Winter 2015-16 RADS

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  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Dang, Cubbie- that is rotten luck for sure! You are right though, always thought tattoos sounded painful...yep- they ARE! Hope your skin heals quickly from the allergy issues.

    Marijen- have gained 5 pounds since Thanksgiving but these past few days of radiation have been tiring and I just haven't felt like eating much. Feel like it is my good luck to try to get the 5 off before starting the Estrogen blocker.

    My MO had indicated I would start the oral meds day after rads ended. The RO said we would probably need to wait a week or two after rads ends to let me skin heal. He assured me a week or two would not make a difference. Am hoping not- still on Herceptin until end of May. SO weird based on reports of others because, rads has been the hardest thing yet....emotionally and physically. AM SO over it. Hoping the boosts do not BOOST the bad places on my breast. Will be interested to see on Monday. Interested...not excited.

    Ok, so just realized that as happy as I am about hair growing back in- realized tonight that on the top of my head- the right side is growing up and to the left of center and the left side is growing up and to the right of center....beginning to see the beginnings of the "electrocuted chia pet" haircut. Oh MY!

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    HappyHammer sorry about your hair, that is a bummer!! Thanks for reminding me - another thing to ask the RO about stopping Letrozole while doing radiation - adding it to me list. I have not gained any weight on AI, in fact my appetite has decreased but because I've been stuck in all winter recuperating from three surgeries, I haven't been out doing my 30 min. walk everyday, or out running around doing errands. Snow and rain and freezing temps don't help. I'm not looking forward to radiation even though that will be the end of it for a bit. Yearly mammo exam coming up in April.

  • etnasgrl
    etnasgrl Member Posts: 650
    edited January 2016

    Okay, another question....

    I plan on using the Aquaphor right after the treatment each day, before putting my bra back on. For those of you who did that, what did you do to prevent the Aquaphor from getting all over the inside of your bra?

    Any tips?

  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Hi etnasgrl - I kept a pocket pack of Kleenex in my purse for this. They are so much softer than the standard issue tissues at the hospital! I usually have enough cream on that they stay in place while I'm getting my bra on.

  • marijen
    marijen Member Posts: 3,731
    edited January 2016

    Has anyone seen this?


    Breast cancer patients 60+ with luminal A subtype may not need radiation if on hormone therapy

    http://www.medicalnewstoday.com/releases/293747.php

  • 1957-2057
    1957-2057 Member Posts: 35
    edited January 2016

    Congratulations to those who have finished, WTG!!! I go to my first treatment on Tuesday, 25 & 8 boosts. Got the call from the rad nurse Thursday. Here is the strange thing, he explained the first time I will have 5 xrays then the RO will review those then a regular treatment, 2 xrays and my treatment. Why 2 more xrays I ask? Well you get 2 with every treatment to assure positioning on the table. I don't know why but this really bothered me. I mean heck I am getting all this radiation why do 2 xrays a day bother me?

    I told my husband by the time I am done he won't need a night light I should give off a glow.

    I also opted to participate in a study of 2 cremes, Curcumin and HPR Plus. Of course there is a third one which is a placebo. Told my sister to pray for me that I at least get one that isn't the placebo, it will probably be butter - haha. I thought hey it might help me feel like I was doing some good while going through this. Maybe the results of the test will better help someone down the road lessen their SE's. Whatever I get I am to use 3 times a day starting from treatment 1, nothing 4 hours before treatments.

    I get to schedule all my treatments Tuesday as well. Hoping for very early am appointments so I don't have to come and go from work. I plan on taking my gel ice pack with me and putting it on afterwards over my clothes on my way to work. I am hoping it will cool the top layer of skin enough after to maybe help lessen my SE, I have heard so much about the cooling cloths.

    Shaved my armpit for the last time yesterday, RO said I should not shave it during radiation. He said it would just be more stress on my skin.

    I still feel sometimes like this is all not happening to me that I will wake up tomorrow and think wow what a crazy dream that was.

    Best wishes to everyone for next week, I hope you all have relaxing trips to this crazy tanning bed. Thank you everyone for all your comments and information, why they call this a support group I don't know as it is so much more than that.

