Starting Chemo December 2015

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  • Lyra10
    Lyra10 Member Posts: 59
    edited January 2016

    Years ago our local station used to do a "Buddy Check 8" reminder to all women to check their boobs, I am now my FB's reminder on the 8th of every month to check your boobs! I can say I'm personally responsible for at least 30 mammograms in the last 3 months because of my diagnosis, so we are the change and we are an inspiration and in this chat room, we can vent, cry, rage & whatever else you want!

    1st pezgal I'm so sorry! 2nd Twirp love the shirt! 3rd looks like my cleaning thing is only in a couple places! 4th thank you proctor for sharing & finally chinacat thanks for the recommendation. I'm headed to Look Good on the 19th.

    Have a great weekend

  • Twirp26
    Twirp26 Member Posts: 178
    edited January 2016

    Lyra10, I applied online and they sent me a step 2 to get a doctors note. It might work for me in the Pensacola FL area. Thanks for the tip!! I'll take what ever benefits I can get for going through this shit

  • Karenbo
    Karenbo Member Posts: 61
    edited January 2016

    So sorry PezGal! Hope you are feeling better and out of that hospital ASAP. Stupid cancer. You will beat it!

    Thanks for sharing the beautiful story Proctor :)

    Love the shirt and your attitude Twirp!

    Have fun at the Look Better/Feel Good mvspaulding and Opt4Life!

    Noni - So glad to hear your lungs are looking better! We'll all do the happy dance with you! Hope the cough continues to be better and you get some more good sleep this week-end!

    Glad to not be in a hospital but bummed that by labs plummeted and am having to delay chemo yet again. Will be increasing the dosage of the Neupogen, staying relatively housebound until Tuesday and trying for chemo #5 yet again next Friday. Starting to get mouth sores today. What fun.....oh well, this too will pass. On the bright side, guess I'll get to relax and watch some chick flicks until I get released to return to work on Tuesday.

    Hope ya'll have a good healthy week-end. Stay strong & fight on!


  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    Pezgal, so sorry. Keep us updated and hope it's a short stay!

    Proctor, thanks for sharing that story, needed it today. It was beautiful.

    Twirp, love that shirt and always love your attitude!

    Noni, take care of yourself and hoping that cough will leave you.

    Karenbo, sorry to hear about your counts and delay. That is the last thing any of us want, to make this longer than needed.

    I worked 3 days in the office this week and really tired today. Hate that it seems we never get to enjoy our weekends asthey are only for resting up for the next week.

  • Trisha-Anne
    Trisha-Anne Member Posts: 2,112
    edited January 2016

    I had my second AC two days ago and my nuelasta yesterday. I was pretty woozy after chemo, but kept the massive headache I usually get in check with panadeine forte, and had been taking claratin for the neulasta. All seemed to work, I'm feeling ok today. Food tastes not very nice, but at least I can eat lol.

    We have something called MooGoo here that's a wonderful cream for all sorts of skin problems. Lots of rads patients use it for rad burns. It's helped my skin a lot and my scalp seems to love it too.

    Sending warm hugs to everyone.

    Trish

    xoxo

  • DoxieMomof3
    DoxieMomof3 Member Posts: 14
    edited January 2016

    Hi, I have a question for those of you that have already started chemo. I am starting on Jan 21, 4x AC and 4x T, every 2 weeks and I am wondering of you ladies that did this regiment what days where you sickest? I am trying to figure out what days I am going to need off of work. I know that when I did TC with my first diagnosis days 3 and 4 were my worst. And did you have to take that shot for your white blood count(I forget the name of it 😳)

    I appreciate it so much!!

    Toni

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2016

    You ok PezGal? Thinking of you...

  • Sloan15
    Sloan15 Member Posts: 896
    edited January 2016

    Hang in there ladies. This will all be in your rearview mirror soon. I finished everything --lx, chemo, rads, started meds -- in Dec. It's doable. I just want to give you encouragement because I know I needed it when I was in the thick of things. Hugs.

  • Karenbo
    Karenbo Member Posts: 61
    edited January 2016

    Hi DoxieMomof3. I'm only weekly T (plus Herceptin). The 2 days following chemo are the roughest for me, so I do chemo on Fridays and can then usually work half days M-Th. Hopefully some of the ladies on AC can give you some tips about that part.

    Oh, I am also getting the Neupogen injection the 2 consecutive days before each chemo to try to boost my blood / lab values. Side effects from it are much less if you take a Claritin the day of each of these injections and your first day of chemo.

    Good luck and wishing you minimal SE Doxie! If you haven't already joined the January Chemo group, I'd highly recommend it. It's been a great source of information, encouragement and support to go through chemo with wonderful December women who are experiencing similar things as myself.

  • Karenbo
    Karenbo Member Posts: 61
    edited January 2016

    Thanks for the encouragement Sloan15! Glad you are doing so well!


  • memba
    memba Member Posts: 20
    edited January 2016

    Hey All! Paranoia has set in folks, sick kid in the house!

