Winter 2015-16 RADS

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  • morelandks
    morelandks Member Posts: 51
    edited February 2016

    Thanks so much to all for the virtual hugs re losing my ring . Since you asked, no, I am not required to remove hand jewelry for tx (just any necklaces) - I'm just really, really foggy with the fatigue and then it was an Ativan day to boot, so I left it in the washroom or changing area. In some ways it is an inconsequential loss, but it hits all my emotional buttons of loss and of feeling so much less myself due to SEs and blah blah blah. So, thank you for letting me whinge at all of you and for responding so kindly.

    MAIRWE - re tatoos, I agree is totally your choice. I really did not want them either, but got them because my docs insisted. They said it helps ensure the precision of the zapping (ok, they didn't use the word "zapping") - they really care about getting down to the millimeters and covering exactly and only the targeted areas, and, well, I obviously care about that too. The tats are extremely small and not that noticeable - look kinda like freckles. So, I decided to go ahead with it, and maybe I'll have the top one removed if it bugs me after everything is healed up.

    Today is 23 out of 33 for me (and the last 8 are boosts, so I only have a couple more of the big area comprehensive zaps - "big area" includes my whole right side chest and clavicular node area). I am experiencing extreme fatigue (slept 12 hours last night and I still feel like road kill this morning), but minimal skin impacts - some scattered splotchy redness, some itching around my collar bone and center breast bone ( i.e. those areas that have had'some sun exposure over the course of my life) and some soreness around and under the nipple. Overall I am amazed at the relative mildness of my skin reactions, especially given how fair skinned I am (seriously - fish belly white - I have a hard time finding makeup pale enough and I'm all about SPF 50 but still get sunburns, etc.). So, for those of you starting out with rads, take heart! There is a wide range of SE experience possible, and maybe it will be awful, but maybe it won't!

    Have a restfull weekend everybody and virtual hugs back!

    Kim

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited February 2016

    Well, 23 down today! 2 more regs and 5 boosts to finish! Pray for all of you lovelies while I'm laying there on the table... I call it my Warrior Women prayer list... All of the women on this board and others...

    Warrior On!

  • mairew
    mairew Member Posts: 84
    edited February 2016

    I am still obsessing over this. Sorry peeps. If anyone got the stickies instead of tattoos did they bother you at all during the treatments? How often did you need to get new clean ones on. My stickies are a bit grubby already and its only been a few days. Did they get itchy? The Rad dr leaned towards using the stickies but said it was up to me.

  • biscuits
    biscuits Member Posts: 3,304
    edited February 2016

    mairew: I was given three tiny tatoos...just the size of a tiny freckle. I can hardly see them unless I put my reading glasses on! I do have two stickies, as well. I have troubles with some adhesives, but these don't bother me a bit. I shower normally and slather creams all over them. When they start looking grubby (about at the week mark) the techs just change them out and remark. They told me not to worry about the stickies and markings, just do my normal stuff and they will take care of them.

  • Fearless1956
    Fearless1956 Member Posts: 106
    edited February 2016

    Brightsocks & JuniperCat --- I finished up the 16 day treatments on 2/2/16.  At the beginning, I also could feel more of an irritation and slight itching right after each treatment.  It wasn't until around the 10th-11th day that I could tell that my skin was starting to get pinker.  The last week and then the week after finishing were the times that it was most pink/red and very itchy!!!!  It definitely does get worse before it starts improving, even after radiation is finished.  When I've gotten sun-burned in the past, I would tend to get "sun poison" with little itchy bumps and that's kind of how my skin reacted to radiation.  I had some of the same type of little bumps more at the upper part of my breast/cleavage area.  Those bumps and the skin then started turning "tan" looking about a week to 10 days after finishing radiation.  The itching has subsided, the little bumps are gone and the skin is just a darker color.  I am very fair skinned & I've been pleased that my skin has held up as good as it has.  Suz-Q's comments are on target---everyone's experience is different and you will make it through the treatments just fine.  

    Morelandks  --- That just makes me sad to hear you lost your wedding band.  I'm praying it gets turned in or shows up somehow or another.  Our emotions are on such a roller-coaster ride anyway and we don't need any other issues making them worse. 

    KateB79 --- Weird is definitely how it feels when rads is over.  For several days, I kept thinking I'd forgotten my appointment.  Once your done, it's on to the "new normal."

