Just diagnosed/overwhelmed and sad.

mmshea
mmshea Member Posts: 15
edited January 2016 in Just Diagnosed

Hello,

I am so thankful to have found this forum. I just received a call that my breast biopsy returned with a diagnosis of invasive ductal carcinoma with a Nottingham score of 2. It is ER+/PR+. I do not have any friends who have been diagnosed so am madly trying to research and get information but it is all very overwhelming. I have been referred to a breast surgeon and am awaiting a call back to get on their schedule which likely won't be until next week and seems like an eternity to get answers. Devastated by this diagnosis but relieved to have found this support page.

Comments

  • bluepearl
    bluepearl Member Posts: 961
    edited January 2016

    So far, good prognostic factors. Medium growing, hormonal positive which means the anti-hormonal will be a part of your treatment plan. Hang in there! The first few months are the toughest as you journey through all the treatments plans, information and tests/doctor visits. Ask them for print outs too, so you can see the information for yourself and.or take a friend. You will feel like you are shell shocked and women react differently but remember, it is normal to feel frightened, overwhelmed, confused, tearful, angry, and did I mention scared. Wait until you get all the information back before planning a funeral (many of us have dome this). Walk. Talk. Hug. Not a journey to be taken alone. Be well, sweetie...we all know this trip and we all have you in our thoughts!!!!xoxoxox

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    Welcome to our boards. We too are happy you found us, as you will see you are not alone with what you have going on. In case you need more information on IDC, you may want to read here: IDC

    Take one day at a time, and know we are here for you.

  • Shalimar630
    Shalimar630 Member Posts: 100
    edited January 2016

    mmshea, I'm so sorry you had to join this club, but there are many here to assist you and to lean on. If your place of treatment, clinic or hospital has a support group, I would recommend looking into. They are supportive and very knowledgeable. They can help, let them... Also, don't be afraid to ask and ask. This is your treatment, you have a say. I'm a couple years out, this forum helped so much.

    Take care, deep breaths.

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited January 2016

    Mmshea, I'm so sorry you had to join our club. As Shalimar indicated you will find a wealth of information and support. as you research please reach out to us. There is a wealth of information on this site under the discussion boards and the main site. Peruse the topics and tag those that you feel may benefit you as your favorite. We are here to support, encourage and just listen as you work with your doctors to get your treatment plan. Remember we are here for you.

    Take care and take one day at a time.

    PS, you will hear this often and some of the best advice I received -- stay away from Doctor google as you research. Go to current reputable sites

  • NoWhyToIt
    NoWhyToIt Member Posts: 87
    edited January 2016

    I know this is going to sound crazy but your report is good. Your staging is low and you will make it through just fine! If you need help with your emotions don't be afraid to ask your doctor for medications that can help with the sadness and worry. Take care of yourself, get a lot of rest and take one minute at a time. xxoo

  • ceanna
    ceanna Member Posts: 5,270
    edited January 2016

    mmshea, sorry for what brought you here, but I believe you'll find the information, support and ((((hugs)))) you'll need. You sound like me about 14 months ago. I had the same diagnosis. The toughest time is now, before a plan is in place and before you've had a chance to ask questions and get answers. Like ladyb already stated, please stay away from Dr. Google. You'll find lots of information and experiences here. What you may want to do now is start a list of questions for your first appointment with the surgeon. I hope you are getting help at a breast center. They most often have a nurse navigator who can be your direct contact person. answer lady, and who can even tell you what questions to ask the surgeon. With what you told us, you should be given an option of lumpectomy or mastectomy and there are several threads on this site discussing both options. You will also want to check into genetic testing before surgery. A second opinion is often helpful, especially if you don't feel good about the first surgeon you meet.

    Yes, it seems overwhelming, but meeting with the surgeon and putting plans in place will make a positive difference. I choose a lumpectomy w/ radiation (brachytherapy type) and have been happy with my choice. Your choices may differ depending on your specifics.

    I choose not to tell very many people either before or even after treatment--I just didn't want to hear about someone's aunt's experience or awful stories about treatments or have to tell people answers to questions I, myself, did not yet have.

    Take care and keep asking questions. Please let us know how you're doing.

  • dlyn
    dlyn Member Posts: 1
    edited January 2016

    I had the same diagnosis as you 12 yrs ago. The best advice I can give you is support groups and Susan Koman's book. It really helped me understand what I was going through. No one in my family had never had any type of cancer. You are in my prayers.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    Dlyn, welcome to Breastcancer.org! Just wanted to say thanks for offering support and we look forward to hearing more from you -- our members could surely benefit from hearing from you 12 years out of diagnosis!

    Thanks for posting!

