Lumpectomy Lounge....let's talk!
Comments
-
HH- I think it was just a typo for I believe she was commenting on my treatment plan. I was told today no chemo and no hormones just radiation for 15 treatments.
-
Surgery went well. Thank you everyone for going along in my pocket. The surgeon told my husband there were more calcifications but she said she got them. I have felt pretty good this evening so I am very happy about that. Good night and thanks for being there
-
ChiSandy, I've never been a fan of BMI. I think it's based on junk science (as I recall it's been proved to be erroneous). So just ignore it and go with the weight that YOU feel best at. It's hard to lose weight while going through all this. Hope you can get more sessions approved by Medicare. I can imagine that it might be rather difficult for your mother to care for you if you visited her.
MLP3, are you pre-menopausal? That's usually why they prescribe Tamoxifen. There are other non-BC conditions that might weigh in for its use. Keep asking! I'm sure you'll get lots of suggestions for questions.
HUGS!
-
Great news, KarenR0618! Keep the ice packs on, and take it easy!!
-
HH and Brightsocks, oh geez. I'm senile! I'd better grab another glass of wine before I forget I love it!!
HUGS!
-
Count me IN for a diet. I want to lose at least 30 lbs. I am 154lbs at 5'5. I am definitely overweight. I do not want any fat for the estrogen/progesterone to hide out in. My current problem is trying not to be nauseous all the time. I have lost about 8 or 9 lbs since being diagnosed at the end of December. I might have to get me a fit bit after all
Disneygirl: Welcome! Poodles: Glad you got fixed up with IV fluids and Zofran. That virus sounds like it was hell on wheels.
"Feeling like in the past 6 weeks I am studying for a exam that I have limited knowledge yet make in informed choice with impacting results" --- Brightsocks, I feel like I could have written this myself. This is how I feel every single day so far.
Thanks for the replies on my current issue (to do hormones prior to surgery or not). I sent my MO a ton of questions and requested a call or another appointment. Sloan - thank you for your insight. That is one of the things she mentioned. We can monitor how my tumor reacts to the meds to see how effective it will be in the long run. She went over a lot of options with me. She talked about the "SOFT" trial and said that they have already received some results (5 year results) back and that trial can effect me greatly (why she suggested the Lupron shot, it was in that trial for ladies doing Tamoxifen + Lupron + having low Oncotype score. I do not have my Oncotype yet. She said she would send off my biopsy to Oncotype if we do hormones first, because the tumor would be less accurate after it is taken out and having been affected by the meds first. Ugh, so much information batting around in my head. Thinking about the 2nd opinion option though. It never hurts!
Did anyone ever ask their MO (or SO) how long they thought the tumor was growing inside you?
-
KarenR0618, great news! Glad you got through it all and feel good enough to post! Ice and rest!
HUGS!
-
KarenR0618- Welcome back home glad to hear it went well. Ice and rest work well as all the drugs leave your system.
-
karen, glad u are out of surgery and home. Rest and take yr pain meds if u need them.
-
My mom passed in 2006 at the age of 85, but I'm sure if she were still around she'd be chomping at the bit to “take care" of me. (In '94 when I had my gallbladder out, and she was 74, she flew in to “take care" of me--but when I got home I was fine--I cooked for the family and three days later we all went out for our anniversary).
I can't do a diet low in fat and high in carbs--it makes me cranky and I don't fill up. I have no idea what a “Shakeology" shake is, but it sure doesn't sound satisfying for breakfast--I need texture and balance. (Real food, mostly plants, but REAL). I was never a fan of real shakes & malts anyway--why would I want a low-calorie one for breakfast? No, what I need to do is go back to Induction on Atkins for awhile and slowly add back berries, low-carb full-fat dairy and eventually very-high-fiber grain. (Oh, and get off my butt more). Where I went off the rails was when I traveled to Spain last March and indulged in first matzo (first week was during Passover) and then breads, crostini-type tapas and desserts, especially at the lavish included hotel breakfast buffets--not to mention the food & alcohol on Iberia business class. Once I fell off the horse, it was tough getting back on. I had my abnormal mammo in mid-Aug. and then the BIRADS 4b ultrasound the day before I left for a course and gig in New Orleans--I was terrified it might be my last trip there ever, and I was deep into my pity party. I even “rewarded” myself with dessert after each medical or rads appt. Some “reward,” huh?
