arimidex and interstitial cystitis

maria26
maria26 Member Posts: 44
edited February 2016 in Hormonal Therapy - Before, During, and After

I have been suffering with frequency and now pelvic well really pubic pain for a couple of weeks.  Saw gynae who scanned me and said all was well.  He mentioned atrophy of the bladder but just told me to get replens etc.  Which I know helps the ladies parts but I can hardly get it into my bladder.  I have no uti but get an awful tingling sensation after urinating and this pain I mentioned.  I wondered if the lack of oestrogen has caused I.c. to rear its head.  I am 64 so post menopausal and have been on arimidex for coming up 3 years.

Years ago when I had a cystoscopy they said I had  mild inflammation which eventually settled  but never experienced pain.  I have no  burning on peeing.   just wondered if anyone who has I.c. recognises these symptoms.  

You girls are so supportive I have had messages from a kind lady in new york who suffers the same.  Anyone else?

Thanks

Maria

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Comments

  • Molly50
    Molly50 Member Posts: 3,773
    edited February 2016

    Hi maria,

    Yes low estrogen/atrophy can trigger IC. Bladder pain, frequency and retention can all be symptoms of vaginal atrophy. I have tried several different products since my bc diagnosis because I had to stop all estrogen. Replens is okay but I got a yeast infection using it. I now use a combination of KeyE which is a vitamin E suppository and Gynatrof which is a vaginal moisturizer that you insert usibg a applicator. Gynatrof can be purchased online through a couple different CANADIAN pharmacies. I also previously used a product called Neu Eve which I bought on Amazon. I follow the IC diet even though I wasn't officially diagnosed with it. Hopefully you will find something that works for you.

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  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2016

    Molly, can you tell me which Canadian pharmacies that you purchase from online? There isn't any issues with sending to the U.S.?

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  • Molly50
    Molly50 Member Posts: 3,773
    edited February 2016

    glennie19, I purchased it here Well Pharmacy Canada. No issues with sending it here and they are incredibly prompt with shipping.

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  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2016

    Thanks, Molly. I've been using RePhresh every 3 days, but I'd like to look at some other products too.

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  • Molly50
    Molly50 Member Posts: 3,773
    edited February 2016

    This has been really, really good for me. I had my ovaries removed in 2011. I was using Estrace cream prior to my BC diagnosis because I really had hard core atrophy issues. I have been desperate to feel somewhat normal, not have bladder pain and not to have painful intercourse. So far so good on this one. I use the KeyE in between the Gynatrof.

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  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2016

    I may try to KeyE first,, and use it in between the RePhresh and see how that goes. And then try the Gynatrof after I use up all the RePhresh I've purchased! I grab it at Walmart when I see it, cuz it is not cheap.

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