Starting Chemo December 2015

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  • chinacat
    chinacat Member Posts: 78
    edited February 2016

    so sorry for those of you who have lost your pets, family members really, during all of this cancer crap.

    Pez, my wbc's are crazy high. 50,000 at my mid cycle check up. Then 18,000 when I went for my second taxol. I don't know why. I take probiotics and a daily vitamin. I'm also AC & T every 2 weeks. You still have hair on your head?

  • Lou53
    Lou53 Member Posts: 81
    edited February 2016

    PezGal, I am so sorry about the loss of your dog. She was beautiful. My loss and diagnosis also happened in September. I have considered getting another dog but I just don't know if I am ready yet.

    I am also sorry about your setback with chemo. I know that I would be devasted. I take the Neulasta shot but if you are getting weekly infusions you get the Neupogen. It has helped me a lot and my counts have been ok enough to continue treatment so far. I found this regarding boosting your white blood cells:

    Here are some things which can help prevent low immunity and keep white blood cell counts high: - Avoid sugar and keep sweet stuff to a minimum. Sugar prevents white blood cells from being their strongest - Eliminate unhealthy trans fats. - Drink plenty of water to flush out toxins - Exercise is a proven immune system booster. Exercise is best in moderation, however, since too much exercise may wear the body down and create immune system problems. - Avoid stress and try to relax. Too much stress invariably leads to a lowered immune system. Carrots and other red, yellow, orange, and dark-green leafy vegetables contain beta carotene which helps protect the immune system A cup of kale will give you your daily requirement of vitamin A. This is an antioxidant that helps your body respond to invaders. Garlic is another good anti-bacterial, immune-boosting food. Supplements can play a big role in boosting immune function. Some examples: - Astragalus root helps boost immunity and enhances production of the important natural compound interferon to fight against viruses. - Zinc is necessary for white blood cell function. - Vitamin C is an immune enhancer that helps white blood cells perform at their peak and quickens the immune system response. - The trace mineral selenium is vital to the development and movement of white blood cells. - Both Siberian ginseng (eleuthero) and Asian ginseng provide support for the immune system. - Mushrooms such as reishi have also been shown to boost our natural immune system. - Green Tea is another good one.

    Don't over do it just because your parents are there. I am sure they will understand. Let them help!

    Each day is one step closer to the end of this! :)

  • mvspaulding
    mvspaulding Member Posts: 446
    edited February 2016

    so sorry for those of you that lost pets right around your diagnosis. I would be a wreck. One day these black clouds that are hanging over us are going to clear.

    I'm at my plastic surgeon appointment right now, going to talk surgery dates for getting my final reconstruction. That's a step in the right direction!

    Pezgal sorry about missing your treatment. You have a right to be upset about that. :(

    Happy Friday everyone. Hope the weekend is good for all

    Btw, we are under wind advisory today. When I was getting ready today I thought no wig. I could see myself chasing my hair down the street after it blew off

  • Angtee15
    Angtee15 Member Posts: 209
    edited February 2016

    mvspaulding I am in Chicago and left the wig at home today for chemo. The wind insane!

    Pezgal I have had consistently good blood counts throughout Taxol. I mainly work from home and have stayed away from the subway and other crowded scenarios when possible. Occasional movies (wear a mask), eat out once in awhile, and have kept shopping mostly online. The chemo nurse today thinks that is a big part of my numbers. I know my quasi recluse approach isn't doable for a lot people or even appealing though. I also take a couple spoonfuls of black strap mollasses and drink a sh*tload of water. I read on here on some thread that the Molasses helped their blood counts. It tastes awful but I just chase it with more water.

    Good luck! I have the dreaded AC next.

  • Lou53
    Lou53 Member Posts: 81
    edited February 2016

    Mvspaulding- lol on losing the wig! We had 50 to 60 mile an hour winds here in Ohio too. I ran to the store and had my ball cap hair on and was afraid of the same thing. Can you imagine having your wig or hat fly off and chasing it around! Good grief.

  • mvspaulding
    mvspaulding Member Posts: 446
    edited February 2016

    Right? I had a very bad image of it in my mind lol. I work downtown Cincinnati and we went out for lunch today. So glad I had my hat onha

  • Lou53
    Lou53 Member Posts: 81
    edited February 2016

    Wow! I work downtown Dayton! :)

  • Sammy3
    Sammy3 Member Posts: 136
    edited February 2016

    I wish I could eat :( I'm in that phase where I'm hungry, just can't eat. Ugh.

  • mvspaulding
    mvspaulding Member Posts: 446
    edited February 2016

    we are close Lou!

    Hang in there Sammy. My appetite is starting to come back now. My Mom and two of my sisters took me out for dinner last night to celebrate the end of chemo. It was nice. I even had a glass of wine.

