January 2016 Chemo!

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  • robyn31024
    robyn31024 Member Posts: 51
    edited January 2016

    jenscott have you found anything that helps with throat? That's my most aggravating thing right now. Feels like strep at bedtime and can't sleep. I think maybe it is so dry and thats the problem. It's better during the day when i am drinking a lot. And i am a mouth breather at night . Magic mouthwash helps with a few ulcers i have had but does nothing for throat. I am going to try the biotine mouthwash tonight and see if makes a difference. I even took a pain pill so maybe could sleep and nothing. I am thankful no major issues though. my labs are do in am so i guess i will see how i am doing without getting the neulasta! Crossing my fingers.

  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2016

    Robyn, I'm sorry to say that I didn't find anything that brought relief for the sore throat. Tea with honey, warm jello, gargling with salt water - none of it helped. I'm notw10 days since tx and it's all better finally. I'll ask the chemo nurse when I go next and see if she has any ideas. Hope you can find some relief.

  • Mena4911
    Mena4911 Member Posts: 49
    edited January 2016

    Hello Ladies, I am starting TCHP on Jan. 19th.

  • zinny
    zinny Member Posts: 281
    edited January 2016

    Hello all - gearing up for round 2 on Tuesday!

    RE sore throats - some of it might be related to acid reflux? I woke up with weird dry back of the throat pain one morning and then later that day had heartburn all day long - at first it didn't feel like a heartburn thing because the sore throat was the only part that was sore. I took Zantac and it went away….plowed through almost a whole roll of TUMS before I got the Zantac in me though!!

    I skipped my claritin one day during neulasta and had this weird chest pain/discomfort - that I think is the sternal pain people talk about. Got myself downstairs at 3am and took that claritin, and didn't feel it again.

    I have a really weird rash today on my chest and back - kind of like little blisters, perfectly round, not really itchy. Seeing the onco tomorrow. Weird as it is day 14 post drugs...

  • Wendiwithani
    Wendiwithani Member Posts: 108
    edited January 2016

    Just taking a moment to check in with all you lovely ladies! Please know that I read every post here, then stop to send a prayer/positive thought your way. We are all In this together!

    Had my first round of chemoon Wednesday...took about six hours resulting in no allergic drug reactions. Felt a little fluish on Thursday. By the time Friday rolled around, full blown flu like symptoms, like it hurt to blink...seriously not kidding there. Feeling much better the last two days but still weak. Other side effects I've had include heartburn, joint pain (no Nuelasta), lack of appetite and food tastes funky. All typical SE from what I've read here. The only thing I'm concerned about immediately is my weight loss. I've lost six pounds in four days. I'm eating but can't eat much at once. I am not a small girl and could stand to lose about 25-30 pounds for my health...just not so quickly.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Neulasta + Claritin update

    Took Claritin the day of my Neulasta shot, and for nine days after, so 10 days total. I had very little bone pain...my legs got a bit achy late at night sometimes but nothing I couldn't manage with a little Tylenol, the worst night was day 8 post Neulasta, so I'm glad I didn't do just 7 days!

    Yesterday was my first day not taking the Claritin, obviously I was a bit scared, but no problems at all (and Iworked out and swam yesterday!)

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    zinny those sound like hives. Hope you find out soon and no more issues.

    Wendi I hope this cycle only gets easier. maybe try adding some smoothies or boost/ensure to your diet?

  • onehumpedcamel
    onehumpedcamel Member Posts: 10
    edited January 2016

    Starting AC in 3 days (4X21 days) then T (12X7 days). Neulasta also, not too crazy about that... I have palpitations already and this scares me a bit. MUGA scan in 2 days, orientation tomorrow. My calendar has never been this busy! Well, adventure awaits!

  • Jinx27
    Jinx27 Member Posts: 238
    edited January 2016

    Happy Monday!

    How is everyone?

    Im currently getting my port flushed prepping for AC#2. Should be done by mid afternon. My white blood cell count and hemoglobin were great. I think it's due to taking my iron and daily multivitamin capsules.

    I'm anticipating some nausea today but want to stay ahead of it, the nurses are giving me my drugs before chemo; Dexamethasone, Aloxi and something else....can't remember.

    This weekend I had some bodily hair begin to thin out, as well as hair on my head. I think I'm gonna get my hair cut very low soon.

    Happy to see everyone on here, Im glad we all have each other.

  • onehumpedcamel
    onehumpedcamel Member Posts: 10
    edited January 2016

    My sister who's being treated for both recurring breast cancer and colon cancer is starting her chemo this week as well. She got anti-nausea meds to take before treatment. I don't know what they're giving her, but I bet it's quite a cocktail. It's in Europe, they probably have different recommendations there too. Did any of you get meds to take before starting chemo?

