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phrogger78
phrogger78 Member Posts: 115
edited February 2016 in IDC (Invasive Ductal Carcinoma)

So today I went to the oncologist for the first time and start a treatment plan. Unfortunately I do not have a plan at this moment because the PET scan showed activity in my lung. I have to have a biopsy of my lung now and that will be another wait and see. I am trying not to stress out just yet. The Dr. and I discussed the very real possibility that it could be Valley Fever (coccidioidomycosis) instead. So again I am in the wait and see. Do I have stage 2 or 3 breast cancer or do I have stage 4 is the question I can't get answered yet. Do I have the chance at a cure as my Dr. said, or do I have to approach it as treatment. This limbo SUCKS.

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  • badger
    badger Member Posts: 34,614
    edited January 2016

    hi phrogger78, I agree that limbo sucks. No advice, just some gentle ((hugs)).

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  • etnasgrl
    etnasgrl Member Posts: 650
    edited January 2016

    (((Hugs))) Limbo DOES suck and I'm sorry that you're stuck there right now.

    I hope that you can get some much needed answers soon and begin a treatment plan! Please let us know the results.

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2016

    Also sending you hugs and more hugs . We too wish you quick answers, and much strength. We're all here for you!


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  • phrogger78
    phrogger78 Member Posts: 115
    edited January 2016

    Thank you. I really was fine with all of this until today. It is just the unknown that is hard. I just want to know what to prepare for with treatment, with school (I am in nursing school). Thoughts like should I even bother finishing have been going through my head of course, but I don't want to quit, I want to continue. I have a very young son (6) and teens and I want them to be prepared for the journey ahead of us. I know a week or two of waiting won't kill me (mentally I mean) but it is sucks.

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  • ayr1016
    ayr1016 Member Posts: 228
    edited January 2016

    phrogger78 {{{hugs}}} The waiting is a beast. Please keep us updated.

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  • colls12
    colls12 Member Posts: 8
    edited January 2016

    hope its all ok my doc also told me mine is curable. you must be so worried, let me know how it goes

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  • GypsySue
    GypsySue Member Posts: 17
    edited January 2016

    Yes, the limbo sucks! I was very jumpy and nervous during the one month it took to get a definitive diagnosis. I took lots of long walks which really helped. I hope the best for you!


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  • phrogger78
    phrogger78 Member Posts: 115
    edited January 2016

    Thanks all. I have been pretty strong this whole time, since the initial diagnosis, but now, I am actually finally scared. I know I need to wait for the biopsy and see what it says, I really hope it is valley fever and I am only a stage 2 and I will kick this cancers butt. However today I looked on the portal from my oncologists clinic that I am stage 4. (that is what it says in my diagnosis). I didn't want to see that, not until we knew for sure that this is what we are dealing with. It is just like a punch in the gut. I am still too scared to even look into what stage 4 really means for me long term, its just a scary word that I don't know if I am ready to hear yet.

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  • DiDel
    DiDel Member Posts: 1,329
    edited January 2016

    hugs phrogger...waiting is the worst. I was recently diagnosed with a chest wall recurrence and I had to wait a month or so and two tumor boards . .my onc and bs are from 2 different facilities ..so they were going back and forth between stage 1 and stage 4 recurrence . ..lots of discussion but finally decided stage 1 recurrence . .try not to let what you saw consume you until your Dr goes through results with you.

    In the meantime you'll find lots of support and good information here..


    Hang in there

    Diane

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  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited January 2016

    I would call the doctor right away (don't wait for an appointment) and ask him/her to clarify this. It is outrageous that stage 4 could be listed on a site that the patient had access to. I'm sure this is an error, but do call right away. So sorry you have to go thru this. Thinking good thoughts for you.

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  • phrogger78
    phrogger78 Member Posts: 115
    edited January 2016

    It is stage iv unless the biopsy comes back as valley fever. It isn't incorrect with the information we have at the moment. It is just crappy to see it. I know it can be changed, but it makes it all that much more real that this is truly a possibility.

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  • Mamiya
    Mamiya Member Posts: 432
    edited January 2016

    phrogger, hang in there. I know people who have been living (and living well) with lung mets for YEARS, so if that is what it is, you can still do well.

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  • MyWalk_113
    MyWalk_113 Member Posts: 6
    edited January 2016

    I hope you're ok, my friend. Sending hugs .

