how many have had doctors give opinions before biopsy results

Supportive
Supportive Member Posts: 81

I have seen a few doctors and radiologists give a heads up to a patient whether to prepare for the worst

Do you think this is common or uncommon? Can cause some great anxiety but then either way I think it might, and would you prefer their opinion as to whether to be worried or would you rather not know

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Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited February 2016

    I don't see that very often except where imaging has received a Bi-Rads 5, which is about a 95% chance of being cancer and they don't know for certain but have seen it enough to be relatively sure (I would want to know) or when suspicious doesn't really look very suspicious at all, in which case I would be glad to hear that they would be very surprised if it amounted to anything.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited February 2016

    I should add that since a Bi-Rads 4 covers everything from 3% to 95% there would be quite a few that fell on one end or another and not square in the middle.

    When I had my last biopsy I told the doc that I would have been comfortable watching it for another six months & she said she would have been too. I was already there so we went ahead, but it was just a complex cyst

  • JJOntario
    JJOntario Member Posts: 356
    edited February 2016

    I should hopefully know my results tomorrow. The first time the radiologist told me to be prepared...this time it was a big painful messy stereotactic biopsy and they inserted a tumour marker (tiny titanium pellet). I've spent the last 5 days analyzing everything everyone said that day. I'm going a bit crazy waiting for 9 am tomto call my Dr. I'm also a bit angry as my results were supposed to be rushed. Did my Dr not call because it's nothing or because it's something???

  • Beatmon
    Beatmon Member Posts: 1,562
    edited February 2016

    Wow, JJ, sorry you are going through this agony of waiting twice.

    Supportive, my Radiologist told me she was positive it was cancer, Birads 5, even gave me her cell # for over the weekend if I needed to talk.....and she was right.

    But I don't know how often they step out on a ledge like that

  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    I would not imagine they would step out on a ledge often, I am suprised that they do not offer counseling services for women on tap to deal with the anxiety of the whole process from a to b to z

    They generally say no news is good news, and in the breast world I would hope that bad news travels really fast and there is some process around if they did find something in one of the biopsy tests they would fast track all that through and prioritise the samples for that person as time matters? But I am speculating wildly and have no clue about pathology work so maybe once you start a test it is all a systematic process of all the tests take a number and stand in a line

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited February 2016

    Except for IBC there are few fast track emergencies. Most have been growing for years to be detectable so a few days, weeks or even months makes littledifference.

  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    you mean a lump or area that is insitu will not require immediate fast tracking, and anything that is considered ibc (excuse my ignorance but I assume by that you mean invasive breast cancer where the type is considered aggressive and already has, or has the potential to infect other areas of the body) will be fast tracked?


  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited February 2016

    no, I mean inflammatory breast cancer, not invasive. Even most invasive cancers may go through a number of weeks of more testing

  • HausFrauMi
    HausFrauMi Member Posts: 124
    edited February 2016

    I had a surgeon want to plan on surgery before any pathology came back. I had no idea that the type of tumor plus the receptors had so many different treatments etc.

    She was still pushing for surgery and had me scheduled even after I said I wanted to wait for genetic test results to come back and meet with a multidisciplinary clinic and 2nd opinion. She wasn't necessarily wrong in her approach but her pushiness bothered me. I could have had surgery 1st but the panel decided it was best to do chemo 1st then surgery. Which I also agreed too after much research on my own.

  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    @Melissa < Ah yes sorry inflammatory, I am still learning about the acronyms, I had no idea invasive may of been that slow and just assumed you would certainly (I would hope) be fast tracked along if more testing was required

    @Haus < I hear chemo can shrink a tumour so that is the advantage of doing it beforehand (or one of them?) before you do surgery is this correct. I guess when surgeons see so many mammos or ultrasounds they do get a really high intuition about moving things on before the test reports come back, however I would of thought that the pathology report would indicate the best course of action with margins and what the patient would need

  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2016

    I had the opposite situation. Both the radiologist and the breast surgeon **assured** me that it wasn't Paget's. Like you can tell by looking at it??? NOT!! Thankfully, I knew better, but what good does false reassurances do for someone??

  • flatnfab54
    flatnfab54 Member Posts: 44
    edited February 2016
    I had an excisional biopsy and was told right after waking up that it was cancer.
  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    @glennie < This is why I thought it is vital to find out a result beforehand, although I can imagine the words of reassurance to begin with will cause less anxiety in a patient, and then begs the question do you think that you would be any less shocked to find out the diagnosis is a bad one regardless of whether the doctor and radiologist said one thing or another?

    @flat < I assume the surgeon has seen a thousand times what a cancer looks like excised? Hope they knew what kind it was before telling you

  • Numb
    Numb Member Posts: 432
    edited February 2016

    I had both the Radiologist and the Surgeon tell me to expect the worst, and I preferred their honesty than to get a shock when I went back for the results.  I had time to process this before I knew for certain.  I see no point in someone not being honest and direct in a serious situation like this as time is of the essence. 

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited February 2016

    For the right-side tumor, the Radiologist told me he was almost certain it was cancer as soon as he finished the biopsy. In fact, the tumor board had met to discuss my case after my breast MRI but before the second biopsy was even scheduled and all had agreed the right-side lesion was most likely cancer. (The BS, MO, and Radiologist told me that. The BS called it "very scary" and the MO called it "very concerning".) After the second biopsy the Radiologist had me step into his office to show me the MRI results and told me I should have a BMX and to please not change my mind about my decision to have one. He said that if I didn't I would need at least 4 more biopsies and that he had rarely seen so many areas of concern before.

