Winter 2015-16 RADS

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  • keepwalking
    keepwalking Member Posts: 147
    edited January 2016

    lindab - Sooo sorry to hear that you are having such SE's and also maybe a cold coming on! I can understand your feelings about wanting to cut it short. I hope that today the RO can give you advice/meds/creams to help you get through it and to also be able to sleep. About the dizzy feeling afterwards - I experienced that a few days ago and I remembered someone on the Fall Rads group saying that it can be caused by not drinking enough water. So I went to the market inside the hospital and got sparkling mineral water, hoping that the electrolytes would also help. Very soon I felt no more dizziness and really refreshed. Since then I have made this my treat after rads (OK, and also a little chocolate :) ) Perhaps making sure that you are well hydrated before and may mineral water afterward could help you too (at least with that part). I hope you do get to visit Israel!! And I hope you feel better!

  • mapagail
    mapagail Member Posts: 17
    edited January 2016

    ivy2, love the comic!

    Suzy-Q, Yay for you!

    I start Rads today, the incision finally closed! Ack, that was emotionally stressful. Yesterday at 2nd Sim, I was told to breathe normal, then got all worked up concentrating on whether or not I usually breathe normal and then got a horrible itch on my face. Of course the smell of the sharpie got my nose going. But, I was fine as soon as I was told I was all done!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Rina- thanks for sharing that beautiful view...how healing to be there sipping water and looking at that! (And, the chocolate :)

    Yes, I hear you on the "shell shocked" response...surely, "this too shall pass", but it can really be scary! Glad you and hubby went to the movie! Who knew cabbage cold be used like that? Good thing to share with others.


  • El_Tigre
    El_Tigre Member Posts: 520
    edited January 2016

    Sim went great, apparently i can hold my breath for 40 sec lol!

    due to start 1/27 28 sessions I think. They did scan and my DOC will finalize my radiation plans over the next week. Looks like I'll be going in the mornings and getting zapped ;) Tatoos are nice

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Glad that the sim went well, El Tigre! It's great to feel that you are moving forward, isn't it?

    Rina, what a beautiful post-treatment treat! Both the view and the chocolate. :)

  • etnasgrl
    etnasgrl Member Posts: 650
    edited January 2016

    Radiation simulation went well yesterday......now my boob looks like a treasure map. Goodness, there are markings EVERYWHERE!!! They also did tattoos as well, so I look pretty gorgeous, LOL!

    Quick question....they told me not to wash the markings off, but understand that after some time, they will begin to fade. Well, what about when I slather myself with Aloe after the treatments? Won't that mess up the markings??

  • mapagail
    mapagail Member Posts: 17
    edited January 2016

    I went back to work after getting blocked. My co worker looked at me and she looked horrified. I looked in a mirror and hadn't noticed the sharpie markings went up to near my clavical. What fun!

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    ElTigre good job on holding your breath for 40 seconds.

    I started rads today with the active breathing. My tech said I did very well with holding my breath. They did have to remark a spot on my chest and wanted to draw again with a green sharpie in between my boobs and cover it with a piece of tape that I was supposed to leave on for all 6 weeks, 30 sessions! I said no way, I'd take another tattoo instead. I have a feeling this may not be the last tattoo they mark on me. Anyway after my boob felt hot and I had a funny taste in my mouth. Sorta metallic, but not like chemo metal taste. Plus I felt slightly nauseous despite eating breakfast before And drinking enough water. Thankfully the nausea feeling passed. I did forget to lotion up my poor boob right after and had to do it when I got home. My apt was 8:10am and I was outta there by 8:50am.

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited January 2016

    marijen, the only bloodwork my RO wants is a pregnancy test, lololol!!!

    Kim

  • etnasgrl
    etnasgrl Member Posts: 650
    edited January 2016

    Kim....mine too! She wouldn't proceed without that pregnancy test. I told her that I had a tubal ligation back in 2005 and I was 100% certain that I was NOT pregnant, but she held firm.

