January 2016 Chemo!

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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    I had day 4 yesterday, it was actually pretty good. I took a half dose of steroids (tapering), and felt shaky for about half the day. Besides that it was good. I went for a long walk in the afternoon, and we went and spent the evening watching Netflix with friends. This might be a bit TMI but we can even made love last night which was really very nice considering I got my buzz cut yesterday and was feeling a bit insecure.I continue to take Claritin every day, and have had no problems with the neulasta. Today is my first day without steroids, I'm hoping it goes OK. I have been awake about an hour, so far so good, it is so nice to not be wired and shaking!

    Water tastes a little bit gross, but I have been making myself drink it, and also Gatorade and gingers or. I try not to drink too much of these things because of the sugar, but I do want to stay hydrated. I have been drinking peppermint tea as well. I am eating OK, I'm not particularly hungry ( I had heard some people eat a lot on steroids, but has not been my experience) but I don't have aversions so bad that I cannot keep my calories up either.


  • Char1110
    Char1110 Member Posts: 61
    edited January 2016

    Looking good Jill! I like the buzz cut. You are rockin it:-). I'm am so happy to hear that everyone's initial treatment is going pretty well. Your updates are helping to relieve some of my anxiousness!


  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Thank you Char! I am so relieved that cycle one has gone well so far. There's been a couple glitches for sure, but I feel like I know how to manage them. I know that chemo is cumulative and the other cycles might be harder, but at least one is almost down, because from what I've heard the next two weeks will only get easier. I am back at work tomorrow so I am hoping that's true!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Jinx I have definitely felt a bit different cognitively, particularly when I am on the steroids, it's a bit hard for me to get my words straight. That said, I'm trying not to let myself worry about this too much, reality is so many people have gone through chemotherapy, and gone on to do great things! We are on a lot of medication so it is no surprise that our heads are feeling a bit weird.

    A client of mine had cancer a few years ago, she had cognitive testing before and after treatment, it was just part of what we were doing because she was a child in foster care. I can tell you that her testing did not change after chemo, and she went on to complete high school! I am confident that you will be able to complete nursing school and go on to have the career you have dreamed of!

  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2016

    I'm new here and just wanted to thank everyone for what they've shared so far. I was diagnosed in December with Stage 3, IDC, 20+ small masses in my left breast, 1 lymph node. Started first of six rounds of T/C chemo on Jan 6 as the first step in my treatment plan. I'm 41 years old with a 6 year old son, recently divorced. This has been a whirlwind to say the least.

    I did get a port put in on Jan 4 and am glad I did since I have tiny veins. The pain isn't bad and the Emla cream kept it pain free the first time they accessed the port.

    I'm feeling not so terrible so far - mostly like I have the flu, body aches, and a sore throat. (anyone else have the sore throat thing? trying to determine if it's a side effect or if I am getting a cold) Exercise does help so I'll try for a walk in a bit.

    Also wondering if anyone else's bone marrow picked up more on the PET SCAN than their team was happy with. My oncologist has said that BC patients secrete a hormone that can make this happen....bone marrow biopsy is scheduled for Jan 20 and I'm not super excited about it. Would love to hear from anyone who has had that done.

    Thanks new friends.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    I haven't had a PET scan, but I had a bone marrow biopsy for my auto immune issue. They used conscious sedation for it, so I wasn't awake and didn't feel anything. If you have the option, that's the way I would go. A guy friend had it done century without being sedated and it didn't sound like fun.

    If anesthesia makes you nauseous at all, I recommend asking for a scopolamine patch behind your ear. Works like a champ. I went to work the day after by bone marrow biopsy. My desk chair was not soft enough. I had to bring a pillow back with me to sit on and then it was fine. Hurt for 2-3 days if I sat on something without sufficient padding.

  • Nebraska917
    Nebraska917 Member Posts: 64
    edited January 2016

    I had a sore throat my first round of TC as well. Also felt like I basically had the flu for a few days.

  • sonyaryan
    sonyaryan Member Posts: 3
    edited January 2016

    Had my first treatment of A/C on January 5. Have been pretty miserable until today. the body aches after the neulastia put me over the edge for a couple of days. I feel better today...just tired and can't seem to get a hold of my emotions.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    sonyaryan have you tried Claritin? My pharmacist recommended I try it with the Neulasta, starting the morning before the shot. I got my shot on Thursday, so I am four days and no aches!

