Lumpectomy Lounge....let's talk!

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  • Melclarity
    Melclarity Member Posts: 388
    edited February 2016

    Oh Chisandy! - That's terrible news!!! im so sorry for your friend!!! I'm glad she has you for encouragement and support! Big hugs!

  • ayr1016
    ayr1016 Member Posts: 228
    edited February 2016

    Praline: Beautiful smile ~ it is so nice to put a face to a name. Speaking of names, I love yours! Reminds me of one of my favorite books (Where the Heart is). A movie was made from the book. Praline was a name of one of the character's little girl.

    I received a call from the Oncotype lab. They have received my biopsy sample and are waiting for authorization from my insurance company. She said it was covered, but the authorization is needed. Love going through all the red tape ;) Anyhow, at least that ball is rolling now.

    HAPPY FRIDAY!!!!

    My newest discovery that I love this week: Almond Butter! Wow, so yummy. I also pan roasted some organic cauliflower in the oven (tossed with olive oil, added salt). It was delish. However, the big shocker and what pleased me most is my youngest daughter who absolutely hates cauliflower tried some (after I bribed her) and ate most of the pan and asked for more.

    I'm off to Bunco tonight. Need to take a valentine themed dish. Of course, last minute me does not have anything. I wonder if picking up some strawberries and taking some whip cream would be enough. Anyone else have any ideas? I'm vegetarian and when I have gone each month, most of the stuff brought contains meat :( So, I would like to bring something healthy-ish for myself to be able to eat LOL

    ~ Angela

  • ayr1016
    ayr1016 Member Posts: 228
    edited February 2016

    Sandy - sorry to hear the news about your friend. {hugs} Keep us updated.

  • iammags
    iammags Member Posts: 216
    edited February 2016

    Thanks Sloane15 and everyone else who gave advice. I'm taking 2 Ativan for my MRI tonight and will bring headphones,too, thanks.

    .Sloane, do you live in SF? I actually live in Novato, in Marin County. So many great ways to be active here.

    I can't wait until I get the final verdict on my cancer. I will feel so much better when I have all the details. Fingers crossed they don't find any more tumors.


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited February 2016

    Sandy, that's devastating for your friend. She's in my thoughts.

    IAmMags, it does help once you have all the information you need to make informed decisions. Good luck!

    Angela, at least things are moving along with your Oncotype test.

    Everyone have a great weekend!

    HUGS!

  • Sloan15
    Sloan15 Member Posts: 896
    edited February 2016

    iammags - Our daughter and her fiance live in SF, so we get up there often. Marin Co is beautiful. Kern County, where I live, is so dry. Winter and Spring in Bakersfield is rely great, but summers are quite hot. I thought about moving up further north to Santa Rosa, but my kids haven't settled yet, and I eventually want to be near them. So, I settle for little trips up and down the coast in our little trailer and then leave CA when it gets hot. What are some nice towns up your way to visit? We were thinking of driving up there or (when in SF) taking a boat that drops us off across the bay in Sausalito. I heard it's a nice day trip!


  • Brightsocks
    Brightsocks Member Posts: 159
    edited February 2016

    Moondust- I believe we are starting radiation at the same time starting next Wednesday.

    Has anyone done any reading on drinking red wine and radiation treatments? I understand the issues of drinking and BC but there has been some interesting information on the benefits of the red wine. I did find a paper on this study that explains this but I can't say is a scientifically validated study.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited February 2016

    Brightsocks, I didn't do anything different during my 33 rads. I did use Aquaphor starting at about #19 . I was drinking wine with dinner after DH went into rehab (he'd been in the hospital during most of my rads). I still drink my red wine. Hope this helps.

    HUGS!