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited January 2016

    They did the same thing with me, insisting on a pregnancy test. I requested to sign the waiver... they weren't happy, but I knew I wasn't pregnant, and I was tired of poking, prodding, and peeing into cups!

  • Suz-Q
    Suz-Q Member Posts: 205
    edited January 2016

    Marijen, I don't know what my Ki67 is, only that it was part of the Oncotype test. It is not given in the results.I have totally given up on trying to figure out my recurrence rate! I've read so many things and they are all different. I'm not sure our docs can really give us an individual recurrence number. I guess my point might be that we are all doing the best we can so that our overall survival and recurrence rates are as low as possible. We can't do much more really. Oncotype only guides us on whether or not chemo is necessary.

    Mapagail, thank goodness the treatments don't take very long! I would get itchy spots on my face or my gown would be wadded up and making my legs feel like they needed to move after I was in position and couldn't be moving. The worst is when my nose would itch! Sometimes I would warn the techs before we got started that I needed to get my wiggles out!

    Etnasgrl, I loved the treasure map visual! People on here are so creative with their descriptions! Peachy 2 called the blue sharpie marks drawn around her lumpectomy bed an amoeba. Yes indeed we start with a treasure map and progress to amoebas! My techs said they could draw the marks back on. They took pictures of it before I got up off the table. My marks came off with the cream I use and I didn't worry about it. It did make a smeary blue mess on my breast.

    El_tigre, I'm impressed with the 40 second breath hold!

    Ladies, I know it must feel good to get started. I hope you all do well with treatment!

  • PattyMeg
    PattyMeg Member Posts: 56
    edited January 2016

    Marijen, it can. My RO sent me for blood work this week.

    A friend of mine sent this to me today. She said a friend of hers used it and said it really helped. I'm going to ask my RO about it tomorrow. I'll let you know what he says. Patty


    image

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Hmmm....being preg was never even really asked about...dang being bald and 56. ;0)

  • Thr_yet
    Thr_yet Member Posts: 11
    edited January 2016

    I haven't been an active participant lately, and I will have to join the spring/summer group now since my Oncotype came back "high" risk. All of the other tests have been negative and never once was chemo mentioned, until yesterday. I start next week. I am not mentally prepared and all of a sudden, again, there is a rush to get everything ready. I have another surgery next week to have the port placement and then start TC on Friday. Ordered my cold caps today - I am so not vain, but this is the only thing I seem to be able to control, at this point. I am feeling guilty that they are so expensive, but my husband has been overly supportive of this one. Wishing ALL of you that are starting, in the midst, or finishing rads the best!! Wish I were there with you instead of what is ahead of me for the next 12 weeks. I still have my rads consult next week - decided to keep that appt. since it's down the road anyway and I'm feeling okay right now, may not feel that way in April when I'll be starting. I have no words for how I feel about chemo - maybe just plain alone at this point. Good luck ladies - ya'll rock!!!

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    Thank you PattyMeg!

    I have another radiation question but... by the time I got to the computer it went out of my head

  • keepwalking
    keepwalking Member Posts: 147
    edited January 2016

    Thr_yet - Darn! What a shock! - I am sure that you were blind-sided by this and are still trying to wrap your head around it. I hope that you are able to get some encouragement and calm in the next week, and that you are able to come through the next 12 weeks with minimal SE's. I would suggest joining the January Chemo group. When I thought that I might have to have chemo I perused one of the groups to get prepared, and I am sure I would have found it helpful and comforting to be a part of it if I were going through it.

    HUGS and wishing you all the best

  • octogirl
    octogirl Member Posts: 2,804
    edited January 2016

    Thry, that is more or less my story on chemo: really wasn't expecting it, and then wham, have to do it based on being high risk from the test. Good for you re: cold caps. No, it doesn't mean you are vain. Hair is important and losing mine has been one of the toughest parts of this whole thing. I thought cold caps would be too much trouble but a big part of me now wishes I had given them a try. Definitely join the Jan chemo group and good luck to you! You can do this.

