Lumpectomy Lounge....let's talk!

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  • Italychick
    Italychick Member Posts: 2,343
    edited January 2016

    MLP3 for my MRI they put goggles on me. I had them put the goggles on before they moved me into the machine, and I sent my mind away to plan vacations so I never knew when the machine slid over me. So that way I didn't tense up or anything. Best of luck to you, and send your mind away somewhere pleasant during the test. For me since I was face down, the worst part was that my sinuses blocked up and my nose got stuffy

  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    goggles....?

    I'm actually thinking that it's better face down than up so I don't see anything. I'll pretend that I'm on a yacht in the Med, sunning my cheeks😎

  • Italychick
    Italychick Member Posts: 2,343
    edited January 2016

    yes, some kind of goggles that were opaque. It was totally the way to go. And daydreaming about something pleasant helps so much. I did that for my pet and bone scans, and I actually fell asleep, go figure

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear MelClarity:

    My physician's assistant told me that Evening Primrose works and that it is safe.  Check with your doctor just to make sure.  I have not tried it though so I cannot tell you first hand.  You can buy it in a vitamin shop.

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear Gemma:

    I had my first Zoladex injection and I started Arimidex/Anastrazole on my 50th birthday.  I figured that being medically induced into menopause was just the 50th birthday present that I desired! lol.   I'm sure that you felt the same way about your biopsy on your 50th birthday.

  • RLM
    RLM Member Posts: 22
    edited January 2016

    I was wondering if anyone knows if it's safe to have radiation therapy on left breast do to the heart being on that side?

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    RLM, my radiation was on my left side. My RO said they have come a long way in their ability to mitigate damage to heart and lungs although it's still a risk. Some women can get their treatment facing down so only the breast gets the Radiation. I had a mastectomy and needed a large area of nodes covered so not an option for me. Talk to your RO and if you are not satisfied get a second opinion.

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear Blamoms:

    I did not work through radiation because I live in Florida and I was treated in Texas.  However, I felt absolutely fine throughout my radiation tx except for the 2nd to last day only.  I would have been able to work throughout radiation had I been home.  I did not have chemo.

    You really have your hands full with life.  I wish you the best with everything.  Good luck.

  • Shamisen
    Shamisen Member Posts: 9
    edited January 2016

    Hi, I'm new and this is my first post. What I'm looking for is sorta basic but I'm having trouble finding this anywhere online. Please forgive me if these answers are in a million places that I missed and if these are too repetitive questions. My lumpectomy is scheduled for January 27 with IORT and hormone treatment for er+ afterward.

    Anyway what I'm looking for is info about aftercare right after surgery --- like how long do women generally take off work after this combination, can you lift your arm (can I wear t-shirts or should I buy some open down the front shirts), are women generally sick (should I lay in special foods and keep a bucket by my bed), I'm an otherwise healthy widow and live alone with my pets - I'd rather go home after but would I really be better off spending a day or two at my daughter's house (& why if so). You know, stuff like that.

    Thanks a bunch



  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    RLM, yes it is safe. Not 100% perfect but excellent. Don't let it worry you. They are very good these days. I was face up and they were careful.

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Shamisen, Welcome! You've come to the right place for answers. We're kind, warm, comforting and informative. Before I answer your questions, please take the time to fill out your profile and make it public. Put everything you know now - even if it changes. We'd like to know where you are, too, since protocols for differ by country, it seems. And besides, there may be breastcancer.org member near you!

    I think that two weeks off work is idea. You shouldn't lift more than a gallon of milk with your "bad" side. And your body is working very hard to heal from major surgery - which this is. So you need to rest. I think you would be smart to stay with your daughter for a couple days, or have someone come stay with you. It's hard to say how you will react to the anesthesia and how good you'll feel. I felt good. Others have felt really lousy. Best to have someone around. Let yourself be pampered!

    You will probably have lymph nodes removed and you will be much more comfortable with button front/zip front tops. You'll need a support bra - like a sports bra or Genie bra. Something soft - no underwires. You step into the Genie bras, BTW. You'll want ice. If they give you a prescription for pain, fill it. You may need it or perhaps regularTylenol will do the trick. But whatever you do, take something right away if you are hurting. Don't let pain get ahead of you.

    I did not have the type of radiation you are having so can't speak to that.

    If you are post-menopausal, you will likely take an Aromatase Inhibitor, usually Arimidex is the first choice. Most of us take the generic version, anastrozole. Some women have trouble with the fillers from some manufacturers and find that the ones made by Teva cause few problems. Others must use the brand name.

    There are many excellent articles here on breastcancer.org. Start at the beginning and read. Also, Dr Susan Love's BreastBook, is a wonderful resource. She discusses everything and more that you need to know. Look for the version that came out in Sept/October 2015 - it's the most up-to-date.

    Keep asking your questions and we'll try to answer you.

