Winter 2015-16 RADS

Marijen, Have you tried one of your other docs....RAD doc, oncologist, or even primary? Every time I ask for a refill, they give me a 2 month supply. Wish I could share, to get you through. Hugs!

I asked for Ativan during chemo, and they gave me a bottle of 90 (no refills).

You read that right.

I also got 90 Norcos (just the little guys). I think I've taken a total of seven pills, out of 180. Marjean, it seems we have the opposite problem.

Ask for what you need. If they want to be all Judge Judy about it, that's on them.

i wish I lost weight. Through this whole experience I've gained 30 pounds.

I haven't posted in this group but I have done a lot of reading here. I have appreciated the information I have gotten from this group. I am going to my Sim tomorrow. It has been comforting to hear others experiences. I saw some pictures that were taken back in December of the radiology machine ( I guess that is what it is called). I don't know what I expected it to look like but that wasn't it. I'm glad to have seen what it could look like before I get there. I don't know when they will start the treatment but I was told I would have 21.

Interesting all the different ativan experiences. I was given an Rx when I began chemo. Each bottle was for 30 and I had the option for 5 refills, which expires tomorrow. I just got the 4th refill but will see my MO next week and will ask for an update. I'm pretty sure I will get it. They know how it helps me sleep!

I got a call from the dietician at the RO's office today. She's concerned about me losing weight! I've lost 25 pounds since my regular checkup last March, which suits me fine, actually. I weighed more than I needed to anyway. Got the BC diagnosis in June and it's been downhill ever since. Nice to know that someone is paying attention! I told her I would try to eat more. Stuff tastes OK now that I'm done with chemo. Mostly I just don't have much interest in food for some reason.

Yay Shopgal! I finished rads yesterday - 16 plus 5 boosts - and have benefitted so much from reading everyone's posts here. In the end my skin got a bit red and itchy but nothing horrible. I feel for you all who have had a worse go. I did get bad indigestion during treatment and lost interest in eating. I'm looking forward to something more than plain crackers. The fatique was noticeable but as long as I could stop and rest for 20 minutes it was ok. Thanks again to everyone for posting, it has been a huge help in managing this whole thing.

Thank you Jersey Girl. I should have married a doctor, preferably a plastic surgeon.

JerseyGirl: my RO is also a very tall "walking stick of a man." Hmmmm.

I had my boost sim today. It was about 10 minutes. Technically, easier than the first sim, but because my chest, armpit, and shoulders are so tight, it was excruciating. I was so happy when we were finally done. My RO is very pleased with my burntness and said no more bolus--which isn't that exciting since I only have two more whole breast treatments and only one would have been a bolus, but I guess I'll take it! Boosts should be super quick.

This thing is a real rollercoaster. Some days I'm just miserable, and others I have plenty of energy. Generally, I'm somewhere in between. I feel mostly OK today, although sleepy.

7 more...

@jerseygirl - three more for me too! Only no bell at my place.

@Kate - I'm supposed to be holding my breath??

Congrats shopgal and ivy!!! Every time I grab my coat to leave I wanna RING THAT BELL...it reminds me of the chiobani PULL THAT PEACH commercial

My RO is a combination of Beeker from the Muppets and Doogie Howser

Duzy and Kate I'm so over the snow..It's been the most stressful part of rads so far. I hope you both made it ok and didn't have too much to shovel.

Thanks happyh I did relax and ignored the buckets..too tired to be stressed.

I'm soooooooooo red and itchy looking forward to the weekend break

Maijen I'd ask anyone for some Zofran or Phenergan I hate feeling sick hope you get a rx and it passes soon.

Hang in there ladies it's FRIDAY...almost

Off to watch the blacklist goodnight all

Diane

Had my visit with my RO today and they are going to do xrays tomorrow and start the Boosts ! Instead of 9 , they are only going to give me 7 ! So Im right there with ya Twnkltoz! Welcome KarenR0618, you will find these ladies a great help during your treatments....and JerseyGirl 2 , I hear you with the fatigue....Im so exhausted at night I cant even think....So here is something to make everyone laugh....tonight I had some nuts and cheese....nice snack and proceeded to brush my teeth until I discovered I had put Miaderm on my toothbrush instead of my toothpaste....I am soooo done with the tiredness, and confusion....my DH and I laughed so hard.....so as Brimton said .....Onward....everyone sleep well and have a better tomorrow......

Shopgal, congrats on getting through rads. I know we all go through wondering if our treatment was enough, and we all have to wait and see. It looks like you did everything you could, so try to put it out of your mind and enjoy the time until the next mammo or scan or whatever. Feeling good counts for a lot! Even with my garden variety cancer I wonder if I need to do more.

Peabrain, not everyone does the breath holding. I think if you are having rads on your right side or in the prone position you wouldn't necessarily have to. It is a technique used to protect the heart mostly, although I'm doing it to protect my lung on the right.

HH and Kate, my RO is tall and thin also! And young.

I'm glad we get a break on the weekend. Even though this is my first week I'm looking forward to it.

meme2000 i have been on tamoxifen for 3 weeks, started rads 2 weeks ago. I do not feel any different than before, no side effects so far. In fact i feel way better than i did before tamox, hot flashes from chemopause have diminished considerably.

Kimmer: thanks for the ray of hope about Tamoxifen