Lumpectomy Lounge....let's talk!

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  • Reader425
    Reader425 Member Posts: 653
    edited January 2016

    Hello, I had my MRI prior to surgery and went in face down, head first with goggles. As others said get comfortable as you can't move once situated. I asked for classical music, then mentally took myself to another place. Doable and actually not too bad. The tech asked if I am claustrophobic and I said " we'll find out I guess." Apparently not I'm thankful to say.

    Also, I has left-sided radiation in the face down (Prone) position. Spellchecker just tried to put "porn" position, which for some reason tonight amuses me...

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    My MRI and MRI guided biopsies were both face down, feet first into the machine.

    Mel, what was the cause of your pain during your Taxol?

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Lovesmy Vizsla - From first infusion, I suffered, bone, muscle and nerve pain, apparently he said it was normal. First day of each Taxol that night id have pain in my lower back, and it would cause restless legs, was awful. The next day I was PERFECT, then 3rd day would go down in pain, lower back, legs, hips, neck, shoulders, was really odd, but as the infusions went on, it got worse I got to 6 my onocologist was going to stop them but I went to 8 but was in constant pain from 3rd day til next hit. I was on ibuprofen/panadol osteo 6hrly, Im 3 weeks post chemo and meds are now stretching to 12hly, the pain has lasted that long worst luck. Im doing better day by day. Go figure though...NO neuropathy and my nails are perfect?? really healthy...uuuugh who knows LOL

    I must admit about the MRI, all my MRI's have been face up, so have never heard of an MRI done that way.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Melclarity, you have had breast MRI's faceup? Really? I'm very surprised. For mine, there were holes that my teeny girls had to hang into, apparently larger busted women have an advantage. I don't remember going in head first or feet first. Didn't matter. I'm not claustrophobic but I sure was uncomfortable - back hurt. Tylenol helped but discomfort was still there.

    Reader425 - that sounds like something that would pop up for my late DH. He was really claustrophobic and took several Valium before MRIs. He used "sexy" images to get through.

    HUGS!

  • Jclc83
    Jclc83 Member Posts: 246
    edited January 2016

    Well,I guess I have to chime in. I have had different MRI's for different things. For my breast MRI there was no clanging and banging. My breasts dangled thru two holes on the slide part. I was face down, no goggles, no music with my head supported by a form. And I went in head first. It only moved about a third of the way toward. It didn't take that long and I never felt claustrophobic

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited January 2016

    Reader, that's hilarious ! porn position. Pretty sure I don't want to go there.

  • Brightsocks
    Brightsocks Member Posts: 159
    edited January 2016

    Just a question ladies. I am on day 6 from my lumpectomy and I have some swelling where they removed the two lymph nodes. Is this my body adjusting and will works its way out? I will place heat on the spot and call the nurse support later today. I don't have a fever just swelling.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    hi brightsocks. Yes swelling around incisions is completely normal, part of healing. That said, if it seems to be hot, or excessive, or oozing,or you get a fever you should get it checked out. I found icing helped more than heating but do what works. (((Hugs)))

  • brithael
    brithael Member Posts: 224
    edited January 2016

    Sorry, I just kinda dropped out of this group but wound up in hospital due to neutropenic fever. Given massive amounts of antibiotics, and also had some unexplained reddening of my port site noted on Thursday.

    When they withdrew the needles from my port yesterday prior to be discharged, a small amount of serous drainage came out which threatened my hospital release. They had to re-access the port and run another series of cultures (all of which have previously come back negative ,) but I was still able to come home - Thank God. I just have to keep watch on the port site. There is talk of removing it, but I hope not.

    I'm still on oral antibiotic and feeling weak, but I'm home. My next chemo is scheduled for next Monday, and my MO says she'll modify the amount of drugs given, plus I'll have the Neulasta shot the day after. Hopefully, that will prevent this from happening again. My MO says this happens to about 1 in 10 patients after their first chemo, wasn't I lucky?

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    I just posted this on another forum but wanted to know what you ladies think. These results just came out this am...

    Sorry Brit! Hang in there😘

    I just saw my ct scan results on my portal and 2 small nodules were found in my right lung and then an 8mm lesion on top of liver... Liver states possible cyst and lungs...