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited January 2016

    port placed this morning. It was quick but I think the lumpectomy wasn't as sore as this. My 3 boys got up early and went with me. First chemo is this Friday. I hope everyone is doing well with their treatments

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    buttaflydiva, we'll be thinking of you! Please keep us posted.

    onehumpedcamel, there are indeed anti-nausea medications that are prescribed pre or during treatment. We hope that this is helpful to your sister!



  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    took a little more off the top. Yesterday I was getting ready to go swimming, shaving my thighs and bikini line, and thinking "come on chemo do your job"!


    image

  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    I was just wishing there was a like button for your pic LovesToFly

  • Martini
    Martini Member Posts: 30
    edited January 2016

    Well lovely ladies it looks like I will not be joining you for chemo this month. I am waiting for the results of the Oncotype and have decided to obtain a seek a second opinion on treatment. That is scheduled for January 29th.

    Because I haven't started treatment I didn't post very much as I had nothing to add, however, I have read all your posts and feel like I know each and every one of you.

    Thanks for all the great advice and good luck!!

    X Marilyn

  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    Don't give up hope MissBee! My husband was diagnosed with testiclua cancer a few months after we got married, so we had to. Go through IVF. I didn't get pregnant until I was 34.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    good luck martini. Feel free to stay in touch, here and via pm, if you end up doing FEC-d!!!


    I'm sorry miss-bee.

  • sarah_sunflower
    sarah_sunflower Member Posts: 47
    edited January 2016

    Hello warriors,

    Day 7 , I woke up feeling little more energy than the last few days. Have been having a strong headchade for about 3 days now. Is this normal just before I start loosing my hair ? I took some Panadol before bed last night which help me sleep a few uninterrupted hours.

    My chest pain is better after i tried some deep breathing exercises and stretching as much as my aching bones allow.

    Thanks everyone here! xoxo

  • DoxieMomof3
    DoxieMomof3 Member Posts: 14
    edited January 2016

    buttaflydiva, I know it about the port!! Mine was extremely sore especially the next day! I could barely move my neck but it was really much better the 3rd day, so hang in there

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    I had some headaches on and off, but nothing specific, also I am now 13 days past chemo and have not lost my hair though when I scratch my head there is a bit of shedding, so I guess it's coming. My scalp doesn't hurt (will it??

    I'm feeling pretty well normal now, I even went to yoga today, and look at the picture my teacher took (as you can see, yoga for me is not a relaxing work out, I practice pretty intense yoga!):


    image

  • Mena4911
    Mena4911 Member Posts: 49
    edited January 2016

    Hello, I start TCHP in the morning. So nervous! I had port placed on Friday. I was super sore in chest and neck until this afternoon when I started the steroids before chemo. Steroids seems to have relieved some of the inflammation. Now hoping I can sleep some tonight. Sending out good thoughts to all the ladies here.

    Onehump, sorry to hear your sister is going thru this again! My sister is a breast cancer surviver as well. She was diagnosed in Jan 2014 and she is 2 years younger than me. Did ya'll have the gene testing? Sister did and was neg. Her bc was ep+ and Her2- and mine is exactly opposite. ep- and her2+. Strange critter this cancer!

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited January 2016

    Popping in from September. I had a bad headache my first round. For the second round we decided to skip the Zofran because that can cause headaches. I ended up in the hospital after round 3 and they gave me Zofran and I got another headache, so Zofran and I don't get along.

  • ladyhumps
    ladyhumps Member Posts: 79
    edited January 2016

    Nice pic LovesToFly

    With my port I was in a lot of pain. Several people had told me they were fine the same day. Wasn't meant to be that way for me. It sounds funny bit it seemed a lot less sore the day after treatment.

    Any one have bloating with your treatment? I had 2 uncomfortable days of belly bloat, over it now though. SE or just coincidence? I didn't eat anything unusual for me.

  • Geeper
    Geeper Member Posts: 164
    edited January 2016

    Hi MissBee- Sorry for the late response to your 01/15 and 01/16 post!

    1/15/16- (my personal experience only) My 1st chemo treatment was on 01/11 and my oncologist did not order Neulasta or Neupogen for me. I had my blood work drawn on Friday (01/15) and my blood work was good. I am on Taxol and I have had no side effects with the exception of not having a menstrual cycle or so I thought. I was suppose to start on 01/12 but I was late. Well, I freaked out Friday night because I got my cycle and it was my standard heavy flow. Since, I did not get a Neulasta shot, I ate a lot of beets this weekend to help boost my immune system and for folate (cell growth). I also ate broccoli to help with my potassium levels. Drank a lot of Hot Ginger tea (cut a several quarter size chunks and boiled) to help with the heavy flow and it worked.

