Lumpectomy Lounge....let's talk!

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  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    Did anyone have pain with positive lymph nodes? My IDC is exactly at the 9 o'clock position on my left breast but I have pain that started a few days ago at 2 o'clock near my armpit area. It couldn't still be radial pain from a core biopsy that was done on 12/23...? Sometimes it feels sharp.

    My mo felt one node that was small but she said that could be anything.. A cold brewing etc... But I'm not sick.

    Lovestofly- will you have rads after chemo

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    my lymph node hurt, however that might've been in my head. The very first ultrasound showed some swelling there, so right from the start I had a sense that there was lymph node involvement.

    Yes I will be doing radiation, and then hormonal medication. The oncologist said I would probably start with tamoxifen, but might change to the other one after a couple years if I tolerate tamoxifen well and I'm OK with inducing menopause

  • bella_16
    bella_16 Member Posts: 14
    edited January 2016

    Thanks everyone for all the comments. I"m still waiting on the final path, and I wasn't informed if a HER2 or an oncotype was being done. I'm sure I will find out in the next few days....It's such a comfort learning about all of your situations. Thanks all!! And Pegg, I'm in Sterling Heights.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Bella_16, You're right next door since I'm in Pontiac. If you want to meet some of your BCO sisters next time we get together, let me know. We'd love to have you. What facility have you been using for your treatment?

    I'm sure an HER2 is being done. Since you are ER-/PR- you won't be taking Tamoxifen or Arimidex (or its sister AI's). I would guess you will have radiation since most of us do after a lumpectomy.

    Thank you for updating your profile!

    HUGS!

  • ayr1016
    ayr1016 Member Posts: 228
    edited January 2016

    Hello ladies. I will be having a lumpectomy soon. My surgery has not been scheduled yet. Everything was going so fast in the beginning and then it came to a somewhat screeching halt after I saw the surgeon a week ago Thursday. But, things seem to be on the go again and I see my MO this upcoming week with hopefully my genetic testing, chest x-rays, labs, and EKG done as well. I am beyond nervous about this surgery. I posted another thread about Proton Therapy instead of Radiation after lumpectomy. Anybody have that by chance? I know it is somewhat new with breast cancer, but a new proton therapy center opened up near me in November (what are the odds that it opened a month before I a was diagnosed, ha). Anyhow, I'm having problems getting feedback. But, I'm looking forward to what my surgeon and MO have to say about it. A little about me: I'm in the Dallas area and a single mom to three kids. I'm currently sipping my daily Jasmine pearl green tea in a cup that has the words "JOY" written all over it.

    MLP3 Will you get your genetic testing back prior to surgery? Also, I absolutely have pain in and near my armpit still after my core biopsy and that was over a month ago. I still have light bruising and had a hematoma on my breast.

    I hope I found my "spot" on the board here :)

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Ayr1016, Welcome to the Lumpy Lounge! Please make sure you put your location in your profile and make it public. I know we have other Texas gals hanging around.

    So far, I'd say you were right on schedule. I had nearly 7 weeks between diagnosis and my Lx. Most are about a month or so. Nice that you are getting all the testing done now and I would think that's why you haven't been scheduled for surgery. The results could change your treatment path. Sorry that I don't know anything about Proton Therapy. BTW, I still had bad hematomas on my surgery date from the original biopsy done 7 weeks prior.

    Keep us posted!

    HUGS!

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    ayr- I'm hoping to get my results from genetic soon. Believe it or not, but there is only one lab in this entire country that does it. That's ridiculous! And of course I'm told that they are a bit behind after the holidays.

    If my testing comes back positive, then it's bmx for me on the 26th😕

    Try to focus on surgery being the start of treatment and getting in a road to recovery. I'm actually excited for surgery... Get this out and let's get on with treatment! I've had major neck surgery and TVH with bladder sling within the past 5 years, so I'm not nervous anymore about actually surgery. On the bright side... You won't have to worry about cooking, cleaning and laundry for a little bit

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    Seriously - one lab? Which lab would that be? Did you go through your doctor or on your own?

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Welcome ayr1016! Sorry you find yourself needing to be here but happy you found us. I did some reading on proton therapy but most insurance won't cover it because it's expensive. The closest one to me is a couple hundred miles away.

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    marjen... My med onc ordered the test and there's one lab for all and I think she said Utah...? I forget exactly but I remember she said there is one lab(Myriad) in the country that tests for BRCA gene .

    And if there's enough family history and you fall into a 10% risk or higher category, you can be tested and ins will most likely pay for it. It's about $1000.00. I had to meet with a genetic councilor before I could get it.

