MIght Have to Go To Surgery Alone
Hi All
I'm not very happy tonight. I finally, after a few surgical opinions, settled on a surgeon and a lumpectomy which is scheduled for a few weeks from now. I'm at peace with my decision and trust the surgeon I chose. It's been a stressful process sorting through the avalanche of information. My unhappiness is not related to my diagnosis and treatment plan however, but to my lack of support.
You see, I found out today I may have to go to my surgery on my own. I am living near family members the past year. I left my home, work and friends to help my mom out who had taken a series of nasty falls and needed assistance. She is good now but as life's crazy circumstances would have it, as soon as she got better, I was diagnosed with breast cancer. Now I need the help and at 84 years old, she isnt in the position to really provide it. My married sister lives about 5 miles from me but has not been there since the day I told her my diagnosis. She shows up for family dinners with her husband and her 20something year old kids at my mom's home and no one asks anything abut how Im doing--nada. I called her specifically a couple weeks ago and asked if she could be there at the hospital for me and she said if she wasn't going to an audition that day (she does bit parts in community theater productions), then she would be there. I was hurt by my place on her priority list but decided to overlook it since I needed her to bring my mom to the hospital and then transport me home after surgery. Maybe she could also help me by picking up prescriptions on the way home too.
Fast forward to today---she calls me and informs me her husband is having surgery the day before my surgery and she needs to be there for him. He has an orthopedic issue he's had for at least a year. She also said her daughter lost her license and she needs to take her back and forth to work. Well...now I am left without any help. I can arrange a cab to the hospital but my mom would have to to get up at the crack of dawn with me. Not fair to do to an 84 year old woman with her own health issues. I know there are worse issues but going to your cancer surgery alone seems pretty pathetic. I know my sister is self centered but for some reason I thought she might rise to the occasion.
Thank you for letting me whine and complain. I'm just hurt and worried abut how I'm going to get through all of this on my own.
Comments
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I'm so sorry you're having to do this on your own. But you can do it. I was thousands of miles away from any family when I was diagnosed and treated. So I know you can do this.
Be sure to talk with your surgery scheduler. They will tell you that you "have" to have someone to take you home, and stay with you that first night, Tell them that there isn't anyone. So they will have to help you come up with another plan. Mine did. And I have to believe that yours will too.
Hang in there,
LisaAlissa
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Hi!
I live thousands of miles away from all of my family members, so I've never been able to count on them to help me get through treatment. I had two friends organize assistance for me through a website, Lots-a-Helping Hands, which allowed friends to volunteer for various specific tasks, like picking me up from chemo. Do you have any friends who might help out? Another possibility is to contact the nurse navigator at your breast care center. This individual can help set you up with a volunteer who would commit to taking you home from surgery.
Best wishes! Some of my family members have been more helpful than others; it just goes with the territory.
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I've always gone alone, just arrange for someone to pick me up when it is over. I suppose if I were having open heart surgery, I'd look at it differently, but for same-day and overnight procedures, it works out fine. The doctor knows who to call if anything goes wrong.
It sounds as though your mother is planning to be with you, so the issue is transportation. If your current schedule is too early for her to share the cab with you, you can either arrange for two cabs or maybe move your procedure to a later time. Also, I believe your hospital or the American Cancer Society can put you in touch with a volunteer driver. Probably a local church can do so as well.
Relatives sometimes just do not understand.
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Please reach out and let people know. Call your church or synagogue. Call the places everyone suggested. There are people in this world that will be the sister you need right now. There are so many volunteer organizations that just need to know you need help.
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I wanted to give you hugs and aside from the great advice you already have gotten, please have everything ready at home for your recovery. You will have lifting restrictions and will need ice packs. Prepare some easy meals ahead of time. Put things low for easy reaching. I am glad you have the support of your mom.
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Another thing, talk to your doctor, although often lumpectomies are day-procedures, my doctors for the lumpectomy and other surgeries always arranged for me to stay overnight. It was so much easier for me than others I knew that were home in a few hours. My doctors arranged that without me requesting it. .
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Just adding to the great advice of others... Does your surgeon have a social worker on call? They might have some ideas for local community resources to help you, even folks who could volunteer to pick up groceries. Has anyone looked into visiting nurses, someone to check up on you in the first couple of days? Again, the social worker ought to be able to help set that up, and it's often (I even might suggest usually, but I'm truly not sure) covered by insurance.
A social worker also might be the sort of person who can help you vent these completely understandable feelings in a safe way. I'm sorry you're going through this. I hope the surgery goes well. I'm glad your mom is there for you and hope your sister will be as well, if not on the day itself. Good luck!
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Good point, Golden. I've been known to ask for an afternoon surgery so that I can stay overnight. Although I go home the next day, it is within 24 hours so OK with insurance.
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Thank you all so very much for your support and wonderful suggestions--I'm just so impressed by the incredible women who responded and I feel stronger as a result. I know now I can't compromise my treatment and recovery with useless emotions and need to surround myself with caring supportive energy--even if the support is from friends from a distance and new friends on this board I've never met.
Thank you again, Ladies and best wishes on your own journeys and continued recovery. You all made my week (hugs).
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Do you happen to live in Oklahoma? I would be glad to help out
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You might want to contact your local American cancer society. They have a Road to Recovery program that has volunteers to drive cancer patients to and from appts. Your hospital social worker may have assistance resources also.
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please call the American Cancer Society. They have volunteers who help get people to their appointments, many of whom have had cancer. ACS can help you!
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I'll call the American Cancer Society this week.
How caring and helpful you all are....thank you so very much.
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Beatmon--
Thank you so much for your kind thought/offer of help.
Knowing women like you and others here are supporting me is making all the difference.
xoxoxox
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It is not that unusual to go alone. I think this is more about being hurt by your sister than about going to surgery alone. Can your mother take a cab or Uber later on in the day? Or just stay home? You really should be fine, but it is hard when our siblings and other relatives let us down. Maybe your sister can't handle it-?
Ask after her husband: that is a great way to show support to him and your sister and, frankly, heap ashes on them at the same time!
I met with a social worker who gave me vouchers for a cab and had some other ideas. Reach out to staff at the hospital, and also to the organizations other mentioned above.
Good luck!
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Thank you for your thoughts and helpful suggestions.
You're correct--I am hurt by my sister but I have to put it aside, separate out and take care of myself.
The very caring responses I have received on this site has renewed my faith in people and for that I am very grateful.
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