January 2016 Chemo!

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  • zinny
    zinny Member Posts: 281
    edited January 2016

    Welcome Crimson - like the Dr Who lego avatar:) Sorry you are here with us, but it is a good place to connect. The chemo stuff for newbies was pretty helpful as a starting place for more info, but we are where the fun and support is at. Well, this is, at least, I mostly just try to catch up on everyone's progress!

  • Shiningstars
    Shiningstars Member Posts: 7
    edited January 2016

    Starting TC tomorrow and I'm so nervous. I also had a haircut and I have pretty long hair. I couldn't help but started to tear up. It's heart breaking to see all the hair on the floor. My hairdresser was very kind to cut my hair for free. His kindness really touched my heart. Is there anyone starting chemo tomorrow

  • Paxton29
    Paxton29 Member Posts: 221
    edited January 2016

    I start my four rounds of TC tomorrow :). Looking forward to getting it over with

  • Shiningstars
    Shiningstars Member Posts: 7
    edited January 2016

    Paxton,

    Are you taking the steroids?

  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2016

    Just wanted to wish good luck to my fellow T/C buddies starting chemo tomorrow and everyone starting soon on any reginme. Hope it goes well for you and that you have few SEs. I was so nervous too, but in the end was pleasantly surprised with how noneventful it all was. We each have our own journey with this, so good luck to you and to everyone!


  • MB12
    MB12 Member Posts: 79
    edited January 2016

    MissBee & Cathytoo - you can buy dog booties at Amazon.

  • Veronica31
    Veronica31 Member Posts: 97
    edited January 2016

    Delight55- so sorry to hear you are having so much trouble! Hopefully they can figure it all out and you can get some peace!

    Krimson19- We're glad you found us too! Good luck with getting your port today. It's a pretty easy procedure, but everything is scary before you do it.

    Weird question for others with AC+T. I have ALWAYS had really oily skin Since I was about 12. Like have to blot my face 5-6 times a day because it gets so shiny. And at about day 12 after AC my skin just stopped producing oil, it's not crazy dry, but I don't have to blot it at all. I'll be honest, I really like this side effect because I was always very self conscious but I was wondering if that happened to anyone else

  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2016

    MB12....thanks so much for the dog bootie suggestion. Great idea.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2016

    Day 3 of TC infusion - pleasantly surprised and hope I'm not talking too soon! I've had not one side effect except a dry mouth. I use Biotene a few times a day and, although it doesn't totally relieve it, it's bearable. No metallic taste or food tasting bad. I haven't been tired. First two days ran around as usual, eating out with friends. Have had no trouble sleeping. I've been told today will be the start of 3 crash days. Hoping for the best but prepared for side effects. Wishing all those beginning today an easy time. It's so great to connect with all of you. We're not alone in this journey, and soon this will all be a memory as we continue living great lives. Sending big hugs

  • Rockstarteach
    Rockstarteach Member Posts: 20
    edited January 2016

    I had normal skin before but now I'm very dry and sensitive to fragrances. I have been using CeraVe products and they have been wonderful! I thought I would let everyone know in case someone is having the same problem.

  • sarah_sunflower
    sarah_sunflower Member Posts: 47
    edited January 2016

    My onco gave me Cerlebrex for the headache and I managed to get some sleep after taking it. I chopped off most of the hair because of the headaches and I feel some bumps like pimples in my scalp and now just like most of us waiting anxiously to see the shedding. Day 10 and very anxious about this whole hair fall deal.

    Zantac works well for me too, protecting my stomach.

    Also, because I kept complaining about all the aches and pains everywhere in my body, my doc gave me Immocal (indenatured whey protein isolate powder). Its a little sachet which has to be mixed with something like Milo. Its hard to stir but once it gets in my system I find it helps a lot with the pains aches and tiredness.


  • Paxton29
    Paxton29 Member Posts: 221
    edited January 2016

    Shiningstar, I did not have steroids to take beforehand, just in my IV. So far everything is going uneventfully, which is what I was hoping for

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited January 2016

    It's official, I have a second tumor that needs to be biopsied. Of course this is an area that my first hospital said was nothing despite having an MRI and an ultrasound there. Thank God for second opinions. I'm angry, I know I should let that go to focus on healing, but if the first place did their job the first time I wouldn't need a second surgery or go through this stress all over again. The biopsy may show nothing, but I'm still leaning toward a mastectomy. I'm just so tired of these surprises.

    Good news however is that this doesn't change my treatment schedule at all, not that they really could do anything differently, I'm already on the big guns. And I'm officially 3/16 completed. I also decided to get a port put in, we had some IV problems yesterday, I got my chemo just fine, but when they went to use the IV in my hand for the MRI contrast it was brutal. Not sure what happened. I might have bumped it or something but I have so many more treatments plus herceptin after that I just don't want to deal. And I still feel fine.

    <serenity now>

  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2016

    fightergirl711...sorry to hear this news, but you are so right, second opinions are important. Wish you the very best. Keep going forward.

  • onehumpedcamel
    onehumpedcamel Member Posts: 10
    edited January 2016

    Hey fightergirl, sorry to hear that. I was I guess lucky because I had two tumours amd lots of microcalcifications and the surgeon recommended mastectomy right away. More than 25% of the breast was malignant with the calcifications. My mastectomy was easy and I have recovered well. Later on when all this is over I plan for reconstruction, as I cannot get used to the breast form. This is just to say that don't be scared of mastectomy if that's the way you want to go. Good luck!