    My labs were good today and I was able to get chemo. I also refrained from going out this weekend and when I did go out, I wore a mask for protection. I am feeling good today. Today was my 2nd chemo treatment and so far so good (knocking on wood).

    Based on your post it seems like you eat lots of veggies and fruits already. Eating the veggies and greens, such as kale, broccoli, spinach, tomatoes have helped me out. This seems to be working for me. I have more energy now than I did prior to my diagnosis and this is with no caffeine. I was a coffee drinker and loved junk food. I have given all of this up and I feel fantastic. I also avoid big crowds and wear a mask if I need to go out. I also carry wipes, a little bottle of lysol, hand sanitizer for extra protection. I know it's crazy but I am taking extra precautionary steps.  

    I am so sorry that you have to put pregnancy attempts for at least another year and a half. Please know that it is all going to work out for you in due time. I am sending you prayers your way.   

    ____________________________________________________________________________

    Hi jenscott- Sorry for the late post! This is in response to recommendation for minor case of thrush. I would recommend the ACT dry mouth Lozenges. I take one of these during my chemo session and at night. I also do the Biotene rinse 3 times per day and I have had no problems. I've heard that apple cider vinegar (Bragg's Apple Cider Vinegar) works well for thrush. I have not personally tried it.  

    I unfortunately do not know of a nose soother, I am sorry! I use to do the cotton swab and lubricate my daughters nose with Vaseline, which is a big no, no. I use to do a lot of things that I no longer do. I replaced my cleaning supplies with non toxic ones (I use to sue this product called "Awesome" and it should be called "Awful") ,play candy crush and place my phone on my breast that now has cancer etc... Real eye opener this has been!

    ____________________________________________________________________________

    To all my BC sisters and brothers- I wish you the best with your treatments! Sending everyone here virtual hugs, we can do this!!!! 

  • Mena4911
    Mena4911 Member Posts: 49
    edited January 2016

    Geeper thanks for the tip about the Act Lozenges during chemo. My dentist recommended those as well but i did not know to use during chemo treatment actually. Putting those in my bag now. Dentist also recommended Biotene or epecially something called SPRY. I have not found the SPRY yet at the store. I will check the pharmacy. Has anyone used that?

    I had ECHO with Strain and the cardiologist called after and said my heart looked great and can start chemo tomorrow. He explained that he would watch me close and start me on medications to protect my heart immediately if indicated to protect my heart function with the goal of not having to stop chemo treatments due to lowered heart function. He said this will be cleveland clinic protocol. i feel pretty good about this plan.

    Skittle, glad you mentioned the headache with Zofran. I will keep that in mind and request something different if i get a headache and Zofran is in the mix. So many things to consider and remember, and learn. The info on this site with this bunch of wonderful ladies is amazing!

    i will try again now to get some sleep. Tomorrow is the day i get to start fighting this beast! Well it"s actually now today! Pleasant dreams everyone!


  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    sarah_sunflower are you taking Zofran? It gives me a terrible headache, but it's better than nausea (I guess). I am 11 days out from my first treatment and woke up with a headache without Zofran so maybe it's has to do with upcoming hair loss?

    Has anyone else getting TC experienced hair loss yet? The anticipation of when it will start is driving me crazy. I even almost convinced myself it might not happen...delusional I know

  • Rockstarteach
    Rockstarteach Member Posts: 20
    edited January 2016

    Paulinek I feel the same about the hair issue! You wait and wait and now I think maybe not this round...even though I know it will happen!

    Miss Bee I hope you know you can always vent here! I can't even imagine the pain and sadness you are going through. I will pray for piece during this time. Jeremiah 29:11

    Keep fighting pink ladies

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    paulinek I am on a different regimen, but have the same feeling. I am now two weeks past chemo, my hair still feels pretty solid, if I scratch and a couple pieces fall out but nothing more than usual I don't think! As much as I don't want my hair to be gone, I also just want kind of want to lose it already and move on. Yes a part of me that I know was delusional keeps thinking that maybe I just won't lose it, and even though it's a nice thought I know it's not true so I'd rather just start losing it and blast that false hope away.

    I am quite ready to lose my bikini line and random chin hairs though

  • Rockstarteach
    Rockstarteach Member Posts: 20
    edited January 2016

    I spoke too soon! I just got in the shower and a ton fell out! Day 14 exactly! I guess I'll be going G I Jane soon

  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    sorry to hear that rockstarteach, but at least you can take some control now.

    LovesToFly, that made me laugh. I also keep thinking "is the the last time I have to shave?

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