Invasive lobular, invasive ductal, plus microinvasions
After extensive screening and excisional biopsy, I received a dx of invasive lobular carcinoma, 16 mm, and invasive ductal, .8 mm. Also "multifocal microinvasive lobular carcinoma" and extensive and multifocal LCIS. All ER/PR+ and HER2-.
No lymph node removed yet or Oncotype test done. My surgeon is recommending bilateral mastectomy and flap reconstruction. I'm meeting with oncologist this morning. Appointment with plastics is not set yet.
Cancer diagnosis is no surprise because I had LCIS dx in 2006 and several times thereafter.I feel like the shoe has finally dropped.
I'll need a lot of information on reconstruction choices. The flap procedure seems very extensive and recovery seems rough, but better in the long term.
My sister is still in treatment for ILC. Stage I, but she received chemo due to oncotype score of 28. She had a very rough time with chemo, and developed blood clots in both lungs.
Telling my kids was the most difficult. I'm trying to be optimistic, but it's draining. I guess I'm reaching out for support.
Comments
-
Commander,
I'm still waiting for biopsy results. I just wanted to say hello, I'm sorry you're dealing with this, and I'm sure the veteran BC warriors on this site will provide advice and support to you moving forward. Be kind and gentle to yourself.
-
HI, just wanted to pop in to tell you that I was dx at age 49 in 2010 with multifocal ILC in the left breast, sizes similar to yours. It is now 5 1/2 years later and I'm fine. Had unilateral mx and never did do reconstruction. (Know that you don't have to rush into that decision.) You're in the hardest stage of this...once you have a plan it will get better. Use anti anxiety meds if you need them, and do be gentle with yourself. There's a lot of info on the ILC boards, and nice support. many good people here for you...
-
there is certainly a lot to be said for a little help from anti anxiety medicines. Some days you just need a little help
-
Thanks that means a lot. I'm hoping that it hasn't reached the lymph nodes yet.
My op is next Tuesday so will know more then. Things have moved very quickly since my first consult. I'm not sure whether to opt for a full mastectomy and possibly no further treatment or the lumpectomy with the follow up radio therapy.
-
It's a hard balance with kids, because if we act too cheery they don't buy it, and if we act scared or sad it upsets them. Things will get better and they will see that themselves.....In the meantime a little benzodiazepine and Netflix can really help
-
You can go over to the reconstruction part of this board to get more info on that. There is tons of great info. My dx is pretty similar to yours. I had DIEP and I was warned that it was a hard recovery by my recovery was not that hard or painful. It is essential that you get the best PS you can find. I was referred to 2 of the 'top' guys in the Chicago area and I am glad I didn't use either of then. The first told me he couldn't make me as big as I was (which was a
. He didn't inspire a lot of confidence so I made an appointment with a second doctor. I was told by the ladies on BC.org to ask what his conversion rate was. Had a long phone chat with has PA and they told me it was 85%. I checked on Askthedoctor.org if this was ok and he say NO! He said zero. What that meant was what percentage of the time they go from DIEP to TRAM in the OR. You don't want TRAM unless absolutely necessary because they cut muscle and that is what can make the recovery hard and painful. So upon further research, I was decided to go to NOLA. (AKA Center for Restorative Breast Surgery). They are one of the top places for this surgery in the country. It turned out the doctor from Askthedoctor.com was from there and he was my second surgeon. They use two PSs there instead of a PA to get you off the table sooner.
-
Sorry. I hate typing longs posts on here because it goes too slow and I type fast. Where do you live? Have you been to the recon area yet?
-
I had left DIEP and it was easy for me. I really was not in any pain. Some mild discomfort alittle. I was back to things in 3 weeks. I went back to work at 6 weeks. Both sides might be harder though.
-
Midge70, welcome to Breastcancer.org. It is indeed a very difficult decision. Perhaps this section could help:
-
I live in the Portland, Maine area. Not all options are available here for reconstruction. I will be going to Dana Farber in Boston, in the next couple of weeks for a consult. I may choose to have my surgery there.
-
Thank you for this and all the replies. It certainly feels good to meet others going or who have gone through this. I'm off to the reconstruction boards now. Lots to learn before I make any more decisions.
-
Fingers crossed for you! Waiting is so hard!
-
good luck commander.
-
Commander a Central Mainer here!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team