  • blamoms
    blamoms Member Posts: 113
    edited February 2016

    sorry I wrote my email wrong it's blamoms@hotmail.com

  • iammags
    iammags Member Posts: 216
    edited February 2016

    Sloan, my mother was raised in Bakersfield. Nice place but so hot and dry! Come to Marin next time you are in SF then head to Sonoma County for some amazing wine, views, parks, beaches, wine, and, did I mention wine? hahaha . The Sausalito Headlands are a great place to view the city and the GG bridge. I just love it here. Too bad there are so many cases of breast cancer in this area. I'm not sure they've even figured out why that it is. :(

    Off to my MRI now. Good times, good times...


  • MLP3
    MLP3 Member Posts: 534
    edited February 2016

    sloan- where did you play lax? That's awesome! My daughter was recruited by Harvard and Georgetown and decided against D1... That was hard for us! But she's at a great D3 with high level academics and an art major. She is a first team regional All American;) So of course I have to go to every game!

    Peachy- it was just AC that was mentioned. What are the Neulasta shots? Taxol? I meet with my mo for a full appt right before I start my treatment.

    She explained the AC deal with me and said its the best for my grade and it has a risk of uterine and cervical cancers which is great for me because I had a hysterectomy! I'm usually so good with the questions but last week I was just happy to have a plan. And I trust my mo with my life;)

    In NH by the fire and it's 10 degrees out. Wind chill tomorrow is supposed to be 36 below!!!

  • MLP3
    MLP3 Member Posts: 534
    edited February 2016

    sorry... I don't mean to brag about my daughter... Just super proud of her😊M

    Sandy/ so sorry to hear about your friend😘

  • Peachy2
    Peachy2 Member Posts: 350
    edited February 2016

    MLP3, brag away! You have every reason to with such an accomplished daughter!! In my first meeting with the MO she said that a Neulasta injection would be needed the day after AC to help build white blood cells. She asked me if I could do it myself, and my dear husband volunteered until he learned that it might have to be in my stomach. I believe that LovestoFly is badass enough to do it herself, but I am a wimp. I went to Dana-Farber in Londonderry since it's close to home, and the shot was given in the nice fatty part of my upper arm instead of my stomach, thankfully. (AC followed by Taxol seems to be a common course of treatment)

    My boss was going to go skiing at Loon this weekend where he has a seasonal rental, but then checked the weather and saw that it was going to be -2 at the top. BRrrrrrrrr!

  • blamoms
    blamoms Member Posts: 113
    edited February 2016

    love to fly and Rona send you friend requests on fitbit

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited February 2016

    got it blahmoms! Yeah!

    Yes, I do the Neulasta shot myself. The first one the nurse taught me to do, then I did it myself 24 hours after my second infusion. I was really really nervous about it, but it was actually very easy. The needle is very small and thin and does not hurt, I did it in my stomach and it was very anticlimactic after working myself up over it!

    Sandy I'm sorry about your friend.

    It is my last weekend before cycle three now. I'm trying to enjoy it, and not to dread going back Wednesday too much! I will be halfway through chemo!


  • Praline
    Praline Member Posts: 115
    edited February 2016

    I started Chemo treatments today. I was so nervous ! I had constant butterflies in my stomach. After I spoke to my MO, I felt much better. Had blood work earlier in the morning, talked to MO, then infusion with IV. No problem at all... totally uneventful.l. When she put in the Benadryl I did get a bit lightheaded. And it did not go away until I got home. Now I am okay. I hardly slept last night but tonight I should be able to sleep.

  • octogirl
    octogirl Member Posts: 2,804
    edited February 2016

    Praline, you got this! Yay for non-eventful chemo #1, and I really hope the same is true for the rest. Sending hugs!

    Octogirl

  • anniekaja11
    anniekaja11 Member Posts: 140
    edited February 2016

    Hi everyone!

    I'd like to join the lumpectomy lounge! I'm having a lumpectomy on Tuesday with a great surgeon in my area. I'm happy that he's going to do this procedure, I'm nervous about my fears about having to go back in if he doesn't get clear margin and having to later get a mastectomy. But he says that my MRI really matched what/where he thought from the memo and the breast ultrasound. Gonna do a "central excision" a slice down the center including a nipple take away...yuk yuk yuk.

