Starting Chemo December 2015

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  • NewDay123
    NewDay123 Member Posts: 71
    edited March 2021

    Hi ladies, an ongoing sadness/depression. I can't seem to kick it. ugh. A heaviness. Not wanting to do anything.

  • Twirp26
    Twirp26 Member Posts: 178
    edited January 2016

    NewDay123, I can sympathize with you. I get that way for a few days after my treatment. I'm not sure if it's the chemo or the neulasta shot. Anyway, I had post partum depression when I had my son and still take an antidepressant. If you get to the point that you can't get out of bed and you feel like a black cloud is following you everywhere, consider asking for some medication. It really does help. I know it will be one more thing to take but if it can make you feel better, it's worth it. I'm not sure how I would be if I didn't take my lexapro;) it really can be debilitating. Message me if you need to chat.

  • chinacat
    chinacat Member Posts: 78
    edited January 2016

    newday123, I'm with you. I cried to my MO today, I cry when I get nice texts from people, I cry when someone asks me how I'm doing, I cry when I'm alone and pretty much whenever. I hang on to the fact that I think it's due to going through chemo and is only temporary. Like twirp said, there's good meds. I have 8 weeks to go so I'm holding out. Hang in there, and if you can't, ask for meds.

  • Lyra10
    Lyra10 Member Posts: 59
    edited January 2016

    Newday I have been taking B6 since the birth of my son and it really helps your moods. I have my sad moments and you guys are going to laugh...I make sure that I have sex! I'm sure most of you are tilting your head, but my husband & I have a saying, bang the sad out! Great endorphins and I fall right to sleep after.

  • Twirp26
    Twirp26 Member Posts: 178
    edited January 2016

    lyra10!! Bang the sad out! Love it. Can't say I feel at all like bangin, but my husband would love that cure😉 Maybe I should try some b6. I have been trying to get off my medicine for years. The bad part about them are they really do kill your sex drive. They really do work though.

  • chinacat
    chinacat Member Posts: 78
    edited January 2016

    Hahaha! Thanks for the laugh Lyra!

  • NewDay123
    NewDay123 Member Posts: 71
    edited March 2021

    Thanks Twirp26 and chinacat! Yeah, anyone doing/saying anything nice and I get all teary. Yes, I think I'll ask for help soon.

    I forgot about the B6! Thanks Lyra10! and haha, thanks for the laugh.

    The sadness eases up a bit by the afternoon, it seems, today anyways. Nice to get a reprieve. Must be related to energy levels, etc. Haven't had a good appetite either. Need to change my breakfast.

    What do you gals have for breakfast?

  • KHinMD
    KHinMD Member Posts: 44
    edited January 2016

    I was feeling down recently. I think it has to do with not feeling like myself and not being able do things I used to be able to do. Before my diagnosis I was going to the gym 3 times a week - running 3 miles, benching 100 pounds - feeling indestructible while not knowing my body was under attack. Now I have to dial things down. I have to worry about what new affliction the chemo will give me. I wonder if I will get back to the way I used to be once I'm done with treatment. All of that has me feeling sad, but then I'm on an upswing the following week. My appetite returns, I have energy to go to the gym for a light workout. I feel a little more like the old me. Just in time for the next treatment when I will go through this cycle 3 more times.

    Sammy3 - I am triple positive too. I am getting the same treatment as you, but I don't know what I will be doing when the time comes for surgery.

    Birdie56 - It's good to hear that you have a new treatment plan. It's unfortunate that the first regimen doesn't always work. I haven't been referred to a palliative care doctor, but the cancer center I go to offers support groups and classes that provide options for palliative care.

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    Lyra thanks for the laugh, needed that

  • NewDay123
    NewDay123 Member Posts: 71
    edited March 2021

    KHinMD, yes, so true. the down and ups. Good to hear you have 3 cycles left. I have 4 left with AC. Just finished my last Taxol.

  • Karenbo
    Karenbo Member Posts: 61
    edited January 2016

    Sorry ladies for all the ups & downs. I think intermittent sadness and moodiness is unfortunately part of this nasty disease and our fight to kick cancer's butt. I agree, if it doesn't go away or gets worse, it's definitely worth asking about taking an antidepressant. On sad days, I find if I can somehow make myself get some fresh air and a little bit of exercise it helps. Sometimes it's just so hard to get up and do it though. Hoping for an "up"day for all of us today and for the week-end!!

    Sammy3, I am also triple positive and do not have any of the breast cancer genes. I was able to have surgery before chemo and chose a single mastectomy. I didn't choose a lumpectomy because the thought of having radiation 5 days a week for 8 weeks was overwhelming, especially since it's about a 90 minute drive one way to my cancer center. Plus, without radiation I could do a same day mastectomy and reconstruction. Was even able to keep my nipple which was nice. I really debated about a BMX, but in the end chose a single since I don't have the gene, don't have dense or fibrous breast, and all my docs said that due to the above, my risks for developing a new breast cancer in the other breast are low. On a more trivial side (and maybe TMI), I also really like having sensation in my remaining breast :). It's definitely a personal decision. You have to do what you feel is the right decision for you and one that you can feel comfortable with. Fortunately, they can do amazing work with plastic surgery now. My MX side looks different, but overall really good.