    --The Mods

  • Dur3
    Dur3 Member Posts: 1
    edited January 2016

    I started treatment on Dec 1 after finding a lump in September. Before I started treatment was without a doubt the most stressful part. Focus on what they are telling you and not what ifs. Everyone's journey is so different and treatments have come a long long way. My Grandmother had breast cancer and survived 30 years (died at 82 of diabetes). This was 65 years ago when she was diagnosed following pain in her arm.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    Dear Dur3, Welcome to the community. Thanks for your input. We look forward to hearing more from you on the boards. The Mods

  • Shareandcare
    Shareandcare Member Posts: 1
    edited January 2016

    I got diagnosed with DCIS 11 years ago. Was very confused....doctors give you options, I decided to do a double mastectomy....but it took me 3 months to make that decision. Read a lot about it and went on forums like this for support and feedback ALOT....it was what I looked forward to...as anyone who has not gone through this can not understand what it's like!!!!! Take your time and get a second opinion just to be sure....go into it with a lot of knowledge....it'll make you feel better!!

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    Dear Shareandcare, Welcome to the community. We appreciate your story and willingness to post here for those newly diagnosed. We hope that you will stay connected. We look forward to seeing you around the boards. The Mods

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2016

    By all means do your research, but with an objective “filter.” What you read on BCO, Komen, ACS, Mayo, MSKCC, MDAnderson, Susan Love’s and Elisa Port’s books, and to a lesser degree WebMD and Livestrong is valid and reliable. Unfortunately, Dr. Google doesn’t differentiate between legitimate medical information sites and flat-out-flip-a-dee-doo-dah outliers, especially reader-driven sites and alternative-medicine sites. Even WhatsNext.com can have some suspect info, although it can be helpful for tips & tricks to get you through treatment (however, it’s for all cancers and doesn’t have a supervisory medically-staffed arm the way BCO does).

    Based on my biopsy report (same as yours. though you didn’t specify initial tumor size estimate), location of tumor and its size relative to my breast, age and inclination to keep surgery as minimally-invasive and both surgical and recovery durations as short as possible, I opted for lumpectomy and radiation and am happy with my decision (though in retrospect, had I not needed to complete active treatment in time to take a cruise we’d booked months earlier, I might have opted for bilateral reduction to protect the integrity of my SNB incision and make it easier to buy clothing going forward. I might yet do that once everything has “settled in” a year or so from now). You can always go back later and have a mastectomy, but the reverse is not true. I knew that even mastectomy is no guarantee that radiation will be unnecessary, nor is it total protection of distant recurrence or contralateral new tumors.

    Have a good long talk with your surgeon, ask to see surveys or videos if available (the Emmi series is great, and I was part of a Mayo trial of a decision-tree software algorithm). Discuss with him or her (and your medical oncologist when you pick one) and decide what your lifestyle, needs and goals are and how various treatments would impact timelines and aspects of them. Only you know what’s most important for you and how you want your life to proceed--given, of course, that life choices you used to have may now be unavailable--or must be postponed. Your medical team works for you, not vice versa.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    Dur and Shareandcare,

    Just checking in to see how you're feeling since posting. Please come back often and share, ask questions, vent -- whatever you need! Others are here and looking for your support, too.

    We look forward to hearing more from you both!

    --The Mods

  • Katp712
    Katp712 Member Posts: 4
    edited January 2016

    hi have just found this forum, I was diagnosed with estrogen sensitive breast cancer 3 wks ago. I'm 29 and completely overwhelmed and sacred by the whole thing. I feel so healthy and fit, so can't get my head around it. I'm geting a mastectomy in a couple of weeks. I do not have any children and have been referred to the fertility specialists, there are so many things to think about, very daunting

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    Katp712-

    We know it's scary, but just know you're not alone! This community is full of people who've been right where you are now, and we're all here for you! Check out our Important Links if Just Diagnosed forum for some helpful info about what to expect in the coming weeks. Also, you might find our Young with Breast Cancer forum helpful as well, and it will allow you to connect with other women with breast cancer in their 20's and early 30's. Take it one day at a time, you'll be in our thoughts!

    The Mods

  • Kiks1
    Kiks1 Member Posts: 254
    edited January 2016

    Katp,


    ((( HUGS))) It will get better. The first few weeks are the most terrifying. Just focus on one day at a time. Like the Mods suggested, there is a forum for young women. You might find more advice and comfort there to help you through this journey. 

    God Bless.



  • msphil
    msphil Member Posts: 1,536
    edited January 2016

    Hello sweetie we know your feelings well n once treatment plan in place the overwhelmin feeling will ease some u can get thru this take it from a 22yr this yr Survivor Praise God i send prayers n hugs your way. msphil idc stage 2 0\3 nodes L mast chemo rads 5yrs on tamoxifen.

  • Katp712
    Katp712 Member Posts: 4
    edited January 2016

    Thank you msphil, very comforting to hear that you have been through this and made it out the other side

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