Help me - hot flashes

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CAMommy
CAMommy Member Posts: 437

every single night, as soon as I get under the covers and comfortable for bed I have a massive hot flash. I rip the covers off and wait for it to pass but then I'm all adrenelized and can't sleep for at least an hour. Doesn't matter that I was totally tired before and not at all hot. This happens even if I'm already in bed reading, roll over turn out the light and try to sleep and BAM hot flash. It is so annoying. Doesn't matter when I go to bed, what I ate or didn't eat, even if I took a sleeping pill it happens.

Anyone else have this right before I go to bed flash? Any suggestions? this is really messing with my sleep and my sanity.

Comments

  • GG27
    GG27 Member Posts: 2,128
    edited February 2016

    Yes, I had this problem, every single night. I have taken Gabapentin, 600mg now for about 3 years. If I miss a night, it's the night from hell. Hot flashes & night sweats all night even though our bedroom is at 15C/59F & DH is cold. Like you it then takes me an hour or more to go to sleep. Dr says this dosage is no problem to take.

  • Leslie13
    Leslie13 Member Posts: 202
    edited February 2016

    I was on Gabapentin before, so lucky. Adding a low dose of Prozac or another SSRI can help. There's a few studies that say SSRIs can increase cancer risk, so try Gabapentin first. I take 1200 - 1800 a day. It helps with pain too, but gives you brain fog. There's never a perfect answer with cancer treatment

  • GG27
    GG27 Member Posts: 2,128
    edited February 2016

    "Brain fog" is a SE that a lot of people seem to get ---- I only take it about an hour before bedtime, so I don't care if I'm foggy at night! :) But I have to say that when I was taking it during the day for hot flashes I didn't experience this or the tiredness that they warned me about.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2016

    I took Effexor for a while. My DH is being treated for ca too, he has horrible sweats. The Effexor is helping him too.

  • CAMommy
    CAMommy Member Posts: 437
    edited February 2016

    thanks for the replies. I may need to see my dr about some gabapentin. I am already on celexa, which I have been for years. I am up to 20mg (doubled since getting BC) and I don't want to go any higher.

    I really miss my estrogen :(. I know it's a no no for the rest of my life. I didn't have hardly any hot flashes or night sweats even after I had to stop taking estrogen (had a complete hysterectomy before BC dx) until I started the antihormonals. That put my body in a mess. My MO has recently taken me off them but my body is still a mess. I'm hoping sooner or later it settles back down. My MO won't rx me anything to help, he said talk to my GP.

    I have brain fog too. It really sucks that the one hormone that makes us feel good/normal is the one trying to kill us. :(


    Spookie, I'm sorry your husband is going through cancer too.

  • kamm
    kamm Member Posts: 140
    edited February 2016

    My hot flashes were also much much worse at night than during the day. I didn't have hot flashes or sleep disruption even after having my ovaries out until I started the anti-hormonals. I still wonder if I hadn't started them if I would have had flashes at all since I hadn't really had them. Tried two different ones, with each having side effects that were worse than the last. I finally gave up and came off. Quality of life was more important. Although the flashes were not as incinerating, they remained pretty bad but I would say have lightened up in the last two or three months. I maybe now have one a day and although I still have maybe two a night it's nothing like it was. Very light. It's been about a year since stopping the last anti-hormonal. So hopefully it will slowly lighten up. I still struggle with sleepleness but have learned to accept it and just work with it. Theirs hope. Just hang in there!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2016

    I use 5-HTP in the a.m.now-every day-100 mg--seems to have alleviated my hot flashes. Research claims no effect on them when using a placebo, but I disagree. I did take low-dose (37.5 mg) effexor but blamed it and my arimidex together on my slow creep of weight gain and the inability to lose it no matter what, so I quit the effexor last year.

    But I used to have a big hot flash every night at 7-7:30 p.m. for no reason (while on effexor!). Not what I ate, etc. So weird. I swear my husband could see the steam rolling off me in waves.

    Claire

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2016

    My hot flashes are crazy too even with 75mg of Effexor. Covers on/covers off all night long. My kids got me an acupuncture gift certificate for Christmas so I'm going to see if that help. I go next week.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2016

    One thing that really helps me sleep is a silk sleep mask someone recommended on these board. It feels delicious and I just sink into the darkness.


  • Northernflower
    Northernflower Member Posts: 10
    edited February 2016

    Yes, the temperature regulation is an issue. I don't have hot flashes as regularly at bedtime as you, but often enough. Along with my Arimidex, I've been taking a Xanax about half an hour before bedtime. Even though it's a low dose (.5 mg), taking it makes me sleepy and I usually have no problem falling asleep. I sometimes do wake up with a hot flash during the night, but then I get up and go to the bathroom, which cools me off, and having the Xanax in my system seems to make me able to go back to sleep afterward. And if I can't get right back to sleep, at least I'm not lying there awake rigid with anxiety.

    BTW, I don't take the Xanax at any other time.

  • CAMommy
    CAMommy Member Posts: 437
    edited February 2016

    thanks for the reply. I do have Xanax and when I take it, it does help a ton. Even with daytime flashes. I just don't feel comfortable taking it every night. I have a .25 mg rx and I usually only need 1/2 a tab to get to sleep but I've heard Xanax is addicting so I only take it if I absolutely need to get to sleep for the next day.

    I have a note into my GP for trazadone or gabapentin. I'll see what she recommends. My MO's office recommended unisom but that may be linked to Alzheimers. I swear we cannot win. I already feel like I'm losing my mind. :/

    I'll update with what she recommends and if it works.