    Thanks for the laugh Lyra! My husband will love it!

    On a personal note though, are any of you suffering from serious dryness? Right now sex is pretty painful. And unfortunately the water based lubricants we've tried just seem to make my tissues burn. Coconut oil doesn't but we can't use it with the sadly necessary condons while on chemo. My MO recommended that I try a vaginal moisturizer for a few days and try again. Otherwise, he said it should get better within a couple of weeks after chemo and should be mostly back to normal by then. Glad for that encouragement and "light at the end of the tunnel"....but 5 weeks still seems like a LONG time to go! Ugh!! Thankfully my husband is very understanding and supportive, but it's hard on both of us.

    For the "bottom issues", I've appreciated all the tips. Continual constipation can really make you sore! I have to agree with you Chinookmom, the squatty potty might sound silly, but it really does help on the bad constipation days. I've also found CALM (a powdered form of cit mag) at bedtime to make a really big difference too. It's worked better for me than senna or smooth move teas, etc.

    Hoping you all have a great week-end, good numbers, no infections and minimal SE! Fight on friends! We've got this!


  • chinookmom
    chinookmom Member Posts: 45
    edited January 2016

    NewDay123~ I'm sorry to hear you are feeling so down. I'm one day post chemo and feeling pretty down myself so i can empathize. Do you have a local support group in your area? I've just started going to a local cancer support community and it has been very helpful when no one else seems to understand. While this is a wonderful online forum, sometimes kindness & understanding in person can make a huge difference. I've also done some healing wellness classes there too. Its all free, thank god as i'm trying to watch my funds with all the unknown of the medical costs of this cancer. I

    My thoughts are with you and i sure hope you are feeling better soon. We will get through this!! :)

  • KHinMD
    KHinMD Member Posts: 44
    edited January 2016

    NewDay123 - I hear you on the energy levels. The lowered energy that comes from loss of appetite or anemia or some other problem could easily contribute to a sad mood. It's good that you are considering asking for help. If nothing else is working, medication might be key because the problem could be from a chemical imbalance. When I am having taste issues, I can somewhat tolerate a simple omelette for breakfast. I can't really handle sweet things like fruit, which I also used to eat for breakfast pre-diagnosis and miss. How much time do you have in between treatments? For me it is 3 weeks.

    Karenbo - I agree about exercise (or anything that releases endorphins as Lyra10 suggests) helping on sad days. Usually during the weekend following treatment I fell well enough to do some exercise. Last weekend I couldn't because of the weather, and all that snow may have prolonged the sadness. As for surgery, it will also probably be a decision between a single and a double mastectomy. Everything seems to function as normal down there, but I probably didn't notice any changes last week. I feel like I'm ovulating right now and will be getting a visitor right after my next treatment. I have noticed that when I have some new SE pop up, it will be around temporarily and come back with each treatment. And with each treatment I get worried that this time the SE will stay until I'm finished with the last treatment.

    When I was shut in last weekend because of the blizzard, I watched several movies. In one of them a character receives a cancer diagnosis. This was my first time watching a movie/TV show with a character going through something like this since receiving my own diagnosis. The movie ends with the character still undergoing treatment so you don't know the outcome. I don't want to give away the name of the movie and spoil it for anyone who hasn't seen it yet. I was thinking about all of the movies/TV shows I've watched in the past with a character dealing with cancer, and how it would be different to watch them now since I know what they are going through. I was a huge fan of Breaking Bad. It was nice when the only thing I had in common with Walter White was a love of chemistry.

    I'm hoping the time will fly by for the remaining chemo treatments with upcoming events like the Super Bowl, Chinese New Year, Mardi Gras, Valentine's Day (I'm single so no romantic dinner for me where I can't stand the taste of food), return of the Walking Dead, President's Day, Leap Day, Daylight Saving Time, St Patrick's Day, start of March Madness, birthdays of family and friends. I'll be done with chemo before Easter and the return of Game of Thrones. Then I will have only Herceptin to deal with.

  • Sammy3
    Sammy3 Member Posts: 136
    edited January 2016

    Is anyone else sick of bathroom problems, lol. Ugh do you think people realize that breast cancer treatment causes so much diarrhea?? I think for me its the Herceptin/Perjeta. Please tell me this doesn't continue for the Herceptin only phase.

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    Just want to say I finally took both my wigs to my hairdresser today to get cut and styled and it was so worth it. They look so much better and wont drive me crazy as much. Only down side is I have some more big red bumps on my head :( so wearing the wigs won't be as comfortable.

  • puremalarkey
    puremalarkey Member Posts: 30
    edited January 2016

    Oh sorry mvspaulding to hear of the big red bumps... I'm about 6 days behind you and just got them cleared up. Did you find anything that truly helped?