    HUGS!

  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Shamisen, welcome. Those are great questions. Recovery from my lx was pretty easy but I definitely needed help the first couple days. I would recommend button down shirts and easy to pull up pants for a couple days. You will have lifting restrictions and will probably be quite tired. If you don't want to go to your daughter's home then have snacks and meals prepared for heating up ahead of time. If you are having a snb and end up having more lymph nodes removed you may end up with a drain. The first day I needed help with the drain, after that I managed on my own. Actually if you are having IORT, you probably will need some help.

  • Shamisen
    Shamisen Member Posts: 9
    edited January 2016

    Thanks that was fast. I love my daughter, son-in-law, and grandson very much but I have a dog, 2 cats, an aviary with 6 budgies at home to cuddle and watch.They are reasons why I'd rather come home, but since I have no real idea about this, I don't wanna be stupid.

    I've put somethings in my profile, what I know so far, anyway.

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear Sloan:

    I loved your post with all of the information.  It was not too long.  All of the info was necessary.  Thanks.

    Enjoy your retirement and here's to a better 2016.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    hi shamisen,


    I had my surgery on November 27. Physically I didn't have much trouble, but I had a hard time with the anesthesia, it took about six days for me to be able to stay awake for more than about an hour! That said, when it was done it was done, I went back to work after one week but I had arranged for two weeks off and I do not regret making that arrangement, because I could've needed it.

    Everybody told me to get button-down shirts, but I think button-down shirts. What I did instead was worth stretchy tank top I could step into, with cardigans over them. That way I didn't have to worry about anything over the head. I also bought an expensive lightweight sports bras with stretchy's straps, so that I could step into them. I wore them all the time even sleeping for the first two weeks or so. that I was able to return to my regular clothing and even my underwire bras, I did have to wear my old stretched out ones for a while though, due to swelling


  • ORknitter
    ORknitter Member Posts: 119
    edited January 2016

    MLP3, I had no problems with my MRI, just let my mind wander to all the things I'd rather be doing. They did play music of my choice for me in the headphones

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear MLP3:

    The MRI is face down and you enter feet first.  If you are very nervous then you can ask your doctor for an anti-anxiety medication to make the MRI easier.  Good luck.

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear HappyHammer:

    ADORABLE!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Shamisen, you have to make your profile (each item) PUBLIC for us to see it at the bottom of each of our posts. I can understand why you don't want to leave your pets. But do be prepared and know you cannot do much lifting and it is a real problem if you do.

    HUGS!

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear Molly:

    Good luck.

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear RLM:

    Yes, you can have radiation to your left side.  My bc was on my left side and I had whole breast radiation to my left side.  My RO created a tx plan that would radiate the entire breast tissue w/o radiating the heart or lungs.  My situation was unique because I apparently, had extra breast tissue that wrapped around my sides and part of my back.  My RO had to be even more careful to avoid radiating my lungs too.  I held my breath while the radiation beam was on. I wore goggles that were designed so that the rad techs could see that my lungs had expanded the correct amount.  This helped to keep the radiation away from my heart.  It was a specialized radiation machine.  Your RO will know how to radiate your left breast to keep the beam away from your heart.  That being said, I would ask your RO many questions.  Good luck.

  • 614
    614 Member Posts: 851
    edited January 2016

    Dear Shamison:

    I have had 4 lumpectomy surgeries in my life although 2 were double lumpectomy surgeries.  I felt absolutely fine after all of my surgeries.  However, I had a SLNB, double lumpectomy, and breast reduction/breast lift with my bc lumpectomy.  The SLNB was harder to heal from than the lumpectomy surgery for me.  I do not know whether you are having SLNB or how large your tumor is so these may be factors.  I did not have IORT radiation but I hear that it is amazing.  The radiation is done at the time of your surgery.  How you feel will also depend on whether you will need drains.  I never needed any drains so I cannot comment on that.  I am thinking that you might want to plan to take a week off to be sure that you are fine.  If you need more time off, take it.  I would recommend staying with your daughter because you will not want to do too much with your arm.  I would wear button down shirts.  Please ask as many questions as you need. Good luck.

  • Gemma12
    Gemma12 Member Posts: 137
    edited January 2016

    MLP3 - I was face down, feet first for my MRI, and face down, head first for the MRI guided biopsy. They were done on different machines, so I'm not sure if it was the machine difference or procedure difference that dictated head vs. feet first. I suspect it was a machine thing. The first one was a more powerful and newer machine. I actually fell asleep during the Non-biopsy MRI. The MRI machine is loud, but I had noise reducing earplugs in and I knew what to expect. It was nice to lay on my stomach and having my breasts not smooshed. I joked with my husband that I needed to retrofit our bed with somewhere for my breasts to go when I lay down. :)

    614 - I know... What a 50th b-day present! When my pathology report came in that the cancer had not spread to my lymph nodes my sister said I can now go and celebrate my 50th. Since the first biopsy all my focus has been on cancer and I never really celebrated the milestone. Too bad I didn't win that powerball last night... that would have been a good way to celebrate ;)

  • 614
    614 Member Posts: 851
    edited January 2016

    Hello all:

    I have decided to reply to posts when I read them rather than reading all of the posts and then responding, as I had been doing.  That is why I just posted so much.

