Lumpectomy Lounge....let's talk!

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2016

    My BS explained why, even though I had only 2 sentinel nodes, she had to take 4: lymph nodes often cluster like grapes, and sometimes it’s impossible to remove just the sentinels without also taking those attached on the same “branch."

  • Tresjoli2
    Tresjoli2 Member Posts: 868
    edited January 2016

    I haven't been on this thread for awhile, and wow...I missed over two thousand posts! For those of you who are further out from your lumpys...

    I started working out in January now that I am feeling better and want to lose weight. Running on the treadmill with a supportive sports bra. After two weeks, My SNB area, which had been fine, got sore and feels tight, and I noticed along my lumpy scar I had a couple of small bright red dots that look like they might have been trapped blood beneath the skin. ( they were tiny, and have reabsorbed). But I cant figure out the soreness? I stopped working out but I'm bummed

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    ChiSandy, my BS had planned to only take 3 nodes but 2 others came along for the ride.

    Tresjoli, Hi! It HAS been awhile. I've no idea if this applies to you but I had gotten a Richard Simmons Dancing to the Oldies DVD. I loved it! It had lots and lots of arm movements. My "bad" absolutely did not like that. I was very uncomfortable. I mentioned it to my BS and she wasn't very surprised and told me the obvious - don't do it again. I didn't. Could you have overdone the arm movements? I'd think that my problem isn't one that most have (thank heavens). I don't have problems when lifting (like a box which requires the use of both arms) but carrying something heavy like groceries with just my bad arm isn't always happy - nothing happens beyond an ache.

    HUGS!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    great news Peggy!

    Mlp awsome socks!

  • Creativevintage
    Creativevintage Member Posts: 76
    edited January 2016

    going back to work on Monday! I took some time at the end of my rads, not so much for physical healing, but I needed some mental health time. I just finished my first full week of Femara and I feel like I can now move forward again. I did not do a lot on my time off, other than finishing some unpacking and organization of my sewing room. I've lost about 20 pounds during this journey and need to start altering andmaking some pretty new clothes. No side effects yet from the Femara, but do have to take it in the morning. It seems to give me extra energy and it's impossible to sleep if I take it in the evening.

  • brithael
    brithael Member Posts: 224
    edited January 2016

    I feel safe in saying I have bypassed the ER trip this time! Well done me! I had some "flu-like" symptoms on Wednesday p.m., but never got to the magic 100.4. I woke up Thursday feeling good, but tired, and took it easy Thurs., and Fri. Feeling good today - have over a week of hopefully good times before getting zapped again on the 8th.

    I too, am tired of the uniboob with the sportsbra, so I tried one of my underwire bras, and had no problem with it. I'm not going to wear it everyday in case familiarity breeds contempt, but will save it for when I want to ♬Feel like a natural woman♬

    Love the pictures of the labradogs. We used to travel with a black lab and a buff cocker spaniel during our RV days. The black lab was incredibly smart and always found the space with the A/C vent while the Cocker was relegated to lying on the Lab.

    I have had acid reflux for years due to the NSAIDS taken for osteoarthritis. Since I've had my knee replaced, I don't take the NSAIDS much, but the acid reflux is here to stay. I take Prilosec daily for that, but with chemo have had some bad heartburn pain, which if I didn't know better, would think was a heart attack. The pain is right under my breastbone, and occasionally radiates all the way to my back. I know it's heartburn because taking a couple of Tums takes care of it, but I do intend to talk to my MO about it next appt.

    This session of chemo has been much better than last - maybe we'll get it perfect by number four!

  • ladyhumps
    ladyhumps Member Posts: 79
    edited January 2016

    MLP3 nice pic, I noticed the reflection of the skis and poles in the wineglass.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016
  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    👍🏻👏🏻 Brit!!

    ladyhumps- yes... The glasses are etched with the skis and poles. My ski house is a blend of modern and lodge-y. So nice to have this little slice of heaven. Every bit of stress from this whole ordeal has just gone away. My wrinkles have smoothed out too;)

    We do all need to meet up! I'll cook, Gemma will bake, sloane and ltf will plan workouts for us, Peggy will be our house mum and conversation starter and chi sandywill play for us in her correctly fitted sleeves and gloves!

    Question... What bothered you girls the most... Rads or chemo

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Yay, Brit! SO glad this time was better and no ER visit!

    LadyHumps- where in NC are you? I'm near Charlotte.


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MLP3, sounds good. Glad to be house mum. I'll sit with my glass of wine and watch all of you workout and feel nice and tired and happy that I worked very hard too :)

    HUGS!

