Pain after radiation

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Occovegirl
Occovegirl Member Posts: 27
edited February 2016 in Lymphedema

Hi I am new to this page. I finished my radiation treatment in October 2015. But still have shooting pains in my arm and in my breast. Anyone else have this. I have started Pt for lymphedema but not sure how much it helps yet. I am also on Tamoxifen that makes me so nauseous at times. And gives me leg cramps and joint pain. Anyone else have the issues

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  • Moderators
    Moderators Member Posts: 25,912
    edited February 2016

    Hi Occovegirl, welcome to the BC.org community! We're sorry you didn't get any real answers yet... and we hope this comment will bump your thread so other members can see and reply to your post. You can take a look also at the very active Bottle 'o Tamoxifen topic for all things related with this medicine.

    Hope this helps, let us know how you're doing!

    The Mods


  • Jennie93
    Jennie93 Member Posts: 1,018
    edited February 2016

    Tamoxifen gave me leg cramps and joint pain too. Magnesium, 250 mg once a day (you can increase gradually if it doesn't help) cut the leg cramps back down to a normal level. MO put me on megadose of vitamin D for the joint pain. It helped a little, I guess, maybe it takes months to work. I couldn't take it any more and quit tamoxifen after 20 months.


  • Occovegirl
    Occovegirl Member Posts: 27
    edited February 2016

    Thank you so much I will try the vitamin approach!! I go to my onco for check up soon..

  • chicmakinsoap
    chicmakinsoap Member Posts: 3
    edited February 2016

    @Jennie93 - I am curious if you switched to another drug when you got off the tamoxifen? I started getting pain in different parts of my body in december. It started in my right ankle, but not enough to prevent me from walking. It just hurt to touch it. Last week it moved to my right foot and I it is still there, preventing me from walking correctly. I cannot put full weight on it, so I can't exercise, i can't function! I visited my onc this past tuesday and he is saying there is no such pain from tamoxifen! He suggested that i can switch to arimidex but that joint pain is known with that drug. if I am having with pain with tamoxifen and I shouldn't , then I think I will not have it with the other. Just wondering how you are doing on the other drug.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited February 2016

    Yes, I did switch to anastrazole and yes, that was my first question too! I said, aren't the AIs even more notorious for joint pain? Doc said yes, but everyone is different, one person might have lots of SEs on one med and not another, someone else might be exact opposite. Worth a try, can always switch back if worse.

    I do still have pain, but it's different. More stiffness, not as much sharp pain. It is not fun but it is bearable..... so far anyway. I figure I will just keep on as long as I can.



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