Pinktober Revolution

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited January 2016

    Sppokiesmom - how very sad. Divine posted the other day about her having reached the end of treatment options. She was a powerful soul. Her message was strong without uttering a single word in that video.

    Bowing my head in praise, grief and prayer for Holley and her loved ones. I'm sure there were many.

    Travltxt, if I am not mistaken, has that on the Pinktober sucks site. I think it's on YouTube and we can get it from there. It should be there.

    Thank you for sharing Spookiesmom.

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  • Traveltext
    Traveltext Member Posts: 2,089
    edited January 2016

    I have just put Holley's excellent video online HERE.


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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited January 2016

    thanks Trvl

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2016

    Jack I agree with Spookie, You are a powerful writer and Divine is too. Perhaps either of you could write a piece. She will be missed.

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  • glennie19
    glennie19 Member Posts: 6,398
    edited January 2016

    thank you Traveltext!! Holley's video is so important and glad to see in on the site.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2016

    just watched an informative video on NBC on line about makeup. Said the FDA bans 11 ingredients, the EU over 1300! So to watch for products the "e" on it means less potentially harmful ingredients. Interesting.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited January 2016

    Spookiesmom - that is TRUE. Amazing isn't it? Ewg, the same non profit that offers the 65,000 + product database called "skindeep" also launched this year some labeling, for companies who choose to participate. I think that might be what you're referring to.

    It's called EWG verified.

    http://www.ewg.org/ewgverified/

    If you are interested, many of the cleaning products in our homes are quite similarly dangerous. EWG's website has a big section on that too.

    IT NEVER CEASES TO AMAZE ME THAT WE ALLOW THOUSANDS OF PRODUCTS THAT EUROPE HAS BANNED TO BE ON OUR SHELVES FOR SALE.

    Obviously, there are alternatives. There are plenty of gorgeous English, French, German, and other European women who are using product.

    You might ask why. It's the money. The lobbying that's allowed, the legal powerlessness and under budgeted FDA. The lack of will on the part of the consumer to demand change. The cosmetics companies not wanting to undergo expensive reformulation and make other changes. The cosmetics companies aren't even required to disclose the ingredients that make up what they decide to include as "fragrance". Often petroleum based, "fragrance" is hiding who knows how many dangerous products.

    I try to look at every label, whether it's a personal product or a cleaning product.

    While I cannot remember countless names of scientific compounds, if I see the word "fragrance" AT ALL, I do not buy the product. I also look for the above mentioned ewg verified labeling.

    Thanks again, Spookiesmom, for keeping the light on this topic.

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  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited January 2016

    Spookie and Jackie - this is exactly what the consultants at Ava Anderson Non-Toxic are busy educating people about. Almost as crazy as the fact it is allowed is the fact that so many people are in the dark. The reason the USA keeps those nasty chemicals in our products is because it is allowed and it is cheaper to do so. As long as the general public continues to create demand, they will continue to manufacture that way. Also - did you know that these companies export their products, and when they do so they must meet EU standards. Think about that for a minute. The same companies create their products with harmful chemicals have the ability to produce them without. $$$$$ Vote with your dollars.

    Jen

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  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited January 2016

    Have you all seen this yet? Not even sure where it came from, it showed up in my facebook feed. I thought of you guys!

    image

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2016

    LOVE IT

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  • Traveltext
    Traveltext Member Posts: 2,089
    edited January 2016

    Excellent image, I've put it HERE. Just eight months to October now, so keep posting text, links, images, whatever!



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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2016

    good one travel, perfect on that page

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited January 2016

    Eight months to October! NOoooooooooo!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2016

    Travel, this is going to be a tuffy. Please, see how this fits into PS.com

    http://mywifesfightwithbreastcancer.com/


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  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2016

    Have added the link to the Interesting Sites section.