  • tangandchris
    tangandchris Member Posts: 1,855
    edited February 2016

    The day I went in for diagnostic mammo the radiologist came in and told me that he thought it was BC. I was stunned, he told me we would need to do a biopsy to 100% but that in his professional opinion it looked like cancer. I remember telling DH and he was convinced that the doctor was wrong, he even said that he wanted to kick the doctor's ass for upsetting me. lol.....well, I was glad he told me that, it gave me time to wrap my mind around it. DH was devastated when the pathology came back, I think He really hoped radiologist was wrong.

    I appreciate them being up front.

  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    Sounds like from what i hear we would rather know to prepare our minds then not know a professional opinion


    Guess you also hear the reverse stories which is they say do not worry and it turns out to be far worse. That is probably why we all freak out waiting so we do not fall so hard if the diagnosis is not the preferred one

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited February 2016

    For the most part, we're giving the perspective of those who ended up w/ a "positive" (cancer) diagnosis. Those who end up w/ benign results generally leave BCO and we don't hear from them again. I have to think their perspective on "previews" from radiologists, etc. might be quite different...

    LisaAlissa

  • Scwilly
    Scwilly Member Posts: 489
    edited February 2016

    Personally - I would only want to know when the results are definite - i.e. after a biopsy. I don't even want them to give me sad or otherwise knowing looks. Thankfully I have never been given such looks or options. I do appreciate though we are all different - and that must be very hard for professionals to deal with.

  • Numb
    Numb Member Posts: 432
    edited February 2016

    I think if I was told I might have cancer and then I got a benign result I would be so thrilled I wouldn't care that the radiologist or Doctor was wrong, I would be delighted.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2016

    I'm with Numb on that issue - I would have been beyond elated to learn that the result was benign.

    In my case, the radiologist met with me after the repeat (diagnostic) mammogram followed by ultrasound and told me that not only did I have a very suspicious mass in my breast but that it was all but certain that at least one lymph node was involved. He also showed me the films.

    My PCP kept assuring me that it could be nothing but I felt it was almost cruel on her part to hold out hope where a much more experienced radiologist had held out little hope that the biopsies would be benign.

  • SummerSun
    SummerSun Member Posts: 91
    edited February 2016

    Me too Numb! My radiologist said he would be very surprised if my biopsy didn't come back benign. They said the nurse would call me with the result as soon as they were back. Two days later I received the call - it was the doctor. Shoot!


  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    hi summer

    Notice your dx was july 2014 and you had surgery for a 6cm mass but then you had another 1cm lump 3 months later dx? Did they miss it or i guess lumps can spontaneously appear?

  • SummerSun
    SummerSun Member Posts: 91
    edited February 2016

    Hi Supportive - The IDC was found when the tissue was sent to pathology after the MX. I guess it was already there. My entire dx was that way. I was first told my DCIS was only 2 cm and after the MRI was told it was 8 cm. So, I guess when they found out it was only 6cm, they had to bump it up a notch with the IDC. It really does stink that the diagnosis process is not consistently good. At the end of the day, it all worked out, but, the highs and lows in between were no fun!

  • Kicks
    Kicks Member Posts: 4,131
    edited February 2016

    It is VERY important to remember that there are different types of BC with very different prognosis and presemtation/progression rate and TX plans.

    With IBC (Inflammatory Breast Cancer), time is of the essence - it literally presents and progresses within hours/days.

    For me - (a week after node first enlarged) I was in for a new mammo (last was less than 6 weeks old). Had mammo, US and biopsies that afternoon. My PA had already told me she thought it was IBC, the Radiologist said he thought IBC but until he had the path. report the next morning could not DX. At 8 the next morning he called me - IBC. It rapidly progressed and 17 days later I started neoadjuvant chemo.

    While it is important to get on whatever TX plan is individually appropriate with other types (DCIS/IDC/ILC), the time frame is not as imperative unless it had been ignored for a long time.

  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    thanks so much my prayers and thoughts go out to everyone on here

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited February 2016

    When I had my ultrasound, the radiologist told me that my lump was "consistent" with cancer but they would do a biopsy to make sure. After the biopsy, the radiologist told me that she'd be surprised if it wasn't cancer. She made sure to call me as soon as the biopsy results were available, even though it Saturday. I didn't feel freaked out by the foreshadowing; I was just more prepared for the bad news when she called. Best wishes to you all!

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited February 2016

    My primary physician, the first radiologist, and very experienced general surgeon performing the excisional biopsy all strongly felt it was benign. The first radiologist gave me a BiRADS 3 designation and told me to come back in 6 months. Immediately after surgery, the surgeon felt almost positive that he had removed a fibroadenoma. You likely know, from my presence here on BCO and my signature line, that they all were mistaken.

  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    Hi lint

    Can also see you did treatment and it is five years and you are clear still? I read somewhere a 5 year clearance means they consider you cancer free so i hope this is the case

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2016

    When my surgeon palpated my site after getting the US/mammo results, he immediately suggested, and I agreed to, an excisional biopsy later that week. His serious urgency and facial expression hinted that there was something serious that needed to be taken care of. And looking back I was glad he moved quickly for me.

    Claire

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