DIEP 2015

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  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited February 2016

    I bought large and normally small. I bought Jockey at Kolhs. Now I am in love with them

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited February 2016

    I found that my normal panties were fine...the ones with a lower waistband were definately easier to deal with when wearing a binder. I wouldn't get a bigger size. You'll have a little swelling, but not enough to warrant new u/w, and it shouldn't stick around that long. Also, I had some with a very flat seam. Those were much more comfortable than others.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    My DIEP isn't scheduled yet. I'm having skin-sparing BMX with tissue expanders on 2/25 and don't have a clue yet when I'll be able to have the DIEP. So far it doesn't look like I'm going to need chemo or radiation but of course we won't know until after the BMX.

    Daydreaming about having a flat stomach and perky boobs again is doing a lot to offset the fear and sadness caused by my breast cancer diagnosis. I am so grateful for the "consolation prize" that's coming. I've felt so embarrassed about my "mummy tummy" for the past 25 years since I gave birth to my son, and often wished I could get a tummy tuck. I have to buy shirts that go down past the tummy and it really interferes with my wardrobe. Even when I lost weight and got back down to a size 4, the tummy was still hanging there. Now I'm up to a 12 again and it's very noticeable. There should be enough fat there to give me some "D" cups, I imagine. I'm currently a "DDD" due to being overweight.

    I suppose the PS will be able to make a good recommendation on what size to make the foobs. I don't need them to be big, but I want them to project out further than my stomach so my clothes will drape well. Since my stomach will be flat, maybe I won't even need "D"s anymore!


  • LAstar
    LAstar Member Posts: 1,574
    edited February 2016

    StaceySue, really emphasize to your PS that you don't want to be large. I was trying to get a C cup and still ended up with DDD after several surgeries. It's like they just can't understand not wanting big breasts! I know that part of it is that it's easier to take away that add after Stage 1. Bring a bra that you would like to fit into if possible.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    Will do, LAStar. Your DDDs aren't saggy, I presume? I definitely don't want to still be DDD but I guess I'd go D as long as they weren't saggy. I'm dreaming of being able to go without a bra.

  • LAstar
    LAstar Member Posts: 1,574
    edited February 2016

    No, they are fairly perky and I can rock a tank top without a bra. I feel a little sore if I go without a bra too long, but I can wear just the slightest amount of support and have forever sworn off underwire. Yay!

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    A tank top without a bra - it will be like being 17 again :)

  • jbdayton
    jbdayton Member Posts: 700
    edited February 2016

    I hope you get the perfect breasts and stomach. I hoped for the same, but I want you to realize not everyone comes through this perfect.

    I just get concerned when someone is super excited that they are getting a body they dreamed about and not consider you could have complications. Please be prepared emotionally. Even the best surgeons can have a 1% failure rate.If you are prepared then my prayers are for a perfect surgery and recovery.

    If you have further treatments I hope you sail through them as well. The most important thing is you come through the entire process as cancer free at the end. Many HUGS!!!!

  • LAstar
    LAstar Member Posts: 1,574
    edited February 2016

    "Perfect" is definitely relative at this point! I have an enviable scar collection and a lot of numbness to go with this flat-ish belly and perky breasts. I also had a complication with my SGAP and had to have DIEP to repair Lefty. Most folks have great results and no complications. I'm a year out from surgery #6 (I NEVER thought that would be me), but let me tell you that I feel fantastic and am about to hit the gym and sweat out these god-awful hormones! Keep your head down, git er dun, and get back to living ASAP!

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    Oh - I've been looking at plenty of pictures of complications and revisions and keeping the faith that I won't have issues. Knock on wood.

    I'm an RN and haven't worked oncology or seen a lot of breast surgeries but one of the scariest things I have ever seen was when a woman came into the ER with her implant in her purse. She was using the bathroom and leaning forward to pull up her pants and the entire line of sutures came undone. Another woman came in with her nipple peeled off onto her bandage.

    We have to look on the bright side. Hope for the best and be prepared for the worst. I'd rather think about the reconstruction than about the mastectomy and the cancer, that's for sure.

  • jbdayton
    jbdayton Member Posts: 700
    edited February 2016

    LAStar and StaceySue I understand.

