Lumpectomy Lounge....let's talk!

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  • april25
    april25 Member Posts: 772
    edited January 2016

    Sloan and Molly -- Sorry I've been off the forum for a while. I did you get together? If so, I hope it was fun! I've been house/pet sitting for my sister, so have been busy.... mostly petting the dog and not being able to get up because of one sleepy animal or another! It's fun. I have lots of pet-time without any full-time responsibility!

    Welcome to the new-comers to this thread! -- As others have said, sorry that you have to be here, but it's a great place of support and information!

    Jonsey -- Plenty of people go over a month between dx and treatment, so don't worry! But the time right after a diagnosis is one of the toughest for most everyone, so what you're feeling is natural. I never lose weight, but dropped 10lbs in a few weeks just from running around trying to make doctors appointments and take tests and try to figure out what the heck was going on. Ugh. Having the flu is no fun no matter what else you are going through. Having the time to worry isn't good, but you're getting treated in good time. Most people will NOT have any problems with margins not being clear. But crap does happen... just face it if you need to, but most likely things will go fine. Are you scheduled for any scans? Those can also give you a heads-up on your node status. None of this is a good time, but you can get through it! As ORknitter says, try and take a nice deep breath.

    ---

    I am decidedly of the electrocuted chia type. I think everyone I see with short haircuts looks AMAZING... but it's definitely not a good look for me. My hair has been growing in since June and is now over several inches, but that means it's messy and gets all bed-heady... particularly under my wig or in hats. I sort of miss it being shorter in a way! But I want to grow it out, so I can't trim it...! bleh. At least it's long enough not to freeze my scalp off when at home. I did NOT appreciate being totally bald at all! It's so much nicer having at least SOME hair, I think! Good luck to those growing theirs in, and to those still going through chemo and hair loss. I can truly relate!

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    Thanks 614! I emailed my rad onc yesterday asking for answers.

    On way to Dana Farber in Boston this am for second opinions from med onc and bs. Another day, more doctors. This is quite a process

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Jonsey, welcome to the best place you never wanted to be. As you have discovered, we are warm, comforting and informative. Your surgery date is around the corner! It is really hard waiting but it's only been a month and you'll do well. My Lx was nearly 7 weeks post-diagnosis. Keep in mind that most Lx's produce clear margins. Not all, of course. It's hard to not worry about every new ache and pain but they rarely are something related to our breast cancer.

    If they offer you a Valium or Ativan or other "relaxer" tomorrow, take it. If they offer a Dramamine, take it (for nausea). I don't know where you are (it would be nice if you'd post that on your profile and make it public), but it seems every center does things a bit differently. Get your prescription for pain pills filled. You may not need them (I didn't) but IF you do, take them. No being a martyr to pain - it does not help you heal.

    Try to take it easy for as long as possible. Two weeks off work is great if you can do it. Rest a lot so your body can heal from this major surgery. And post how you are doing. Keep asking questions - we'll answer. And try to think positive; I find it helps.

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MLP3, good luck today! Can't wait to hear all about it!

    MRipp, YES!!

    Sloan, love the boxing gloves!

    HUGS!

  • octogirl
    octogirl Member Posts: 2,804
    edited January 2016

    I've given up on keeping up with answers on this thread, it moves so fast!...and am both happy and sad to see so many newcomers: happy you all found us, sad you have to be here...but Jersey and others: HUGS!!! This is a wonderful group. The waiting really is the hardest part.

    Molly and Sloan: have a great visit in LA: we want to hear all about it!

    My hair isn't even at the electrocuted chia stage yet, although I AM seeing definite stubble and dark patches! Yay for stubble!

    More HUGS!

    Octogirl

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    my new Facebook profile picture, it's not necessarily how I like to look, but it's me for now: image

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    LovesToFly, you look gorgeous!

    HUGS!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    LovestoFly- great pic and cute, cute hair!

    Posted this on Winter Rads but... Never a dull moment at my house- while using the magnifying glass to draw my eyebrows, I noticed a small growth on the edge of the lower eyelid. It is small, round, shiny and skin colored. Looked it up online- Dr. Google says it could be a sweat gland, or basal cell or some other carcinoma...of course, Doc Google, of course. Trying not to freak- amazingly, have a complete eye exam scheduled for today that I scheduled back in November. Really? At least I don't have to wait, huh? Praying it is "nothing".

