Prone position radiation - left breast

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Hello! I'm about to start "prone" position radiation next week. Please kindly offer your advice, warnings, suggestions, etc. I'd be deeply grateful.

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  • ORknitter
    ORknitter Member Posts: 119
    edited February 2016

    Juniper, I had 6 weeks of prone position rads. I had no problem with the breath holding technique and was monitored every moment to make sure I was doing okay. In all honesty the tattoos were the worst part for me probably because I didn't know what to expect and was surprised when she did them. Have you had your simulation yet? That was when I really learned a lot about what was happening and why

  • hopeful23
    hopeful23 Member Posts: 35
    edited February 2016

    Juniper,

    I had hypofractionated radiation (15 treatments plus 4 boosts, 19 total) in the prone position to my left breast. We are also the same age. It went very well. I did make sure my neck was comfy while they positioned me as some treatments seemed very quick and others longer and once positioned you should not move. I put a heavy lotion they gave me two times a day on my breast, and at night a prescription corticosteroid cream (mometasone). The mometasone cream was wonderful in relieving any pinkness or itching and my skin fared very well. Best Wishes! Pam

    Also, I did not have tattoos. They used a sharpie pen and put clear "tape" on the markings so they wouldn't wash off. I thought they would be bothersome, but they really were not and I am glad not to have permanent marks.

  • JuniperCat
    JuniperCat Member Posts: 658
    edited March 2016

    Dear ORknitter and Hopeful23, thank you so much for responding to my post. I went for the sim last week...it took forever...over an hour! They were trying to be super exact and careful. I must admit that I was uncomfortable. I will start this Thursday. What is "hypo-fractionated" radiation? Hugs!

  • Annette47
    Annette47 Member Posts: 957
    edited February 2016

    I had 6 weeks (5 weeks regular and one week of boosts) of prone radiation to my left breast 3 years ago. No real problems at all during or after treatment. I would second the advice to be REALLY sure you are comfortable when you are being positioned on the table as you will have to hold very still. There were a couple times when I though “Eh ... this’ll be ok even though it’s not quite perfect” and a few minutes later my neck was aching.

    I had some swelling in that breast (they had to redo the simulation for the last day because the marks no longer lined up), but no skin problems. I used a solution of 98% aloe 3 times a day throughout treatment.



  • hopeful23
    hopeful23 Member Posts: 35
    edited February 2016

    Juniper, I hope your treatment today went well and hopefully it was much shorter than your sim and more comfy for you. Hypofractionated radiation is a term used for treatment that is 15 treatments (plus 4 boosts for most) for a total of 19 treatments. That is less treatments than the standard protocol, but the total radiation administered is almost the same. Be sure to apply whichever lotion/cream they recommend generously and let them know right away if you have skin or other concerns. I found when I put the lotion on right after the treatment when I was getting dressed, that it cooled my skin and felt really good.Best wishes, Pam

  • JuniperCat
    JuniperCat Member Posts: 658
    edited March 2016

    Hi, Pam. Thank you for your kind words! All seemed to go fine, however, I am noticing that the entire lower half of my breast is bright pink. Is this normal for the very first treatment?

  • JuniperCat
    JuniperCat Member Posts: 658
    edited March 2016

    Hello, Hopeful23!! Thank you for your kind words!!!

  • cimgraph
    cimgraph Member Posts: 12
    edited May 2016

    hi, Jupiter. I started my rads treatment yesterday, prone position, left breast. I wore tank top that is soft and another T over that. Also have the neck and shoulder discomfort. I started doing my head and neck stretches and my arm stretches while I wait for my turn. After treatment I apply the Aquafore cream and Crystal deodorant right there in the changing room. I leave my sports bra off til I get home. Talked to the nurse today and she suggested using pure aloe cream applied lightly if you don't like the "greasy feel" of Aquafore and gentle washing with Dove white bar soap since it is non drying. I took 2 Advil before leaving for treatment to help with the stiff neck. I'll see how tomorrow goes. So far it's not too bad

  • cimgraph
    cimgraph Member Posts: 12
    edited May 2016

    hi, Jupiter. I started my rads treatment yesterday, prone position, left breast. I wore tank top that is soft and another T over that. Also have the neck and shoulder discomfort. I started doing my head and neck stretches and my arm stretches while I wait for my turn. After treatment I apply the Aquafore cream and Crystal deodorant right there in the changing room. I leave my sports bra off til I get home. Talked to the nurse today and she suggested using pure aloe cream applied lightly if you don't like the "greasy feel" of Aquafore and gentle washing with Dove white bar soap since it is non drying. I took 2 Advil before leaving for treatment to help with the stiff neck. I'll see how tomorrow goes. So far it's not too bad

  • Houston2016
    Houston2016 Member Posts: 317
    edited May 2016
    1. Hi ORknitter, I am still doing chemo but will be having rads for six weeks down the line. I worry about the effects of rads on my left breast where my heart is. BTW, what is prone position? I heard if you lie face down it will minimize the rads on your heart? Any advice, thoughts, suggestions are welcomed.
  • JuniperCat
    JuniperCat Member Posts: 658
    edited May 2016

    Hi, Cimgraph! I'm glad to hear that things are going well. I had no trouble with it other than a terrible rashon my chest, however, that went away quickly, about a week after the end of treatment. Not all centers offer "prone" treatment, so, I feel lucky that my center did. Good luck with the rest of it... it goes by very fast!!

    Houston2016, the "prone" position is where you lie down on your stomach so that your breast fits through a space in the table. They do this for folks whose cancer is on the left side so that the beams avoid the lung and the heart. Good luck with your treatment!

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