  • sonyaryan
    sonyaryan Member Posts: 3
    edited January 2016

    now that you say that I do recall them mentioning claritin. I will def take claritin next time. Hope it helps! Thanks,


  • Delight55
    Delight55 Member Posts: 20
    edited January 2016

    jenscott I had a bone marrow biopsy YEARS ago in the doctor's office. I think he just used a bit of local. It wasn't the worst thing I've ever been through but sedation would have been nice. My platelet count was bottoming out so I think at the time, a quick test was in order rather than wait to set up something laterwith better sedation. Good luck!

  • MissBee123
    MissBee123 Member Posts: 186
    edited January 2016

    Ugh. Here we go again! Happy Monday


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  • Rockstarteach
    Rockstarteach Member Posts: 20
    edited January 2016

    You have this MissBee! And so cute I might add!

    Ok my face is breaking out! I have always been lucky with my skin! What the!.?! I didn't know this would be a SE. I would like to keep something the same....or should I give up on that for awhile? I know this is something small and not very important but I will have to say I wasn't expecting this

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Good luck miss bee!!!

  • MissBee123
    MissBee123 Member Posts: 186
    edited January 2016

    rockstarteach, I had the same reaction. For me it was the Perjeta. I was misdiagnosed with shingles at first. Call your oncologist and go see a dermatologist asap. I ended up needing antibiotics, clindamycin wipes, and a soothing lotion. It was so painful and was on my face, chest, and scalp. Don't wait because if it's like me, it will just get worse!

    Edit: My dermatologist was not familiar with Perjeta so he was doing a bit of trial and error with what he gave me. Basically we figured out it's a rash that looks like acne, but it's actually a rash.

    I found a picture, ugh. Forgot it was so awful.

    image

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited January 2016

    Hi all. I start my chemo on 1/22 (AC+T & Herceptin). Im so glad I found this topic and so thankful I found this forum or id still be clueless about this whole process! Im waiting on my surgeons office call to let me know when port placement will be. This can all be so overwhelming if you let it, and im trying my best to stay positive through it all. im ready to start this first round of chemo and get on with this fight. Thanks for your inspiring stories and experiences so far.

  • Frill
    Frill Member Posts: 311
    edited January 2016

    Hi, everyone! I've been recovering from a mastectomy gone awry (to say the least lol) and lymph node surgery and start chemo on Jan. 21. I may have overbooked that day, or let them over book me. I travel to MD Anderson in Houston for treatment and will be staying with my sister through the chemo and radiation fun for the most part, with trips home to my honey depending on how things go.

    Anyway, my first day of chemo I also have the CT scan and a bone scan scheduled. Plus the next day I have a super big hearing I'll *have* to be at. Then back to the hospital for blood work again. I'm keeping super positive thoughts that it's not going to be a big deal the first go round.

    I've been getting prepared, I ordered my wig, my false lashes - from a company that donates a set to a chemo patient for every set sold, so super cool, plus tons of teichels from wrapunzel.com. I'm fairly convinced that if I can master those head wraps I'll say screw wigs and just do that. Sooooooooo pretty and feminine and doesn't look like, y'all know what I mean, a bald woman wearing a scarf. I think it's all to just distract me from worrying about nausea and chemobrain and working and the rest of it. It's way more fun to watch scarf videos on youtube. Lol.

    But - y'all got me out walking the dogs today. I know how important and beneficial walking is and haven't been doing it. I've felt the effects, too...that super tiredness like someone is standing on my chest. My goal is to walk at least 20 minutes every day till I start chemo on Thursday. That day I'm going to park far and walk all over the humongous hospital, instead of taking a trolley car. Woo hoo!

    I'm so grateful for you all, and it makes me smile to see MissBee's smile. This is doable - 12 weeks of one kind of crap, 12 weeks of another kind of crap. Two trials during the crap. Piece of cake. We've got this!

  • Char1110
    Char1110 Member Posts: 61
    edited January 2016

    I hope everything went well today Miss Bee!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    day 6. I went back to work, fit in a 30 minute walk on my lunch break. Got pretty tired by the afternoon, and took it easy sitting a lot. Still happy with my decision to try to work!