  • Brutersmom
    Brutersmom Member Posts: 563
    edited January 2016

    Tresjoli2 you might want to call the RO. I exercised right through Rads. I get pains under the arm to the side of my breast and top of my breast to the shoulder with exercise but not the redness. I was told that radiation damages the muscle and that will continue until I am fully healed. It has been getting better slowly. I wear a tight sports bra but even with that my breast sizes are very different and the radiated girl does not get quite the support it needs.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    MLP- I'll volunteer to find the lodging for everyone :) (And, I can be your sous.)

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Tresjolie, nice to see you. I would call the RO. I get pain but not redness. Best wishes in returning to work, creative!

  • ladyhumps
    ladyhumps Member Posts: 79
    edited January 2016

    MLP3 Your lodge sounds nice.

    HappyHammer I'm between Boone and Asheville. Closest town to me is Spruce Pine. I go to Asheville for treatment.

  • Sloan15
    Sloan15 Member Posts: 896
    edited January 2016

    Britheal - I'm so glad it's going better. Outta hard to anticipate which SE you will have, but once you know, the docs can manage it pretty well these days.

    MLP - I am SO there to experience the cooking, baking, conversation, music (with the accompaniment of the sleeve) and general sisterhood all in a good house found by HH!

    To answer your question: Chemo was harder for me because I didn't know what to expect. I didn't have any nausea (yay ), but my skin broke out so they reduced steroids, got foliculitis when my hair fell out so antibiotics, WBCs crashed so Neulasta. With rads, they said, "Put Miaderm on 4 times a day and make sure you have NO skin-to-skin contact." (Put a rolled piece of t-shirt under my boob at night). I knew what to expect with rads.

    Tresjoli - My RO told me to watch for skin redness after rads due to yeast on the skin. He said rads and chemo change the skin flora (bacteria) and it's not as good at eating tbe yeast -especially when you exercise or get hot flashes!!!! So, I have a tube of Lotrimen --yep, the one for ringworm or jock itch--to put on the skin if it gets red. The yeast infection stuff does not work on the skin. My son was a wrestler in HS, so any sign of red and I break out that Lotrimen. Don't know if yours is the same, but I thought I'd throw it out there.

  • Sloan15
    Sloan15 Member Posts: 896
    edited January 2016

    MLP - I should have added that it's all very doable. I don't want to add worries to you! In my rearview mirror, it wasn't that bad. If it killed the cancer, then I was all for it.

  • Italychick
    Italychick Member Posts: 2,343
    edited January 2016

    MLP, I second what Sloan says,chemo was unpleasant but doable. Just be prepared with Benadryl, Claritin, anti nausea and poop medication, Advil or Tylenol, coconut oil, Biotene mouthwash and spray (loved the spray), some Valium or something for freak outs, some Pepcid ac or something for gut burning. And lots of lotion, I used tons of lotion on my feet and hands, just goobed them up and put socks on my feet. Aloe Vera juice helps too with the burning gut if you get that. Oh, and be prepared for coffee to taste burnt if you drink it.

    I'm sure there are more things to have on hand, but those products helped me. Best of luck!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    MLP- Rads was emotionally more difficult.- I wasn't prepared to deal with the other folks waiting for their rads and how very sick many of them were- and, that they wanted to talk about it. That was very hard to deal with and I ended up going in with my headphones on rocking out to my fave tunes to keep from dealing with that. It was too much and I was anxious without doing that. Chemo was not fun but doable. Also, it was sort of like my pregnancies- when I started having SE's usually around day 3, I ate 2 or 3 saltines right when I got up in the am and usually needed them a few times a day and at bedtime days 3-? depending on the cycle til about day 8 by last one. Took Zofran as needed and it did the trick!. I kept to a pretty tight schedule--but wasn't working so that was easier. Bedtime around 9pm- up around 9am (not a morning person). shake for breakfast- short walk, nap, light lunch or saltines and applesauce, porch sitting, nap or rest, short walk, porch sitting, light super, tv and then bedtime/reading. That was pretty much it for a week every cycle...I had skin issues and rashes...but that was manageable. Did end up with a terrible staph infection on my finger and still have issues with the finger but- that was because I got a splinter in my finger and within 4 days- it went crazy. DO be careful with yourself about things like that as the compromised immune system is nothing to play with!!

    Chemo was NOT as hard as I thought it was going to be!

    You are doing so great with your lumpectomy...you will rock the other treatments and if you have SE's the meds are god and we are here!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    I found rads quite easy. There were never more than 2 people waiting and they didn't look horribly sick like you had HH. I had virtually no skin issues. I was exhausted before I started, and I'm sure you'll be startled to know that I was still exhausted when I finished. I am retired but for the first 2 weeks, I was fulltime carer for DH (and that was hard work). The next 3 weeks he was in the hospital, at death's door with pneumonia after surgery. I'd go to the hospital at 7 to be with him, grab my car (from the valet), drive the quarter mile to the radiation center, have my rads, back to the hospital (love valet parking) for the rest of the day. The staff at the center were so very supportive that it made it a great experience.

