TRIPLE POSITIVE GROUP

This is my first post to the site, but I've been browsing since I was first sent for my biopsy. It was my fifth biopsy (first four were benign) but something told me this one was different.

I was Dx last Tuesday and got my addendum today. It's triple positive. I think. I have my first appointment with my treatment team on Thursday, but of course the not knowing is driving me to google which is scaring the crap out of me.

This is what my results say, does anyone understand all the numbers?
HER-2/neu by IHC: 2+ and 3+, focally 1+ (overexpression).

I'm not sure how it can be 1, 2 and 3.

Thanks for any insight anyone can provide.

birdsy , had the rash each batch of hercepton and chemo, so not sure which one it came from, but I did take steroids, no effect, and benedryl didn't do much, had to run its cours, pretty yucky looking, but now that I,m done, chemo, rash has not showed its ugly self even with hercepton infusions. Hang in there, it could be worse.

fighter...I am not good at the moving on thing. But, my NP and I want to be the little old ladies that hit 100, assuming I inherit my mom's side of the family genes. They live a long time, with great mental acuity.

Birds you...I felt way worse when I just started getting H alone every three weeks, instead of weekly with my chemo. He lengthened it to 90 minutes which helped. Also said I could continue it weekly, every other week. Said it was important that I get it, and the how part was not as important. I also broke out in huge hives along the way. The ultimately decided I had developed an allergy to sulfa since I was on massive amounts of antibiotics. They don't know for sure however.. Doc gave me a prescription for hydroxyzine, a strong antihistime that does other good stuff to help with itching. That made a huge difference although it knocked me out lol.

I went to my on/gyn as I developed a deep aching pain in the lady garden area last Thursday. Was on a Abx for potential uti over the weekend but that didn't help any. Told my doc that if he tells me I have something recurrence wise two days before my five year anniversary I would not be happy. After the ultrasound, turns out one of my fibroids (had them forever), was the culprit. My smaller low one apparently is some kind of irritated. .

Doc was surprised as my last vag ultrasound was 2014 and the one today showed it had grown 3mm. He said it is unusual to grown after menopause, even this small amount, and especially when I was having all my estrogen sucked out. Going to monitor it and if it doesn't improve, may have to consider hysterectomy.

He said he was happy to see that my ovaries were appropriately shrunken. I burst out laughing and said gee thanks. Told him I want my estrogen back!

I hear you all on the Big D after Herceptin only. I had it during chemo and then life went back to normal between ending chemo, surgery and then my first Herceptin only Dec 21st. After that, Big D, back again... along with cold/flu-like symptoms and feeling rundown. Anyone else just feel lousy on Herceptin only? I hate to think of nearly 6 months feeling this way...ugh

JerseyGirl, I have my nurses run the infusion over 60 minutes, and I think it helps with quite a few possible SEs. I felt sort of run down after my first H-only infusion, but I was also still recovering from the big guns. Ask them to slow it down for you!

I too feel very run down on Herceptin only. Only 3 more to go

How long will you be on your hormone therapy & What kind do you take & Stage u are in???

I have had flu/cold/allergy type symptoms as well. Cannot imagine this lasting another 6 months either. And about to start rads too... starts chanting: I am halfway through treatment, I am halfway through treatment

Stage IIb, 95%+ for both ER/PR. I'm being told Tamoxifen for 10 years but I'm only 44 and was premenopausal prior to chemo. I'm told they might switch me to an AI if my hormone tests show I'm in true menopause (as opposed to chemopause)

goutlaw get a 2nd opinion. Seems the next trend is stay on them indefinately

Woo hoo! Its official!

Jersey...same symptoms. A 90 minute run helped a lot. Still felt flu like for a couple days.

I had tamox for almost three years and habe been on Arimidex the rest of that time. Total of five years on some AI in July. My Onc is a little on the fence while studies are being complete. Last year said we would talk at five. Ill be interested to see what he says and what i think. Also need to research just how much difference it would make in percentages between 5 and ten for someone with my staging. Although honestly i am less worried about a breast area recurrence and more worried about a pop up somewhere els

Welcome to the 5+ club Fluff!

Three cheers for five years!

All of you give the (relative) newbies a whole lot of hope. Thank you.

Had my third H-only infusion today. I really, really try not to get irritated when something that's supposed to be "in and out" ends up taking two hours, for reasons that I can't identify (nothing happened and it wasn't busy). . . . Then again, I love my nurses, so I guess it's extra visiting time.

Kate, I hear ya! I always bring work with me to the infusion room. Grading, reading, composing lecture notes.... Everyone there thinks I'm a workaholic!

I count NED date but for survivorship I count diagnosis date.