    What is everyone's take on alcohol and BC/recurrence? I'm one who woul like to drink a few beers in the weekend or wine. Also like to golf and have some beer while golfing. But now I'm kind of apprehensive about drinking any alcohol.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited February 2016

    My friend was diagnosed 4 years ago and still drank during chemo (she cleared it with her MO). She still enjoys her wine and other alcoholic drinks to this day. We usually have a couple of bottles of wine available at our cancer support group meetings.

  • Nebraska917
    Nebraska917 Member Posts: 64
    edited February 2016

    I'm still going to enjoy and drink when I want i think... it's a big part of my social life. Not that every little thing doesn't scare me still. Eating certain things, drinking too much... but hopefully with time the stress and anxiety of reoccurrence will fade so I can enjoy my life without being scared :/

  • Lyra10
    Lyra10 Member Posts: 59
    edited February 2016

    I cleared wine with my doc too. But I have really good numbers and I'm not getting of that Herceptin stuff, I just have a tax / cyto. I have packed on the pounds so my next goal after my final 2 is start dropping the weight!

  • mvspaulding
    mvspaulding Member Posts: 446
    edited February 2016

    guess who has red bumps popping up all over her head again? Grr, this stuff just doesn't want to leave me.

  • Twirp26
    Twirp26 Member Posts: 178
    edited February 2016

    mvspaulding, that stinks. I have been trying to keep a journal of my side effects and when they happen. It seems like week 2 I get red bumps on my face and head. Mine are not painful but just annoying. Just let that last dose run its course and I bet they go away!! Gone forever red head bumps!! 😝 Hope they don't hurt too bad. Hang in there!!!

  • PezGal
    PezGal Member Posts: 99
    edited February 2016

    Double wow... I'm from Dayton! My parents still live there

  • Sammy3
    Sammy3 Member Posts: 136
    edited February 2016

    Hey we should have a Midwestern get together this summer! I am north of Indy!

    In other news, sorry I need to have a pity party. My husband did yearly medical screening for work, and low and behold his blood sugar is in diabetic range. I can't believe it. Guys, we are 44, don't drink excessively (like I'm lucky to have a couple beers a month), never smoked, never did drugs, are in decent shape (I weigh 130, he's somewhere near 200 and works out EVERY DAY at lunch). WHAT THE HECK!?!? I want to cry. I feel so lost and don't understand why our bodies are failing us :( Today we went for breakfast while the kids were in Sunday school (eggs only!!!) and there were 3 million old people around complaining about medical stuff as only old people can do. And I wanted to scream "At least you are OLD!!!"

    ugh. Not feeling the love from the universe. I'll be better tomorrow.

  • mvspaulding
    mvspaulding Member Posts: 446
    edited February 2016

    It would be fun to meet up somewhere for sure!

    Sammy I'm so sorry about your husbands test results. That definitely sucks. We all wonder "why me" a lot and probably will never get that answer. You can be strong for him now. Take care.

    Red bumps are back in full force. Called Dr for antibiotics. I have bought these wigs and barely get the chance to wear them. Oh well, there are definitely worse things.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2016

    ((sigh)) So I'm starting to understand the "cumulative" effects of weekly Taxol and Herceptin. First 2 txs, not so bad. This 3rd one, on day 3 after, has knocked me on my butt. So much so that I had to send my 3 1/2 year granddaughter home a day early. I really wanted her for 2 nights :( Headache, flushed hot face since yesterday, extreme fatigue, slightly feverish (blood count related?) arms and legs ache deeply. Will try a different visit schedule with her based on this. Do you guys think it will continue to build up each week? Because I'm no wimp but today was close to intolerable. Still better than my first ever infusion of Taxotere, Carboplatin, Herceptin, and Perjeta. I call that the "Killer Chemo Cocktail. " Put me in the hospital for 5 days. 9 more to go of this alternative tx. Have a safe and happy week ladies. Heidy

  • chinookmom
    chinookmom Member Posts: 45
    edited February 2016

    Hello all~

    Got a good chuckle about possible wig storm of 2016. Its been hot and mild in LA.

    Mvspaulding- Argh! So sorry you have the bumps again. I get them everytime, but never as bad as chemo 1. The antibiotic Clindamycin gel really helps me. The oral antibiotics give me a yeast infection. Hope yours resolve quickly and that you are all done with them now that chemo has finished!!

    Sammy3- Sending you & your husband positive thoughts. I hope your husbands doctor has some good suggestions on how to manage and hopefully ajust his blood sugar levels.. Have a cry if you need it & lots of good hugs with your husband!

    Twirp26- Great idea to journal your side effects!

    Lovely to see more furbabbies -Sammy's boxing pair of kitties, brithael's Sydney & Scout & anyone i may have missed.

    PezGal- I'm so sorry to hear about the loss of your dear Manny. What a beautiful boy. Aerys has a sweet face and I'm happy he is stepping up for comfort and cuddles. Estra & Poe are super cute!

    My finger tips and toes are really hurting today. Typing has been really difficult . Just feeling really OVER it today. Rapid heartbeat etc. Would so love a day to feel like a normal person again.

    Unfortunately I keep thinking I have ONE more chemo left, but I have TWO. Ugh!