    Anyone tell me about the recovery? When did you get up and walk around? When did you go back to work? Can I shower afterwards? How bad was your pain? He's also gonna take the sentinel node and I've read that is the hard part of it.

    Looks like a super positive supportive gang here.


    Annie

  • Molly50
    Molly50 Member Posts: 3,773
    edited February 2016

    Praline, so glad your first infusion went well. Mlp3, your DD sounds like a wonderful girl. Blamoms, friend request accepted. I finally met my 12 K step goal today! I think I am starting to feel better because of the extra activity. Annie, welcome to the lumpy lounge. We are a fun and supportive group and Peggy is our resident cheerleader and a great encouragement to all. Recovery from lx isn't too bad. Ice is your best friend and you will have lifting restrictions of about 5 lbs. If you take pain meds take stool softeners as well. Make sure whoever is waiting for you pays careful attention to what your doctor says and your post op instructions because you won't remember. Also be sure to let your anesthesiologist know if you need anything for nausea before the surgery. They can put something in your iv and put a patch behind your ear.

  • Molly50
    Molly50 Member Posts: 3,773
    edited February 2016

    I went back to work at 3 weeks post op because I had a drain in for nearly two weeks. Otherwise I I pretty good. I had to have an alnd because of positive nodes. Glad you had an MRI prior to surgery.

  • Moondust
    Moondust Member Posts: 510
    edited February 2016

    Welcome to the Lounge, Annie. I don't know anything about surgical technique, but it sounds like you are in good hands. I think stool softeners are a good idea even if you don't take any pain meds. The anesthesia can stop you up. After surgery, they took me out to the car in a wheelchair like they always do at a surgery center. We had a one hour drive home (with a stop for a McDonalds cone), then I was able to get out of the car and walk just fine. I walked quite a bit the day after surgery and could do most simple things that didn't require lifting objects with my right arm or raising my arm higher than shoulder level. You will probably be told not to do any cleaning, sweeping, dishwashing etc, anything requiring repetitive motion. My surgeon infused my breast with some type of local pain reliever, so I had very little discomfort at all. Even after the local stuff wore off in a few days I never needed any pain meds. I did not use ice. But everyone is different. I wore a big compression wrap for 48 hours. After that, I removed the wrap and could shower. My surgeon recommended a compressive sports bra be worn 24 hrs a day for at least a week. Do you know if you'll have any drains? I didn't have any. My last steri-strips fell off at about 3 weeks. Good luck!!!

    Oh, one other thing - you will gain a few pounds from the surgery. I gained 7 pounds. It is due to all the IV fluid you get, and temporary, of course.

    Praline, glad everything went so well!

    Sandy, what a dismal time your friend is going through. Give her some extra hugs for us. I hope you are being extra careful with sharp objects now! You don't need a third injury to your arms or hands! It's so easy to do. Once I pierced my cheek with an awl by accident. It was all too close to my eye and I was horrified at what I had done although it wasn't a serious injury.

    ayr, very cool that your daughter likes cauliflower. When I first read your post, I thought you put the almond butter on the cauliflower and I thought that sounded a little weird. But separately I love them both! Most veggies are better roasted if you ask me. I think your strawberries and cream will be perfect.

    Brightsocks, are you doing your sim on Wednesday or having the first real zapperoo? I'm doing the sim. I have read you can get the same benefit from drinking grape juice that you get in red wine. Not as sexy though.

    MLP3, I think it's fine for you to brag about your kids! She's lucky to have you for a mom :)

    Octogirl, where in California do you live?

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2016

    Praline, so glad your first chemo session went well. You’ll do fine. That photo is a perfect portrait--classic Southern beauty combined with wisdom.

