Recurrence after bilat mastectomy?

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2016

    Thanks bevin, I had mentioned it to my primary a number of weeks ago and have been waiting for an ENT specialist appointment. I still have it pretty bad and will certainly mention it to an onc if nothing in my head shows up on the scans.

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited January 2016

    barbe.. Thinking of you. I hope you can get into the ENT soon! When are you having your scans?




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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2016

    lucy, I was supposed to get the CT on Tuesday, but was coming into Toronto for 4 days of training for my new job. So I've booked it for this Monday. I can't have the bone scan until 24 hours after the CT so I'll book it while I'm at the hospital Monday.

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  • bevin
    bevin Member Posts: 1,902
    edited January 2016

    Praying all is good on Monday. Hope training went well.

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  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited January 2016

    Barbe, Darn! Sorry you are going through this. Praying that you get good results from CT and bone scan. I have been through both and these experiences are anxiety producers. I also had a chest CT, abdomen CT and pelvis CT. Oh, and Brain CT. My oncologist wanted these. Thank the Lord, all were clear. However, any and all tests cause me to stress!


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  • starwoman
    starwoman Member Posts: 73
    edited January 2016

    I'm so sorry to hear you're dealing with this, Barbe. I remember your upbeat and practical posts about no recon were so confirming when I was going through the surgeries. Sending you positive energy for the coming weeks.


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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited January 2016

    Barbe.. Thinking of you (hugs).



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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2016

    Thanks for getting it ladies, I knew you would. They called today, Saturday, to book the bone scan and it's going to be Thursday. Then I go back to the surgeon to book the further surgery.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2016

    Had my CT today from head to pelvis. Normally it's pretty fast but they must have taken me in and out 12 times! They also injected me twice and spent a loooooong time on my neck. I'll worry about it later. Bone scan Thursday....

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2016

    Barbe - sending positive vibes.

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Keep us posted!

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  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited February 2016

    I will pray for you, Barbee.

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited February 2016

    Barbe.. Thinking of you, and praying for great results..

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2016

    So it was a recurrence of Papillary Carcinoma and now I'm on Arimidex and will be getting rads shortly. Still ER/PR+ and HER2-.


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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2016

    Barbe - so sorry. Hope Rads treats you gently.

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  • jill47
    jill47 Member Posts: 351
    edited February 2016

    Oh Barbe, I am so, so sorry. Gentle hugs, Jill

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited February 2016

    (( Hugs))

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Sorry Barbe. Hoping you tolerate the rads ok.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2016

    Thanks ladies, I like when you "get it". I HATE when people (still!!!) say "be positive" "keep a good attitude"! Well that didn't do me any good BEFORE my recurrence so why the hell would it help now??

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2016

    Barbe - yup, funny - but not. I HATE it when people tell me, keep your chin up. I had a double mastectomy with clear margins & the damn cancer recurred in only 2 years. So why should I be happy about that? We are all different, but I didn't tell most of the people I knew just so I wouldn't get all the sunny, positive, good attitude comments. Yup - the first time even though I knew "it" could come back, I got on with my life. So... now I'm just over one year past the final treatment for the recurrence & supposedly NED - at least for now. Move forward this time? Not so much. For example my port was installed in Feb 2013 and I still haven't let them take it out. My MO believes that it would be a 'life changer' and I could emotionally move on. Again - not so much when the damn disease has already betrayed me twice. The port keeps me from blood sticks that would make the LE worse.

    I'm attempting to complete some of the trips I originally planned 5 years ago. Don't know if it's moving forward or checking them off my bucket list, but... I'm hoping that the treatment (s) you have will not be too harsh and you will be able to go move forward again. I'll be keeping you in my thoughts.

    Edited to add: I'm really not negative. Just profoundly sceptical.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2016

    Minus, your post was powerful - don't ever question honest feelings!

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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2016

    Minus Two, I hear you on that!!!!!!!!! I live for today and do not make many long range plans. When people ask why, it's hard to explain how my plans have been disrupted so often by cancer. If I want to take a trip this summer. I'll plan it this summer when I know I am healthy! I do not want to plan something and have it derailed by cancer and have my kids disappointed.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2016

    Sad that we have to think that way about future plans, but at least I still buy green bananas!

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2016

    Barbe - thanks for my chuckle for the day!!! I too prefer green bananas.

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  • AKJ
    AKJ Member Posts: 190
    edited March 2016

    I got a small lump removed on Friday that was the size of a pimple and was about 3 inches above my mastectomy scar. Biopsy results will come on Monday or Tuesday. Just want to know if anyone's recurrence had that characteristic

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2016

    AKJ, I had four areas taken out a couple of years ago and each one was something different! And none of them were a recurrence. Breathe....we get it, though.


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  • New-girl
    New-girl Member Posts: 358
    edited March 2016

    AKJ- I had a pimple removed in January. Nobody thought anything of it for the years it sat on my reconstructed boob. It was IDC stage 1. Found another "bb" size lump in the upper area of said reconstructed boob. Again scar tissue or swollen lymph node but no cancer until surprise biopsy came back IDC stage 1 too. My new doctor tells me my modified mastectomy 4 years ago left behind high amounts of breast tissue...more than normal. I had no idea otherwise I certainly would have been having mammograms last four years. I wish I had known now what I have learned since January. Get everything checked!!!

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  • New-girl
    New-girl Member Posts: 358
    edited March 2016

    I just read my post and I apologize if I scared you. Most likely your lump is nothing. I am just glad you checked. I wish I had been more proactive instead of just trusting it was nothing. Sorry you got my rant.

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  • AKJ
    AKJ Member Posts: 190
    edited March 2016

    New Girl, no problem. Rant away. Just was wondering if others have had similar experiences. I have pretty much no breast tissue left in the spy where the lump was. It's skin and bones. Makes it easy to detect any new lumps that's for sure

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  • AKJ
    AKJ Member Posts: 190
    edited March 2016

    New Girl, are you having any treatments for your recurrence ?

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