    Mariew --- I had the stickies vs. the tattoos.  I was gentle with those areas in the shower so as not to scrub the sticky or the markings off.  Anytime the technicians noticed that they were coming loose or looked "grubby," they changed them.  Mine never really itched or bothered me. 

    Anyone else who has finished rads started on oral hormonal-type meds yet?  If so, what are you taking and are you having any side effects?  Or maybe I should leave that question for another forum. 

  • Scotland219312
    Scotland219312 Member Posts: 237
    edited February 2016

    MaireW: I have stickers. Lots and lots of stickers. I have zap 20 this afternoon. Some stickers are a bit grubby, and a couple have been replaced. They haven't bothered me at all except for the one that shows in the neckline of most of my shirts. I get 5 different beam positions, and my chest looks like a Matchbox car track. I've found them to a minor inconvenience, and am glad they'll be gone in a week or so. Now that my skin is starting to look a bit irritated, they don't want to pull any stickers off for fear of damaging the skin. Once they're finished with them, I can let them fall off on their own.

    I'll have mostly different markings for my 5 boosts, and they may just do Sharpie.

  • marijen
    marijen Member Posts: 3,731
    edited February 2016

    Cancer Patients Who Miss Radiation Treatments at High Risk for Relapse

    @Cancercompass.com


    3-D mammography improves cancer detection and cuts 'call backs' over three years

    Study offers first look into long term performance of 3-D mammography screening

    Date:
    February 18, 2016
    Source:
    University of Pennsylvania School of Medicine
    @sciencedaily.com
  • Tessio
    Tessio Member Posts: 46
    edited February 2016

    Mdoc, I am now having shooting pains in my left shoulder, also same side as cancer. It just started this afternoon. My treatment time is at 3:30, so I will ask the nurses. My table time is 30 minutes daily, so I'm hoping that it is just an irritation from that position. I think the worst though. I also just feel off today..... tunnel vision..... as I walk down the halls. Trying to hydrate more. No protein with me, but tons of chocolate from my coworkers.

    Today will be 20/33. No more bolus, because I'm so pink.

    Reading and posting has been so therapeutic for me. Sending you love!

  • luzeelu
    luzeelu Member Posts: 101
    edited February 2016

    Just got back from zap #2. I'm a bit tired and will try to get a short nap if possible. I'm pretty sure the tiredness is left over from chemo and not from rads at this point. Friends are coming over this evening for pizza and a card game so I don't want to be wiped out by early evening.

    I'm curious about all the differences we have here. I got 3 little tiny tattoos, which was no big deal to me since they're just dots. Meanwhile, I'm not allowed to put anything on my skin until after my 5th treatment and they gave me some sort of aloe gel to use. I've also been told to NOT put it where they marked me and I'm not supposed to wash the marked area either. They said they could redo the marks, but I'd have to lie on the table for a while so they could do it. Today went very quickly so I'll try to keep the marks! I get the bolus every time as well, although not for the first zap. They put it on me after the first one and then I think they do 3 more. They're all very brief.

    It's supposed to warm up over the weekend so I'm hoping I can muster the energy to finally walk my dogs down (and back up) my very steep driveway again. I used to do it every day back in my real life, but it's been at least a month since the last time. It got very cold and we had a bunch of snow a couple of times and I was wiped out from chemo as well. I've been so cold this winter, which is unusual for me. I kinda like winter. Pretty sure it was the lack of hair!

    Hope everyone has a pleasant weekend!

  • Suz-Q
    Suz-Q Member Posts: 205
    edited February 2016

    Neen56 I'm five week out and feeling really good. You should be fine for your trip. I agree with Octogirl, exercise now!

    Fearless, I started Arimidex a month ago. I was really scared at first, but took the plunge a week after rads were over. I couldn't bear stressing over it any longer! The first week I had some brain fog, and a nearly non existent head ache, since then I think my sinus have had a bit more drainage(yuck Sorry) but it could be winter in Michigan too! No aches or hot flashes or anything else yet!

