Radial Sclerosing Lesion and Intraductal Pappiloma

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flamom
flamom Member Posts: 14
edited March 2016 in Benign Breast Conditions

Hello all,

I was diagnosed last week with a radial sclerosing lesion and a minute intraductal papilloma in my right breast. A quick background goes like this. On January 13th, I had a diagnostic mammogram. I was called back on January 15th for a diagnostic mammogram and ultrasound because the radiologist had found an area of asymmetry in my right breast. Had the DM and ultrasound on January 28th. I was called back the 29th and told that there were two areas of clustered microcalcifications. The radiologist was very comfortable that the first area (at 9 o'clock) was benign but she wanted me to go in for a recheck in 6 months. The second area (at 10 o'clock) was more suspicious and they wanted a biopsy. I had my biopsy on February 2nd. While they were prepping me, I asked if we could biopsy both areas rather than wait with the uncertainty hanging over my head for six months. They agreed and so they biopsied both.

I got the results back on Wednesday. The pathology report indicated no evidence of atypia or malignancy but the biopsy picked up a "benign radial sclerosing lesion" and "minute intraductal papilloma," so they recommended I see a breast specialist. Thirty seconds of relief at no evidence of malignancy but back to stressing again very soon. The breast specialist had a cancellation so I was able to get in to see her on Friday. She tells me that both of these conditions "hide" malignant cells about 10-20% of the time and she recommends an outpatient procedure to remove them. I'm scheduled to go in on February 23rd.

I swear I feel like I've learned a new language over the last month - breastology! I'm back to stressing at the possibility this could be cancer. Any thoughts or experiences would be greatly appreciated.

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  • Shayvoe
    Shayvoe Member Posts: 23
    edited February 2016

    I just received the results from my needle biopsy today, and it came back as atypical intraductal papilloma. Was told there is a 15% chance it could be precancer or cancer, and it needs to be removed for further biopsy. I have to see a cardiologist before I can schedule surgery. Sounds like we are in the same uncertain boat. The waiting is the hardest part, and after almost 6 weeks from my initial mammogram, I still don't know if I have cancer. My lesion is 5mm, which is very small, but it could still be invasive cancer per my surgeon. Good luck to you!

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  • flamom
    flamom Member Posts: 14
    edited February 2016

    Hi Shayvoe,

    I go in for the excisional biopsy on Tuesday. Then results a week later at the post-op meeting with the surgeon. That would make seven weeks from my initial mammogram. The waiting is definitely the hardest part. My mind goes from the odds are in my favor to what if every day. Wishing you good luck as well!

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  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    from the quick reading i have seen on papillomatosis singular or multiple there is a chance of precursor. But i did not see 15% i saw it was very low and almost the same as fibroadenomas around 1 or 2 %. Maybe someone can elaborate on the different types

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  • Shayvoe
    Shayvoe Member Posts: 23
    edited February 2016

    Hi supportive,

    I believe that when it comes back atypical cells as mine did, that is when the percentage goes up to 15%. He said that it can hide precancerous or cancer cells. At least this is the way I understand what he told me.

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  • Shayvoe
    Shayvoe Member Posts: 23
    edited February 2016

    Hi Flamom,

    I have an appt tomorrow with my internist for an EKG, so I can be cleared for surgery. I will schedule my surgery if all is well with the EKG. I vacillate as well, between it will be OK, to what if it's not. Please post when you have your results. I will be hoping and praying for the best outcome for both of us.

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  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    Oh ok atypical

    You can be sure though that 15% is still reasonably low and also pre cursor just means arent you glad it is being removed now

    I am pretty sure they remove all papilloma and also the bs here also gauges the anxiety of the patient so removes fibroadenomas also

    Further to the %. I have poured over case studies which are so small. What they dont entail is out of any upgraded cases of papillomas is what their us or mammos established (from the upgraded cases were there or was there a clear suspicious area). They acknowledge the findings to be bias of the technician and sample received. Putting the study conclusions that it is good practice to excise these breast warts as cases have been missed of malignancy. One case study even concluded that the upgrade from papilloma to malignancy was widely accepted now that they were actually originally cancer to begin with and not an evolution from a papilloma

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  • kaylynn
    kaylynn Member Posts: 124
    edited February 2016

    I just had this surgery done to remove an intraductal papilloma that was way in the back 7mm in size 1 oclock area.Biopsy came back b9 no atypical.Surgery came back b9 also. I will tell you that I have a 3 1/2 inch cut.And the recovery time, do to it being in the area near the chest wall was longer than I thought. Because it is hard to use the arm on that side.I did use only Tylenol for pain since I don't like narcotics. I couldn't drive for 3 days.The seat belt hits right at the cut line.buy a cheap tiny pillow to put under seat belt.But the kids boo boo freezer packs for pain and swelling.Can be found at the dollar store.Buy a couple they unfreeze fast but the size is great to stuff in a bra.I came out of OR with a special bra on so you may not have to buy one.

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  • flamom
    flamom Member Posts: 14
    edited February 2016

    Hi everyone,

    I had my excisional biopsy on Tuesday. The procedure was not nearly as bad as I had thought it would be. It took about an hour under general anesthesia. I had already had a radioactive marker put in so I didn't have to do the wire insert before the surgery. Surgery started about 9:30 and I was released to go home about 12:30. I had very little pain even on the day of surgery - on a scale of 1 to 10, maybe a 2 or a 3. I took a couple of Tylenol the first night but didn't need anything after that. Got sent home in a sports bra the hospital provided which I had to wear that day and that night. Surgeon said I could shower the next day. I took it easy the day of the surgery and the next day. The worst part for me was I had really bad nausea from the anesthesia after the surgery. Follow up with the surgeon is on Wednesday.

    Got the pathology results this morning. Benign! No evidence of malignancy or atypia. Finally can exhale!

    Shayvoe good luck with your procedure. I'll be hoping and praying for good results for you.

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  • Shayvoe
    Shayvoe Member Posts: 23
    edited February 2016

    Hi Flamom...Yay...hooray for your news! I had my excisional biopsy today and have only been home about two hours. A little sore, but nothing unmanageable. Sent me home with pain pills, but I have only taken tylenol and using an ice pack. I did have to have the wire placed when I got there. The same radiologist who did my core needle biopsy and placed the marker, inserted the wire before surgery today. I love her...she is the best and so sweet. She told me that even though they found atypical cells in my papilloma, the chances of it having cancer cells is very small, because the papilloma itself is so small, only 5mm. She said that the chances of cancer cells being present, and the core biopsy missing that area, is minute. She said the bigger the mass, the more chance that a core needle biopsy could miss a part of a mass with cancer cells. My BS also feels pretty confident that it will be just atypical cells, and said there would be no further intervention needed, if that is the case. So, I am feeling cautiously optimistic. I will get my results some time next week. They will call me when they are in, for me to come in for the results, as my BS will not give results over the phone, even good results. I will post when I get the results. Again...so glad to hear your news!

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  • Shayvoe
    Shayvoe Member Posts: 23
    edited March 2016

    My surgeon called yesterday to tell me the news, even though I have an appt today. My heart dropped to my stomach when I saw his number pop up, because he never gives result over the phone...good or bad....that's just his policy. He said it was fine, no cancer cells, just a papilloma, and he did not want me to worry for one more day, and that is why he called. I am so relieved, and after almost 8 weeks I feel like I have my life back. I still have to go in today, so he can check my incision, but i will certainly go in with a different frame of mind than I have in the past weeks.

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