    I guess I just needed to state the obvious. I went to a support group meeting last week and met a lady who said she heard all these great DIEP stories on breastcancer.org and was devastated because she had lots of disfigurement from complications. Luckily I was able to show her it could be corrected over time.

    I am ok with my results. Just like you many scars but finally got close to the same size on both sides.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    Seeing photos and stories of people who have had complications and then turned out beautifully in the long run has helped my anxiety immensely. I have not seen any final products that were horrifying so now I know that if something happens I will not be afraid. Of course, I always look at everybody's cancer diagnoses too and I can see they've been through a lot and they're not only still here, they're here and looking beautiful. These forums have given me courage and lifted my spirits. I am so grateful.

  • twolumps
    twolumps Member Posts: 79
    edited February 2016

    Wow, I'm a little late to the party, but when I saw how much trouble everyone else was having with their surgeries and some still trying to decide in 2016, I thought I'd tell you that I had my DIEPFLAP November 19, 2015 and I feel great. Finally had to have the nurses take my morphine pump away because I didn't need it after the first night, very little pain meds at home. I did sleep in my recliner for about 6 weeks. Learning to sleep in bed with new boobs was not a treat, but after the 2nd night I settled in. Back to work after 6 weeks. Great results. I went from DD to a small B. Absolutely delighted about that! Very symmetrical and I probably won't need anymore surgery. Still on hold about the nipples. I am older, divorced and am lukewarm about the nipple idea. May opt for larger more beautiful tattoos of lotus flowers instead.

    The ONLY issue I've had is finding a freaking bra! Being a very small B and still carrying about 60lbs. too much weight, it is very difficult to find a 46B, even online. If I thought bra shopping for 46DDs was torture, shopping for 46B is impossible. Finally found one that fit the way I wanted it to while I am on my way to a smaller size. Whew!

  • Ridley
    Ridley Member Posts: 634
    edited February 2016

    twolumps -- what about using a bra extender?

  • jlstacey
    jlstacey Member Posts: 277
    edited February 2016

    Two lumps- you could also have a bra altered.

    I think these tattoos would be beautiful instead of nipples.image

  • twolumps
    twolumps Member Posts: 79
    edited February 2016

    What a great idea about the bra extender, Ridley! I will give that a go.

    I had thought about having the bras altered jlstacey, but I'm hoping to need a smaller band size soon. Those pix of tattoos are gorgeous! I just don't see me settling for plain old nipples. :) Thanks for sharing and if you see any more, please post!

    Thanks for y'all's help!

  • jlstacey
    jlstacey Member Posts: 277
    edited March 2016

    Hey ladies, I have s few questions. I had my DIEP flap stage 1 on 2/18.

    1) what did you use on your abdominal and belly button scars?

    2) How long did it take your abdominal swelling to go down?

    3) When were you able to stand up straight again?

    Thank you everyone

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited March 2016

    JL, I used mepiform silicone sheets from CVS. They are easy to trim to size and stay on quite well. You can take the strips off to shower, wash them with soapy water, let them dry, and then reuse them again. So, although a box seems expensive, it's going to last you a while. They worked really well on most of my scars. Years ago, I used mepiform on a skin cancer scar on my face. Today, the scar is harsly visible.

    Swelling, I don't remember the exact time my swelling dissapeared, but I am sure it was gone by about 8 weeks. Your back should be getting a little straighter everyday and you should be noticing a little less tightness of the abdominal skin. It's definately a slow process, but you shouldn't be feeling too hunched over for very much longer...maybe another week. I know that feeling of tightness seems like it will never go away, but it will.

    So DIEP stage 2....a little over 24 hours is when all the pain and bruising started to settle in for me. This morning, the compression garment on my abs and legs was so uncomfortable I had to unzip for a little bit. My outer thighs are so sore I can't find the words to describe the pain. I am hoping it eases up so that sitting on the plane tomorrow won't be too terribly painful. So, so glad I didn't do both inner and outer thigh at the same time. All other stage 2 work seems to be within my numbness field, so not so bothersome. My new areolas look much more proportional and I'm not nearly as boney up top as before. I know that some of the fullness is swelling and some of the fat will reabsorb, so I am worried that the boney areas will come back and need more grafting, but I hope not.

