Lumpectomy Lounge....let's talk!

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  • Brightsocks
    Brightsocks Member Posts: 159
    edited January 2016

    Molly50- That would be wonderful as the treatment advance. BC is so complex it seems two people with all the same pathology could have a different treatment. This difference can depend on many unrelated factors. What I find hard is when you are asked to make a choice based upon a % of choice. As much as I want to do all the treatments the % of results plays with my head.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MLP3, If you can be careful while shaving using a safety razor, do so. But I'd wait until the underarm is healed up. (no tank tops for a couple weeks). Good that you are off the Vicodin. Has an Oncotype test been done? That seems to be one of the deciding factors in whether chemo is called for or not. Another is age. Younger seems to indicate chemo. Tamoxifen is the usual course of treatment for pre-menopausal women.

    I'm off to my stress test in about 90 minutes. I miss my coffee!!! (Not even decaf allowed :( ).

    HUGS!

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    I just got a call from the hospital to see how I was doing and she said to try and stay away from shaving that area until my follow up appt. it lessens the chance of infection.

    She also told me to start taking walks if I'm up to it and said not to spend time lounging around in bed or on the couch. No power walks yet with big arm swings, but get up and move.

    She also mentioned the internal stitches will hold and start arm raises as soon as I feel comfortable but don't push beyond the point of it not feeling right. And guess what??!! I just put both hands up like superman... SuperWOMAN😀

    Just thought I'd share;)

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    Peggy- oncotype was ordered. I'm 48 and on that bubble of "young" age for chemo.

    I'm just going to stay away with the razor until follow up. At least one will be landscaped😉

    Good luck with your test👊🏻

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Molly and Mlp - if I had of been a first time patient I would have had to make a choice between rads or mx in 6 weeks post chemo. I don't have urgency as rads isn't an option. As I've done chemo, a mx is more successful sooner than later. If there is another recurrence I face not only mx but chemo again. So mx and be done with it but also with no idea if it will ever come back anyway. It's preventative so he's saying if I do mx that's it if Iwait I have risk of recurrence . Can do mx anytime but it's about being ahead of it.

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Mlp yes I'd not razor either, let it heal. Like any surgery it's a balance of rest and a little movement. Listen to your body rest or move as you feel. Great about movement

  • Gemma12
    Gemma12 Member Posts: 137
    edited January 2016

    MLP - Your lucky your Oncotype test was ordered already. I had to wait til my first MO appt. Mine should be back a week from Wed. My tumor was grade 1 and my DCIS was grade 2. I've heard that chemo is more effective on higher grade cancer. On the arm thing, my Rad nurse told me to roll a ball up and down the wall to help stretch the arm. I did shave after I got my stiches out, but did it dry with the help of a mirror. I stayed far away from the scar. The stubble (that is total euphemism) was bugging me.

    Ugh, on the Pats. Of all the days to play shitty!

  • 1step
    1step Member Posts: 110
    edited January 2016

    Sandy- your dinner sounds amazing! I'm glad you had a great time and you were able to enjoy the meal.

    MLP- sounds like we have a similar background. 1.5 cm lump, ER+, PR+, Her2- IDC.The MO and BS agrees that chemo would based on genetic testing results, and/or if there was cancer in the lymph nodes. ER/PR positive don't seem to respond much to chemo, so it tends to be pretty low reward compared to the risk.

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    MLP3, you are SUPERwoman!

    Peggy, hope your test goes well! No coffee would be so hard.

    I think I shared the Facebook Page Fighting Fabulously before... it's two former pageant competitors, one of who was Miss New Hampshire, who both were diagnosed with breast cancer as young mothers. They are having a terrific event for Oscars. How nice is this?

    https://www.facebook.com/Fightingfabulously/

    ANNOUNCEMENT!!!!!!!!

    On Oscar's Day, February 28th, we are going to roll out the pink carpet at Bravo Boutique, Concord NH, and throw a party for 5 very deserving women who are fighting Breast Cancer.

    We will be giving 5 women a very special morning, a "Pink Carpet Party," complete with wardrobe fittings, make up, professional photos, gift bags, food and a chance to spend a wonderful morning with some amazing people and forget about cancer treatments and surgeries.



  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    That sounds so cool Peachy!