    Hope everyone had a relaxing & enjoyable weekend : )

  • Sammy3
    Sammy3 Member Posts: 136
    edited February 2016

    chinookmom - I am with you! Same protocol & I have two left. Funny at the beginning it seemed to go fast - now it seems to be taking forever. I want to be done so badly. It's probably why I am more down and keep having pity parties :)

    Jealous of your mild LA weather - maybe us midwestern girls can come visit you! :)

    OK ladies - lets have a good week. I am ready!!!!!

  • Twirp26
    Twirp26 Member Posts: 178
    edited February 2016

    Birdie56 my arms and legs also ache very bad. It seems to be worse after my 4th visit. I had Perjeta, Herceptin and taxotere. I will start FEC on the 29th. I wonder if it is the Herceptin or if it is just fatigue???? It's not really my joints but they feel exhausted!! I get tired walking to the mailbox and back:( Sammy, sorry to hear about your husbands results. I really don't understand life sometimes??? I will say prayers for both of you!

  • Lou53
    Lou53 Member Posts: 81
    edited February 2016

    Must be the curse of the 4th visit because I am not doing so hot either. I was decent until yesterday. I have no energy whatsoever. Slept most of the day yesterday and couldn't even make it to work today. Getting so disgusted with this crap. My legs are nothing but mush and I get out of breath walking across the room. Really feeling down. :(

  • mvspaulding
    mvspaulding Member Posts: 446
    edited February 2016

    I know what you mean about the mush legs. I have to walk about 3 blocks from my parking garage to building every morning and most of it is uphill. By the time I get there my legs are mush and I am breathing so heavy. I keep waiting for it to get better but it doesn't. I just attributed it to muscle atrophy from inactivitybut not sure now.

  • Angtee15
    Angtee15 Member Posts: 209
    edited February 2016

    Ladies definitely report those symptoms to your oncologists right away. Are you anemic?

    Not to be alarmist but I was experiencing extreme shortness of breath and heavy legs walking seemingly short distances and it turned out I had blood clots. My MO kept telling me the shortness of breath was normal.

  • Twirp26
    Twirp26 Member Posts: 178
    edited February 2016

    Angtee15 did your arms feel the same way?? If I am still or sitting or laying down I don't feel it. As soon as I get up and walk any kind of distance, my legs and arms feel sooooo tired. I also need to stop to catch my breath if I move too fast. If I slow down my pace, I don't feel as winded. Are there any other symptoms that go along with blood clots?

  • chinacat
    chinacat Member Posts: 78
    edited February 2016

    Hi All, so my last treatment (2nd taxol) didn't go great and we had to stop it. I met with my MO today and he said I could be allergic to paclitaxel but I am most likely allergic to cremophor, the chemical used do dissolve the paclitaxel. The new plan: I'll be starting abraxane, which doesn't use cremophor to dissolve the paclitaxel. on Wednesday. These are weekly rather than biweekly so I have 6 to go. On a good note, it's a 45 min infusion vs the 4 plus hours for taxol. For the first infusion of abraxane I'll also get steroids and Benadryl as we aren't 100% sure that it was the cremophor that I was allergic to. If I don't have a reaction then it was the cremophor and I don't need the steroids and Benadryl anymore. Has anyone else had abraxane?

  • lawyer180
    lawyer180 Member Posts: 36
    edited February 2016

    I'm freaking out a little, has anyone heard of this...I've had my 4 AC treatments and start 12 Taxols in 2 weeks. After my first AC, my 2.5 cm tumor felt smaller and at my 4th treatment, Dr couldn't even feel it (yay!). However, I felt a lump this morning in the the shower (not large) in the exact same place, I was thinking maybe it's scar tissue from the biopsy or something? Now, it definitely feels bigger (more lump -like) and it's sore. Thoughts??

  • Angtee15
    Angtee15 Member Posts: 209
    edited February 2016

    Hi Twirp I didn't feel it in my arms. Just my legs. Going up the stairs was the hardest. It would come and go but I started to get a little winded just sitting and talking! Thats when I went to the hospital. Other symptoms I had (but dismissed) was feeling light headed and I had a high heart rate at times.

  • Sammy3
    Sammy3 Member Posts: 136
    edited February 2016

    lawyer - I feel my scar - its pretty thick so I have a hard time telling what is there or not. My doctor told me it was scar. When do you go back?

  • jodes001
    jodes001 Member Posts: 92
    edited February 2016

    Hi all!!!

    I had #12 Taxol today!!! I'm finished with that part of my treatment. The last week I have been terribly fatigued in arms and legs. I told MO, and he said it was probably from steroids. Has anyone been told this? I assumed it was a cumulation of Taxol finally getting to me. Anyway, I have 8 days until I go back to work. I am going to start part time for a bit and see how feel. I'm having a hard time with endurance and need to try and build it back up. :/

    My Mom, sisters and daughter surprised me at chemo today with balloons, flowers and cupcakes. I am so blessed to have these wonderful women to love and support me!!!

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