I wasn't taking pain killers and wasn't in so much pain that I couldn't safely operate the vehicle, I was fine to drive.

  • Asante314
    Asante314 Member Posts: 54
    edited March 2016

    I asked about showering at my preop visit last week. I had read so many different plans, and knew it was something that would matter... sometimes just hiding in the shower is a happy place to be, but not sure how it will be when I look down.

    driving? I've heard ladies post, when not on meds or when drains out and not on meds. Good thing my DD is a great driver. I think she is hoping I need a ride and she has to leave school to take me.

    Mecool & iammags: thinking about both of you. You've got this. Deep breaths and what ever makes you feel better.

    Mecool: wow nice to hear you get to see PT/ lymphedema expert before leaving the hospital. nice. proactive.

    Okbecca: I think I missed your procedure, MX? Lump or other.

    your line about the mirror... I contemplate covering the mirrors in my bathroom, the big ones that run from the counters up. at least the lower 2 feet or so. body image issues aside, not always happy walking out of the shower now seeing nearly full frontal. Not sure I will be ready for that right away. But I too wonder. Sometimes the realization of there is no return policy after is scary, but I am as ready as i can be.

    Hugs to all. and extra hugs, for Mecool and Iammags for good experiences tomorrow.

    asante


  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016

    Would it help to see photos of BMX no recon? I'm willing to post them again.

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