    Annie, welcome in. Have a seat in one of our Lx. Lounge recliners, kick back with a nice decaf latte (iced if you’re in SoCal), and relax. You should do fine. I had little-to-no pain--it was easily managed with a couple of regular Tylenol before I left the hospital, and intermittent ice packs at home. Not sure how high you’ll be able to raise your arms or reach behind you for a few days (it’ll depend on the incision), so make sure you have some front-button-or-zip tops and nightwear, and step-in or front-hook non-wired bras. (For me, I didn’t need any of that but it was better to have it on hand). Wear shoes or boots you can step into and easy-to-pull on sweat or yoga pants---you don’t want to have to tug on a tight waistband or bend to tie your shoes. You will likely be sent home in either a surgical bra or binder. I had the former and it was so undersized it was a joke. (My first training bra seemed to have bigger cups). I was instructed to keep it on for 48 hrs, after which time I could shower, pat dry, and change to one of my own leisure bras for sleep. I was able to get back into my underwires within a month post-op. As to activity, I was doing stairs the first night home, walking a block the next day, and by day three I did nearly a mile (broken up into segments). The evening of day four I drove home from a restaurant, and on day five I went shopping (gladly accepted help with the bags).

    What became of that surgical bra? Slingshot.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited February 2016

    AnnieKaja11, Welcome! So glad you found us. Sounds like you've been reading the posts here and have discovered that we are warm, welcoming, informative, and a bit crazy. Where are you located? You will walk out of the surgery center most likely. As Molly said, ice is your friend. I didn't have much pain at all. I took a pain pill in recovery and then just Tylenol. You will definitely have lifting restrictions. That underarm incision isn't so much painful as REALLY annoying. Everything rubs it. You will want to have a front close soft bra (or step-in Genie bra) to wear after the bandages come off. Front closure and easy to pull on pants for surgery day and a few days thereafter. You will be able to shower after a few days. Mostly concentrate on resting - that's what your body needs to heal from major surgery (which this is). Walks are fine. I'm retired so I didn't have to worry about going back to work. However, I was caring for my husband full-time by myself (two weeks post-surgery) and that was terrible. He had mobility issues and I was doing a lot of lifting of him which was not good.

    It's good that you like your BS! BTW, I WALKED down to the surgery suite - I felt so empowered and not sick. It was great. I did NOT gain any weight from the surgery. Moondust must have been blessed to gain so much. Of course, as with everything to do with breast cancer, "your mileage may vary." :)

    Even if you don't have clean margins from your Lx, they can go in and try again. It does not necessarily mean you will need a mastectomy.

    Wishing you well and ask your questions!

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited February 2016

    Praline very glad your first chemo went so well. The unknown is always scary - the imagination works overtime. Hope you slept well last night.

    HUGS!

  • Peachy2
    Peachy2 Member Posts: 350
    edited February 2016

    Praline, so glad to hear that #1 went well and was uneventful! My infusion nurse said to be sure to take vitamin B with Taxol to help with neuropathy. I still got a little numbness in my fingertips and toes, though it was just a little annoying and went away soon after treatment ended.

    AnnieKaja11, welcome to the lounge! I learn so much and get so much encouragement from these terrific ladies, so know you will too. :) As for recovery, my surgeon told me to plan on a week off, but she'd prefer her patients take two. After a week I was getting stir crazy around the house and felt good enough to go back to the office. I did leave early the first few days when I got fatigued toward the end of the day. My surgeon step-dad's advice for his patients and family was always "Don't try to be a hero" and applies here as well. (My mom reminded me of this repeatedly, of course.)

    ChiSandy, pass me a latte, please! That sounds good.

    MLP3, are your AC infusions two or three weeks apart? If three, then maybe you won't have Neulasta since your body has longer to make its own white blood cells before the next treatment? I don't know for certain, but say this because the nurse practitioner mentioned something about now they can schedule AC treatments two weeks apart because they've got Neulasta to help get the white cell count back up between infusions.

