Survivors not on these boards

Honeytagh · January 2016

Hi everybody

Let's talk about all the survivors that have managed to overcome this disease and have been NED for many years. A lot of them are not on these boards. By sharing the stories of the long term survivors that are not here we can give each other some inspiration .

I want to begin with the stories of four ladies. I met three of them at the clinic who were more than 10 years beyond diagnosis without recurrence . The other lady was my daughter's friend's grandma who died 27 years after her diagnosis because of an unrelated disease.

Hanieh

ksusan · January 2016

I know many, but I feel strongly that if they wanted their stories shared here, they'd share them themselves. I don't feel comfortable telling other people's stories without their permission.

Fallleaves · January 2016

Hi Hanieh,

My oncologist had breast cancer 17 years ago, but is now healthy and helping many women fight the disease.

Laura

Yolo123 · January 2016

By sharing NED inspirational stories, we r not invading anyones privacy ... We dont know who they are lol .. I do know we are all sisters though.. Anyhow, my moms friend is 22 years out stage 2, another acquaintance is 12 years out stage 2, i know someone else that is 8 years out stage3 aggressive

exbrnxgrl · January 2016

Personally, as long as we're not using names or identifying details, I think it's fine

Yolo123 · January 2016

exactly

littleblueflowers · January 2016

My great aunt had breast cancer at 50, still going strong at 101. Great idea for a topic!

Honeytagh · January 2016

Thank you all for your replies. If we know how some people managed to overcome it we feel stronger in our battle. Unfortunately the great majority of the ladies on these boards are in the middle of this battle or have recently finished treatment. Long term survivors seldom appear here.

Yolo123 I, too,strongly believe that we are all sisters who can support each other.

Love

Hanieh

ruthbru · January 2016

My aunt had BC in the early 1960s. She had a radical mastectomy & nothing else (that was all the treatment offered to her at the time). She died 30 years later at the age of 88 without ever having a recurrence.

Another acquaintance was in her mid-30s with three small children when she was diagnosed. She underwent treatment, waited 5 years & then had two more kids. All are grown up now and she is a grandmother many times over. She remains cancer free to this day.

Englishmummy · January 2016

love, love, love these stories - hope they keep coming. Little blue - 101! Wow. Although, 88 also sounds pretty darn good!

leaf · January 2016

My grandmother had breast cancer in the early 1950s. In this era, there were no mammograms, no chemotherapy and no radiation, so I assume she had a breast lump. She had bilateral radical mastectomies. She lived another 25 years until she was in her late 80s, no further signs of cancer, and died of a totally unrelated cause.

In this 1953 paper, if I'm reading this right, in a woman with a radical mastectomy for unilateral breast cancer, about 25% of the women lived for 15 years or longer. I'm not sure (I'm no statistician) they take into account that women who survive for 40 years after a radical mastectomy (and no other breast cancer treatment) have a good chance of dying from something else besides breast cancer. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1802815/?page=4

funthing42 · March 2016

Probably getting bitter . Curious as to why Onc's just don't stick to what works and be a little more on the ball with the individual. Roll up the sleeves and take time to palpate. But gosh there are so many breast cancer patients how do they keep up.

It seems like there are many ladies that had the longest remission when treated before 2004. Hmmmm.

And wow let's Honor Nancy Regan love to get my hands on her path report.

Me Survival x 4 since 2009 rock on ladies.

4th time not listed below waiting for them to figure out a treatment plan .

Survivors not on these boards

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