  • Char1110
    Char1110 Member Posts: 61
    edited January 2016

    Welcome buttaflydiva and frill! I start chemo just a few days before you guys. Trying to stay positive as well. This is a great group of ladies to be on this journey with. Grateful to you all

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    Frill, the bone scan and CT scan take a few hours. It will be a long day.

    My MO said I would feel crappy the two days after chemo. I thought the steroids prevented that? What days have been the worst for everyone so far

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    lmv after chemo day 1 and 3 were the worst. Not awful though (as long as I took my prn antinauseant as needed...just a mild tiredness and queasiness underlying my day.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited January 2016

    I had first treatment (Taxol, Herceptin and Perjeta) on Thursday, it was about Saturday late afternoon I started feeling really tired. Sunday I felt achy, today I felt fine except now I'm noticing the odd feeling / taste in my mouth and a bit of heartburn. No gastro issues so far, which I'll take, I feel very lucky. I worked Friday, I worked today, and went to karate tonight. I'm tired this evening but not like I felt Saturday. I'm sure it will all catch up with me once I start AC in a few months. My nose hairs definitely started falling out though!

  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2016

    Miss Bee, you are just adorable.

  • LifeAloft
    LifeAloft Member Posts: 150
    edited January 2016

    I will be joining you ladies on the 25th, I had my port placed today and a bunch of things scheduled the rest of the week. 

    Hugs and best wishes to you all. 

  • zinny
    zinny Member Posts: 281
    edited January 2016

    miss bee, you have the loveliest smile.

    today is day 8 for me and I feel pretty much normal. Bit of heartburn. Walked 7 km, fast, this morning.

    Missed my claritin last night and woke up in the night with a weird feeling around my sternum - wasn't really like heartburn. Took half of a claritin and went back to sleep.

    Fightergirl, good for you for getting to karate - My husband and kids do it:)

    Frill, I was looking at false eyebrows online:) going to look at lashes too.

    Going wig shopping Thursday - need to go out of town for my big head - have been looking online too. Hoping I won't need to wear it. I am going to look on wrapunzel too.

  • Geeper
    Geeper Member Posts: 164
    edited January 2016

    Hi everyone-

    It was my first day of chemo (Taxol) today. All went well today, I feel good. The Benadryl made me sleepy so I took a nap while having treatment and took a 3 hour nap when I got home. I woke up feeling energetic but might be the "roids rush". Hoping I feel the same way tomorrow. I had salmon and kale for dinner with Perrier and I did not get nauseous but I am wearing motion sickness bracelets and they might be doing the trick. I have not felt nauseous and I am drinking a lot of water. My nurse said to drink approx. 2 liters of water. I have prescriptions for anti nausea and I haven't had to take them as of yet. Who knows tomorrow may be a different story, but I sure hope not. I am going to try and do yoga tomorrow.

    Everyone have a blessed evening! Praying for all of us. Keep fighting and hang in there :)  

       

  • Jinx27
    Jinx27 Member Posts: 238
    edited January 2016

    Happy Tuesday!

    Hope everyone is well and pushing on through chemo :)

    Feeling better today, went for a very long walk yesterday and my body feels great. My cycle came on this morning, I think the headaches were PMS symptoms. I will take continue my multivitamin and iron to keep my energy up.

    @MissBee, your soo pretty! Love the pic. I hope your week goes well. Thank you again for this thread.

    @LovestoFly, thank you for your story, the headaches made me panic you know ? Im not currently working but plan on studying a bit while in treatment.Your daughter is beautiful and I love the new cut on you :)

    @Frill, I remember some of your old posts regarding surgery, I hope your better now. Im sending travelling prayers to you when you go to Houston. God only outs us through what we can handle. Im praying for the best for you!

    I wish everyone a great week! Lets keep pushing!!



  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    It's the morning of day , I'm actually feeling pretty normal ( and slept like mad last night, 9 PM till 7 AM!). The one thing I am noticing as there are some dry patches in my mouth, they don't hurt yet, but I will make sure to keep up my gargling.

  • zinny
    zinny Member Posts: 281
    edited January 2016

    Went to the "Look Good, Feel Better" Session at the Cancer Agency today - free makeup lesson and product! I have been neglecting that step most days, felt really good to perk it up and look more like myself.

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