  • Brutersmom
    Brutersmom Member Posts: 563
    edited February 2016

    Moondust, Keep in mind we can have dormant cells in out body the chemo will not kill or we can get a different cancer later or we could be in a car accident tomorrow or die from something else. So even if the CA comes back don't kick your self. I plan to enjoy my life now and for as long as I am able. I was 62 when diagnosed. Turn 63 during treatment. I am not having sided effects from anastrozole and I am still working. The only time I have doubles is when I see my local MO. He is the only one who was not in total agreement with my decision. BS, RO, 2nd opinion MO who I love but he does not accept my insurance all felt I made the right decision. Even though I had a grade 3 there were some other factors about the type of cancer and findings on the path report that were very positive. (No two cancers are the same) I think the only reason my MO keeps bring up chemo is because he didn't make money off of me.

  • Jclc83
    Jclc83 Member Posts: 246
    edited February 2016

    Hi to Mags, Praline and Annie. I've learned more from BCO than my doctors ( sad but true) told me Praline chemo affects everyone differently initially you're in a steroid"high." The side effects , if any, start 3-4 days later If I can do it, you can do it

    Annie, surgery was a breeze really I had a great surgeon and healed quickly it does depend on the location of the incision I used my arm normally except for carrying heavy items The drains were the only inconvenience but luckily I never had a seroma

  • Jclc83
    Jclc83 Member Posts: 246
    edited February 2016

    Mairew, I had my sim in Friday. I was mapped and molded and manipulated. I felt really naked when they made me take my earrings off too.

    My positioning was not all that comfortable. My lumpectomy was in my upper outer quadrant so I had to turn my head and body to the side slightly. My butt was on the edge of the mold, the table was hard. I wished the blanket warmer was working because the tech hands were so cold. Yikes. And my arms were raised above my head for about twenty minutes or so.

    When I was done I looked like a treasure map. X marks the spot with a dash (or five) and a dot. They used a marker and tape so I have to wash carefully. I don't even start rads until Thursday. I also started on my Arimidex at the same time.

    Oh my gosh, when I woke up my whole body ached especially my arms and my tush. My muscles felt like they did on chemo, liked I had bench pressed 500 lbs. I thought I was having side effects from the Arimidex. But I only took one pill! "Only ten more years," I said to myself.

    Duh! Hours later I figured out my muscles hurt from the position I was in yesterday. I was mostly bedridden for 4.5 months and my muscles are back to work after their long vacation.

    Sorry for the long story. Sim went fine and so did the Arimidex. I'm the one who's a little wacky.

  • JuniperCat
    JuniperCat Member Posts: 658
    edited March 2016

    Brutersmom, I was in a very similar position as you, especially after the MammaPrint result came in. Two MOs and my BS suggested I do 12 weeks of chemo. I opted not to do it because of negative nodes and other health issues. For me, it wasn't work the potential risk. I've just started radiation and after two treatments my breast is already bright pink

  • MLP3
    MLP3 Member Posts: 534
    edited February 2016

    bruters- my chemo decision wasn't actually all mine. With "extensive lymphatic vessel invasion" found in "abundant blocks" and then when my mo told me they found cells on their way to my nodes... I don't think I have much of a choice. Wish I did like you!

    Praline- good job girl! A friend of mine said she had so much energy the first couple of days and she cleaned closets and kitchen cabinets!

    Peachy- I'm doing every 3 weeks.

    Annie- welcome! I am 3.5 weeks out of my lx and snb and everyone here helped me IMMENSELY. So it's my turn to give back;) I iced for two days religiously. Especially on the ride home from the hospital. My swelling was not a problem. I think because I babies myself for a few days, I was able to walk 3.5 miles 4 days post op. Definitely grab some genie bras. I wear mine 24/7. I showered the next day using my handheld. I also used baby wipes and feminine spray in between to stay fresh;) my snb site was the most bothersome and still is off and on.

    Jan- what's a sim

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