    1step- genetic testing first round came back negative. I am a bit ticked as the testing was done through MGH. And now that I've chosen Dana farber, the genetic councilor at mgh was rather bitchy and told me she never sent the request for the second row of genetic testing THAT I REQUESTED. Chek2, etc... I asked her why and she had no answer and said that insurance may not cover it now... Wtf?? I told her that she checked the extra testing during our appt and that it would be done. I asked her to send me a copy of my paperwork and ihave yet to receive it. Who on earth does she think she is that she can play around with this just because I switched care...?

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Mel, that makes perfect sense to me. So my decision on whether to go ahead with removing the other breast can be done anytime because it is not recurrence but NEW cancer we are worried about. My genetic mutation puts me in a high risk category while my oncotype score puts me at low side of moderate risk of recurrence.

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    Am I crazy to go to a movie tonight? Only 3 days post op but I'm so bored!!! I'd be sitting at home watching tv anyhow. And this movie theater is privately owned in town with big and comfy leather like chairs. And they serve wine too😉 Maybe just one glass;

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    MLP3, I had to miss the U2 concert at the Garden two days after my second surgery, but went to Foo Fighters at Fenway Park that weekend. I think you're good to go to a movie. :)

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MLP3, movie and wine? Why not? As long as you aren't taking pain meds (other than Tylenol), go for it!

    HUGS!

  • Brightsocks
    Brightsocks Member Posts: 159
    edited January 2016
    I just got my status for my HER and it is negative. One more part of the puzzle. I also won't be getting the Oncotype from what I have been told. I am still a few weeks out of know what will be the full plan.
    Tick, Tick, Tick.....
  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    ok... I'm going! Seeing the Reverent.

    No pain meds since sat pm and I've only taken 2 Vicodin from the bottle. Not touching them again.

    Peggy... How did you make out today

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MLP3, Thanks for asking! I survived the echo and stress tests. I had forgotten how very uncomfortable the echocardiograms are when it is your left breast that is the bad one. It hurt at times. The tech wasn't particularly warm and caring either. Then she strapped on the box for the EKG cables (think fanny pack in front) and when she clasped it behind my back, caught some skin. I was pissed. Stress test was fine. They kept asking if I was on BP meds (no) since my BP was so good. Have to wait till Friday for the results. Came home and had my morning coffee at 3:15 :)

    Brightsocks, would you put the rest of your tx in your profile and make it public? That does help. Thanks!

    HUGS!

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Yay for low blood pressure, Peggy! :) I call 3:00 coffee o'clock, but that's awfully late for your first cup of the day.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Peachy, I normal have a cup after breakfast and one with lunch. However, for my stress test I couldn't have any coffee for 12 hours prior, including decaf. So I had a low-grade caffeine headache by 3.

    HUGS!

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Molly - I get you, then its the same for me with my right breast, as my left had the recurrence. I am not high risk though, only Mum as family history, no other Cancer in the family, and I didnt meet other criteria either so he said Gene testing isnt something he'd bother with. We also don't do oncotype here, treatment is based on other things. Only reason I had to have Chemo was because it was Stage 3 and thats automatic. Its the million dollar gamble..he honestly doesnt know how I had a recurrence same spot after rads and tamoxifen, all he can think is at time of treatment I had a cell that was still there hiding. Im none the wiser, I am concerned, I cannot afford the cost of surgery, nor can I afford such a long recovery and not working and trying to support myself and my kids. It upsets me that these things are even apart of the equation, this is my health...the other thing is they cant tell me if I will or wont get a recurrence or new and they cant say either way if mx is unnecessary or warranted. I feel its a gamble either way, so it has to be what I can live with.


    Peggy - Glad you survived the stress test, hope it comes back AOK!!! I too am just having coffee, was up at 4am til 7am then went back to sleep. Lots to do today, and bit flat...plus returning to work tomorrow after 3 months off, 1 month being Summer Holidays. Bit apprehensive, as its an incredibly stressful environment in an Autistic School.

  • Jclc83
    Jclc83 Member Posts: 246
    edited January 2016

    MLP3. I saw the Reverant. The scenery is awesome. Great movie!

    I have a huge wine collection but honestly have not had the desire for even a taste since chemo.

    That must be so hard with a low Oncotype score and a high grade or positive genetics. Must be hard to make that decision. Personally. I would rather be aggressive but that's my opinion. (Meaning chemo). I saw my BS last week and he said that he would still recommend a lumpectomy vs. mastectomy. Any of us can have recurrence even if there is no breast. I guess it's a crap shoot.