Going out to restaurants is a HUGE part of Bob's & my social life. And when I tour, I need to be able to find something to eat on the road that is on my diet. I have done the WW thing--bringing a scale and points calculator to restaurants--and both Jenny Craig & Seattle Sutton. I cringe in retrospect when I recall bringing prefab JC or SS meals into restaurants and having the chutzpah to ask them to nuke them for me. By contrast, I know I can walk into any restaurant and find some protein and green veggie to eat--even if it's string cheese, hard boiled eggs and celery sticks at a gas station. I can find something satisfying and delicious--and totally on my diet--at a steakhouse, fish restaurant, breakfast place, even a music-conference buffet or down-and-dirty road BBQ, so long as I lay off the sauces, sweets and starches (and definitely limit wine to a couple glasses a week of something really, really worth drinking). It's a matter of re-exercising the discipline that allowed me to lose those 50 lbs. and stop justifying the insidious “little cheats" that definitely added up.
It isn’t fair. Nothing about cancer is fair. Especially the fact that we can’t even comfort ourselves with the things we enjoy, to compensate for the unfairness. The truth is it’s not a zero-sum game, and we don’t get to make it not suck.
-
Dear Octogirl:
Permanent makeup is the answer! I have permanent eyeliner. Great decision on my part. I never wear makeup.
Dear Karen:
Yay!
Dear Molly:
February 1 was a bad day for both of us. 17 years ago for you and 16 years ago for me. Yours was much worse than mine. I am sorry that your son came down with encephalitis.
Dear Peggy:
Wise words.
You make me laugh so much.
Here is my story...My office is so cold and my hands are always freezing. I have been wearing black gloves with the fingers cut out so that I can type. The other day, a student asked me if I rode a motorcycle. I said no and didn't think much of it. The next day, another student asked me the same thing. When a third student asked, I realized that my students think that I ride a motorcycle because I wear the gloves. LOL!!! I guess that I am now a biker chick!
Dear LaNena:
The waiting is the worst.
Dear Sloan:
I love the pics. You are gorgeous. I love your smile. Congrats for your Dad. You had a horrible trifecta.
Dear MLP:
Thanks but luckily, I was not having surgery. It was the anniversary of my divorce. I'm much better off w/o him. I hope that you feel better and that your BP raises or they figure out what is wrong. FYI: I was 7 weels post surgery for rads. That was mostly because I wanted to wait due to work. It took 1 week for my path report to come back post double lx, it took 5 weeks for my genetic testing to come back so I had my lx prior to receiving my genetic testing results (not what I wanted to do), and I think that it took 3 weeks for my oncotype score to come back but it seemed much longer so it may have been 4 weeks. Sorry, I don't remember how long my oncotype score took. The waiting is awful and I hope that you get your results tomorrow. Good luck.
Dear ChiSandy:
Good luck getting the sleeve/gauntlet/glove and I hope that your LE gets better quickly. At the very least, I hope that you will be approved for more sessions. I hope that your guitars are ok.
Dear LTF and Brit:
Feel well.
Dear Just MaxiMom:
What are cabbage leaves for?
Dear OneStep:
Good luck going back to work. However, it sounds to me like your body is telling you that you need to take more time off to heal.
Dear Ayr:
I agree with everyone else that you should go for a second opinion. However, it sounds like your MO did give you a good explanation of why she wants you to do this tx. I would ask your MO many more questions and bring someone with you. You need to be in total agreement with your tx plan.
I had an oophorectomy so that I could take the AI's. I started with zoladex injections. I did not want to take extra meds nor did I want to take the shots. You may want to consider an oophorectomy so that you can avoid the other medication. Good luck with your tx plan.
Dear Disney Girl:
Welcome and good luck on Thursday.
Dear Peachy:
Please tell me what your sign says. It is fuzzy on my screen and I can't read it. Inquiring minds need to know...
Dear MustLovePoodles:
What a horrible weekend. I hope that you feel better. Good luck on Thursday.
Dear Brightsocks:
I am glad that you finally have a tx plan. What a relief. Good luck on Thursday.
Dear HH:
Good luck on Thursday.
Dear Melclarity:
I hope that work is going well for you and that you feel well. I am sure that you are totally exhausted. I am sending you hugs. I hope that you are ok.
Hugs and prayers to everyone.
-
ChiSandy I followed pretty much the same diet you did and also lost 50 pounds. Then gained 20 pounds back during chemo. Now down almost 10 of those pounds (8 months later), but man this time it is slow going. Having said that, I have cheated during chemo and after because it was hard to deny myself, but I am motivated now to get back on the "diet" that works for me.
Can I just say that through weight loss one of the foods that has helped me more than anything has been pumpkin seeds? Avoiding processed carbs takes out a lot of the crunch foods, and pumpkin seeds help me fill that void.