  • blamoms
    blamoms Member Posts: 113
    edited January 2016

    hi Jonsey22

    I was diagnosed with IDC dec 10 had a lumpectomy dec 30 same day as you. My lump was 3.5 cm and they took 4 lymph nodes out. I go back Jan 19 for the results. My steri-strips came off yesterday and my incision looks good just a little swollen. I know how you are feeling. I went for a physical in July and nothing but the end of November I discovered a lump. I just discovered this group a few days ago and already love it. Take some deep breaths.

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Mari, congratulations on a clean mammogram. Sloan, I love the boxing gloves. Jonsey, welcome. Have ice packs on hand for recovery. I found them more helpful than pain meds. If anesthesia makes you sick be sure to let your anesthesiologist know so you can be given anti nausea meds and a scolpamine patch.

  • Brightsocks
    Brightsocks Member Posts: 159
    edited January 2016

    What is radiation like? I understand that you are tired at the end and that it takes time for a block of time. I am a Mom of two small kids and run a home business. If I just have radiation what will the impact be on my family?

  • MKTCA
    MKTCA Member Posts: 38
    edited January 2016

    Hello all, hope everyone is doing good today. I have a few questions for those who already had their surgery. I had my LX last Friday 1/8/2016 and yesterday I took off my bandages to shower for the 1st time post surgery and my breast looked red but today it looks worst, it's all black and blue today. Is that normal? After surgery they sent me home wrapped in a big gauze and a binder with Velcro at the end. Should I continue to wear the binder over my padded sports bra for more support or is that a bad thing? Any advise would be greatly appreciated,. Thank you in advance.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Brightsocks, Most of us are just fine during radiation treatments. Yes, we may be fatigued. But I didn't find it overwhelming. After your initial setup visit (which can take an hour or more), most visits consist of travel time, 5 minutes to put on a gown and wait your turn, 10 minutes for the treatment, a few minutes to dress. You just need to undress on top. You will want to have someone mind the kids while you have your treatments. Where I had mine there was no provision for childcare. If your children are at an age where they can read a book for 10-15 minutes or play a game on their phone or tablet, then of course you can take them.

    The treatments for me were 5 days a week for 6-1/2 weeks. Once a week, I met with the RO. That day was longer.

    You may find that you need to nap more often than usual but generally it's not a problem.

    This help?

    HUGS!

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Loves to Fly - What a lovely pic! you have beautiful eyes!

    Happy Hammer - Checking it out will put your mind at ease, I think its very easy for us to all become a little cautious with every little thing after this experience. Am sure you're absolutely fine!

    Brightsocks - My kids were 12 & 14 when I did rads and I was on my own, I worked with Austistic Children and worked 5 days a week. I didnt miss a beat in 5 weeks. It isnt painful or anything, its the fatigue that is cumulative so you get really tired by the end. I was ordered by my radiologist to have 2 weeks off at the end. In my position that was tough to do...but so important I did. So I think you'll be fine, maybe a little support towards the end if you can.

    MKTCA - It all sounds quite normal, as its not quite a week yet and its surgery, so sounds like you have a lot of bruising. If youre concerned about the redness, I'd call your BS, but does sound like its post surgery and still very sore. Not sure what the binder is, hopefully someone else can answer.

    Octogirl - Thats exciting!!!

    PontiacPeggy - I have to say you really are so great, I read all your posts, and you truly are so welcoming, but you also give detailed great advice!

    I'm off for a DIFFERENT checkup today Uuuuugh!!!! the other end OMG really?? Pap Smear time yay!!!! LOL

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MKTCa, Sounds like you have a hematoma (think bad bruise). Unless it starts hurting more than it has been or is hot, then I wouldn't worry about it. If either of those occurs, call your BS right away in case you have an infection. Your sports bra is fine. Be careful about not using your "bad" arm too much and no lifting. If you had nodes removed you'll want to do gentle exercises to stretch out that underarm to increase range of motion. When do you see your BS next? Have you gotten your path reports yet? Anything else bothering?

