Starting Chemo March 2015

Options
1348349351353354390

Comments

  • rleepac
    rleepac Member Posts: 755
    edited January 2016

    My musings for the day...

    14-yr-old girls are difficult to raise! My DD is great 90% of the time. But the other 10%...OMG!!!! She is so independent and stubborn that she won't listen to me and she loves to argue. I swear she will make a great attorney some day because she has an argument for everything. Sometimes I just look at her and wonder where I went wrong LoL. Other times I am beaming with pride at the lovely young woman she is becoming.

    My chickens are finally laying eggs. I had to start with a new batch of chicks about six months ago and they have finally hit egg-laying maturity. I love going out to the coop and collecting eggs every day. It just reminds me of a simpler time. Plus eggs are getting expensive so it's nice to get a little break there.

    We did a game night last night and played a new game for about an hour. Had a really good time with DH and DD. Then the phone rings and it is someone wanting a donation for breast cancer research. I politely said that in the past year I've already given both my breasts, over $8000, and countless hours to breast cancer and I just don't have anymore to give. She wouldn't give up and kept asking for smaller and smaller dollar amounts so I hung up on her. I don't usually hang up on people but she just wouldn't take no for an answer. The thing that pissed me off the most is that after playing a game with the family I managed to forget about cancer (for an hour) and then she had to go and remind me!

    That's all...just rambling because I'm bored at work :)

    Beka

  • Trvler
    Trvler Member Posts: 3,159
    edited January 2016

    Sometimes I just look at her and wonder where I went wrong LoL. Other times I am beaming with pride at the lovely young woman she is becoming.

    That's sounds about right, Bekah.

    Ha. She thought she had a live one with you. I give to NO ONE who calls on the phone. I got one today from some police thing. If you research them at all, they only give a really low percentage to the charity. It's all a big scam. I now give most of my donations to BC.org, a ver worthwhile cause, IMO.

  • eheinrich
    eheinrich Member Posts: 792
    edited January 2016

    Today is my cancerversary. I'm ok with that. Except I have a pea-sized lump under my jaw line......I'm going to try to get an appt with my primary doc on Monday since I'm off.

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    Eileen, Congrats on pushing through the first crappy year! The cancerversaries bring a lot of emotions. Hoping the lump is just a swollen node from a cold or something.

    MO appointment tomorrow. I know it'll mostly be routine. Only one issue to bring up (spotting) which I hope he'll let me just have my gyn address. I want it to be a routine, drama free appointment with no follow ups other than see you in 3 months. I have a cold, so if any blood counts are off, I'll blame them on that! I think they'll all be good though, because they'd normalized last time.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited January 2016

    E- what a year, eh? You made it. I had so many emotions last month. Let them flow and enjoy your new job. In your pocket for that stupid GD lump tomorrow how annoying that it just never ends.

    Karen I hope tomorrow is the most boring dr appt EVER!!!

    Hugs to all had my second cataract preop today. Procedure is Friday. Much less nervous this time.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    No jaw lumps, darn it! No more scary stuff! It's from a cold, cause I say so.

    Kbee...here's to a boring Dr appointment. Keep us posted, k?

    Katy, so glad you aren't too worried about your eye appointment. I'm excited for your returned vision!

  • Carrie37
    Carrie37 Member Posts: 331
    edited January 2016

    Hi all, I've been thinking of everyone. It am behind in reading far back posts. Eileen, thinking of you today. I do like having some of you as friends on Facebook! It reminds of the only good to come from my cancer which is our new friendships/bonds. I'm looking forward to someday meeting all of you. We are getting ready to travel to Florida for a soccer tournament and Disney/Universal. It was hard to give myself permission to go on vacation after all the time I've been off work but I am pretty sure I deserve a nice vacation! We all do for that matter! Maui is a dream for me....enjoy. 😊 Has anyone else flown with TE's? Just not sure what to expect at airport security. I have a notefrom my doctor.

    Warm hugs to all!

  • SueH58
    SueH58 Member Posts: 632
    edited January 2016

    Eileen - I have mentioned that my mom had breast cancer 30+ years ago and is still living strong at 84 years. I often hear from her the bone scans she had following her surgery where they found every little thing. For example, they found something in her jaw, and it was determined it was from a tooth injury decades ago. She freaked out at the time, but eventually was less troubled with little things that would have caused her to believe recurrence years ago. I'm hoping the same for you, and all of us who are venturing into this soon-after-treatment stage.

  • eheinrich
    eheinrich Member Posts: 792
    edited January 2016

    Carrie, I flew w my TE. I was very concerned - had my documentation in order. It was uneventful. :0)

    My lumpy thing is new, but I'm not going to worry. I'll go in but not fret until there is something to fret about - at least that's the plan. I let my breast lump linger because it never occurred to me that I would have cancer. This lump is getting checked out.

    So my daughter did her ob/gyn rotation recently and we were talking about mammograms and their use diagnosing cancer as part of routine screening. My question for you - were you diagnosed via a general mammo or did you feel something?

  • Carrie37
    Carrie37 Member Posts: 331
    edited January 2016

    I found my lump. I would not have had my first mammo for another three years so I'm glad I felt my boobs that day.

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    Good medical vibes to all.

    Mammogram on one side, then MRI on the other (not visible on mammogram). Neither was palpable; they were both too deep.

  • rleepac
    rleepac Member Posts: 755
    edited January 2016

    Mine was palpable but NOT found with subsequent mammogram (both 2D and 3D) or ultrasound. 2.1 cm mass was totally missed on imaging. The only thing that saw it was the MRI which was done after the biopsy.

    Some people just don't 'image' well - I'm convinced that in some cases it can pick it up early and in some cases it just doesnt. Not very encouraging I know but that's the truth othe the matter.