    I've been hanging out over here and it's been helpful: Topic: For Arimidex (Anastrozole) users, new, past, and ongoing


  • Brimton
    Brimton Member Posts: 87
    edited February 2016
    MarieW. I have stickys. they put a big x under them with a sharpy marker. One of mine came off. I didn't take a shower because I didn't want to marker to wash away. They just redid it and put another sticky down. the techs were fine with it. Since then I asked to have one changed out. Mdoc The basket will have bannana muffins some fruit and fair trade chocolate. My daughter says they will just want chocolate chocolate chocolate and that I should bring them something every week. I too have red spots not sure Oriya acne from the cream or some sort of blister. But today was 14! Almost half way through!!
  • mairew
    mairew Member Posts: 84
    edited February 2016

    Hi guys. Just stuck with the stickies. They didn't even ask me if I wanted tattoos so I guess they don't really want to do them. I didn't bother to bring it up. I didn't find the setup and people very friendly. They were nice, but I didn't feel at ease. I suppose its my newbie status. Anyway, the techs asked me a couple of times if I had any questions but didn't really offer any information. If I was not on here with you lovely ladies I would be totally clueless about this. So thank you all.

    They marked up my area with a big blue marker. Its a huge area that extends under my arm pit around to my back slightly. Shit. Funtimes start Monday evening.

    In the waiting room I met a woman who was there with her mother (her mother has cervical cancer and is undergoing chemo and radiation). Anyway the woman told me she had BC when she was 21! She had DMX and is now 47.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited February 2016

    Fearless- Glad you are finished with rads and are healing well! Yes, I started Arimidex about 2 weeks ago...have had some hot flashes at night- not terrible and not in the past week. Also, was just in a bad mood first week but that has subsided as well. All in all, going much better than I feared it might! You've got this! Hugs!

  • morelandks
    morelandks Member Posts: 51
    edited February 2016

    I found my ring!!!

    image

  • etnasgrl
    etnasgrl Member Posts: 650
    edited February 2016

    Yay!!! So happy that you found it!!!

    Happy

  • Quiddler
    Quiddler Member Posts: 6
    edited February 2016

    mairew -- I've completed 26/30 treatments using stickies and haven't had any issues: no itching, no discomfort, etc. I even did a hot yoga class last Saturday and all 5 stayed on despite me sweating like crazy! In fact, I started yoga at the same time as rads and even with all of the stretching movements there was never an issue with the stickies They never itched, and the techs replaced them whenever they started to loosen up. (I made sure to keep an eye on them and let them know if I saw one starting to come off.)

    Couple of other things I did: shower with my back to the shower head, didn't use extremely hot water, and used a bath sponge to lather up the soap, but then applied just the lather to my torso to prevent rubbing the stickies off. Also be sure to pat yourself dry afterwards, not rub with the towel.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited February 2016

    morelandks- all I can post is: YAYAYAYAYAYAYAY. You didn't need to lose your ring during rads...sanity and confidence....short term..maybe. Ring of 25 years...no- just NO!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited February 2016

    Agree with Quiddler about rear facing showers, cooler temps and patting dry. I was already used to the cooler water temps as really warm to hot water hurt my skin during chemo and for a good while after- taxotere is the neccessary bad girl for sure!!

  • Kokomo26
    Kokomo26 Member Posts: 64
    edited July 2016

    Mary..happy to hear your shoulder is feeling better. Also thanks for telling me about your left side situation and not needing the snorkel. And the tip on the calendula cream. I will look for it.

    KateB79....I was not told about needing goggles...why are they used?

    Suzanne1971...I feel your fear about the breath matching...was it better today?


  • marijen
    marijen Member Posts: 3,731
    edited February 2016

    I wonder if more rest helps rads do it's job

  • TallnTerrific
    TallnTerrific Member Posts: 114
    edited February 2016

    image

    I am finally done!!!!! On Thursday I had my last treatment and no bell at my rad center but they give everyone finishing a stuffed bear! Very kind but not so rewarding as making a lot of noise. I have really enjoyed this very active board! A few things to say before I go:

    1. I am fair and freckled and I did not blister. See pic. That is the worst of it, so don't worry too much. I do not have much itching either. Mary, I also used a steroid cream prescribed by my doc(Momentasone), and so I doubt a steroid injection would be problematic. I will say some evenings I would be pink or red and wake up with nothing the next day. It just happens. Also you do get "exit wounds" in the back. They aren't as bad as the front, but the radiation goes through us. Scary isn't it.

