Port dye study

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homeschool4us
homeschool4us Member Posts: 255
edited January 2016 in Stage III Breast Cancer

Anyone have a dye study done on their port? I am not getting blood return on my port consistently so they want to do one in 2 weeks. I am wondering why they need to sedate me.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2016

    I've not heard of this. Interesting. A few times when I've gone for a flush, they have trouble. They tell me to stay hydrated, and send me off to regular lab. My port has been in over 3 years.

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2016

    I have never heard of a "dye study" or had any problems with infusions or flushes. Well there were 2 times but both were Student RNs and were just trying to be 'gentle' to not 'hurt' me and just did not push the needle in firm enough. (Hey ; couldn't 'hurt' me as I had used my numbing cream.). Anywho - they learned. My port has been in since Aug '09 so I've had MANY flushes.

    Question - if they can't get a return, how are they going to infuse the dye?

  • exercise_guru
    exercise_guru Member Posts: 716
    edited January 2016

    I had a dye study on my port but they didn't sedate me at all they just had me go down the radiology and lay down and put some dye in there and watched it on the scope. My port study took like 20 minutes.

    I have read sometimes a port works fine for Chemo but not draws.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2016

    My port worked like a charm until just before I had it removed, and it stopped withdrawing blood easily. It could still infuse, just the draw back was difficult. I can't imagine why you would need to be sedated for a study like this.

    Kicks, why have you kept your port for so long?

  • homeschool4us
    homeschool4us Member Posts: 255
    edited January 2016

    Yeah, mine wil infuse and flush just fine, but often they can't get a blood return and it won't work for blood draws. For chemo, my center absolutely will not give you chemo through your port if they don't see a return first. So, the dye will be able to go in just fine.

    I sent a message to my MO and she is going to see about why they want me sedated.

  • ml143333
    ml143333 Member Posts: 658
    edited January 2016

    I had a port dye study done but was not sedated.  I went down to interventional radiology and it took about 20 minutes from start to finish.  It turned out that the catheter in my jugular had a crack so we went back in to Ambulatory Surgery and had the port removed.

  • diana50
    diana50 Member Posts: 2,134
    edited January 2016

    I had issues with port they did do a study where they basically inject dye to see where the blockage is. It was simple and no sedation. Radiation intervention did the study. The problem was resolved.

  • mary625
    mary625 Member Posts: 1,056
    edited January 2016
    I too am interested in knowing why you ladies have kept your ports for so many years. Are you still receiving treatment?
  • dutchiris
    dutchiris Member Posts: 855
    edited January 2016

    A port dye study isn't difficult. I have had one as well as assist with these studies. You port will be accessed just as it is for your chemi infusion. Contrast media ( xray dye) is injected and xray images are obtained. It doesn't take long. I'm don't know why one would need sedation.

    I still have my port after almost 3 years. I'm stage 3c and my disease was "extensive" ( large tumor, 19 positive lymph nodes, etc.) after having noeadjuvant chemo. I go to the cancer center for a Zoladex injection every four weeks anyway and just get my port flush at the same time. I decided to keep my port as I am at high risk for recurrence and maintaining it doesn't required any additional appointments for me. I think if I had to go to the cancer center more just to get it flushed every 4 - 6 weeks might have had it removed by now.

  • homeschool4us
    homeschool4us Member Posts: 255
    edited January 2016

    Well, my MO messaged back that they sedate you in case they have to replace the port. But if they don't, you were sedated for no reason so it seems really odd to me still. I think I'll call tomorrow and question it more.

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2016

    I can only speak for myself!

    My port is my little soldier standing guard with rifle at ready to attack the Monster IF it ever tries to attack again. It is there to keep Monster from trying to attack AND if the Monster does attack to be ready to repel Monster.

    Yes - that is a somewhat juvenile way of 'visualizing' but works for me. I'm IBC so 'odds' are that will possibly/probably need a port in the future. So for me (with my PA's approval) makes sense to me to keep it in place if needed. It does not bother me at all - just go every 6 weeks for a flush. IF I were to need a port again in the future, it is already there and ready. If it had been removed and a port was needed again, then another surgery would be needed (and time) to put another one in. Another one would also have to be put in a less confident/comfortable location because can not be done on same side or on UMX side.

    So it's a lot easier(potentially) to keep it where it is and is ' my little soldier standing guard' - 'protecting me'.

  • Kathleen26
    Kathleen26 Member Posts: 210
    edited January 2016

    I had a feeling when I read your original post that the reason was in case they decided to go in and remove/replace it. It's for efficiency's sake, so more of a convenience for them than for you, except for your time. If you're not comfortable with that, and you're willing to wait either a longer time or until another day to remove it, then you should turn down the sedation if you don't want it.

