Spare Nipple mastectomy

I had a nipple sparing mastectomy. I have done well (5 years out!) and various doctors have been very impressed with the results so I guess they did a good job.

Although I have little to no sensation in them, it was/is nice to be able to look in the mirror and still see "me" there. I'm assuming your doctor went over that there is a chance that your nipples might not survive, just so you go in knowing that it is a possibility

My surgery and recovery was pretty textbook. I was fortunate to not have any complications and went back to work after 5 weeks if I recall correctly... it's been awhile.

I'd be happy to answer any specific questions on here or in private message.

Best of luck with your surgery and recovery.

Susan

Me too! Mine was text-book, no problems at all - well, the nipples looked a little 'dodgy' to me (crusty, flaky etc) in the beginning but the Dr told me that there was never a doubt that they would come through - I am about 8 mths out but well healed.My surgeon told me that very specific requirements have to be met for Nipple sparing and that many (lay) people believe that it increases the chance of recurrence, but she told me that simply was not true (she is part of an on going research team for NSBMX). I think if you have that option you should go for it...but that is just my opinion.

Also happy to answer any questions on here or via PM. Good Luck with your decision, these things are just not easy.

Hi Roopy,

I can answer some of your questions.

I had a bilateral mx over 4 years ago, with one step implant recon, and have complete range of motion. I can engage in all forms of physical activity. It took several months to get there, but no problems now.

Some people do follow special diets. I have never eaten much red meat but do eat chicken and fish. I buy organic when possible. Since I am er+, I avoid estrogens in food.I believe in moderation and enjoyment, not extremes. This works for me. Some feel better on much more restrictive diets. It's up to you. A healthy, balanced diet is good for all but I have not seen enough evidence to support the benefits of extreme diets.

Wearing of post surgical bras or garment varies by doctor. I had no post surgical bra, but instead, something resembling a tightly wrapped ace bandage (and only for 10 days). Ask your surgeon about this

BRCA testing is genetic, not a test of breast tissue, so you don't have it done a particular breast.. The vast majority women do indeed have a negative BRCA test. Only a rather number of women have a genetically linked breast cancer component (however, there are other mutations besides BRCA).

Take care.