  • Twirp26
    Twirp26 Member Posts: 178
    edited January 2016

    so sick of the diarrhea!! I know this is tmi but I have shit my stretch pants twice!!! Two times too many!! I feel like I'm 90!!! SUUUUUUUCKS!!! But as Forest Gump says, " shit happens." Lmao 😳😳😳😳😬😬😬😬😬

  • brithael
    brithael Member Posts: 224
    edited January 2016

    Sammy3 - I am with you. I am so tired of not being able to defecate in a normal fashion. Either I'm constipated or have diarhea or gas, or sometimes it seems as if I have all three!

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    puremalarkey, no not really. I was on antibiotics for them last time but not sure they actually helped. It took about a week last time to clear up using steroid cream and washing with baby shampoo.guess I will call dr for more antibiotics though because some are really hurting.

    Sorry, all of you facing digestive problems, that really stinks, (no pun intended Twirp)

  • redrock75
    redrock75 Member Posts: 34
    edited January 2016

    sorry to hear about the bumps mvspaulding 😔. I've never gotten them, probably because I'm on antibiotics every other week any way for my low counts.

    I think I'm going to wear my pink wig to my last AC on Monday.

    image

  • Lyra10
    Lyra10 Member Posts: 59
    edited January 2016

    Redrock I love the pink! Mvdpaulding I my bumps flare the week after treatment then go back down again. I'm so sorry about all the diarrhea, mine is the opposite so I take stool softener in addition to prescribed laxative and I still have a hard time. I also am gaining weight! WTH! I guess I should be grateful for being able to eat. My exercise is chasing the 3 year old when I get home from work. I have had a cough for the last 2 weeks, doc gave me some pills to suppress it but doesn't help. No phlegm most of the time but comes hard

  • lawyer180
    lawyer180 Member Posts: 36
    edited January 2016

    Redrock--I love the pink, definitely wear it! I too have been dealing with the blues this weekend. Not surprising since I had a treatment this past Tuesday. Just trying to keep my chin up like everyone else. Thanks for the tips and words of encouragement.

  • KHinMD
    KHinMD Member Posts: 44
    edited January 2016

    Just wondering if anyone suffering from diarrhea has been prescribed medication like Lomotil? Immodium works for me, so I haven't had to ask for something different. I'm concerned that I'm not going to fully bounce back from these SEs and develop IBS or some other condition.

    Sammy3 - I think it's Perjeta that causes diarrhea and Herceptin that may cause heart problems, requiring an echo every 3 months. I'm going to ask about that at my next appointment since I'm also curious of what to expect while just receiving Herceptin.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2016

    I just wanted to share that I'm slightly excited about finally finding a wig. I had worked pretty hard for over a year (stopped coloring and dealt with the 2 tone look) to grow out my hair to my natural gray not long before my diagnosis. The Family really liked my gray so no matter what color wig I tried on, it just "wasn't me", so I was told, lol! (I'll be 60 in a few weeks) Today I found this one and actually bought it. Played with it at home to tone down the poof a bit. We'll see if I get brave enough to ever leave the house in it, lol! Take care ladies. Sending you all hugs and sparkles! image

  • brithael
    brithael Member Posts: 224
    edited January 2016

    Redrock and Birdie - your wigs look great!

  • Lyra10
    Lyra10 Member Posts: 59
    edited January 2016

    Great wig Birdie

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    redrock, I love the pink wig, looks great!

    Birdie, I'm glad you found one you like and you should definitely wear it it looks great and very natural!

    Picking up antibiotics today for my bumps. They hurt to sleep on last night. So just hats for me for a while I guess :(

    Feeling a bit down like some of the rest of you. Missed out on a party for a friend of mine last night because Ijust didn't feel up to it.

  • redrock75
    redrock75 Member Posts: 34
    edited February 2016

    hope the bumps are better soon! I'm in a crappy mood too. Can't wait to get this last AC over. But I've had a relatively easy time with it, so I'm not looking forward to taxol. I hear taxol requires more steroids, and I don't want that.

  • Karenbo
    Karenbo Member Posts: 61
    edited February 2016

    Love your new wig Birdie! It looks very natural and beautiful on you.

    Definitely go with the pink for your last day Redrock! Btw, one good thing I've found with Taxol is that if you tolerate it well the first several times, they can decrease the steroids. At least my MO decreased mine for me. It's worth discussing after a few sessions.

    Sorry about the bumps mvspalding. Hope they go away soon. No bumps on my head, but starting to get a bit of "acne" again on my face. Isn't chemo lovely?! Actually, am thankful there are good treatments now....too bad they haven't figured out how to get rid of all the SE. Maybe someday!

    On a bright note, I think I'm in chemo pause! :)Yippee!!!

  • lawyer180
    lawyer180 Member Posts: 36
    edited February 2016

    That wig looks great Birdie!

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