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Gemma12 - When I was diagnosed in 2011, I had been in the system for about 6yrs doing mammograms and ultrasounds because my Mum had BC at 40 so Ive always been well ahead of the game. I had every test you can imagine back then, guided biopsy actually said BENIGN, my BS pushed for lumpectomy THANK GOD! it was DCIS - and that is only pre-cancer, the best case scenario anyone could want as its super early before it even bursts into Cancer. My treatment was aggressive he said for DCIS with rads and tamoxifen..thing was it came back in the EXACT same spot 4yrs later and I had huge clear margins and with this dx clear lymph nodes, so its contained. So BS said honestly?? the liklihood of this happening is such small percentage...so just unlucky. So there was definitely nothing there at the dx of DCIS 2011 and I was on yearly full checks, my 2014 checkup I was fine, so its happened after July that checkup and June 2015. Uuuugh!!! Sucks!!! I think this is the thing that has flawed me, I did everything I should have done and it just showed its unpredictability.

    So I say to everyone, stay in the moment, deal with what you have at hand, step at a time...and then just live, live live and enjoy!

    Sloan - Yes LOL I did look around thinking What the??? huh?? me??? really??? I went into shock as I did all my appointments alone. I was devastated, but not nearly as devastated as after my meeting with Oncologist.

    Ladies Ive learned, its NOT what happens to us all...its how we choose to deal with it...that makes the difference :)


  • MJS1266
    MJS1266 Member Posts: 222
    edited January 2016

    Shamisen, Welcome! They usually want you to have someone at home with you for at least the first 24 hours or at least overnight. You'll want to have someone walk your dog for you for a few days at least, if you don't have a yard. I had someone help me shower but other than that I was pretty self-sufficient. I found that I definitely needed button down shirts and PJs, but I had a breast reduction and oncoplasty which is quite a bit of incisions on both breasts. I also had to learn to sleep on my back for several weeks. I did not have IORT, so can not comment on that. Best of Luck, MJ

  • MJS1266
    MJS1266 Member Posts: 222
    edited January 2016

    MLP3, I was face down for the MRI and went in head first. They talked to me through headphones, the machine is quite loud. I won't lie to you, it was not very comfortable, so make sure you as comfortable as possible at the start. It is very hard to stay still and was rough on my back. The initial MRI while uncomfortable was doable. I also had an MRI guided biopsy which was horrible and they won't get me to do it again without serious Valium. Good Luck, MJ

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Cyndinic - My situation is much like yours, my ex has my kids only 2 weekends a month though, eventhough they are 16 & 18 now, its been like this for 5 yrs. Taxol I could drive to and from but wasnt able to work in the end as was too debilitated in pain, but no neuropathy. Its the 4 infusions of the other that was really tough 3 weeks apart but only 4 infusions, these ones I was hopsitalized for 3 of them for 3 days on a drip, my body just didnt cope with the drugs. I cant even take pain killers, too drug sensitive my BS says.

    Radiation 4yrs ago, completely different, worked full time with Autistic Children, plus single mum at that point of a 12 & 14yo, it was only towards the end the fatigue was bad I had 2 weeks off to recover, but so much easier than chemo. I had severe burn at the end worst luck but it heals FAST!

    Blamoms - when I was diagnosed in June, I hadnt had a period for 7 months, I started chemo and OMG I got it for 3 cycles!!! now it has stopped completely...he said Chemo at my age will stop it and I am now menopausal. I work with Autistic Children so can totally relate how difficult it must be in terms of what you share and how much they understand. I'd just keep communicating openly very basically, sounds like youre doing an amazing job!

    Positive vibes for your Hubby getting that job!!! Of course you want him home...I can be honest and say the past 6 months has been beyond hard not having that support of a husband. Im lucky to have a wonderful partner, but we dont live together and its not the same.

    Everyone is completely different, no way of predicting how you will be, so great attitude to wait and see as you go..radiation you absolutely will work all the way through no problems! Hugs

  • Melclarity
    Melclarity Member Posts: 388
    edited January 2016

    Italychic! - Thanks for the tip of magnesium, will look into it!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited January 2016

    MJS, they stuck you in the MRI face first?! Sweet baby Jesus, I would have had a heart attack. It was hard enough doing it the other way (feet first, face down.) I really had a panic attack and felt like I couldn't breathe. I even asked them if they had some oxygen, but they didn't. In the end, I just had to gut it out. I hope I NEVER have another breast MRI~!

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