-
Yes, Karen, keep the ice packs on and use the pain meds as needed and be sure if you use pain meds to take probiotics and Colace so you do not have digestive issues. Rest but move as you feel up to it and then, rest some more. Hugs!
hahahaha, Peggy- you are so cute and funny and so full of great advice...I want to be like you in 15 years!
-
Theresa, I decided to “get back on the horse" starting with dinner tonight. (My farewell-to-discipline was a pain au chocolat after the family shrink appt. and shopping trip to Whole Paycheck). WF got some really nice branzino in this morning, so I had the fish guy scale and filet one for me (I froze the bones & head for stock). I got a really pretty organic artichoke too. I sauteed some onion & cubanelle peppers (red & green) with a little minced garlic. Meanwhile, I salted & peppered the fish, put them on some parchment paper with some drops of olive oil. Topped them with fresh basil, thyme, rosemary, and tarragon leaves, then a quartered tomato and a squeeze of lemon. Folded and crimped the parchment, cut a few slits in the top, and nuked it on high for 90 seconds. (Yup, that's all it took). Topped the cooked filets with the pepper-onion mixture. And for crunch, I trimmed the artichoke and deep-fried it till the leaves were crispy but the heart was still tender, and sprinkled with a little Sicilian orange sea salt. Voila: carciofi alla Giudia, just like I had in Rome. No wine, just seltzer. No starch, no sugar. And with all the herbs from the fish (especially the tarragon & basil) the kitchen still smells great. Only bummer was that I had to wear a Kevlar glove on my right hand to protect it from heat (and further swelling). Let me tell you, even mild LE bites!
Haven't tried pumpkin seeds since I was a kid, but for crunch I’ve been eating cashews & almonds.
-
Sandy- you make a fish dinner sound good..wow.
-
oh yeah, almonds and cashews are awesome too. I just got in to frying Brussels sprouts in palm oil. They are delicious and crispy, but can really give me the burps.
What a gal will do for crunchy!
Ok, you have motivated me. No more cheating! I do best when I allow myself one cheat meal per week so I don't go too nuts looking for the crunch (pun intended!). I have found I can also overeat nuts and gain weight too! I'm a pumpkin seed junky because my Sicilian grandpa always kept some in a tin when I was a kid and he would give us just a few, so they became a special treat
Weight loss after menopause sucks....
-
I lack the discipline to allow myself ONE weekly cheat meal and then get back on the horse. Heck--one cheat food a day in the course of one meal has derailed me! Right now, I’m getting peckish again. I SO want to have the heel of a baguette, or one mini-croissant, or one glass of champagne (thank goodness it’d take too long to fetch one from the basement and chill it). Instead, I will have a scoop of sugar-free low-fat ice cream (gonna give Clemmy’s Vanilla Bean a trial) with a sprinkling of decaf espresso grounds--oh, who’m I kidding, even THAT is a cheat. And I already had one cheat today. So it looks like a half-cup of Cabbage Crunch salad. (Need the fiber anyway). Feh.
As for fish, that’s one of the few good-for-you foods that doesn’t feel like punishment....so long as it’s really, really fresh and cooked just right. But a protein shake made with almond milk AS breakfast? Just shoot me.
-
Im soooo behind!!!!! OK JCLC and Octogirl - I had different Chemo to both of you and unfortunately have to concur with JCLC..I had every shitty side effect possible!!! everything she said and more. Im now 4 days back at work JCLC after 4 months off work...its debilitating, my spirits are high, but by the time I get home I pass out on the bed for 45mins unable to move through exhaustion and then I get up and do dinner. Its hard, but doable, am hoping to get better each day. Chemo has depleted me physically, before Xmas I couldnt even walk through a shopping centre, for pain in my bones, nerves and muscles and fatigue. Things are brighter everyday!!!
-
Oh meant to say too, since finishing chemo I've dropped 2.5kg without doing a thing. The nurse said do not focus on the weight, that I will readjust back to where I was. I only have 2kg to lose to get back to where I started, so am happy about that. I started Arimedex yesterday and see my BS tomorrow for a meeting and catchup post chemo. My incision after 7 months in my armpit is itchy as hell!!!! go figure its still healing hahaha!!!
-
Just when I thought it was time to re-start my own pity party, I found out tonight that my friend with DCIS' biopsy result shows her tumors are not just high-grade but also hormone-receptor-negative. No idea if triple-neg, because they don't test DCIS for HER2 unless post-surgical path reveals invasive cancer as well. (if HER2+ she can at least get Herceptin besides chemo). No idea what to do except be there for her (and perhaps go to the thrift store and help her buy a whole bunch of cheap old dishes I can then fling into the air for her to shoot at in the cornfields behind her house).