  • jlstacey
    jlstacey Member Posts: 277
    edited March 2016

    I hope your pain eases up DizzParkmom for your flight! Thank you for letting us know what phase 2 is like. It helps me plan for the next phase!

  • Sugar8
    Sugar8 Member Posts: 47
    edited March 2016

    Did everyone one this forum have a bear hugger to keep them warm post sugary and for how long?

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited March 2016

    I did. Can't really remember but maybe a day or two

  • Kukaryn
    Kukaryn Member Posts: 1
    edited March 2016

    hi I'm new to this site. I am contemplating having DIEP surgery with Dr Fix this summer. How did everything go for you and your surgery? I am a bit intimidated about the whole thing

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2016

    Welcome, Kukaryn! You'll find great support here!

    Please keep us all posted on how your surgery goes.

    --The Mods

  • BigSister-2015
    BigSister-2015 Member Posts: 342
    edited March 2016

    Hi Kukaryn,

    I had my surgery on 12/10 and everything went very well. I am sitting in the plastic surgeon's office waiting to meet him to talk about the next stage.

    Although it is a big surgery, the results are wonderful, and when you are done you are done, unlike implants.

    There is a new group for the 2016 surgeries, so you might want to check in there--that group is more active.

    https://community.breastcancer.org/forum/44/topics...

    When I was first contemplating this surgery, I started reading both this 2015 forum from the start and the 2014 forum. I was amazed to see that everyone on these forums were happy with their choice, even if they had complications. That brought me much comfort!

    Ask specific questions and you'll get all the answers you want.

  • slv58
    slv58 Member Posts: 1,216
    edited April 2016

    Hi everyone, it's been a year now since I had stage one. I have a question, has anyone experienced pain this far out? I've been feeling pain at the outer edge of my flap and my PS said that it could be necrosis and/or nerve regeneration. I am scheduled for an ultrasound to be sure. It just seems strange to me that it is only in one area. A little nervous as I've also felt a thickening. My PS and oncologist both feel it is nothing, but....

    I go next Friday.

    Hoping for stage two the beginning of July. Not the best way to enjoy summer but I don't want to take time off work. I have a stomach bulge on one side from weakened muscles that my PS will be trying to fix with some mesh, so I'll have to be careful with lifting etc. the same as the first surgery.


  • LAstar
    LAstar Member Posts: 1,574
    edited April 2016

    I remember feeling more zinging sharp pains a year out that was probably nerve regeneration. It went on for about a year and then finally subsided. I was concerned that I would have to deal with those pains forever, but I think it's just part of the process. Best wishes getting some good news and allaying those persnickety fears, and best wishes with Stage 2 and being done!

  • phoebe58
    phoebe58 Member Posts: 193
    edited April 2016

    Hi, I get the odd zingy zap 7 months later..... I also had radiation after. I still find my abs to be quite weak -- when I attempt rather simple crunches it feels like I finished a big ab routine the day before so area still tender. I am looking at stage 2 in the early fall. Best wishes and keep us posted that it's hopefully nada to worry about.

  • Scwilly
    Scwilly Member Posts: 489
    edited April 2016

    Just a small question about recovering from surgery.

    I've just have my second stage two weeks 2 days ago, and physically I feel great from the op - the scars are healing well and I have no pain for the lipo and bruising. But Im feeling so tired. I feel its most likely the anesthetic. For my first stage op I was 4 days in ICU, and I know that at least 2 weeks with drains. I suppose that I didn't notice being tired from the op.

    Anyone else relate and can tell me how long I should realistically take to not feel so tired. I've spent this week not being able to achieve anything.

    Thanks

    Sarah

  • LAstar
    LAstar Member Posts: 1,574
    edited April 2016

    I felt like I started to turn the corner around the two-week mark after Stage 2. It can sneak up on you! I hope you get your zip back soon and are pleased with your results.

  • Scwilly
    Scwilly Member Posts: 489
    edited April 2016

    Thanks LAstar. I'm v pleased with the results. I will need a third op to get a little more done for matching sizes (thats if I don't become more even - my PS said it will take a while for all swelling to go down). Then nipples after that. Im so happy I got a huge improvement this time. Hopefully next week I will feel I have more energy.

    Sarah

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