    HUGS!

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Both chemo and radiation were a bother! But for different reasons.

    Schedule-wise, chemo was an all-day event, followed by a day with rest, then a hungover-feeling day three days afterward. After that, things were relatively normal until the next treatment. Radiation took a little chunk out of every weekday for six weeks and was like Groundhog Day.

    As for side effects, chemo is a lot like being pregnant in that you hear what has happened to everyone else and expect the worst, though only half of the things you've been dreading actually happen. Also, it's similar in that it's as if aliens have taken over your body, and weird things are happening that you can't control. I had days that I felt fuzzy and out of focus, and tired, but did not experience mouth sores, nausea, or loss of taste. The worst side effect I had was the neuropathy from Taxol, but the numbness in my figer tips ad toes didn't really impair me. It just made putting on earrings difficult at times. Radiation for me ended up being like one of those really bad "out in the sun all day with baby oil on in the 80's" sunburns.

    I read someone's chemo described as "punishing" and thought that was a bit of a exaggeration. It's not a picnic, but I've felt worse when I've had flu or strep.

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    Thanks for the great feedback on both! I'm just trying to prepare myself because I'm such a planner and info queen!

    Sloan- that's exactly my mindset on chemo... Just kill it all!

    I just actually did a winter hike! Snowy and icy but I was like... "F*€k it!" It felt sooo good. Not a very crazy and strenuous one, but being out in the forest is just so calming for me. The range behind me is actually Mt Washington. And you were all in my pocket... Hope you weren't too cold;

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  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Brit, so happy to hear you are doing better. Mlp3, rads were not bad. Your team is able to give you breaks it things look bad. My RO was so wonderful and my favorite tech really closely eyeballed my skin before each session.

  • Italychick
    Italychick Member Posts: 2,343
    edited January 2016

    MLP3, awesome pics. I forgot to mention exercise, do what you can. I kept up all my bike riding, etc. all through chemo and I feel like it really helped me

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Great pics MLP3! Our "unseasonably warm" here in the southern part of the state must still be a little chilly where you are!

  • Jclc83
    Jclc83 Member Posts: 246
    edited January 2016

    Great pics MLP3. You could start a travel show!

    Chemo was a lot different for me. I hope this doesn't scare you. It could be the effect it had on me personally, my age, the type of chemo and/or the number of treatments. I just finished six rounds ( the max) of TC and six rounds of Neulasta. I had almost every side effect there was. You can take medicine for the diarrhea, Claritin for the bone pain, ibuprofen for other things. I've never taken so many pills in my life. The neuropathy wasn't so bad, the mouth sores were fleeting and thankfully, the debilitating headaches I had medicine for. Baldness, blurred vision,Skin discoloration and rashes,heartburn and nausea and depression. Terrible sweating, dizziness - I can't even remember them all. But the worst for me has been the extreme fatigue, weakness, shortness of breath and total exhaustion. The side effects have definitely been cumulative. I almost cried today because it was so hard to try on a pair of pants at the store. After 4.5 months off I am supposed to go back to work full time Monday and I really don't know how I'll do it.

    It seems like its not as bad for most people. Hopefully, it won't be.

  • Jclc83
    Jclc83 Member Posts: 246
    edited January 2016

    sorry I'm such a conversation killer oops! If I was supposed to sugar coat chemo'sside effects, I surely didn't get that memo. Sorry

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Jclc83, it's just a really good example of how everyone reacts differently, and there is no one size fits all answer. My infusion nurse told me on the last day "You really did well through this. Not everyone does." There's nothing any of us do differently, our bodies process the drugs in different ways. Then the last day of radiation the tech told me "Your skin really held up well. Some women have to stop treatment." I just slapped on the Aquafor they gave me like everyone else, so it was none of my doing. Just as the women who had trouble didn't bring it on themselves either.

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    jclc- I totally appreciate the candor. Hey... Not many are winter hiking 1 weeks post op either;) Everyone is different and I appreciate everyone's account. Don't y'all just wish everyone was awarded the same type of brutally honest info??

    We are so lucky to have found this thread.

    Went to dinner at our fave farm to table place and they love to make a vegan dish for me. I asked for the cod dish without the cod. Sweet potatoe, mushrooms and spinach with green curry. Yum! And of course, a gorgeous red🍷

    image

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Jan, I am sorry you are having such a hard time with chemo. I will be in your pocket for Monday at work. Please continue to be honest. My posts on the Arimidex thread are not sugar coated.

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