    Hugs

    Octogirl

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    ok here's my question - Is AI medication stopped during radiation

  • Natejordlee
    Natejordlee Member Posts: 61
    edited January 2016

    MaggieMae123..sorry you have to be here but there is a lot of information here !! Did you have your SIM done yet :) Good luck and ask any questions the people here are very helpful.

    Lee Anne :)

  • justmaximom15
    justmaximom15 Member Posts: 264
    edited January 2016

    My RO also required a pregnancy test prior to beginning treatments plus I had to sign something basically saying that I was warned of the risks of becoming pregnant during treatment. I had the Essure procedure in 2007 and I'm pretty sure between the Taxol and Tamoxifen I've been pushed into menopause sooner than I normally would have.

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Good luck Thr_yet! I had a similar experience. Both surgeons I consulted said lumpectomy, radiation, and 10 - 15% chance of lymph node involvement. Learning that there was cancer in the sentinel node was the only time in this whole journey that I felt the rug had been pulled out from under me. So glad you are using cold caps -- I didn't learn about them until after my first chemo infusion, so it was too late. As octogirl said, and so many people told me, you can do this.

  • mapagail
    mapagail Member Posts: 17
    edited January 2016

    This thread does go fast! Whats the deal with cabbage? Cause if it helps, there's gonna be a shortage here in El Paso! I had 1st rad yesterday. I woke up at night and felt like my boob was on fire and woke up hubby and asked if my boob was going to explode. He gave me tylenol. He was explaining how radiation works and I fell asleep on him! I hope this doesnt mean its only gonna get worse!

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited January 2016

    Ok, monkey wrench thrown into my day... Was supposed to go for SIM at 1pm... they just called and all machines are down... Yay! Not! Rescheduled for tomorrow 9am... then I get to scarmble for 2 other appts through the day is far off places from wher my rads appt. is located. I know its fine, just frustrated today.

  • justmaximom15
    justmaximom15 Member Posts: 264
    edited January 2016

    Thr_yet I'm sorry that you were hit with that news. All along before surgery I was told I would most likely only need radiation after my lumpectomy then BAM the Sentinel node came back with cancer. Everyone was shocked and I was devastated. I had a good cry over that one and then my oncotype results came back and my MO decided that AC + T would be best which meant 6 months instead of 3 for the chemo. Now this cancer kicking train is getting closer to the station and I'll soon be done except for the tamoxifen and the crossy fingers that it never returns. Best wishes to you!

  • Zelda33
    Zelda33 Member Posts: 14
    edited January 2016

    Hi- I just started my radiation treatments this morning. I have 20 sessions in total, so 19 left to go. I did not think I'd feel so crappy after one treatment. I also have a double inner ear infection at the moment so I'm hoping that had a lot to do with it too. Anyway, I was wondering if anyone else felt a little nauseous afterwards?

    Thanks for the support.

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    justmaximom, you and I should have won the lottery! Since we both ended up on the side of the slim odds. Now that I'm reading your profile, you are the only other one I've seen with 1/1 for nodes. I didn't have oncotype testing. The MO offered, but had already recommended chemo since I was grade 2. And I had told her "just get it out of me!"

    Hey, remembering what you said about all the doctors, I have a dentist appointment on Monday, and will have to remind myself not to take my top off. ;-)

  • El_Tigre
    El_Tigre Member Posts: 520
    edited January 2016

    Maryijen - I'm not sure on the AI's but I was going to ask if anyone in here is on AI's or tamoxifen during radiation?

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    El_Tigre, My MO gave me a prescription for Tamoxifen, but said to ask the RO if I should take it during radiation. (They are at different hospitals.) She said that most prefer to wait. The RO had initially said to wait about a month after treatment to begin Tamoxifen, but when I finished treatment on Tuesday said to ask the MO when to start. He said the reason is that side effects for radiation and Tamoxifen are similar, and doctors like be able to determine which treatment is causing the side effects.

  • El_Tigre
    El_Tigre Member Posts: 520
    edited January 2016

    Thanks Peachy2, i was wondering what others were told. I finished chemo on 12/31 & I don't start rads until 1/27 and i feel like a baby without a security blanket

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