    Birdie - Thank you darling, you're too sweet!

    Here's a little alternative medicine to help distract and hopefully cheer y'all up.

  • chinacat
    chinacat Member Posts: 78
    edited January 2016

    doxiemom - I got my 3rd AC treatment on Wednesday. For me, the worse days are days 2-3. There is no chance I could work on those days. As karenbo suggested, you might consider getting your treatments on Thursdays or Fridays. My side effects have bee pretty manageable. I hope it's the same for you.

  • chinacat
    chinacat Member Posts: 78
    edited January 2016

    memba -hahaha!! Thanks for the laugh!

  • Trisha-Anne
    Trisha-Anne Member Posts: 2,112
    edited January 2016

    Doxiemom, I've just done treatment 2 of 3 AC and my worst days the first time around were 4 and 5. We are all different. You won't know your bad days till you've done a cycle. I have more anti nausea meds for days 4 and 5 this time to see how I go.

    All the best xoxo

  • Sammy3
    Sammy3 Member Posts: 136
    edited January 2016

    PezGirl what happened?! I feel like I've been MIA for a week (which I probably have). I am on day 10 or 11 of my 21 day cycle, so starting to feel better. In fact, I may just have a beer watching football today, yes I might! :)

    Twirp your shirts are awesome I need to get some.

    My hair is almost all gone, buzzing the rest of it tomorrow. I love my wig though - even my kids love it - they think it looks pretty natural.

  • KHinMD
    KHinMD Member Posts: 44
    edited January 2016

    proctor1725 - Thanks for the touching story.

    Twirp26 - Awesome shirt as always. Keep 'em coming.

    PezGal - Hope you're doing ok.

    Karenbo - Hope you are good to go on Friday.

    mvspaulding - I worked 2 days this week and was pretty wiped out by Friday. I was doing lab work, so I have to make sure to take it easy and get a good night's sleep. I plan to work all of next week. Then I will be taking the week of the 18th off following treatment 3.

    Nice to see some football fans here. I caught bits of the Chiefs/Texans game. They had a story about a Chiefs player who was diagnosed with Hodgkin's lymphoma in Dec 2014. He finished chemo in May, and was cleared to return for training camp in July. He was selected for the Pro Bowl this year.

    The governor of my state also battled cancer last year. He announced he was in remission around the time I was diagnosed. He befriended a little boy during his chemo treatments who was very encouraging and gave him advice. These are the types of stories that are good to hear at a time like this.

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    ok pretty much my whole head is broken out with red painful bumps. Anyone else have this problem? If it's not one thing it's another.

  • KrisCrzala
    KrisCrzala Member Posts: 32
    edited January 2016

    Hey ladies!! It's been a while!!

    Pez - hope you're doing fine. Damn cancer!!

    Doxie - I'm on AC every 3 weeks on Thursdays. My bad day is Monday which isn't really that bad. I get fatigued, nauseated and a headache. Usually comes in the afternoon and I just go home and rest and take my meds. Everyone is different.

    Proctor - loved the story!! It is so nice to hear something so touching rather than all the bad stories. It brought tears to me. I am much more emotional and inspired by those kinds of stories since being diagnosed. I am so grateful for the second chance.!! Thanks again.

    I have a wig and I'm not wearing it much. I hate anything on my head but I do wear scarves to work. At home I go bald. My 2 1/2 and 1 years grandsons were freaked out at first. They just kept looking at me with an open mouth. I kept talking to them and then they realized it was Nana. Now they're fine with it. It's pretty cute.

    So I had my mastectomy on Nov 11th and they had to defer my chemo by 1 week because I still had a drain tube. So they took the tube out even though I was still draining so I could get chemo started on Dec 10th. Ever since, I have had a build up of liquid that I have to keep going in to have removed. Yesterday, I went in for the 4th time and my surgeon decided to but a catheter in with a drain tube. Can you believe it? I got my drain tube back!! Unreal. LOL As if chemo, baldness and SEs aren't enough. I just can't stop laughing. Good thing is he said it shouldn't take long to stop draining and it looks like it already is. That would be a relief. And I noticed a couple days ago that my chest area where I had the surgery was numb. When he put the cath in I didn't feel a thing. Anybody have the same thing? I asked if this is normal and I guess it is because of all the nerve damage.

    Had my 2nd infusion on Dec 31st and had minimal SEs. Except I am definitely have a taste issue. Getting better already.

    Thanks for the tip on soy. I knew you weren't suppose to have it but I wasn't sure why.

    Hope everybody had a better tomorrow.

    Kristie.


  • Twirp26
    Twirp26 Member Posts: 178
    edited January 2016

    mvspauling, YES!! I also have painful red bumps on my skull!!! I don't wear anything on my head while I am home, usually wear a scarf or beanie when I go out. Sometimes wig to dinner etc. but I think if I didn't have these horrible red bumps I would go bald in public. It just feels better. I'm not sure what to put on them. I still have stubble that will not drop. My skin has been a mess too. 2nd week is my breakout week. I feel like a teenager again. (Not in a good way) lol.