  • Northernflower
    Northernflower Member Posts: 10
    edited February 2016

    CAMommy, I've heard about the addiction possibility with Xanax too, but I figured that during this very stressful time, good sleep was absolutely essential for my body to heal and keep my immune system as strong as possible, so anything that would help me get it was worth it. Since I still don't feel any desire/need to take the meds during the day, I'm not overly worried about addiction. But I'll cross that bridge when I come to it.

    I did two other things (pre-cancer diagnosis, just for menopausal hot flashes.) One was to buy a pretty Japanese silk hand-held fan (got it on Amazon). Since it's fabric, I made a case for it so it wouldn't get beat up inside my purse. When I get a flash during waking hours, I whip it out. That won't do you any good for nighttime, but if you get daytime flashes, it could be helpful.

    The other thing is a remote-controlled ceiling fan. We installed one in our bedroom a couple years ago and it is WONDERFUL to be able to just roll over and hit that button to turn it on high when necessary. Again, not necessarily helpful for falling asleep, but potentially useful. I also find that having it constantly running it on low sort of helps "even out" the ambient temperature my body is perceiving so that I don't get as many flashes in the first place. Does that make sense? That might actually help you avoid the going-to-bed flashes you're getting.

    Farmerlucy is right that a sleep mask is a good idea, at least if you are at all sensitive to light in the bedroom. I have added a blackout one to my bedtime routine and it has definitely helped.

    Good luck and sweet dreams!!

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    I'm in the same boat. Hot flashes all day and night but much worse at night. Covers off, covers on, all night long. If I turn the temp down to about 66 or even 64, then I can keep my covers on and get a better sleep. My doctor offered me gabapentin several months ago but I declined it. When I go on the antihormonals I think I'll ask for some.

    I have noticed that my hot flashes are not as bad on the days I get some exercise.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2016

    I had my first acupuncture session yesterday. I had her work on anxiety and hot flashes. I was so relaxed afterwards. It was awesome. I wish I had known about it when I was first dx. I may not have fallen off the emotional cliff. HF seems about the same but I'll probably try itagain.

  • CAMommy
    CAMommy Member Posts: 437
    edited February 2016

    I spoke to my GP and she rx'ed me trazodone for sleeping. It's only been 2 nights but I have slept so much better. I didn't even have my going to bed flash last night. I did wake up at 3:00 am and had a mild one but fell right back to sleep. And even better, I'm not having as many or as severe during the day either.

    I'll let you know in a week or so if this is still the case. I'm doubting that trazodone actually helps hot flashes as much as good quality sleep helps hot flashes. Just my theory. After two good nights of sleep I feel so much better.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    Please do let us know if the trazodone keeps working!

  • Fe_Princess
    Fe_Princess Member Posts: 245
    edited February 2016

    I have been taking the lowest dose of Effexor 37.5 mg and it has cut my hot flashes by 90%!

  • dtad
    dtad Member Posts: 2,323
    edited February 2016

    CAmommy...Yes the exact same thing happens to me every night. There must be something about the beginning of the sleep cycle that triggers hot flashes. I take Relizen. its an OTC supplement that is non hormonal. I think it really helps. For those of you who are using Xanax for sleep, please be careful. Its very addicting and very hard to come off of. It should be used sparingly in short term situations only. There are many other meds that help with sleep that are not as addicting. Good luck to all of us!

  • CAMommy
    CAMommy Member Posts: 437
    edited February 2016

    update.... I really feel trazodone helped me sleep and decreased my hot flashes. I was having 6-8 severe ones durning the day and 5-7 severe at night. After starting trazodone they went to 4 or do mild ones total day and night.

    However, trazodone isn't going to work for me, sadly. I was feeling my anxiety increasing each day and last night when I took it I had rapid heart rate (130 bpm) that went down to 90 after a bit but stayed 80-90 for 2 hours then dropped down to 70s (my resting heart rate is in the 60s). I've also been increasingly dizzy.

    So I'm stopping the trazodone. These are uncommon side effects so most people won't get them and trazodone might help your hot flashes. But sadly I can't take it. I'm super sensitive to meds. The fact I can take celexa without problems is amazing.

    I am unsure what I'll try next. I'll probably use unisom for a bit for sleep until I can get in to see my dr.

    I so loved my break from hot flashes. It was wonderful.

  • knittingPT
    knittingPT Member Posts: 156
    edited February 2016

    I got this cooling mat on Amazon and it helped me sooooooooooo much at night. It really sucks the heat of you and then you set it aside and it works again in a few minutes. This may and a glass of ice water on my night stand really helped me through the worst!

    I also found Effexor, yoga/exercise, and accupuncture to help. Before I got the flashes under better control the mat made all the difference!image

  • PattyMeg
    PattyMeg Member Posts: 56
    edited February 2016

    I've been experiencing the same thing. I started Tamoxifen about a month ago and had a hot flash or two every night, but the past week, it has been so bad, I haven't been sleeping. I fall asleep with no problem, but then I'm up at least four times a night and have been having trouble getting back to sleep. I've been sleeping in shorts and a tank top, with the window open, on top of the covers, with ice water on the side table. I'm freezing my poor hubbies out! I am so exhausted, I can't imagine doing this for five years. I see my MO in a few weeks, so I figured I would hang in there until then. I may order a cooling mat. When I read your posts about covers on and off all through the night, I laughed, because that is exactly what I've been doing. Stay cool ladies. Patty

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