    Helen





  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    Etnasgirl I was wondering the same thing about what to keep the lotion from getting all over the inside of my bra. What does anyone else use beside a tissue? Anyone use gauze pads

  • LindyC
    LindyC Member Posts: 231
    edited January 2016

    Shopgal, I just picked up some soft cotton tank tops at Costco. You can get them anywhere so look for the thinest fabric, no ribbing. The thin ones go under the bra and you can be sure the cotton will be easy on your skin. Some may not find it comfortable, depending on the bra style but it's worth a try.I just started treatment so I'm slathering on the lotion regularly and at night I'm wearing mens xl undershirts with short sleeves to bed. I didn't want the cream to get on anything "good".

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    ShopGal- Think gauze will be too scratchy...maybe not at first but as you progress. Have gone to wearing a cami under a wireless bra...it has helped with comfort and am not planning on continuing to use them after rads is over.

  • octogirl
    octogirl Member Posts: 2,804
    edited January 2016

    1957...I got X-rays once per week. Every day does seem like a lot. The tattoos and markings are supposed to help with the table positioning, I thought. Maybe ask the RO?

    I have been putting my cool cloth under my bra, and washing it every day. A light cami under the bra would make sense.

    Hugs to all

    Octogirl

  • sailorgirl15
    sailorgirl15 Member Posts: 114
    edited January 2016

    Hello everyone!

    I am 11 days PFC and had my first rad set up appt last Monday. I start rads on Tuesday, Jan 12th.Thanks for setting up this group Mary!

    All your posts are so helpful as were the Sept chemo ladies' posts. Great to have lots of real time help and advice.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Xrays once a week for me as well.....daily seems a bit much? I'd ask the RO as well before getting into that kind of schedule.

  • 1957-2057
    1957-2057 Member Posts: 35
    edited January 2016

    Thanks I will ask why, I have tattoos. I don't think I heard wrong.

    Just saw this, I don't know anyone on Chemo right now but thought someone might want to pass it along.

    www.cleaningforareason.org For anyone going through Chemo this organization will find a local company to clean for you once a month for 4 months while you are in treatment at no cost to you. I saw it on Facebook but might be worth checking out. Anyone having chemo could use extra help.




  • etnasgrl
    etnasgrl Member Posts: 650
    edited January 2016

    Peachy2 - Thanks for the tip! I like the idea of using a tissue and those little tissue packs are easy to carry in my purse, so that will be perfect. Thanks!

    Smile


  • Peachy2
    Peachy2 Member Posts: 350
    edited January 2016

    Helen, can't tell you how many times I've said that too: "I still feel sometimes like this is all not happening to me that I will wake up tomorrow and think wow what a crazy dream that was."

    That, and "I've lost track of the number of people who have now seen my boobs within ten minutes of meeting me."

    We should start a list of things that we never said a year ago. Like last weekend when we were getting ready to leave the house and I was brushing my teeth, my ten year old son helpfully said "I'll get your hair for you Mom!" This new normal is a crazy one, isn't it?



  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    hey Lindy! HappyHammer (cool name) I did get some long cotton tanks from Walmart. I think I read about them on the lumpectomy lounge board a few months back. They were under $2 a piece. I figured they were long enough to tuck and thin enough to wear under a soft cup bra. I do think I'm going to get men's undershirts too. Great idea!

    Sailorgirl I start the day after you if ro is ok with the set up (I hope!). It was moved up a few days; supposed to originally start 1/18.

    Peachy that is too funny about your son and your wig. I almost left for the gym today without my hat. Totally spaced thinking it was already on my head. Duh me. My itty bitty fuzz almost felt like a head covering.

  • lindab142
    lindab142 Member Posts: 105
    edited January 2016

    Fearless, hope you get the 16 plan. I'm 1/2 way through and then 5 more days to lump site. It's getting old, I admit.

    Catfur, I don't look that great without a bra in all shirts, so if I'm layering I don't wear one. For tight shirts I might. Hope you feel better soon.

    I slept most of the day yesterday and took a nap at night - feeling rundown a bit. Today, working on my website and on Facebook instead of working on taxes.

    Suz-Q - thanks for answering. I also have high blood pressure. And I get motions sickness.

    Had a lot of pain twinges on Fri. after treatment and boob felt hot - used ice cubes.

    DH made dinner. Hugs to ya all.


  • PattyMeg
    PattyMeg Member Posts: 56
    edited January 2016

    Congratulations Octogirl! Two more weeks for me.