-
Dear ChiSandy:I am so sorry for your friend. Your food forages are amazing. I enjoy reading about them.
Dear ItalyChick:
I agree about the weight loss. Losing weight after menopause and arimidex/anastrazole sucks. I need to join the diet that you and Sandy are on. Please tell me the details of the diet.
Dear Ayr:
CONGRATULATIONS on your new house. Sorry that cancer followed but you may not have purchased the house if bc happened first. Sorry that you had to endure so much mental abuse from your x. You are a very strong woman to be able to leave. That is not easy. Good luck.
-
Dear ItalyChick:
I just packed pumpkin seeds for a snack at work for today. Thanks for the advice.
-
Gee, I go to bed at 10:30 and you all decided to write volumes!
HappyHammer, you really don't need to wait 15 years to be like me (what a wonderful compliment). I'm sure you can manage being a little "off" now!
ItalyChick, interesting that you mentioned "crunch" being part of your diet. When I quit smoking 17 years ago, I had the worst time finding something for my mouth to do. The quitting went well, but the mouth said it was lonely. I don't diet, so I munched on thin no-fat pretzel sticks for months.
MelClarity, Sorry you are so exhausted after work. It will get better. Nice that a 45 minute nap helps restore you. Good luck with your MO appointment! I hate to be the bearer of bad new, but that damn underarm incision will likely be annoying for quite awhile. A little reminder of what we've gone through
Sandy, good for you for getting back on your diet. It's got to be hard. I'm rooting for you! Tough about your friend. Dishes for a backyard shoot sounds like a great idea!
614, Loved the biker gloves! I wouldn't disillusion anyone on why you're wearing them!
HUGS!!
-
I have a little bit of a rant, and I do hope I don't offend anyone with it....but, just because I had breast cancer does not mean that I am going to support or participate in every local breast cancer awareness event! My employer holds a huge marathon with a local tv celebrity who has has stage IV breast cancer. We do get a lot of money for research, but in the last two days I have had at least 10 people at work ask if I am running in, or volunteering for the event later this month. They seem offended when I tell them that I am not. Almost every single person has made the comment: "but didn't you have breast cancer?" I am in a place right now that I want to get as far away as possible from anything breast cancer related. I have to face it everyday in my thoughts and in my continuing Herceptin infusions. I am not a runner, so to think that I would, in my exhausted post treatment state, take up marathon running to support the cause is a bit silly!
Thanks for letting me rant away!
-
CV..rant away! I think you should just look at those idiots who ask you that (it is quite rude, IMO) and say, "I already gave at home!"
Hugs to all,
Octogirl
-
CreativeVintage, How every rude of your co-workers. Because you had BC doesn't mean you have to join every BC event. You certainly don't need to participate in any! I totally get why you are PO'd. You DID give at home and everywhere else by just getting through your treatments. Just ignore them. It's nice that there are events for BC.
I'm sure someone here will come up with a snappy comeback for you!
HUGS!
-
Melclarity I am glad you shared that you are 7 months post op and your underarm incision is itching. Mine started itching when I had pneumonia and coughing. It has been quite annoying. The Dr. cannot see or feel anything that would be causing it. He suggested it was muscle and nerves healing from surgery and radiation.
-
Did anyone who had radiation get a UV marking over the older method? I was reading this is a new approach so we won't have to wear the dots for life.
-
Brightsocks, I did not have any tattoos. They told me in the beginning I would have them, but instead I just had paint markers or sharpie marks covered with Tegaderm. I was very glad not to have any permanent reminders other than my incision scars...which are in the underbreast crease, so I don't really even see those. I also had my treatment prone, so maybe that made the difference. When they flipped me over for my boosts to the tumor bed, they just marked me with a sharpie pen and covered with the Tegaderm. Four weeks later, I still have one of the paint marks on my back, but it was there, continually covered for six weeks. I think the ink was absorbed into the skin and it will take a while for it to fade.
-
614 the "diet" I can lose weight on is no processed foods, and no fruit except berries and an occasional grapefruit. The processed foods I avoid are bread, pasta, rice, crackers, cookies, cereal, etc. I find it pretty hard to overeat on protein, fat and vegetables, although I can sabotage myself with too many nuts and dairy. It does make it hard to eat out, so when I do eat out it is usually some type of protein with no sauce and a salad and grilled vegetables. It got to the point where I had some difficulty so I added in a little bit of sweet potato.
Man, when I do my diet I so miss bread!
One of the few cheat foods I eat is So Delicious No Sugar Added Coconut Ice cream, but it has a lot of inulin in it, so can cause gas if I overeat it.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team