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  • phrogger78
    phrogger78 Member Posts: 115
    edited January 2016

    I had my lung biopsy today. it went very well, no complications and I'm home ready to rest for the rest of the night and tomorrow I have school. I will get the results of the biopsy on tuesday at my next oncology appointment. So keep your fingers crossed for fungus in my lungs.

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  • New-girl
    New-girl Member Posts: 358
    edited January 2016

    Hope you get some needed rest. Tuesday please come quickly!

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited January 2016

    Waiting for results is fun....just about as much fun as an enema! Bah Good luck

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  • BethL
    BethL Member Posts: 286
    edited February 2016

    phrogger-so sorry you had to go through that. Virtual hugs to you. Waiting stinks! Wishes coming your way for good results .

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  • Kimm992
    Kimm992 Member Posts: 135
    edited February 2016

    Just wanted to check in as I know you were getting your results today.

    Xo

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  • phrogger78
    phrogger78 Member Posts: 115
    edited February 2016

    So my appointment was rescheduled for Friday, they just said that the Dr was going to be out of the office today. That was all. I am just ready to know one way or another.

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  • badger
    badger Member Posts: 34,614
    edited February 2016

    oh how frustrating! ((Erin)) we are waiting with you.

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  • dismay15
    dismay15 Member Posts: 343
    edited February 2016

    Wishing you the best of luck - keeping my fingers crossed

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  • phrogger78
    phrogger78 Member Posts: 115
    edited February 2016

    It is metastatic, I have a metastasis in my right lung. Not the news I wanted, but I will get through this.

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2016

    Erin, I am sorry. Cancer stinks !

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  • 2timer
    2timer Member Posts: 590
    edited February 2016

    I'm very sorry about the new Dx. You are right though -- you *will* get through this. Even though I was treated for stage II, I tend to take every day as it comes and I live much more by the moment. I will pray for you and your family.

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  • badger
    badger Member Posts: 34,614
    edited February 2016

    ((Erin)) thanks for the update. Not good news but at least you know and can formulate a tx plan.

    Stupid effing cancer.

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  • ayr1016
    ayr1016 Member Posts: 228
    edited February 2016

    Erin, I am so sad to hear your dx news. I have been thinking of you. I know you will get through this. Something else to think about (or keep in your back pocket for future treatment) is that there is some newer information in regards to immunotherapy for treatment. It isn't commonly available (yet) and they are still doing trials, etc. I have a very close friend who has stage 4 (melanoma - mets to brain and stomach) and is doing really well in her immunotherapy trial. Like, really well. She is 2 years past diagnosis when they said 4 months. I have seen a few threads on here about immunotherapy and BC. I *think* (but not 100% sure) that it is only available to stage 4 so far. But, I could be wrong on that. Lots of hugs and strong wishes of strength and peace coming your way......

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  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    I'm so sorry , Erin. I'm sending you good wishes for peace, comfort and courage. My aunt was diagnosed with stage IV 18 months ago and t that time she was given 2 months to live. She had mets to the bones, lungs and liver but she's doing great. No signs of liver problems, no breathing problems. Last time they checked her tumors had stopped growing. We've been making soap together once per week and she's feeling strong and in very good spirits.

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  • phrogger78
    phrogger78 Member Posts: 115
    edited February 2016

    Thanks Angela, my oncologist actually mentioned immunotherapy and said that will be a course of action we will take next if the hormone therapy isn't effective, but it is great to hear others discuss it as well. He seems almost excited if that is an appropriate term, to have a younger woman in with stage 4, he said most of his patients are post menopausal and there is only so much he will push them (many being 70+) but he said with me, he can be MUCH more aggressive with the treatment. He is still looking for more trials for me and said he will try to put me in something as soon as he finds some.

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  • Mamiya
    Mamiya Member Posts: 432
    edited February 2016

    Erin,


    Where do you live? There are quite a few trials you might qualify for!

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  • ayr1016
    ayr1016 Member Posts: 228
    edited February 2016

    Erin, so good to hear how eager and excited your MO is about your treatment - sounds like you are in very good hands indeed. My MO was thrilled to tell me about what advances and knowledge has been learned in just the last 5 years and is even more excited about what is going to happen in the next 5 years (results of some of the trials that underway that will be coming in the next few years). I think the immunotherapy is such an important and amazing advancement. Keep us updated on what trials you will do.

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