    I have to wear a bra 24/7 because I had a reduction done with my lumpectomy, so it has started to become a little uncomfortable at night. Out of desperation the other night, I took two overnight maxi pads and tucked them under the bottom of my bra. It sounds crazy, but felt great. Nice and soft.

  • Jd2015
    Jd2015 Member Posts: 7
    edited January 2016
    • I started 33 days of Radiation on 12/29/15. I cried during the first treatment. I had to skip one day because of a breast infection. It's getting easier each time. I'm still in shock that at 38 I have breast cancer.
  • Natejordlee
    Natejordlee Member Posts: 61
    edited January 2016

    Jd2015 - Sucks to deal with for sure , I was 40 and was blindsided by it for sure. I see your new to the board so welcome, couldn't find a better group of women ! This is a very busy thread so I am sure there is a lot of helpful information. Sucks about the breast infection , was it from the rads? I am heading into 6 of 25 tomorrow. So far not too bad a little irritation under my breast and a little tired. I had a drain inserted mid December for a Seroma so managing that around the area is a pain Good luck to all the ladies this week !

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Ok...so, starting 7 boosts tomorrow...this weekend has been so uncomfortable/painful/weird....VERY uncomfortable no matter what I have done. Does ANYONE have any ideas on what to do about the area of the nipple during rads? (They had put tape on it during rads each day- thank goodness!) I have several places that are very sore and look like they are ready to open up on the full breast area...but the nipple area is such a difficult thing because it feels better for my breast to be very tightly constricted. Anyone have same kind of issues? I still have over a week of rads....hoping boosts aren't in nipple area but even if not...may still cause issues....just asking for help if you also had this prob.

  • Suz-Q
    Suz-Q Member Posts: 205
    edited January 2016

    Octogirl, Congratulations on finishing! I'm right behind you, my last day is Wednesday!

    Marijen, I read the article and I have felt all along that radiation is overkill for my situation. In hind sight I really think partial breast radiation would have been enough. My RO said that he expects in the next 5 years we will see a lot of change in cancer treatment. I believe more individualized care plans will emerge.

    1957, I got x-rays everyday of my whole breast treatment. They would line up the images on the computer and adjust the table accordingly. I'm glad they were making it as accurate as possible.

    Ha ha Peachy2, I'm with you about losing track of how many new aquatints have seen my breast in the last few months! Loved your wig story!

    Jd2015, I feel for you. I felt really stunned and lost too! Just before starting rads I couldn't stop crying all of the time. I made an appointment with my primary care physician and he put me on Celxa an antidepressant. I feel like a new person. I wasn't handling any of this cancer business even though every test came back great and my prognosis is excellent. All I did was get more and more unhappy. I couldn't believe that I could get cancer. I was/am one of the healthiest 56 year olds that I know. I thought I was doing everything right. I had a healthy diet, maintained a low BMI, exercised regularly, etc. and was totally stunned with the diagnosis. If you are this unhappy, Don't wait, get help! My doc said he would help me get off the meds when I needed to. Good luck!

  • octogirl
    octogirl Member Posts: 2,804
    edited January 2016

    Meant to add that my RO tech had mentioned maxi pads...but dumb question maybe: don't they have adhesive? (I am several years into menopause and can't remember...) I guess you just leave the adhesive strip cover on (?) , since they aren't supposed to absorb, just soften (I'm sensitive to adhesive so pretty sure my skin wouldn't be able to handle any).

    Hugs;

    Octogirl

  • PattyMeg
    PattyMeg Member Posts: 56
    edited January 2016

    I left the adhesive strip on and put the pad side to my skin and the adhesive out.

  • Suz-Q
    Suz-Q Member Posts: 205
    edited January 2016

    HappyHammer, my nipple was really itching and sensitive, but once I started the boost it seems normal. My nipple is in my boost area because my scar is located at the edge of my areola, and the scare is always included in the boost too. They are using 6Mv electrons for my boost. I don't know if electrons versus protons makes any difference

  • Catfurr
    Catfurr Member Posts: 69
    edited January 2016

    Peachy-I feel like everyone with a dr in front of their name has now seen mine! And their nurses! Wonder if my dentist will be impressed 😄

    HappyHammer-are you having any SE's from the Herceptin? I had my second one on Thursday, have had a very sore throat and blisters in my nose. I had aprox 10 in my mouth after the first one. Hoping this gets better. I'm on Herceptin every 3 weeks til June. Magic mouthwash isn't touching this pain.