    I'm really not looking forward to returning to work after 4 months off. I'm hopeful I can handle all the activity. I'm not as young as I used to be lol!

  • Brutersmom
    Brutersmom Member Posts: 563
    edited January 2016

    Given the Chemo conversation I thought some of you might find this topic interesting. Check out the links.

    https://community.breastcancer.org/forum/73/topics...


    The info is from 2016. It offers some insight to the questions about chemo. It reaffirmed my decision that not doing chemo was right for me. Others may not agree and that is OK.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Melclarity, it's so hard dealing with BC. They just don't know anything!

    Jclc, you're right. A mastectomy is no guarantee of being BC-free. I have a friend who is proof of that. She is now chronic, with mets.

    Brutersmom, only YOU can decide what is right for you. It may not be what I would do but that's me. Don't let anyone tell you otherwise!

    HUGS!

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    Meclarity your doctor sounds confused

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Jclc - Im with you, my BS said same thing lx is as good as mx, so will wait til I see him 3rd Feb. My Oncologist is one of the top in Melbourne and so is my BS, been seeing my BS for 5yrs, his opinion is pinnacle. LOL Marijen My MO isn't confused its more my situation thats confusing. Heading back to work is daunting am sure once there it will be ok, but I havent been at this school for a year as I transferred to a different school last year, and they didnt renew my contract...wonder why. Uuugh!! Its all money. At least I have a job am grateful and doing what I love working with Autistic Children. You are right my MO said same...I could still have a recurrence even after mx so its a crap shoot no matter what. I chose aggressive treatment 4yrs ago and I guess aggressive this time would mean bmx but the question is...is it necessary...gamble gamble.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2016

    Brightsocks, I sincerely doubt you would get any benefit from chemo, seeing as how your tumor was tiny, grade 1, node-negative. ER/PR+/HER2- and tubular carcinoma. If you had to get IDC, that's as good as it gets. If your profile is so non-aggressive that they're not ordering Oncotype, then it's because it's a given you won't need chemo. OncotypeDX is usually for hormone+/HER2- Stage 1 grade 2 tumors with no or maybe 1-2 positive nodes that are above a certain size (>1cm) and thus in a gray area.

    Mel, you meant Grade, not Stage, 3, right? My friend, who’ll be 70 in March, was just diagnosed with Grade 3 DCIS (Stage 0) over a 3.7cm area in the front of her left breast. Biopsy report says pleomorphic, cribiform, comedo features. She has already had 2 stents and is a Type 2 diabetic. Is radiation and/or chemo given for DCIS with this kind of profile? Her breasts are small relative to the rest of her (A cup, based on projection, but she hasn’t needed a bra in decades); factoring in margins she may nonetheless still be a candidate for a wider-excision lumpectomy (plus fat-grafting oncoplasty for symmetry should she want it).

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Chisandy - Sorry yes Grade 3, which is alarming when I was on yearly checkups,

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    Mel when you go back soon, find out what financial aid help is available to you. It seems to me that every other post I've read where mother had cancer there was a need for gene testing. Maybe I'm confused lol!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    missed so much at work today!


    Shaved with a razor they has safety pads around 2 weeks (after my post op).

    I feel good about chemo. It sucks but even if it only reduces my risk a few percent, it's important to me to be as aggressive as I can. Since I had a 2.5mm spot in one lymph node, my MO highly recommended and I agreed. Everybody has to make thier own choices though.

    yesterday I dried my hair with a towel, then my body. Bad idea. I lookedlike Chewbacca and had to get back in the shower to wash all the hair off my body!!

    I wet for lunch with a friend today and this happened. Wigs are addictive

    image

    Also got my BRCA results ( I was tested a few years ago for a study, but the genetic counselor wanted to retest given Ashkanazi Jewish history, and that I got breast cancer rather young, and she felt blood tests were more accurate). Negative!!!

    Back to chemo tomorrow!! Grr


  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Marijen - Oh no financial assistance available as I have funds saved, I exhausted every avenue, so no choice but to work. This was the Criteria he said to make a decision of Gene testing Breast cancer diagnosis under the age of 40; a cancer that is hormone negative (yours is hormone positive), a strong family history i.e. 2-3 direct relatives with breast cancer, a family history of ovarian cancer, or a very young relative with breast/ovarian cancer; getting cancer on one side and then on the other side; a European jewish background. I only have my Mum direct relative.

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