TRIPLE POSITIVE GROUP

Congrats Fluff! 5 years! Looking forward to mine in either November 11-11-11 dx date, or December 12-8-11, sx date. Although dx of I'D was at sx. Crap, even figuring out time is screwed up with BC. Sigh. LOL. But I'm so happy for you Fluff.

I had a bad mammogram right before Thanksgiving of 2010. Had a surgical biopsy on December 3. Was told I had lcis, see an oncologist. And take a pill. My NP friend said she wasn't buying it. Hauled me to two breast specialists . Settled on one, had an MRI after Christmas. (Original mammo. Folks said that wasn't necessary...just get the biopsy). MRI showed something. Had an ultrasound biopsy. Got an all clear and come in the next day. Went in and she said she talked to the radiologist and didn't feel like they got where they needed to be.

Had another surgical biopsy on January 27....found it, removed it with clear but close margins...so that's my day that I became cancer free.

At BMX a month later, she and radiologist said all good and there wasn't any change. So I decided to stick with the January 27 date.

Thanks for all the great wishes! I have to admit I was kind of sweating it out. I was having some issues in the lady garden...twinges and paint and general discomfort. Kept thinking if I find out two days before my five year mark I have a problem, I Would get really pissed off, lol. Tried uti meds that made no difference so got in to my ob/gyn on Monday. I've had fibroids for decades. My small one that is low, grew a little and he thinks that is causing my problems. So...I may be looking at a hysterectomy this year if it doesn't improve. It is some better this week.

His comment was that if he could guarantee that they do the surgery, I could go home that day with problems resolved and live thirty years, he would recommend it in a heartbeat. But, they are big enough he isn't sure he can do it laparoscopically, which would mean a much bigger surgery and risks that come with that surgery.

So for,the moment, we are going to wait and see.

It's always something isn't it

I have never worn a 30 day monitor but have worn the halter monitor 2 or 3 times for arythmias. Thirty might drive me crazy, but it will be good for you to have some answers,so hang in there!

Yep, I sleep with it on too. It recorded a bunch of "events" today, whick made me kind of anxious, but I feel fine. Only 17 more days to go! Ugh.

debiann I had to wear it for only 48 hours. As it was the adhesive got me and I had square red itchy patches when they took it off. Not the best thing but could be worth it. It did not pick up my problem but mine was only less than 3 percent so no wonder it never got picked o. I now have a pacemaker for slow heart rate.

I ope your problem is easily found and corrected.

Much love

33triple we are here for you if you need us. Hydrate, hydrate, hydrate.

for all you hot flash folks out there, ran across this post of Facebook. There are some things I wish I had found a couple years ago!

http://www.simplemost.com/16-amazing-cooling-products-designed-people-always-hot/?source=RTV6&utm_source=facebook&utm_medium=referral&utm_campaign=RTV6

I have one of these also:

http://www.mycoolingstore.com/mission-enduracool-towel-regular-size-blue.html

It seems counterintuitive because they are microfleece and I live in Florida, but I have found these sheets to keep me in the Goldilocks zone - not too hot, not too cold.

http://www.bedbathandbeyond.com/store/product/berkshire-original-microfleece-sheet-set/3271660?skuId=44374846&mcid=PS_googlepla_nonbrand_bedding_&adpos=1o5&creative=43742631709&device=c&matchtype=&network=g&gclid=CKOD85jB3soCFY0XHwodBtQBNA

Sharapril, I have a constant runny nose on Herceptin; I think it's a pretty common thing. I had the same thing you describe from hard chemo (I did six rounds of TCP), too--my nose was crusty and gross the entire time! Now, the crust is a wee bit better, but my nose still runs, especially during the first week following infusion.

I have Aquaphor for rads; I've been putting it in my nose, and it seems to help. It's not the most natural substance in the world, not by any stretch, but I'm okay with that at this point.

I'm expecting to lose my hair, this is more than likely, yes? I see the medical oncologist for the first time on Wednesday 2/10. But we all end up with one of the add-ons (so to speak) that causes hair loss, true?

So. . . I was denied for extra life insurance (no surprise there). But on the denial letter, there's something that troubles me. It says I'm denied because I'm on Herceptin and because my last echo showed "mild mitral valve regurgitation."

Here's the thing: my LVF has been fine--60-65%. When I was a teenager, I was diagnosed with mitral valve prolapse, but then as an adult was told that I didn't really have it. Here's the other thing: if I DO have MVP, I should be pre-medicating for dental appointments and surgery! Is this an oversight by my MO? I will of course call tomorrow, but thought I'd poll the experts first. . . .

My RO has told me to stay off of CoQ10 during rads. I take it for heart health. Should I try to talk him into letting me take it?

Do I need to worry about this? And why don't I KNOW if I need to worry about it?

Sigh. It's always something, or at least it feels that way today.

lago, does the heart go back to normal when Herceptin is discontinued?

Thank you, Mommato3; that's reassuring. I'm going with this explanation: my MO (who is wonderful) didn't tell me because she didn't see anything to worry about. I'm getting another echo in March, and we'll go from there. I'm not sure why I had such a meltdown over it. Yes I am: there's a lot going on in life other than being denied for insurance!

As always, sending gratitude to all of you.

KateB, my MO's nurse told me today that it is normal for the heart function (EF) to decline and that it will return to normal once I'm done with herceptin. I however still won a future trip to the cardiologist because my pre surgery ekg yesterday indicated that i have had a heart attack at some time. That was a compete shock to me.