    Lindab152-feeling better, still coughing a lot and using inhaler more than I should, but so far, my lungs are still clear👍 btw, keep small frozen pea bags just to use on my breasts. Not heavy and kinda molds around them.

    1957-2057--Cleaning for a reason has done my house twice. 2 ladies came and worked for and hour and a half. They got a lot done! I think they are available for 4 months, while going thru any treatment, not limited to chemo. They'll come on e a month. I also got a grant from the IWin foundation that paid $250 for services of my choosing. Could be yard care, massage, yoga, house cleaning or gift cards for groceries or gas. I gave the checks to my friend who'd been cleaning my house without ever being asked to be paid. It helped both if us! I think IWin foundation might just be an Indiana thing tho, but I'm sure other states have something similar.

  • Cardinal
    Cardinal Member Posts: 24
    edited January 2016

    hi folks - in the home stretch starting last full week of rads today with 4 boosts finishing next Monday. Overall, skin doing very well so far and earlier rib/side tenderness has been relieved with use of compression type bra (lucky my skin has held out this far to allow me continued wear!). Doing well with minimal fatigue (despite regular insomnia) which may be in part to managing a 60-90 min walk daily at a good clip, which has kept 18 mth old Portuguese Water Dog very happy :) Our mild winter so far has been a blessing - timing is everything!

    I have really tried and done well in maintaining my usual positive attitude throughout treatment despite some pretty unsatisfactory and frustrating admin glitches and lack of information on this leg of the journey. After having my long overdue MO consult on Friday, I had my first emotional meltdown yesterday since initial diagnosis after reading and researching the hormonal therapy and possible SE that I will be moving on to. I had looked at this whole event as an obstacle to tackle and then get on with life. I think that I am only just starting to realize the impact that this event will have in my future for a very long time, and the idea of 'the new normal' starting to sink in. I do count my blessings, and know that things will get better, but this has been one of my more difficult stops along the way.

    My apologies for the lengthy post - I have an abundance of supportive friends and a wonderful SO, but it is only those here that can really understand. Wishing you all a good start to the week and some kind and happy moments to help along the way.

  • Suz-Q
    Suz-Q Member Posts: 205
    edited January 2016

    Cardinal, Sometimes they will do two treatments in one day if your last one ends on a Monday. You should ask. I hear you about the SE's of hormone therapy. I looked at them over a month ago and I'm not looking again. I'll make myself crazy if I do! Been there and done that with Radiation!Many women don't have side effects. I'm taking it one day at a time. I meet with a MO on Thursday. I met with one already at the beginning of December. I didn't have any warm feelings for him so I'm trying again.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Catfurr- so sorry about the blisters! I had some areas in my nose early on but they determined it was staph and put me on an antibiotic. Until chemo/biological, I had never had staph...now have had it 3 times since July? Maybe you could ask about that being a possibility? .Or, have you talked about this on the HER2 thread to see if any of those folks have suggestions? Not having any SE's with Herceptin only...tired, but am chalking that up to rads. Hope you can get that cleared up soon...pain is no fun! Hugs.

  • ctgal48
    ctgal48 Member Posts: 11
    edited January 2016

    Today is treatment # 9. I am halfway there. My RO said I will not be having any boosts. She does not feel that they are necessary due to a small 5 ml tumor and very good margins. Based on what I have read in all the posts, I hope that this is the right decision. My skin was starting to get pink when she checked it last week. Most of the problems, if there are any, will start after my treatments are complete. I do have a burning sensation during the night and over the weekend I noticed some redness under the breast.

    I have lost about 6 pounds since I met with my MO on Dec 7.

    There is no followup planned after my treatments are complete. I told her that my surgeon has scheduled a mammogram in May, 6 months after my surgery. She stopped short of telling me to cancel it. She thinks it is best to just go back on a yearly mammogram schedule. I plan to keep the appointment and meet with my surgeon as scheduled. Then I will continue with annual mammograms.


    Did any of you not have boosts? I certainly would like to see this come to an end and the sooner the better, but if getting 5 more treatments will prevent a recurrence I would be willing to do 5 more.

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