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited January 2016

    Thanks Cathytoo and onehumpedcamel, I think the mastectomy is the way to go. Even if the biopsy, it keeps showing up, I can't keep living with the wondering if and when. It could be a lymph node too, not entirely certain. Grateful to hear that it's not as scary as it sounds. But it does make me wonder in the first place has been under diagnosing me for a while, it's the same place I have been getting my mammograms for the last 4 years (I'm 44.) There have been a few years I've had to go every 6 months, it's disconserting that it was so locally advanced despite getting images so frequently. This last dismissal of "it's nothing" that is raising a huge red flag. Which is why I am so angry, I'm wondering if this could have been caught much earlier if they were more diligent.

  • Krimson19
    Krimson19 Member Posts: 4
    edited January 2016

    Thanks everyone for the welcome. Other than being a little sleepy and sore, it went good. I'll make sure to keep looking and reading the forums. I'm grateful to be here My husband and I also attended a really good orientation put on by the hospital where I'll be getting my treatment. So I definitely have a few days to gather what I need before Thursday.

    And yep I love Dr. Who. The Tenth is my favorite, but the Fourth was my first! I still need to finish putting that set together.

  • Citrinetiff
    Citrinetiff Member Posts: 88
    edited January 2016

    I'm going for my first chemo Wednesday, January 27 at 9 am. I am very nervous, but at the same time I want to start treamtment so I can get rid of whatever cancer may still be in me. I have read some of the info about what to expect, buy,etc. For those of you who have already had treatment, any words of wisdom? What are the most important things to do to prepare? Expect? I am getting AC.

  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    imageday one of shaved head and a wig and I'm already tired of it! Either way I'm totally self conscious and admire all you confident ladies!

    Fightergirl, I found out before chemo that I needed a second surgery because of questionable margins. It's so frustrating! I am also opting for bilateral mastectomy when chemo is finished

  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2016

    fightergirl711....I have had no suspicious mammograms whatsoever. And then, I found a 2.5cm lump in my right breast three months ago. My MO said it had probably been there for decades, just never seen for some reason. It does no good to look back. This is the time to move forward with treatment.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2016
    • fightergirl711...I forgot to mention that I also needed to have a second surgery to get better margins. All were clean. This BC seems to bring a lot of surprises with it
  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Paulinek you look great.

    I haven't worn a wig yet, just touques and a scarf once. I think I'll wear hats for winter, then experiment with wigs and scarves when spring comes (since it is cold in Toronto, and hats mess up wigs and scarves!)

  • songbird72
    songbird72 Member Posts: 68
    edited January 2016

    I'm so jealous of all of you who had no big SE's from the first treatment! I go for #2 next Tuesday and am already dreading it. I have felt pretty normal this week except for getting tired easily.


    Good luck to all of you who are just starting!

  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    songbird72 I'm sorry you have had such difficult SE. At least now you know what to expect somewhat and how to manage things for this go round. Good luck with round 2.

  • fitnessflagstaff
    fitnessflagstaff Member Posts: 3
    edited January 2016

    Hello All,

    The mods just suggested I join this group. I am on track with each of you it seems. I was diagnosed December 9th and found out I'd need chemo first (surgery to follow) on the 10th and started my first round Dec. 17th(6 in all-every 3 weeks) and had my port put in on Dec. 18th. I'll need surgery after the chemo...not sure which one yet. It's nice to be part of a support group with others going through the same thing. Best of luck to you all!

  • Nebraska917
    Nebraska917 Member Posts: 64
    edited January 2016

    Paulinek - I really like your wig! I haven't worn mine at all - even wore just the soft caps to work - did you get it locally or online somewhere?

  • fitnessflagstaff
    fitnessflagstaff Member Posts: 3
    edited January 2016

    If that's your wig, I would have never known. Great choice!! I feel like my wig is so 'obvious' too, but most people tell me it looks natural.


  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    Nebraska917 there is an amazing salon locally that gives free wigs to women and children going through chemo. It really is a beautiful wig (Raquel Welch brand) and I'm super grateful, but by the end of the work day I was ready to take it off. I'm going out to dinner tonight, nd I think I'll be brave and go scarf.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    songbird I also go for #2 Tuesday. My side effects haven't been too bad, but I'm still dreading, I feel so normal I don't want to stop! I just keep reminding myself that chemo is a badass cancer killer!

  • JCS28
    JCS28 Member Posts: 153
    edited January 2016

    I have several SE questions all rolled into one. I am on Day 10 after my first round of Taxotere. The first few days were nothing. I felt great. But the last couple of days I have been more tired, and today I feel just awful. My temp was 100.3 this morning, so I called the doctor. They sent me a prescription antibiotic. The bad news is that they would normally have me come in for bloodwork, but we are snowed in! So I'm going to give it 24 hours and if I am not better tomorrow, then I'll get to the ER somehow.

    But along with this I have awful mouth sores and a sore throat. I honestly think I have a cold on top of it all that I got from my kids. I have tried EVERYTHING for mouth sores -- Biotene toothpaste, Biotene mouthwash, Magic Mouthwash, salt water rinse, baking soda rinse, soft toothbrush, L-lysine supplements, and eating soft food. Does anyone have any other advice? Is this going to last throughout all 6 treatments?

    Thanks, ladies!

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