  • JerseyRenee01
    JerseyRenee01 Member Posts: 221
    edited January 2016

    ok i showered & my little breasts look good I mean of course bruised & swollen. Left one is swollen into armpit. I got the lift in both as well.So now took bandage off sentinel node biopsy. It hurts when shirt rubs. Suggestions?

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    Stick a soft cloth in your bra to keep the edge from rubbing. Or wear a t-shirt underneath.

  • JerseyRenee01
    JerseyRenee01 Member Posts: 221
    edited January 2016

    thank you marijen!!!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Renee- SO glad you are doing well. That uinderarm area seems to be a booger from SNB and rads. I tried a lot of things but found best thing to be my husband's undershirt. Cut a piece and folded it 2 or 3 times. Stuck it right under the bra edge and all is better! Hope you get some relief!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    RLM- how are you feeling? Have you been able to shower yet? Hoping you are resting and taking it easy!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited January 2016

    My genetic testing was done by Ambry Genetics here in the US. I had the 32-gene panel, which includes the BRCA genes, because of my very strong family history. In my case, the BRCA genes were fine but two other rather rare genes came up positive (PALB2 & Chek2.) PALB2 is the pathway to BRCA2 and it raises my risk to about 45%, which is in the BRCA2 range. As a result. I will be having BMX in Feb in an effort to reduce my risk as much as possible.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2016

    The breathing tube causes not just a sore throat but often a feeling of needing to clear it--if in fact you’re secreting more mucus it could be your body’s way of trying to increase lubrication to soothe your throat. But that severe upper-body soreness isn’t from lying around for a long time in an unnatural position: it’s called “scoline syndrome.” (“Scoline” being a nickname for succinylcholine, a powerful muscle relaxant given to facilitate intubation, especially in a tight or “crowded” airway. Immediately before the relaxation response, the muscles actually contract extremely powerfully--which results in the soreness). It’s usually gone by day 4 post-op.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    JerseyRenee, I wore sweatshirts a lot. Many of my shirts were cut too tight for my tender underarm. I wore Genie bras for awhile, then wore nothing (I'm tiny).

    HUGS!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    I wore a lot of loose tank tops that had the seam below my incisions. Also, when I found a got irritated I used some of the antibiotic ointment with lidocaine. My surgeon said that was fine

    I also have a few drops shoulder sweaters, the seam is on the arm instead of the underarm, they were more comfortable when I had to actually get dressed.

  • JerseyRenee01
    JerseyRenee01 Member Posts: 221
    edited January 2016

    Thank you, Ladies!!!! It is so nice to turn to here for some supportive advice!!

    I have only taken 2 Tylenol today & that was 9 am this morning. Tonight i will take tylenol pm. Feeling much better!!!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2016

    I cut up some old (washed) pieces of soft cotton (pillowcases & tees) and stuffed them into my bras as a barrier between the top edge and my armpit. The “P3” (“Protective Pillow Purse”) my BS’ nurse gave me (made by volunteers from ProtectTheGirls) also helped a lot--it had an adjustable velcro shoulder strap so that it dangled between my bicep and breast.

  • JerseyRenee01
    JerseyRenee01 Member Posts: 221
    edited January 2016

    thanks ChiSandy for all your help! At first I was unsure if I was to remove the big square tape over the sentinel area in armpit then my paper said to remove & let air out. My arm is feeling ok to move around & more a brusing feeling in the armpit.

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    MLP3, looking good for the Patriots in the 4th quarter. Happiness for the men at our houses!

  • 1step
    1step Member Posts: 110
    edited January 2016

    Hi, everyone. I was diagnosed in November and I am finally having surgery on Thursday. The surgeon's office told me the hospital staff would prepare me for my post-op care, but I'm a little worried what I need to have ahead of time. I've read the list on the other thread, but it seems more appropriate for full mastectomies and dealing with hospital stays. My procedure will be done as out-patient. I'm having a lumpectomy (lump is 1.5 cm, on the side and actually visible) with SLNB. The LNs will actually be sectioned while I'm anesthetized to determine if the entire chain needs to be removed. How much should I expect my mobility to be restricted? I've had surgery in the past, but both times it has involved my face, and I had to stick to soft foods, and have no idea what I'll be able/want to eat. Just looking for some guidance, thoughts, personal experiences. I know everybody has different reactions, but it would help to get some feedback. TIA

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Hi 1step! Glad you found our nice group. You will probably get a lot of different answers. My first surgery was early in the day, and I was at home heating up the dinner that my sister in law left in the refrigerator for us that night. My experience was that as long as I kept the ice packs on rotation and didn't try to raise my arm too high or lift anything heavier than a gallon of milk, I was able to do a lot. You will probably find that rest comes easily, so give yourself time to nap. The following week reaching out was a little painful, but I would forget about it until I actually reached too far. The surgeon suggested staying out of work for two weeks, though I was back in a week and worked most of the day.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    1Step, Welcome! We're sorry you're here, but you'll find we are comforting, warm and informative. This is the proper place to be since you are having a lumpectomy. Among other things, you'll want front close or step-in bras to wear for a couple weeks (maybe longer). You might also want to have some front close tops. Most of us find the SLNB incision to be much more bothersome than the Lx incision since everything seems to rub it. If you are given a prescription for pain pills, do fill it. You may not need them but take them or an NSAID to stay ahead of pain.