    I also still have my port (since April '10), and get it flushed every 8 weeks. So far, I have never had a problem with it. I keep it for reasons similar to Kicks. I have the additional issue that I have had radiation (and MX) on both sides now, so they mentioned to me at the time that it wouldn't be that easy to site another port, so I figured I would just hang on to this one and keep it ready in case I ever needed it. I've actually had it used for several unrelated surgeries that I've had since chemo.

    Recently a new MO I've got mentioned that I should consider removing it because it could lead to blood clots, especially since I am on Tamoxifen, which is associated with blood clots. I hadn't thought of it that way before, so now I may consider removing it. It did make me plan to get a flush a few days before a very long (14 hour) plane trip I'm getting ready to take next month.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2016

    I still have mine, don't want it out. I've been told I'm high risk for reoccurrence. Before all the tests, based just on mamo, they thought I was Stage V. My current MO agrees, keep it.

    It's possibly two surgeries, two copays, two risks for infection, extra pain. No thanks.

  • homeschool4us
    homeschool4us Member Posts: 255
    edited January 2016

    So, if they have to replace my port next week, where would they put it? can't put a new.one in the same place? It's on my non mastectomy side now and I still have rads to go.

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2016

    Nope - according to my Dr(s) can not be placed in the same location it is/was, can't be placed on mast. side so basicallly leaves the arm (or leg). That's part of why I choose to keep mine exactly where it is - other potential sites (IF needed in the future) would be much more inconvient/uncomfortable.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2016

    I wonder why it can't be placed back in the same place?

    One of the last times my port was flushed I became very ill almost immediately, with a high fever and strange "crops" of cellulitis in a variety of places on my body. They theorized that my port had somehow become colonized with bacteria and the flush had pushed it out into the bloodstream, causing mischief. Not long afterward, I had my DIEP recon, during which the port was removed from underneath--no new scars on my chest.

    I can understand hanging on to it, if it represents comfort, safety, protection. For me, it was just a constant reminder of the journey and even without the bacterial issues, I pretty much wanted it gone.

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2016

    Can't go back in CT the same place because of the scar tissue that would be there from the original implant and where it enters the vein. At least that's what I was told by my Drs and makes a lot of sense to me.

    We are all different - I do not dwell on the fact that the port is there (other than it's my 'Little Soldier' protecting me and ready for battle IF ever needed. IF I wanted to dwell on 'something' that is from IBC - it would probably be dealing with LE - but I refuse to. I live every day to the utmost I can and 'anything' from the past is just that - from the past, not today or tomorrow.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2016

    Kicks, you go, girl. Here's hoping that the little soldier stands on guard, bored and inactive, forever.

  • homeschool4us
    homeschool4us Member Posts: 255
    edited January 2016

    Now, I'm nervous because I don't want the port in my arm or leg. I'm surprised I've never seen anyone with one anywhere other than the chest in the infusion rooms. I wonder what people who had double mastectomies do? How would they access a leg port?

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2016

    No matter the location, ports are accessed the same way (at least from all I have seen/read).

    PICC Lines are also used for some that surgery to implant a port is not advised. They are usually put in an arm vein and take quite a bit of care. PICC lines go back, time wise, before ports.

    Not sure where a port would be put with BMX but with a BMX then BPs and blood draws/IV access is done on legs.

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    It can be placed on on the mastectomy side.

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2016

    ksusan - hmm, I was told that the mast. side could not be used.

  • GG27
    GG27 Member Posts: 2,128
    edited January 2016

    I had a BMX & I have a port, on my chest. I know others in the same situation.

  • homeschool4us
    homeschool4us Member Posts: 255
    edited January 2016

    I asked the nurse in the infusion room today and she said she sees lots of double mastectomies and the woman have port in their chest.

  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited January 2016

    You port can be placed in a number of places, some people have them IJ --upper chest into jugular vein and others have them placed on the underside of the arm. You can have it placed on either your mastectomy side or the opposite side, it's your choice but your surgeon will make the final decision. I had my port removed when I was done---I was cured and I wouldn't need it anymore. My surgeon wanted to put my new port on the left side (cancer side) because my old port had been on the right. I insisted he try to put it back where it was, there was already a large divit where the old port had sat. He told me it wasn't the best idea due to the possibility of scar tissue, cellulitis, infection, risk of the vein being too scarred, he would need to go above where the catheter sat IJ to avoid occlusion and it might be tricky getting by scar tissue. He gave me the risks and let me know that it would end up where he thought it best if things didn't go the way he wanted. I insisted I wanted it on the right. He said he would put it on the right, as close as possible to where the previous one was. When I awoke, I fully expected it on the left but that talented man opened my old scar and placed my purple power port almost exactly where it had been, just millimeters higher to get the catheter past where the old one sat. You need to be insistent and have lots of confidence in your surgeon but there are lots of options.

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