Double Mastectomy Grief and Emotions: What Can I Expect?

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okbecca
okbecca Member Posts: 106

What does it do to you emotionally to lost both your breasts? I'm facing this and to prepare myself for what's coming at me.

Comments

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2016

    I've read here it hits some women really hard. I'd see a therapist before surgery if you think you will be one. Me, I was get rid of them, they're trying to kill me. I've never looked back.

  • muska
    muska Member Posts: 1,195
    edited February 2016

    This might depend on your age, your partner's attitude and many other individual factors. I was 54 at diagnosis and had no grief whatsoever about losing my breasts. My partner didn't care either. So this was a non-issue.

    I do see from your profile however, you have DCIS and no invasive cancer. If you are having second thoughts about BMX and it is not medically necessary maybe you still have time to reconsider?

  • Kindergarten
    Kindergarten Member Posts: 4,869
    edited February 2016

    I had a double mastectomy and no reconstruction!! I was 51 at the time, and my hubby and I decided no more surgeries, except for the hysterectomy!! I am 11 years out, and surprisingly, I have never been upset about it! Good luck with all decision making!!!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2016

    I never cared either. When I saw the big reveal, I thought, huh, looks pretty good. Not crazy about the implants though but my prosthesis is always in place. :)

  • okbecca
    okbecca Member Posts: 106
    edited February 2016

    Muska, I'm not having second thoughts about the decision I've made. But that doesn't make it an easy decision. Breast cancer is a wonderful world of tough choices. I'm just wondering if there's anything I can do now to make it easier for myself later. I find these replies very uplifting and helpful, btw.

  • Outfield
    Outfield Member Posts: 1,109
    edited February 2016

    okbecca, I have never regretted my decision, but that doesn't mean I don't miss by breasts. I'm 5-1/2 years out from surgery. I especially miss my nipples, but I don't miss them every day.

    It's really choosing the least of all evils, and what you think you can live with. I wasn't hit any harder than I expected to be.

    I did have a tearful conversation (one-sided) with my breasts in the pre-op area, and thanked them for all they'd done. I'm still glad I did that.


  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2016

    I think it is healthy to have some type of personal goodbye ceremony. We took pictures and even did a bust of my bust from the plaster of Paris kits you can get at Hobby Lobby. Later I tossed it in case the kids came across it when cleaning out the house someday! I did tell my perfectly healthy left breast "sorry buddy, you have to take one for the team". It all sounds crazy now but was very cathartic.

  • okbecca
    okbecca Member Posts: 106
    edited February 2016

    I like the idea of a good-bye ceremony, even making a bust that I throw out later. I think it's important to mark passages, and this is certainly a passage. I just can't quite get a handle on what it's a passage to.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2016

    I had a lumpectomy with dirty margins. It was my fourth biopsy. I had told the surgeon if it came back cancer I wanted to have a double mast. I got it 6 days later! I've never looked back, and I've stayed flat. I have no "shame" about walking around flat, in fact, I look slimmer though I weigh a lot! My breasts used to enter the room before me, even after a reduction. I'm so glad to have the weight off my neck and back.

    I don't wear a bra or prothesis or have recon. I do make sure that whatever I wear against my skin is sooooft. In fact, sometimes I feel very, very sexy/naughty by having a bare chest under my clothes. My grandkids are growing up with me like that so it's normal to them. My first grandson, at about 2 1/2, while on my lap sat up and reached back and sort of felt my chest then turned back and cuddled up. My daughter said I can hold my grands closer to my heart this way. Another grandson on my lap poked my belly and asked if I had a baby in there. I told him that was a very good question (for a 4-year old), but sadly no, NaNa didn't have a baby in there.

    I've done the Survivor Lap at the Relay for Life 4 times and wear my snug t-shirt with pride. I like to walk past all those ladies dancing around in pink frilly bras over their t-shirts and watch the "penny drop" when they realize what breast cancer really is.

    Everyone once in a while I will dream about my breasts and how sexy they were. I asked my surgeon where those wonderful nerves that used to be attached to my nipples went. He told me to have fun looking for them....

    The only time I cried was when I had to climb onto the operating table. The staff were surprised....like, duh!

    I had to get an excision revision a couple of months later for excess skin and was telling the surgical team how well I was doing. I had just said "breasts aren't very important after all" when another doctor entered the room and said "breasts are VERY important"! They slapped the gas over my face before I could start laughing. I'm sure he got shit from the team for such a stupid remark. LOL

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2016

    Barbe - funny you mention nerves. When I get the nipples erect feeling after a chill my husband and I laugh because they are in a jar somewhere ( borrowed that one from Beacon). I had a let down feeling and discharge for over two years before my mx. Lately I've been having a phantom nipple discharge feeling. I know it is phantom, cause, well, you know why . . . :) Finally the area in the middle of my chest where I would have dog ears if I didn't reconstruct is hypersensitive and enjoyable. I like to think my BS did a really good job around the nerves. Hope you are doing well my dear and hanging in there.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2016

    Oh crap Barbe. Just saw your signature and that you are now stage iv. Good heavens. I'm so sorry.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2016

    Lucy, not a problem! As for dog ears..you shouldn't have them in the centre of your chest, but under your arms. The surgeon has to stop somewhere in removing tissue so he picks the under arm to be less conspicuous. I told my surgeon I'd better be as flat as him or I'd make him go in and do a re-do...and I did! hehehee


  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2016

    And FYI I still get a "nipple erect" feeling when cold and the "let-down" feeling like when I was nursing! So something is still there...but where is the sexy part?


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