    The real problem is when there is a palpable lump (a hard, suspicious lump - not cystic feeling) and the mammo/ultrasound are normal and the provider ignores the fact that it FEELS suspicious. I had to push for my biopsy because they were just going to watch and wait.

    As a clinician, I still encourage screening mammos but I also encourage self exam even though the ACS says it's not recommended. I believe self exam saved my life - not mammogram.

    Bekah

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited January 2016

    Eileen, for me it was mammo which found "architectural distortion". There was nothing palpable.



  • eheinrich
    eheinrich Member Posts: 792
    edited January 2016

    For those of you a routine mammo was the original thing - how old were you? Kelli & I were discussing the value of mamms under 40 and between 40-50. With the change of recommendations last year or so we were chatting - and yeah the self exam situation is weird. A lot of us found it ourselves but self exam is discouraged because I guess a lot of folks feel a lot of just regular changes in breast tissues as ahhhhh cancer. But I felt my lump and thought it was just normal changes in tissue. Damned if you do, damned if you don't.

  • eheinrich
    eheinrich Member Posts: 792
    edited January 2016

    Architectural distortion sounds so fancy!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited January 2016

    I had mammos every year since about age 45. Maybe earlier, just can't quite remember. Mine was found at age 57 by routine screening, followed up by US. I never could feel it, even after I knew exactly where it was.

  • molly1976
    molly1976 Member Posts: 403
    edited January 2016

    I found mine by accident. I was still 2 years before even the earliest mammo recommendations. I get why they don't want to be doing unnecessary tests that can be costly and scary, but I would always prefer the stress and inconvenience of having them to nothing.

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    52.

    I was never told not to do a monthly self-exam, though--quite the opposite. After mastectomy, a PA suggested, "If you're doing regular checks and know what your healthy body is like, that's great. If you only check once in awhile, it may be better to have your MO do it instead, since normative tissue changes may alarm you because you're not tracking them."

  • molly1976
    molly1976 Member Posts: 403
    edited January 2016

    For those of you who have had your port removed, was it full sedation? They're telling me I need a driver afterward but my MO made it sound like they'll only do local anesthetic.

  • Trvler
    Trvler Member Posts: 3,159
    edited January 2016

    No sedation at all and it was fine. I found my own cancer.

  • slothabouttown
    slothabouttown Member Posts: 449
    edited January 2016

    I found mine. Spent a week telling myself it was a normal perimenopause change after finding that on Google, but eventually the "what ifs" got louder, so I scheduled an appointment and you know the rest. I'm one of those with dense breast tissue and had a history of clean mammograms.

  • avmom
    avmom Member Posts: 324
    edited January 2016

    I had my port removed under local anaesthetic, but did need a driver to get home.

    My cancer presented as a small crease in the skin just above my nipple. Diagnostic mammo estimated a 1.5 cm area of concern. I had no palpable lump on either side, and mammo and ultrasound did not disclose anything else. After surgery, I had 4.5 cm IDC and 8 x 8 x 3.5 cm DCIS on the right, and 6.3 cm of mixed DCIS/LCIS on the left. Thankfully, at least the IDC finally "tethered" to the skin, so something showed on the surface

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    I drove to and from my port removal.

    I found my lump both times, but my good friend who just finished chemo found out about hers at her first screening mammo at 40 years old.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    I never did feel my lump but I did feel the creepy little lymph node.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited January 2016

    I had my port out with conscious sedation, or twilight sleep. I would have rather been out, as I was paralyzed with fear, even more than the first surgery and chemo. I think the stress accumulated. Anyway, the twilight sleep was fine, I was able to communicate during the procedure, but wasn't bothered, and I don't remember much about it.


  • pboi
    pboi Member Posts: 663
    edited January 2016

    I had a clean mammogram in January. Found a lump myself about 10 months later in Nov.

    Kbee...hope all goes well at your appointment today.

    Katy...thinking of you today. Good luck on the cataract procedure tomorrow.

    PB

  • SueH58
    SueH58 Member Posts: 632
    edited January 2016

    Mine was found on a routine mammo. It was very deep and neither the Drs. nor I could feel anything. I had a baseline mammo at 35 due to family history, and mammograms every year since 40. I was 4 months overdue for the mammo that found my cancer (16 months since last one). I often wonder if I had done it on time if would have been found, or if would still have been too small to detect. Probably would have been found and may have been under 1 cm. I was 57.

    I had my annual physical today and my PCP talked me into a pap. I have never had a non-gyno do a pap. Boy, did the PCP lack the skill of a gyno. Hurt like hell!!! Even bleeding afterward.

    And then she tells me I need to have a colonoscopy. Been 5 years since my last and they wanted me back in 5 years. Geez, I know screening saves lives but what a pain in the ass---literally!!!

  • SueH58
    SueH58 Member Posts: 632
    edited January 2016

    Ladies, we have about 7 people interested in the possible Chicago get together:

    Carrie

    Eileen

    Theresa

    Lee

    KBee

    KSusan

    and me

    Is there anyone else interested? Do we want to go ahead and plan for this? I know there was a concern or two about April, and now that Eileen is working, she may have some constraints. Should we be looking at a different timeframe? Also, we need to decide if we want to meet in/close to the city, or in a suburb.

    Please let me know your thoughts.

  • Trvler
    Trvler Member Posts: 3,159
    edited January 2016

    Add me onto the list. I am one of the ones who might have an issue with April. But don't let that hold you back.

  • SueH58
    SueH58 Member Posts: 632
    edited January 2016

    Please feel free to propose a weekend. Many of us are flexible and can work with any weekend.

Categories