    3mm nodule right medial posterior costophrenic recess

    3mm calcified nodule right lung base mild bibasilar dependent atelectasis

    Then it also states under patient history Neoplasm: initial staging on surveillance or treatment: Breast cancer unspecified- staging

    Is the neoplasm a new diagnosis after breast cancer?

    Confused and a bit scared here.

  • brithael
    brithael Member Posts: 224
    edited January 2016

    Neoplasm is just another word for tumor.

    ne·o·plasm -a new and abnormal growth of tissue in some part of the body, especially as a characteristic of cancer

    I too, had two small nodules on my lungs which they said were standard for anybody living in an urban setting. Can't help much on the rest, but I would sure call my doctor and ask for an explanation.


  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    Thanks Brit! Just getting ready to head to my MRI and I'm calling once I get in the car. This all just sucks doesn't it...? Now I wished I had something for the MRI... Might have to bring a "roadie"😜

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    MLP3- hate that you are worrying! Sending positive energy your way. I had an abnormal lung xray years ago- required CT- scared like crazy but, they determined it was scar tissue probably from pneumonia as a child. Hopefully, you will have some sort of similar story to share...hugs to you.

    Brit- Glad you are home. Rest, rest, rest....your body is under siege so rest and let it fight away! Not asking you to help pick out my lotto numbers! Haha.

    Brightsocks- you may be developing a seroma....def keep watch and check in with your doc.

    Reader- that IS hilarious....have to say some of the things they have us do- sort of seem like they could be just that.

    Winking

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Brit: glad you're out of the hospital. If you do the neulasta, please ask about Claritin. I started last Thursday, I have had none of the associated bone pain. I have taken Claritin every day


    Mlp: i'm sorry I don't really know how to read that, it's scary, but it could most definitely be nothing (more). I will tell you guys that my abdominal ultrasound showed something in my liver, however the CAT scan was clear, so don't be too fearful yet.Day by day!

    Also my dad had colon cancer several years ago, recently they saw nodules on his lungs, they're not freaked out, they are monitoring them and told him it could be anything.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    MLP3, sending positive thoughts your way. Hopefully the explanation for all those scary-sounding things are quite benign. Good luck with your MRI.

    HUGS and MORE HUGS!

  • 6doggies
    6doggies Member Posts: 96
    edited January 2016

    Hi Ladies, I was scheduled to get a mammogram last Friday, but they wouldn't do it because it has not been 6 months since I completed radiation. Has anyone else had to wait until they were 6 months out of treatment to get a mammogram? I was also supposed to see my Oncologist this Friday but they moved everything to the middle of March. I don't like waiting so long to get checked, last appointment was October 9, 2015 where they did blood work and I had a breast exam, my understanding was that you go for 3 month visits for a while and then you graduate to 6 months, etc.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Brit and LTFly- Agree completely about the Claritan (and, ALleve) for the possible bone pain from Neulasta. I took it every treatment and for 4-7 or so days after starting on first day of chemo each time.

  • Brightsocks
    Brightsocks Member Posts: 159
    edited January 2016

    Lovestofly- Thank you for you advice. It is not hot just sore I went off all pain meds. I will take a Advil which should help being right where it is gets bumped.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    6Doggies, my first post-treatment mammogram was 6 months later. I also had an MRI a couple months later. I was seeing my MO every 3 months now it's every 6 months. I'm also taking Arimidex and you do not seem to be taking any anti-hormonals so that might make a difference in how often you see an oncologist. Please try not worry or obsess about waiting a couple more months. It's a quite normal schedule. Hope you're doing well!

    HUGS!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited January 2016

    Bless you, bbrithael. That happened to me with my first chemo. I ran some fever after 2 other chemos, but I didn't have to be hospitalized. My MO thimks its kust my bodys responsr to chemo.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited January 2016

    Sad news. My husband'a mother passed this morning. She was 95. We are on our way to FL now.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Poodles, I'm sorry. Please accept my condolences and pass them along to your DH. Never easy to lose a parent, even at such a venerable age.

    HUGS!

  • Jclc83
    Jclc83 Member Posts: 246
    edited January 2016

    My condolences MLP sending hugs your way.

    MLP3: actelectasis refers to a partial collapse of a lung. The neoplasm (tumor) seems to refer to your breast tumor. The nodules on your lung and near rib cartilage is unspecified. Could be a cyst, scar tissue, granuloma, etc. They will probably keep a close eye on them or see if they shrink during your treatment for breast cancer. They can always biopsy them if they are really worried. No need to worry.

