Androgen Receptor Testing & Treatment

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited February 2016

    wow. I had no idea someone was updating us about Hope here. Thanks. I have been very concerned for her. Hope she feels the love of all asking about her. Praying for her family as well

  • artistatheart
    artistatheart Member Posts: 2,176
    edited February 2016

    Thinking about Hope everyday! Thanks for the updates Woody...

  • 3Holly
    3Holly Member Posts: 223
    edited February 2016

    Woody, Thank you for the updates on Hope, I am praying the radiation will help Hope with the bone mets pain, I believe my recent radiation (though torture since getting on the table nearly kills me) has really helped me a lot with my bone mets (was severe prior), and I hope radiation will do the same for Hope. Also, I spent a week in the hospital on a palliative care floor - they were able to get me to the right dose of morphine - too little was keeping me in pain, and the higher dose making me sick/exhausted - finding the right dose and also using liquid morphine, not solid morphine which wasn't working (and I never would have found this out at home, without the help of the excellent palliative care nurses and docs during my hospital stay) - this was the key - I hope that Hope is getting some expert advice and will soon get some relief of her pain and the exhaustion that comes with it. I am also using the Lidocaine patch on my rib fracture, and it seems to be working (not as effective for spine, but good for rib fractures (I have a bad rib fracture that I thought was another spine fracture since it is a rib that wraps around to the spine) - the patch does work well on rib fractures if Hope has any of those, and you can use it longer than directed, doc said just remove it for 4 hrs/day. Keeping Hope and her family in my prayers.

  • oriole
    oriole Member Posts: 72
    edited February 2016

    My thoughts and prayers are with you, Hope, and with your family. You are a special friend to so many of us. Wishing you treatment that brings relief and comfort and peace. We are supposed to warm up on the central coast this weekend and I hope that you can enjoy the warmth with your family.

    Holly, my thoughts and prayers are with you too! My oncology center has been expanding its palliative care services and adding more MDs and nurses and support. It sounds like you are getting great care!

    Woody, thank you so much for keeping us informed about Hope. Please let her know that we are all thinking of her...

  • GG27
    GG27 Member Posts: 2,128
    edited February 2016

    I too had no idea that Woody was updating us on Hope. Please let her know that I think of her often & hoping that treatment brings her some relief. Best thoughts to Hope from Dee

  • babs6287
    babs6287 Member Posts: 2,021
    edited February 2016

    I didn't know we were getting updates on Hope here. Please tell her that I'm thinking of her and her family and that my prayers are with them all. I hope she gets relief with her treatments.

    Babs

  • LindaE54
    LindaE54 Member Posts: 2,054
    edited February 2016

    Thinking about you Hope. I hope you are spending quality time with your family and that you are feeling better. Sending you BIG hugs.

  • GG27
    GG27 Member Posts: 2,128
    edited February 2016

    I've been thinking about Hope as well. Hope all is well with her.

  • oriole
    oriole Member Posts: 72
    edited February 2016

    Hope, I am wishing you wonderful moments with your family and hoping that you can get out and enjoy this beautiful weather. My thoughts and prayers are with you and your family.

  • Kjones13
    Kjones13 Member Posts: 1,520
    edited February 2016

    hey hope! Just thinking of you and hoping you are having a good day

  • Max_otto
    Max_otto Member Posts: 150
    edited February 2016

    Thanks Woody,

    Thinking about Hope, sending warm and gentle hugs to her and the family, especially for her young son.

    Kathy


  • Woodylb
    Woodylb Member Posts: 1,454
    edited February 2016

    kjones and Max Hope sends her love. She was going to check BCO but then she had 4 sessions of radiation and yesterday she felt sick with fever and sore throat and is sleeping most of the time. She will see the doc on friday and if she is well by then she will have chemo. I will update you when i know more. Love to all.

  • artistatheart
    artistatheart Member Posts: 2,176
    edited February 2016

    Thanks so much for the update Woody. I am sending positive thoughts for you feeling well Friday Hope!

  • babs6287
    babs6287 Member Posts: 2,021
    edited February 2016

    Woody

    Please tell hope we're all there with her holding her hand. Hope she can do the chemi🙏

    Babs

  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2016

    Woody, Hope is frequently on my mind. I was not too far from where she lives last weekend (the Ronald Reagan Library in Simi Valley), and I thought about her and tried to send healing vibes to her as I looked out over the absolutely beautiful countryside, looking towards the Pacific. Fingers crossed that she's feeling better today and will be well enough to get chemo tomorrow or very soon. Deanna

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2016

    Just saw this research posted on another thread, and immediately thought of Hope, so thought I'd repost the link here:

    https://community.breastcancer.org/forum/73/topics...


  • Woodylb
    Woodylb Member Posts: 1,454
    edited March 2016

    thank you dlb i will send it to her . She got her chemo finally on monday, she will be out for few days. And in maybe a month we will know it is working or if ew symptoms develop . Thsnk you sll for caring so much.

  • Kjones13
    Kjones13 Member Posts: 1,520
    edited March 2016

    praying the chemo is working! Love to hope! And you :

  • LindaE54
    LindaE54 Member Posts: 2,054
    edited March 2016

    Thanks Woody. Continued prayers for Hope.

  • Woodylb
    Woodylb Member Posts: 1,454
    edited March 2016

    thank yoy Linda and Kjones i hope it works too , i am praying. Love to both of you.

  • sarajaneevans
    sarajaneevans Member Posts: 187
    edited April 2016

    I didn't know updates regarding Hope could be found here-Thank you so much - I think of her every day as well and worry and think and wonder- and more worry,and prayers are always with her. My heart started to burn as I read the updates,but I will never stop pulling for Hope, or give up Hope. I don't post much, but feel a kinship to Hope as we both live in the same town and know some of the same people.God Bless you Hope-sending rays of sunshine and many gentle (((((huggs))))

  • LuvMyFam
    LuvMyFam Member Posts: 101
    edited August 2016

    Hi, I don't post a lot, but I do read a lot! I'm wondering if anyone knows how Hope (Romansma) is doing? Did the chemo help? I feel close to her as I am from Ventura and I am on Ibrance. She is the pioneer and gives me hope. Sending peaceful healing to Hope and her family. They are on my heart

  • zarovka
    zarovka Member Posts: 3,607
    edited August 2016

    Woodyb keeps everyone updated on the Concerned About Hope thread.

    I would be be interested in anyone who is aware of developments in Androgen Receptor Testing & Treatment.

    >Z<

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