Can you feel your ILC and does it hurt (ache sometimes)?

warriorwannabe
warriorwannabe Member Posts: 66

Can you feel your ILC, and does it hurt (ache sometimes)? Thank you in advance!!! I feel like every little ping or twang of pain is the cancer! Love love love this board!!!

Comments

  • wallycat
    wallycat Member Posts: 3,227
    edited February 2016

    I never felt anything.

    All my medical team were stunned there was a cancer and I had no pain or anything after lumpectomy, then BMX....zip.

    It is scary not to have felt anything since it means I am flying without a net all these years.

    I do question every dream I get because that is how I "knew" I had the cancer and insisted on followups and deeper investigation; thankfully, I was right. My surgeon said he was shocked and said I saved my own life.

    Good luck to you. Newly diagnosed and it is all very scary. I will be starting year 9 and aches and pains and things that are "off" still make me go to the ugly place.


  • KSil
    KSil Member Posts: 56
    edited February 2016

    In retrospect, I did feel a tingling sensation in the area where I had my 6 cm ILC tumor. The tingling sensation would only occur for a few seconds, and would not reoccur for say a month or longer. I should have gotten it checked out immediately when the tingling first began, because I had had a mastectomy and tram flap reconstruction 8-years prior and should not have had any feeling at all.

    I thought that perhaps it was nerves regenerating after 8-years (wishful thinking, I suppose). My thoughts now are that the tingling I was feeling were cancer cells on the move. I wouldn't say that I had an ache though. Anyway, that was nearly 3-years ago, and I am doing fine.

  • warriorwannabe
    warriorwannabe Member Posts: 66
    edited February 2016

    thanks Ksil....so you had ILC AFTER a mastectomy?

  • KSil
    KSil Member Posts: 56
    edited February 2016

    Warrior - yes, I got ILC 8-years after a mastectomy and tram flap. The tumor was growing in the flap. I think that there may have been a few stray residual cells because my situation was so odd. I had breast reduction surgery at age 40 and I had never had a mammogram. The plastic surgeon called me three days after my reduction surgery and told me that the pathologist tested the breast tissue and found cancer. That floored me! Flash forward, I had a 3 cm tumor of high grade DCIS with comedo necrosis, and a mix of LCIS. My thoughts are that because of the reduction surgery there was no way to pinpoint exactly where the entire DCIS/LCIS was, even though the tissue is marked when they remove it. I was so upset that I didn't get a mammogram prior to surgery, but the plastic surgeon did not request one, and to be honest, I didn't think I was at risk for breast cancer. It did not run in my family and I was only 40. Wow...how much I have learned since then!

  • jcfree
    jcfree Member Posts: 105
    edited February 2016

    My ILC 5.0 tumor was painful. I would get sharp shooting pains, then aching pains started right before I was diagnosed. Had a masectomy last July so no more pain from the tumor.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2016

    In a word, no.

    I was shocked to find it after 5 clear regular annual mammos. BUT I did "sense" something was wrong in my body; hard to describe it but the summer before I found it, I just felt something was "dark" in me, and would eventually turn my world upside down. I was right.


  • vbishop
    vbishop Member Posts: 616
    edited March 2016

    No pain for me....and I ended up having six tumors, not the three that showed up on diagnostic mammogram.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited March 2016

    started as an itch., 2 months later tingle, a month later pain ( the week of my annual Mammo) tumor was right under the itch. Other breast had tingles beginning. Had atypical changes starting there too

  • MFalabella
    MFalabella Member Posts: 176
    edited April 2016

    I haven't started treatment yet, and my breast hurts all the time. My MO has me on pain medication. I also get an itchy tingling feeling. Totally disturbing. I can't wait for surgery to get this mass out of my body!

  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2016

    I never felt any pain at all.

  • dtad
    dtad Member Posts: 2,323
    edited April 2016

    Not only did I not have any pain but the mass did not show up on 3D mammo or ultrasound, only MRI.....surprise

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited April 2016

    I had absolutely no symptoms. No palpable lumps, no pain, no itch, no nipple discharge or inversion, no dimpling. Nothing. Even after viewing diagnostic mammo and ultra sound results the breast cancer specialist and surgeon were not able to feel my lumps. That's despite the fact that I had multi focal disease. I had 4 cancerous tumours; the largest turned out to be twice the size that it appeared on the imaging. Lobular is very sneaky.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited April 2016

    mine started to hurt shortly before my surgery. The tumor was near the surface and pressed on the nerves in the ski

  • Kamiecake
    Kamiecake Member Posts: 7
    edited July 2016

    pain is actually what sent me to the doctor. I had a mammo and ultrasound and was told it was nothing. Pain continued and I went to surgeon who did biopsy and that's gowns was diagnosed.... I still have lain. Just had my first chemo 6.30. Surgery will be after all chemo.

  • Kamiecake
    Kamiecake Member Posts: 7
    edited July 2016

    I understand your story, same thing happened to me. If it were not for me insisting non seeing a surgeon this monster would still be growing. Good luck to you!!

  • fleur-de-lis
    fleur-de-lis Member Posts: 107
    edited September 2016

    ok, I am going to ask this question here, hopefully someone comes back and shares their opinion.

    I was DX.ed with ALH in my right breast back in 2009.. All has been quiet until this past summer( July) when an MRI showed some questionable findings on my left breast and a core biopsy followed...benign findings.

    Now my right breast with the ALH has for the last two weeks, since the core biopsy....had a strange pulling sensation, also feels like something is squeezing it a bit...not constant, but still there never the less. No inverted nip, rather, just the opposite, standing at attention, which is unusual for this particular sister, when she stands at attention, I get a tingling feeling...almost like what one would feel during a cold breeze to exposed skin.

    I have never felt anything like this before, will finally call the Doc tomorrow, but am amazed since nothing showed up on the July MRI on the right breast....just rather unusual

    Anyone have similar sensations prior to your DX.

  • Licata519
    Licata519 Member Posts: 57
    edited September 2016

    okay, all of you science-minded. Yes, now that I have been diagnosed, I feel the tumor, and more (tumor). It aches, but here's my question. I have been pounding the pomagramate after the in vitro findings of its aromatase inhibitor properties, but I'm wondering if my tumors are reacting to the estrogen in the fruit??

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