    Brit I'm sorry your first treatment was so dramatic. It can only get better. All I can say is I get Neulasta every time to make sure my counts stay up.

    My daughter in law told me F*** you so I guess that relationship is toast. Never a dull moment on BCO.


  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    I'm sorry poodles.


    Jclc: whoa! That's crazy sorry you have drama :(

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Brightsocks - Definitely keep up the pain meds, until you start to feel pain free. As Loves to Fly said, icing is the way to go for swelling, heating it will aggravate it. The swelling takes a little while to go down, so its very normal.

    Poodles - Sorry about your sad news!

    JCLC - Yikes!! That's crazy!

    MLP - Hope you get your answers, so you can settle!

    Brit - Sorry to hear about your hospital visit, hope things are much better next week.

    Ive not heard of Claritin, sounds like exactly what I needed through treatment awwwww!!! Thankfully 4 weeks PF*ingC LOL YAY!!! am nearly down to pain meds once a day now, still a little achey but huge improvement. I just bought a new exercise bike, this was the one way I used to stay in shape, am so excited to be getting back into it!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    JcLc83, WHAT??????????? Geez. Sounds like drama you definitely don't need. How's your son with all this? HUGS!! More HUGS!

    HUGS!!

  • Gemma12
    Gemma12 Member Posts: 137
    edited January 2016

    Hi Brightstocks - we had surgery the same day. I seem to be more swollen today (where the nodes were taken) than before. Also, feeling achy/numb. I've been numb since the surgery but maybe some feeling is coming back, hence the achyness. I think, from what I read, that it's normal. Ice helps. Heat will increase the blood flow to the area which I think can cause more pain. I see my surgeon on Wednesday. I hope I she tells me it's healing nicely. :)

  • Gemma12
    Gemma12 Member Posts: 137
    edited January 2016

    Mustlovepoodles - I'm sorry for your loss. Safe travels!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2016

    Mel, just as brand-name acetaminophen is called Tylenol stateside and Panadol in the EU, perhaps loratidine is available Down Under under a different name.

    Brit, may the worst of chemo be behind you!

    MLP, so sorry to hear of your m-i-l’s passing--there is no good age at which to lose a parent.

    Shamisen, I had my lx with SNLB on 9/23, but never got that “profound fatigue” about which I’d been warned. And because of the location of the tumor and incisions, had no limits on my ROM--so I was able to pull stuff on & off over my head (got a bunch of button-down shirts & PJs I barely use). My sis flew in the day after surgery to take care of me--instead I was able to be a gracious hostess (though I let her drive till the day after she left three days later). My husband did take the weekend off, both to help out and to see her (it’d been over a year for me and three for him since we last saw her); and I do have a housekeeper 5 half-days a week as well as an adult son living at home. Two weeks post-op I was able to drive 90 miles and play a concert, driving home that night; less than a month later I drove 4 hrs each way to attend and perform at a music conference. (For both of the latter, my singing partner loaded and unloaded my car; I carried my guitar in my other hand--dulcimers were lightweight--and used an ultralight 4-wheel spinner suitcase). Obviously, "your mileage might vary!”

    Had a great weekend (although Mother Nature had a sick sense of humor weather-wise) with my pal from New Orleans. We shopped and dined out. Saturday night’s concert she played drew a full house despite the snow. Yesterday, she played fiddle with a Cajun dance band at a dance party in a rock club--despite the frigid temps, the place was packed. And for the first time in my life, I did some Cajun dancing (it is very poor form to decline an invitation to dance). Those "two-steps” (same steps as a waltz but at Red Bull speed in 2/4 time) are truly aerobic exercise--and the kind of weightbearing bone-loading that we’re supposed to do to ward off osteoporosis. Then we went to Chicago Sketch Comedy Fest to see my son’s show “That Just Happened,” which he produces and directs and for which he’s head writer (sort of a male live-theater Shonda Rimes). Hilarious--the Peyton Manning sketch had my friend in stitches!


  • Brightsocks
    Brightsocks Member Posts: 159
    edited January 2016

    I did talk to my surgeon and she said to watch if it turns red or anything else starts to change. So I am sitting with a ice bag on the spot which seems to help or the fact that my arm is now frozen and feels nothing :)



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