    2. I love all of you on this board!!!!! You are all amazing women doing extraordinarily well with a very difficult disease and treatment regimen. I prayed for all of you every time they zapped me!

    I love you all and hope to see some of you on the aromatase inhibitor boards!!

    Michelle


  • morelandks
    morelandks Member Posts: 51
    edited February 2016

    Congratulations Tallnterrific!! Unfortunately I have to pass through the Tamoxifen lounge before heading over to AI, so I may miss you on the next board, but will keep you in my prayers. Woohoo

  • MissV123
    MissV123 Member Posts: 79
    edited February 2016

    Hello Ladies,

    Congrats to TallnTefrrif looking good! And Im so happy for Morelandks, for finding your ring.......

    Well today was number 22 ..4 more regular, and 9 boosts to go.....but....today woke up with a case of Shingles running down my right leg ! Yup Shingles.....I had pain in my thigh for a couple of weeks thinking it was just muscle pain....and terrible headaches ,really bad for a few days...and today....noticed a beautiful red rash running down my leg....went to Dr and now have added Valtrex, Neurontin ,and Leviquin to my daily routine....so remember my mantra "Never Give Up ,Never Surrender" well today my mantra consisted of a lot of four letter words and tears....

    I just cant win....hope all have a peaceful weekend....Im staying in my bed in my pajamas for the next two days.....night all......

  • Twnkltoz
    Twnkltoz Member Posts: 215
    edited February 2016

    I'm upset. Doctor added three more treatments, so I'm back to 33. I won't be done until the 7th. It's only 3 more, but at this point it feels like 100. Today was #22 and I'm bright red. I don't know why he didn't leave it at 30 as I'm clearly going to get plenty cooked.

    Thank you to whoever shared the idea of cutting up a T-shirt and then cutting a hole in it for your arm-it's greatly helping the discomfort in my armpit. I'm feeling sorry for myself... But at least I don't have shingles! So sorry, missv.

    Congrats to those who have finished, and to morelandks for finding your ring!

  • MissV123
    MissV123 Member Posts: 79
    edited February 2016

    Oh Twktloz, Im sorry , what a let down.....and we are allowed to feel sorry for ourselves ,, just mark 3 more damn days on the calendar....uggggg....have a better day...

  • morelandks
    morelandks Member Posts: 51
    edited February 2016

    Hugs hugs hugs Twinkltoz! 3 more would feel like 100 for me too - there's just something seriously frown inducing about having the goal line moved. We understand

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited February 2016

    Twnk, so sorry to hear about the add on! That stinks! Sending you hugs...

  • phoebe58
    phoebe58 Member Posts: 193
    edited February 2016

    Thanks for info Cubbie, apparently not real moles, but certainly darker and not on the good side! Anyways, I have finished rads - due to skin under arm opening rashy raw while I was away seeing PS [likely due to lots of walking and swinging arms causing friction]I did not end up doing #28 -- my choice but no fuss made at clinic, so think it was mutual....

    Last eve I showed a friend the final result one week post rads-- a variety of mottled dark and light pink and also dark reddish tan on chest and under boob where sun has been in my bikini days, so not the same shade all over, and sprinkle in a few dark spots, and red road rash-- she said I look like an Apaloosa, and we had a great belly splitting laugh!!! Sore and tender in arm pit [using polysporin] but looking forward to the healing and fading. Fatigue has hit more as well. My PS had been quite pleased with how it has turned out so far, but said it would be an idea to get one of those sun shirts, esp when I am out kayaking or paddle boarding as sun can sneak through a bathing suit.

    I recall the cabbage leaves were chilled in fridge and then put in cradle fashion on boob while reading or watching tv!

  • biscuits
    biscuits Member Posts: 3,304
    edited February 2016

    MissV123... Crap! So sorry to hear about the shingles. That can be quite painful and on top of everything else, it just seems like too much of a burden. I am sending tons of healing thoughts your way...be well

  • Brightsocks
    Brightsocks Member Posts: 159
    edited February 2016

    Well three down and 12 more to go. I thought there was a boost but the nurse said there is not. I will find out when I talk to the doctor at my halfway point. I am feeling fine so far just drinking a ton of water all day long and soaking my feet in epsom salts when I have a moment.

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