    Kristie, I have not had the pleasure of the drain system yet. I have 2 more treatments until surgery but that is my next step. Does not sound fun. Not that any of this is.... Hang in there everyone. Oh, get ready for the next shirt. Lol. It's risky;)

  • DoxieMomof3
    DoxieMomof3 Member Posts: 14
    edited January 2016

    Thanks everyone! I think I will just play it by ear that first week at work after my first treatment to see how it will affect me so then I know what days to schedule myself off for the rest of the treatments!


  • proctor1725
    proctor1725 Member Posts: 33
    edited January 2016

    Someone told me to use Cocnut Oil (i.e., from the grocery store - it looks like Crisco) on your head. I used it 1-2 times per day since shaving my head and no issues. I also had the same little red bumps after chemo randomly popping on my face, arms, chest (like that needs any more trauma). I grease up 1-2 times per day and it seems to help. Skin So Soft and Eucerin seem to keep it at bay for me. Also, for anyone having dry nose and nose bleeds....I use a bit of Vaseline on a qtip in my nose 2-3 times per day and that really seems to help. Hang in there ladies! Hugs to all from Texas!

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    Kris, sorry to hear about the drains. That is a pain. In answer to the numbness. Yes, my whole chest is numb. I have tissue expanders in for my reconstruction which my plastic surgeon periodically fills with saline. She sticks a needle with big syringe right through my skin to the expander and I don't feel anything but a little pressure. It is a very odd sensation.

    Twirp, I researched the bumps and I think it's folliculitis. It can be bad if one gets infected so I called my MO office today to see if there is an ointment or something I can put on. My head was hurting to sleep last night.

  • Sloan15
    Sloan15 Member Posts: 896
    edited January 2016

    mvspaulding and twirp - you may have folliculitis, an infection in the hair follicules. What happen is that every hair on your head has gone Eeeeek! and the base flames up. You have to go on antibiotics if that is what it is. My MO and PA didn't know much about it because there are so many skin "things" , but I went to the dermatologist and it cleared up. I was worried about scarring, but that didn't happen at all. I called and told the derm I was a cancer patient with folliculitis, and they got me in the next day. Sooooo worth it because it won't clear up on its own. Not problem or conflict with chemo. I think I was on kelflex or something like that.

  • Sammy3
    Sammy3 Member Posts: 136
    edited January 2016

    Twirp and anyone else using the Lindi skin care - did you notice that the full size order was a little different than the sample? I ordered a few things, but the one that bugs me is the serum. I ordered the citrus and I can barely stand the smell of it. The sample size one though I really liked - it was a light citrus. The new one is really strong. Just wondered if it was just me. I am squeezing out every last drop of the other, lol.

    Proctor - you said you put vaseline in your nose & I just wanted you to be careful. Apparenly you can aspirate that to you lungs and it isn't good. Spaulding told me a while back about AYR nasal gel and its a flipping life saver. You can find it at drug stores by the nasal saline sprays. I use it all the time and its wonderful

  • Sammy3
    Sammy3 Member Posts: 136
    edited January 2016

    Oh one more thing - does anyone else self-inject their nuelasta? I don't mean the pod thing. I live about an hour from where I was treated and I was given the three options: drive back for the injection, do the pod timed injection thing, or take home the syringe and inject myself. I chose to inject myself. Anyway, I just wondered if anyone else was doing that. It freaks me out a little, but so far so good :)

  • stotamom
    stotamom Member Posts: 41
    edited January 2016

    mvspaulding and twirp - I have not had the problem yet. I did read here on the site that it is common and probably folliculitis. I read that one should use baby shampoo to wash their scalp and to try putting a small bit of hydrocortisone on the rash. mvspaulding - if it hurts to sleep on I would def call for an oral antibiotic. Hope both of you feel better and your heads clear up soon.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2016

    Has anyone had a problem with hearing loss or ear ringing with chemo? Particularly Carboplatin is known to be ototoxic. My hearing was severely impaired by my first 4 drug infusion on December 22 and has not yet come back.

  • Sammy3
    Sammy3 Member Posts: 136
    edited January 2016

    I have not Birdie, and I also get Carboplatin. However I do know that if you catch those things early and adjustments are made, its possible to it not be permanent, so make sure you tell your doctor for sure!

  • KrisCrzala
    KrisCrzala Member Posts: 32
    edited January 2016

    Myspaulding - thanks for the info. Thought I might be nuts about the numbness by my surgery site.

    Hope everyone is having a good night.

    Go Pack Go!! :)

  • lawyer180
    lawyer180 Member Posts: 36
    edited January 2016

    Hi ladies, I hope everyone is managing their SE. I had AC #2 this past Tuesday, so my bad days were Fri thru today, although today I didn't have nausea, just super tired. I also got the Neulasta and took Claritin and thankfully didn't have any bone/joint pain. I really appreciate reading everyone's updates, it reminds me that we're not going through this alone!

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