Triple Positive in our 20s and 30s

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  • Stephmoen
    Stephmoen Member Posts: 563
    edited September 2015

    hi rhp268 I agree with you on the her 2 status I was lucky enough to get tchp all my scans show no cancer left get surgery sept 21..I have become obsessed with researching bReast cancer since I've been diagnosed I have read several articles and studies stating cancer spreads faster in women who recently delivered sonething about the cells moving to other parts of the body due to inflammation when breasts return to normal after lactating I read a study that only 40. Percent of women diagnosed with breast cancer 2 or less years after having a baby we're still alive after 2 years of being diagnose

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  • Tresjoli2
    Tresjoli2 Member Posts: 868
    edited September 2015

    so I met with my OB and just like my MO he was totally against having my ovaries removed. He believes that the ovaries play multiple roles in the body, and that taking them out was not the thing to do, nor did he want me undertaking another medical procedure. OB wants me to do Lupron shots and tamoxifan. That's the current game plan.

    I too have read a postpartum diagnosis can be challenging, but I had heard within three years of birth. I had back to back miscarriages followed by a full term pregnancy and I'm convinced that triggered my body going haywire...it's my conspiracy theory...

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  • LisaH
    LisaH Member Posts: 25
    edited January 2016

    Hi, everyone.

    I haven't logged in for a while now. I usually do around my anniversary date, but I missed it this year! I forgot all about it.

    I just wanted to offer a little encouragement to the young ladies on this thread by saying that you will come to a place where cancer doesn't consume your every thought and worry. Someone posted that she had a friend who advised her to stop googling research in regards to Her2/NEU.........take that advice!!!!!!!!!!!!

    My diagnosis was almost 14 years ago. I was ER/PR+ and Her2/neu+. Fourteen years ago, most of the therapies you ladies take now were still in clinical trials and unavailable to me. The research on ovarian suppression was only starting and no one was prescribing aromatase inhibitors to 30's somethings. One doctor would say to suppress the ovaries and go on lupron and aromatase and the next doctor would say no, don't do it. I was over two years into my diagnosis before a young oncologist suggested that I go that route. It threw me for a loop because I didn't know what to do. I went and had a long discussion with my OBGYN about it who did his own research and together we decided that after two years, nearly 1 1/2 years post chemo, I would gain at most 1-2% benefit from doing so. Additionally, we would be opening pandora's box on a whole host of other problems by shutting down my ovaries. Ultimately, I didn't do it. BUT, I continued to experience the greatest anxiety over this thing called Her2. One day, I was stressing over the information I had read about Her2+ and how dire the diagnosis was. Then, something struck me.......it wasn't that Her2+ was something new to cancer, it was just something relatively new to the doctor's doing the research. I realized that there were LOTS of women from years gone by that were also likely Her2+ and just didn't know it. I decided to stop reading every horror story I could fine and just LIVE, one day at a time.

    When I was newly diagnosed, the ACS sent a survivor to my home to talk to me. She, like me had been diagnosed at age 33. She had two small children, ages 5 and 8, (just like me) and she was a 25 year survivor! She was nearly 60 years old at the time she came to see me ago. She is still volunteering for the ACS in our community, and she's in her mid 70's!

    Research and treatment have come SO far. It's hard to see that when you're actually living the nightmare you've been thrown into. I know I couldn't. All I could see were the statistics the doctor's kept giving me. Now, it's a little easier. This year, I will celebrate my 47th birthday. My children have grown from 5 and 8 year olds into amazing adults who are on the brink of beginning their adults lives. One graduates college this year and the other just started.

    Hang in there! Keep fighting the fight!


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  • Stephmoen
    Stephmoen Member Posts: 563
    edited January 2016

    thank you so much you give me hope!!!!

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  • rhp268
    rhp268 Member Posts: 24
    edited January 2016

    LisaH, thank you for your post

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  • Arobedw
    Arobedw Member Posts: 5
    edited February 2017

    newly dx , 33 year old, Jan 18, 2016 , grade 3 , triple positive, node involvement <1cm tumor. Staging ongoing but as of now stage 2 or 3. Having CT scan, genetic testing. Chemo first then surgery. Meeting with oncologist Feb 16. Most difficult part is waiting for treatment. Given the small tumor but high grade and her2+ with node(s) involved it is difficult to hurry and do nothing. Feel like I'm wasting time while cancer cells are dividing and invading. Praying for clear CT scan and chemo to begin. CT scan are good; chemo did its job. NED ; complete pathological response.

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  • Gbyever
    Gbyever Member Posts: 3
    edited August 2016

    hi Lizah,

    Hi, how are you doing now? I'm diagnosed triple positive BC and just completed 6 rounds of TCH and needs to carry on with Herceptin for another 12 cycles. Is the risk of recurrence higher without taking Perjeta treatment? It seems that Perjeta is not available in my country , Singapore. I had my menopause end of last year, Dec'15 and my oncology insisted that I need to take tamoxifen for at least 2 years before I changed to letrozole as I'd menopause for only 8 months. I need to menopause for at least 2 years before I stop taking tamoxifen. I do not wish to take tamoxifen as it may lead to uterus cancer. And my understanding is Letrozole is more effective . Our oncologist will only see us for 5 years. Can you advise me how Long you have been taking tamoxifen and is there any side effect. Do you still visit your oncologist and what type of test do you do after 5 years. Appreciate if you can advise me. Thanks n regards


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  • kitchengng
    kitchengng Member Posts: 3
    edited January 2017

    This seems to be a rather old post, but i want to share a positive message with girls in this group. My pastor's wife is already 13(going on 14) years out of her initial diagnoses, and she's now completely cancer free and is one of the most positive and loving person i know. Her initial diagnoses were much worse than a lot of you in this group. She was barely 30, just had her first child (one month postpartum), and had a 6cm Her2+++ tumor with at least 3 nodes positive (could be more, but somehow only 3 were removed). She went through all the tough chemo available then, i am sure it wasn't an easy time, but i believed she remain very hopefully along with the prayers of her friends and families. Her cancer later (2 years later) progressed to her liver and she was devastated, she even question God's love for her at the darkest hours. But she never questioned her faith and never stopped believing that god would heal her. She underwent even more chemo and a few surgeries and was put on herceptin for some time, it was a roller coaster ride the first a few years, but she's now cancer free and serving god. You could never tell that she went through so much earlier in life, she's been such a blessing to me and our small church. The reason i am sharing this is because i want to stress how important it is for one to remain positive and hopeful. Our soul, mind and body are interconnected, on top of seeking medical treatments, we need to look at the root cause of cancer, or breast cancer specifically which i believed is caused by trapped and depressed emotions. If you are a believer, it's now time to reconnect or deepen your relationship with god. If you are not, maybe it's time for you to open your heart. Not a sermon, just a message:)

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