Core Biopsy done this am. Ugh.
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Let the testing begin!
Had my first set of appts yesterday with 3 Drs. I'm going to b a busy girl! Today genetic testing n blood work, tomorrow full body CT Scan, Monday breast mri, Tuesday Dana farber all day for second opinions n waiting to hear when she schedules me for full body bone scan... At least they r very proactive n building case or no case after genetic testing comes back so we know which way to move forward. And this will all be done for my spot at Dana farber.
I really like all 3 Drs that I met yesterday at MGH. My family history has more than a few early cancers on my dads side hence the genetic testing. If it's positive, double mastectomy n chemo. If negative, lumpectomy or one mastectomy, sentinel node biopsy then they decide radiation or chemo depending on path report from those findings. No matter what I'll b on Tamoxifan every day for 5 years. Good times😁
I've copied and pasted this a couple of times... Too tired this am to re-type
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Sound like they are leaving no stone uncovered,you have a good team it seems.
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MLP3, I am all new to this. BX is tomorrow. Can you explain what you mean by "The most info I got was that it was 6mm. So... I'm guessing it's not a cyst. "
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Roxgirl she may not respond soon I know she is have a lot of appointments right now. I also got the line it is small and saw something on the screen that said 6mm. They seem to be more worried because it is smaller than larger like the other cysts I have had.Good luck on your biopsy.
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Thanks Karlyrie, radiologist seems to think fibroadenoma. I have long bread ca family hx and I'm 44 so not sure if they will do anything but monitor. Will get bx results next week.
When do you get your results?
Sending positive vibes.
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Thanks Karlyrie... Had 4 days back to back this week and I'm already exhausted!
Roxgirl- after I left my biopsy I only knew it was about 6mm. The radiologist gave up zero info whether or not it looked like a cyst, fibroid tumor, etc... Had to wait until I got the call from the breast center with the results.
I'm praying for benign diagnosis for you! Please keep us updated!😘
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I dont get to see the surgeon until the 19th. Then they will schedule an excisional biopsy
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I have a tentative lx and snb scheduled for 2/8 depending on my genetic test results. Could change surgeries and treatments. I forgot to add that my biopsy path said 7mm and radiologist onc says it looks closer to 1cm. I feel as though it's gotten bigger but maybe it's due to the core biopsy...? Who knows.
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MLP3 My tumor was initially measured at 2.7cm, then I had the core biopsy (and I bruised very badly and the surgeon said I have a hematoma as a result). Then, the MRI measured it at 3.3cm. It freaked me out. But, then I saw the surgeon after that and she told me that the swelling and hematoma from the biopsy is most likely the cause. That settled my concern and it makes total sense. I still have bruising and it has been 18 days.
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My tumor was measured on ultrasound as 7mm, and the core biopsy took samples up to 9mm in width. But by the time I had the lumpectomy, it was 1.3cm. Probably the spiculations didn’t show up on ultrasound. Always hard to tell actual size until it's completely out.
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well ladies I had my surgery on Jan 5 took out the tumor and 4 lymph nodes. Dr called said the lymph nodes and margins were clear. She wants me to have the Oncotype test before they make up their minds about Chemo. Have anyone had this test
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jrowe, my oncotype was 21...intermediate score. I opted for chemo. So glad your nodes and margins were clear!
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thanks keepthefaith I guess I will have to wait on the numbers
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I got to skip the excisional biopsy. Went to BS today and she did a core biopsy. Took 3 samples guided by ultrasound. Dr will call friday nite with results. She wouldnt tell me a thing of what they were seeing. Just that she would go over it all. But not today i guess. I left with no info. Not even dont worry it is usually nothing.
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Karlyrie if it is cancer you should really consider coming to Boston for treatment...
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Catching up here... I switched all care to DanaFarber and Brigham and Women's in Boston and I'm scheduled this Friday for lx and snb with radioactive seed implant Thursday. I'm so happy with my team there.
Karlyrie- I was right where you were weeks ago and the waiting is torture. But it gave me time to settle down, get a second opinion and do my own research. Info is key with all of this as it helps to understand it more clearly. And these boards have been so incredibly helpful and supportive.
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She did put in clip. Looks like a spring. I just dont know if the secrecy is normal. It seems like they already know but cant say anything yet. At least that is the impression i get from them when i ask for info. The rn told me about the new cancer board we have now and that she is on it. She gave me her card.
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For anyone lurking for info on biopsies i found out today my breast surgeon does not like to do the steriotactic misspelled. She finds it easier to do ultrasound guided core biopsy. No wire stuck in boob then off to another room for needle biopsy that alot of times doesnt get a large enough sample.
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MLP3
I also live in the Boston area and receive my breast cancer care at Dana Farber. Just read your post . It's a small ( cancer) world. I actually had my last surgery at Newton Wellesley but not going to continue there . My oncologist is at DFCI now
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Hello all, It is so helpful to read about your experiences, thank you! I am also in a holding pattern that seems to go from one inconclusive result to the next. Started Dec 18th with routine mammo, which led to more mammos (BIRADS 4), u/s (BIRADS 1-neg), stereotactic core biopsy...BIRADS 4. the next step was going to be an excisional biopsy but I asked about MRI because I have extremely dense breasts and I wanted to know if there was more going on than just one spot in my R breast. Had that on Friday and got results yesterday. A "highly suspicious spiculated mass" in my R breast, another suspicious mass behind that one, and another one also in my R breast, and --surprise!--a suspicious mass in my L breast too. BIRADS 4
Scheduled for focused u/s with possible guided biopsies--on Monday. If the biopsy is + I can at least have one surgery instead of several, right? Now I am nervous about continuing with my (general) surgeon and wondering when I should find someone with breast specialty.
Another issue is my insurance which is a pretty limited network, so even though I'm in MA, I don't have access to the great hospitals east of Worcester. I may be totally jumping the gun, but with all those masses in there, I want them out no matter what. Mom had breast cancer twice, at 50 and at 76 but still with us and doing fine.
I'm having some issues with anxiety, hard to get to sleep at night.
Karlyrie, I really hope you have good news, and soon.
MLP3, it sounds like you have a great team, I'll be thinking of you on Friday.
JRowe, it's great that nodes and margins are clear. that must be some relief.
Good luck to you all.
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Wow reflect what a good call on your part.
Have you had genetic testing ?that would be a good call also.
What about UMA Medical Center in Worchester?
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Hi Ddw79,
I was very pleased that the surgeon immediately agreed to the MRI when I suggested it. I have not had genetic testing (and neither has my mom). That may be down the road after we find out exactly what's going on with these tumors. That would give more info for treatment/prevention. Still could be nothing, perhaps I'll find out more on Monday. Or perhaps not. (that's what's making me crazy) I do think UMass Medical in Worcester is my #1 choice (and it's in my network).
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