    I was given a Valium first thing when I arrived at my cancer center and I readily took it. Then not too long before surgery I was given a Dramamine (no one else here seems to have gotten one) against anesthesia nausea (and I wasn't nauseous). You'll be able to eat whatever sounds good. And you'll want to drink a lot. You may pee blue from the dye they use for the lymph nodes.

    You'll want to rest a lot. If you can take 2 weeks off work that seems to be ideal. Even though you will likely feel good, your body needs for you to rest so you can heal. So take it easy but walk when you're ready. You also will be limited as to how much weight you can lift with your "bad" arm, usually nothing heavier than a gallon of milk. I find that my arm still is unhappy if I lift too much weight with it. Others may have a different experience.

    Keep asking questions!

    HUGS!

  • JerseyRenee01
    JerseyRenee01 Member Posts: 221
    edited January 2016

    Hi 1Step:

    I had my Lumpectomy, SNB & a lift on both breasts on Thursday. I didnt get home until probably 6:00 from being there since 7:25 am. I had the wires placed by MRI when I got there than a couple mammo pics. My surgery didnt happen til closer to 2:00.It was a 2 hour surgery cause I got the lift too. I found out I got sick from Anesthesia & threw up twice when got home. This was my 1st surgery too. So I couldnt eat anything that night. Everyone is different for sure. So today, 2 days later is a much better day. I took bandages off & showered. Eating fine yesterday. Switched to regular tylenol today from Percocet and only taken 2 so far today.

    Wishing you lots of luck! We are here for you!!! 😘


    Ohh & i happen to ask my nurse practitioner about the bra. She handed me a script for it. I went down to the boutique in my hospital & my insurance covered 1/2 so cost me $20. Walmart also has the zip up sports bras.

  • bella_16
    bella_16 Member Posts: 14
    edited January 2016

    hi 1step--

    I agree pretty much with the rest of the girls here....I had surgery on Wednesday. The snb incision is by far the most bothersome. A good sports bra with a cotton pad over the snb incision helps a lot. By day 2 I was off narcotics and just using tylenol and ice. Arm movement is coming along. Everyone on this site is awesome, comforting, and has great advice!! They have been so helpful....good luck and welcome!



  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    hi 1step. I had a lumpectomy and sentinel node biopsy in late November. I did not have a lot of trouble with mobility, by the second day I was able to reach with my arm, not as high as my left arm, but definitely high enough to do something like get a glass from a shelf or whatever. I Did not have a lot of pain after surgery, however as others have said the under arm was a bit more irritable, I think because it got moved a lot and everything touches it. I wore soft cotton bras with straps wide enough to step into for about two weeks, I got them at the gap and Walmart. After that I was able to wear my looser older underwire bras, because my breast was still quite swollen and they were stretched out a bett after that I was able to wear my looser older underwire bras, because my breast was still quite swollen and they were stretched out. I am now 1 1/2 months past surgery, and can wear any of my bras!

    After about two days I was OK to put clothing on over my head, until then I work tank tops I could step into with cardigans over them, just because I don't like button down shirts and didn't want to buy any! I arranged for two weeks after work, but I was actually able to go back after one week. That said I'm glad I had planned for two, because I know it could've gone either way, especially if I had had atheroma or infection. Luckily I healed quite nicely with no complications.

    I'm now a month and a half past surgery I have no mobility issues, my underarm is a little bit numb but I don't really notice it except when I shave (carefully). I am able to weight lift again (not heavy lifting, just 10lb hand weights) , and can even do a handstand (Iam big into yoga, when I got surgery I read so many things about people who had issues with that arm, I was really worried I would never be able to do some of my favorite pose as I can, but I'm OK)

    My biggest problem after surgery was the anaesthesia getting out of my system, I felt weak and queasy for about a week. My understanding is that's a bit unusual, but you say you've had surgery so you probably know what to expect in that regard, I had never had surgery or general anesthesia before.

    Good luck!!!!

  • Sloan15
    Sloan15 Member Posts: 896
    edited January 2016

    Hi 1step - Don't buy much; I didn't use anything I bought. Get things only if you need them. We always say expect no side effects or problems, and deal with them if you get them. My advice is to keep the bandages tight and then wear a soft shirt UNDER a really tight sports bra after surgery. I had no problems. Good luck!

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