    HUGS!

  • MKTCA
    MKTCA Member Posts: 38
    edited January 2016

    Melclarity and PontiacPeggy- thank you for your responses. My post op apt with my BS will be tmwr morning so I'll ask him then. Just surprised me that my breast looked worst today than yesterday because it's more black and blue today but maybe that's how bruising works, it shows up later, It's not hurting but once in awhile I feel soreness and itching that's all. I will limit my physical activities thank you.

  • Brightsocks
    Brightsocks Member Posts: 159
    edited January 2016

    Thank you ladies that is good to know. My girls are in school so that will really help. This board has been very helpful for one has so many questions.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MKTCa, be sure to ask your BS tomorrow what activities are acceptable. You do need to rest and let your body heal from this major surgery. But you don't need to stop moving. Just watch that arm! Be sure to update your profile (and make it public) on your path results and surgery. Good luck tomorrow!

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MelClarity, if it's not one end it's the other. Swell. Good luck :)

    Thank you for the kind words. I try to think of the things I wanted to know and what I needed to stay sane and to give that. And there's no doubt that the ladies here helped me stay sane through a very bad 14 months.

    HUGS!

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Pontiacpeggy - Thanks! Well I think you are a very giving, generous spirit! You certainly are there for everyone. I'm really glad I joined this Site, its helped me alot too especially this time around, you are right it does help keep you sane.

  • MKTCA
    MKTCA Member Posts: 38
    edited January 2016

    Thank you PontiacPeggy, I will do as you suggest.

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Peggy, I second what Mel says about you. In fact I just got back from meeting Sloan and her lovely DH. We both said how wonderful, warm and welcoming you are! I have to tell you all (Sloan took pics) how much I enjoyed meeting Sloan. She is just as beautiful in person as she is in her pictures. It was like meeting an old friend. I truly enjoyed spending time with both of them.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Molly, I'm blushing but also feeling very good. Thank you. You WERE meeting an old friend - just one you hadn't seen before. My group in SE Michigan feels the same way. The rapport was immediate. Can't wait to see the photos!

    HUGS!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Brightsocks- Just finishing the last week of rads right now. I am a bit more tired but not bad- took a "power nap" for about 20 mins and am good to go. Great that your children are in school- the place where I go has some really sick folks in there getting rads and it might be hard for children to see and hear. Like Mel and Peggy indicated- you get into a routine once you get started. My RO, nurse and techs have been wonderful at explaining things, answering questions and helping me through this part of the journey. Won't miss the treatments but will miss the people.

    Know you will do well and hope you have a great rads team! Hugs to you.


  • mairew
    mairew Member Posts: 84
    edited January 2016

    i dont post much (i am shy) but I am always checking in on everyone. I agree that Peggy is wonderful

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2016

    New photos (webcam)--just washed my hair.

    image

    image

    image

    Not bad for a week away from 65.

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    ChiSandy, I would never guess you were about to turn 65! What a beauty!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    ChiSandy - looking REALLY good! You are very young!

    HUGS!

  • zinny
    zinny Member Posts: 281
    edited January 2016

    Beautiful Chisandy, lovestofly, sloan. I am amazed by all of our different strengths. We are all Amazons in some way or another. ( Not the shopping kind, though that is a skill i possess quite spectacularly.)

    I went for a jog and up my favourite hill today, and standing looking out over the gorgeous view, and I was hit by a profound peaceful thought - It IS all ok, this is my path, and it is all going to be fine, I just have to keep moving forward. I am not really prone to profound pronouncements, but to the newbies here, you will get through this, and you are stronger than you think you are.

    Karli

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Mairew, thank you! Don't be shy. There's nothing you are going through that someone here hasn't. And we're willing to discuss ANYTHING. Having trouble with intercourse? We'll help. See? Need to know how someone else puts on their bra (absolutely vital information ;) ) - we covered that too (either you hook in front and turn or hook in back).

    What's your treatment status? Doing rads? Tamoxifen or an AI? Are you feeling well?

    HUGS!

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