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2016

    Thanks :)

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  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited February 2016

    Oh, Sas... that IS a tough one.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2016

    saw this tonight, a man named Michael Singer is a male survivor CBS on lineimage

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  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2016

    Thanks spookiesmom, there's more on Mike here:

    http://malebreastcancercoalition.org/Survivor%20St...


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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2016

    very cool!!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2016

    Travel, This is Eric V's post from his bio. He wasn't here very long b/c he died. He sought medical help on many occasions, but his docs blew him off. I had occasion to post with Eric and Pm' d. Eric has never left my memory. Perhaps you can read his bio and review his posts. He was a good man. He loved his wife and children as we all do, but he was failed by his docs b/c he was male. Broke my heart.

    Eric V--from his BCO bio

    Hi everybody! I wish I didn't need to meet you all on here, but I
    have decided to post my story in hopes it helps someone else get
    correctly diagnosed.

    I have had a lump near my breast for around
    8-10 years. I saw a doctor when it first appeared, and he stated that
    it is just a cyst, and to ignore it. I did not feel comfortable with
    his call, so
    I requested a second opinion. My second opinion said
    the exact same thing, so I decided that it was the truth. I was very
    wrong.

    Throughout the years, I have noticed that I was fatigued a
    lot, my appetite was always changing, and my back really hurt. While
    talking with the 8 doctors I have had over the years, they all said the
    same thing as well. It's just a cyst, and your getting old. I am now
    35.

    One day I was wrestling with my 3yr old daughter and kneed me
    in the armpit. She ended up hitting my lymph-nodes and it really
    hurt. I went to the doctor and demand my lump to be removed (I should
    have done that along time ago). When they did an ultrasound before the
    surgery, they found multiple lymph nodes were enlarged, up to 7 cm. I
    then went for a second opinion and a PET scan.

    I am officially at
    Stage-IV now. I have my tumor, multiple lymph nodes near my tumor. I
    have also metastasized to 5 vertebrae, and 4 other lymph nodes
    throughout my body. I am also Triple-Negative, and BRCA1/2 negative as
    well.

    If you are a guy reading this, and a doctor
    tells you to ignore a lump, please push him to do a biopsy, or remove
    it. If your doctor does not want to do it, ask why! It could save
    your life!

    I am trying to start chemo, and I will update this
    thread with how that goes. I m currently having issues with platelets, so I haven't started yet.

    If anyone wants to talk, please let me know. I want to help all of the people out there I can.

    Eric

    https://community.breastcancer.org/member/128670/profile


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  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2016

    Thanks sas, I have been aware of Eric and his all too typical story of medical neglect as a male patient with the disease. Looking through his threads again (saw your posts) I can see he was a lovely, helpful guy, diagnosed at Stage IV and triple neg. Bet his family misses him big time.



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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited February 2016

    Tragic. 🙏🏼

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  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2016

    It is tragic that Eric was ignored by the medical establishment for so long. Double whammy being male and being so young. Definitely need more "awareness" for male BC.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2016

    Not sure why he came to mind, but I looked on the Angel's thread. His anniversary is tomorrow. Maybe................

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  • Ellelou
    Ellelou Member Posts: 186
    edited February 2016

    I'm flabbergasted!!!!

    Get out your matching pink tutus and bring your bestie to the next 3day and she can get her airfare paid for by Komen. WTF? Wow. Guess that means even less money for research. Way to Go Komen!

    "One free roundtrip coach airfare between the major airport closest to your home and the major airport closest to the 3-Day location."

    http://www.the3day.org/site/PageServer?pagename=about_promotions_bestie

    Ellen


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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited February 2016

    Geez.... Wtf are they thinking

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited February 2016

    http://www.chicago-bureau.org/american-cancer-soci...

    Published today.....

    Travel- maybe you can lift this for the website?

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  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2016

    OMG. Nice work JB. I have put a link to the story on the Cosmetics page HERE.


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  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2016

    Great job, JB!!!

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